LUPUS FOUNDATION OF NORTHERN CALIFORNIA

Rating: 4.74 stars   108 reviews

Issues: Health, Cancer

Location: 2635 N First Street 211 San Jose CA 95134 USA

Mission: To be a premier source of information on lupus by providing programs ana services designated to educate and increase the knowledge of those affected by lupus, promote lupus awareness, and support external lupus research efforts.
Geographic areas served: Northern California
2014 Top-Rated Nonprofit
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EIN 94-2469741
408-954-8600
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Community Reviews

Rating: 5 stars  

I have volunteered for LFNC for almost twenty years in Sonoma County. I love the people I've met in our support groups. We have made a queen-size butterfly quilt as a fundraiser and made more than $1,000 by selling tickets. The members of the support group are very encouraging to each other.

If I had to make changes to this organization, I would...

I only wish I had more time in the day to help new people that have just found out they have lupus.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2014

Was this review helpful? 
Rating: 5 stars  

I started off getting involved in LFNC as a Lupus patient and soon fell in love with the organization. All the effort and these amazing people put into helping people who felt so hopeless and alone when they were first faced with their diagnosis is obvious the second you meet them. There seems to be a very warm welcoming energy about the foundation and all the people there. I felt right at home only after a few visits. Then before I knew it I was volunteering because I wanted to be a part of what they did in making a difference in people's lives. I am so grateful to have found this organization. It was a huge resource of support that helped me get back on my feet and get my life back.

If I had to make changes to this organization, I would...

Get more people involved.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Was this review helpful? 
1 previous review
Rating: 5 stars  

I first came across LFNC when I was diagnosed with Systemic Connective Tissue disorder. I was going through a very rough time in my life and this organization became a second family. One that understands and is supportive in every way possible. They helped encourage me to never give up hope on battling this horrible and confusing disease. With the support from them and from my family and friends I have been in remission for about 6 months now. I have been volunteering at LFNC all through out my battle with SCTD/Lupus and have even spoken at a meeting regarding my remission and my journey in how I got there. LFNC has done so much for me I can't say enough. I fully support them the way they have supported me. I recommend this organization to anyone who wants to be a part of an amazing cause.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Review from Guidestar
Rating: 5 stars  

I was at my annual lupus exam when I first learned about the Lupus Foundation of Northern California. There was a poster seeking participants for their 5K run that caught my interest. I had been looking into becoming a volunteer with some organization and decided the LFNC would be one of a personal interest to me.

The staff for the LFNC welcomed me with open arms and made me feel like I was part of the LFNC family. I have enjoyed working with many volunteers in our efforts to fundraise and help raise awareness about Lupus.

I look forward to many years as a volunteer and I hope that many others will come forward and join the LFNC organization.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

I am a Senior in high school and my best friend and my great aunt are both Lupus patients. In knowing the effects of this disease on an individual, my mother and I searched for a place that we could volunteer at that would help us understand the disease more. We also just really wanted to show our support to all the strong Lupus patients. We received an e-mail that asked if we help send out newsletters and we immediately responded. A few days later, we came in and were greeted with warm smiles as we were introduced to all the other volunteers. All the people in the office were very passionate about what they were doing, whether it was labeling envelopes, folding papers, and even making calls for donations. The warm feeling I felt when I was volunteering, made me want to return to help out at another time. Since then, I have volunteered several times and have gotten close to the staff and other volunteers. I believe that this nonprofit organization does a wonderful job in spreading and supporting Lupus awareness and is a perfect place to seek help and information about this disease.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

LFNC provides valuable information and is a great resource for the Lupus community. I am impressed with the kind hearted , dedicated board members and volunteers. Keep doing what your doing!!!Great Job. Thank you for all that you do!.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

