Lupus Foundation Of Northern California

Rating: 4.76 stars   116 reviews

Issues: Health, Cancer

Location: 2635 N First Street 211 San Jose CA 95134 USA

Mission: To be a premier source of information on lupus by providing programs ana services designated to educate and increase the knowledge of those affected by lupus, promote lupus awareness, and support external lupus research efforts.
Geographic areas served: Northern California
2014 Top-Rated Nonprofit
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EIN 94-2469741
408-954-8600
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Community Reviews

Rating: 5 stars  

I Volunteered LFNC for the 5K run/walk it was a very nice experience. All of the volunteers of this organization are so kind. Met lots of wonderful people all coming together for great cause.

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Rating: 5 stars  

I contacted LFNC many years ago when my lupus journey first began. LFNC was extremely helpful then and continues to be a strong organization that has definitely exceeded my expectations. Dedicated, caring, kind group of individuals who care deeply about helping lupus patient and their families. Can't say enough how it has helped me and continues to do so.

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Rating: 5 stars  

Lupus foundation of Northern California became a great help to me when I was first diagnosed with SLE Lupus 9 years ago. Through my rheumatologists office visits I found a flyer of the Alameda subchapter support group. I make it a priority to make all the monthly meetings, because they are encouraging and the group members have become like family. Through the years of attending this support group and going to educational class/seminars the LFNC hosts locally, I am now leading their Youth Support Groiup the Hangout once a month. Its a privilege and honor to be able to volunteer and help the foundation to continue reaching out to our community and instilling hope in the lives of those of us affected with this illness day in and day out. Their dedication and love the staff outpours to us is amazing.

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1 previous review
Rating: 5 stars  

Lupus Foundation of Northern California has been a great resource of information for me. They send out very informative information weekly in their news letters that are helpful and give updates on events that are coming up, giving you the opportunity to volunteer as well. When I go visit the office they always make me feel like family. They have now given me the opportunity to lead one of their Youth Support Groups and its been a great experience. The conferences that they set up for lupus patients are also very good, I have attended two of them and every time I learn something new even after having lupus for 7 years.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

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Review from Guidestar
Rating: 5 stars  

I have been a volunteer for the LFNC for approximately 27 years. I first became involved when I was newly diagnosed and was seeking information and support. The organization was there to meet my educational and emotional needs. The administration is very supportive and encourages members to become involved, therefore I used my professional experience as a registered nurse to help teach classes, lead support groups and volunteer in other capacities. This nonprofit really stands out in its mission to raise awareness of lupus, support those who suffer from lupus and their families, support legislation to increase funding for research, and directly supply funding for lupus research. For this reason, LFNC should be one of the top great nonprofits in the country.

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1 previous review
Rating: 5 stars  

The Lupus Foundation of Northern California has been a part of my life for the past 15 years. First, as a newly diagnosed client seeking information and support. The organization provided literature, videos and classes. I also found support in one of their subchapter support groups. I met others suffering the same issues and made friends for life. As I became familiar with the chronic nature of the disease, I decided to give back by becoming a volunteer. I utilized my background as a nurse to assist as a spokesperson, teacher and coleader of a support group. During this time I earned how many people have been served by this great nonprofit.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

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Review from Guidestar
1 previous review
Rating: 4 stars  

5 people found this review helpful

The LFNC was there for me when I was first diagnosed with lupus in 1997 with educational groups, videos, books, and support groups. Once I was comfortable and educated, I gave back to the organization by volunteering as a nurse in their annual run and helping with their classes and support groups. This nonprofit organization not only does wonders to support persons with lupus and their families it also supports research for lupus.

I've personally experienced the results of this organization in...

Support, friends, and knowledge.

What I've enjoyed the most about my experience with this nonprofit is...

The suoortive staff, the colleagues I have met in my support group. the educational meetings.

The kinds of staff and volunteers that I met were...

Very committed to lupus research and helping people with lupus.

If this organization had 10 million bucks, it could...