I first came to learn about the Lupus Foundation when a co-worker of mine revealed that he had lupus. I didn't know what lupus was, so I searched the Internet and found the Foundation's website. I learned a lot of information about this disease through them. That year, I also started participating in their 5K Run and Walk to help spread awareness about lupus and to do what little I can to help raise funds for lupus research. I hope there would be more resources like the Lupus Foundation all over the country.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
1 previous review
Rating: 5 stars  

For two years in a row now, I have been asked by a friend with lupus to join her team for the 5K Run and Walk for Lupus in Saratoga, California. It was my pleasure to support my friend and donate some money to the Foundation. I was very impressed with their annual event. This year's event was even better than the last -- very well-organized and there was something for everyone: from snacks to free t-shirts, goodies, good information and great entertainment! Volunteers were very helpful and the crowd was just very friendly and passionate about the cause!

Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

The Lupus Foundation of Northern California (LFNC) is definitely a great nonprofit organization. As a volunteer, I learned a great deal about the autoimmune disease, lupus, while helping out at the office. My mom who was diagnosed with lupus 15 years ago benefits from knowledge I gain. The staff has one primary goal and that is to make the lives of those people diagnosed with lupus better through patient education, support groups, increasing awareness, and research. Lupus, is a serious yet little known illness. LFNC strives hard to spread the word about this disease because people affected with the disease or are susceptible to getting it can fight it and live normal lives.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Review from Guidestar
Rating: 4 stars  

I joined the Lupus Foundation of Northern California as a volunteer because a friend has lupus and i had little knowledge of what this disease was all about. I wanted to help put an end to this disease that was incapacitating my dear friend. i have learned much about Lupus though books, pamphlet, and videos. Recently i watched Rene' Astudillo Executive Director of lupus Foundation of Northern California give an interview on television and he talked about Lupus and their goals for the foundation. i found this to be very informative, he explained what Lupus was and i got an even better understanding of this disease just by listening to him explain it. More interviews on television would be helpful. I have come to understand that we need more research on this disease and more funds.

I've personally experienced the results of this organization in...

learning how a foundation is ran. I experienced pride in working with a group of dedicated employee's and volunteers who are challenged to do all they can to raise funds and to pass information to the public.

If I had to make changes to this organization, I would...

Do more television interviews.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

What one change could this group make that would improve your volunteer experience?

This pass year there were many good changes for us volunteers. Better by contacting us by email, phones, verbally and asking us if we received messages.

Did your volunteer experience have an effect on you? (teaching you a new skill, or introducing new friends, etc.)

i was touched by the diversity of the people. i am learning their customs and that we are more alike then not. i have new friends and am learning new recipes in cooking. learning a new language and am better for it all.

How did this volunteer experience make you feel?

It has humble me. I have more patience's with people especially those that are afflicted with lupus or any other autoimmune disease.

Was this review helpful? 
Rating: 5 stars  

Have volunteered with the LFNC for several years and continue to be impressed with its effort and accomplishments. Remarkably the LFNC achieves so much with a small staff of 3, a few active board members and its dedicated volunteers. Lupus is a horrific disease affecting our loved ones with varying levels of complexity - sometimes fatal. Yet very little is known about it by the vast majority of people, sadly even among medical professionals. So it is all the more important to provide support to lupus patients and their families. I know the LFNC strives to do this with care and compassion. Invaluable too are its weekly electronic newsletters that provide information to our LFNC family.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Quite well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Review from Guidestar
Rating: 5 stars  

Working with the organization made me realize how many unselfish people there are who just want to make I difference or make someone's life easier. I've worked with the San Jose lupus foundation for a few years now, and every time I'm there I'm greeted with a smile. Most organizations I've worked with before give you a job that keeps you busy, but might not really have a direct impact on others. Lupus has givin me the opportunity to take on challenges that will help the organization move forward. Personally I will do any job I can to help but with lupus they gave me a opportunity to make a direct difference in other organization and with others, making me feel wanted and needed which everyone wants as a volunteer. Special thanks to Rene, Spandan, and Maggie at the Lupus Foundation San Jose.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Review from Guidestar