Do more community outreach and education. More money for lupus research. help people pap for expensive medicine such as Rituxan

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010-6-01

Was this review helpful? 
Rating: 5 stars  

I have volunteered at many non-profits, but LFNC stands out among them because of the dedication of the staff and how much they care about supporting lupus patients and their families and friends. In addition to providing important information, LFNC does an incredible job advocating on their behalf, to get them the support and resources that are needed at the state and national level.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2014

Was this review helpful? 
1 previous review
Rating: 5 stars  

I've always been impressed with the dedication of the staff and volunteers at LFNC. They do an incredible job of educating and supporting individuals with this very severe and confusing disease, as well as helping families and friends understand and support those who have it. In addition, their advocacy work is truly admirable.

If I had to make changes to this organization, I would...

No changes needed!

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Was this review helpful? 
1 previous review
Rating: 5 stars  

As a volunteer with LFNC, I've always been impressed with the dedication of the staff and the effort that they put forth to provide information, support, resources, and advocacy for patients with lupus, their families, and friends. They do an incredible job!

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Review from Guidestar
1 previous review
Rating: 5 stars  

5 people found this review helpful

As a lupus patient, LFNC has provided me with information about the latest research related to lupus, opportunities to meet other lupus patients, and, as a volunteer, a chance to help others diagnosed with this very complex disease.

I've personally experienced the results of this organization in...

Obtaining the most up-to-date information about lupus research.

What I've enjoyed the most about my experience with this nonprofit is...

the people that I've met.

The kinds of staff and volunteers that I met were...

caring, compassionate, and professional.

If this organization had 10 million bucks, it could...

expand its outreach programs (especially to clients that are usually underserved)and increase its support of lupus-related research.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010-5-01

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Rating: 5 stars  

I have volunteered for LFNC for almost twenty years in Sonoma County. I love the people I've met in our support groups. We have made a queen-size butterfly quilt as a fundraiser and made more than $1,000 by selling tickets. The members of the support group are very encouraging to each other.

If I had to make changes to this organization, I would...

I only wish I had more time in the day to help new people that have just found out they have lupus.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2014

Was this review helpful? 
Rating: 5 stars  

I started off getting involved in LFNC as a Lupus patient and soon fell in love with the organization. All the effort and these amazing people put into helping people who felt so hopeless and alone when they were first faced with their diagnosis is obvious the second you meet them. There seems to be a very warm welcoming energy about the foundation and all the people there. I felt right at home only after a few visits. Then before I knew it I was volunteering because I wanted to be a part of what they did in making a difference in people's lives. I am so grateful to have found this organization. It was a huge resource of support that helped me get back on my feet and get my life back.

If I had to make changes to this organization, I would...

Get more people involved.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Was this review helpful? 
1 previous review
Rating: 5 stars  

I first came across LFNC when I was diagnosed with Systemic Connective Tissue disorder. I was going through a very rough time in my life and this organization became a second family. One that understands and is supportive in every way possible. They helped encourage me to never give up hope on battling this horrible and confusing disease. With the support from them and from my family and friends I have been in remission for about 6 months now. I have been volunteering at LFNC all through out my battle with SCTD/Lupus and have even spoken at a meeting regarding my remission and my journey in how I got there. LFNC has done so much for me I can't say enough. I fully support them the way they have supported me. I recommend this organization to anyone who wants to be a part of an amazing cause.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

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Review from Guidestar
Rating: 5 stars  

I was at my annual lupus exam when I first learned about the Lupus Foundation of Northern California. There was a poster seeking participants for their 5K run that caught my interest. I had been looking into becoming a volunteer with some organization and decided the LFNC would be one of a personal interest to me.

The staff for the LFNC welcomed me with open arms and made me feel like I was part of the LFNC family. I have enjoyed working with many volunteers in our efforts to fundraise and help raise awareness about Lupus.

I look forward to many years as a volunteer and I hope that many others will come forward and join the LFNC organization.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

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Rating: 5 stars  

I am a Senior in high school and my best friend and my great aunt are both Lupus patients. In knowing the effects of this disease on an individual, my mother and I searched for a place that we could volunteer at that would help us understand the disease more. We also just really wanted to show our support to all the strong Lupus patients. We received an e-mail that asked if we help send out newsletters and we immediately responded. A few days later, we came in and were greeted with warm smiles as we were introduced to all the other volunteers. All the people in the office were very passionate about what they were doing, whether it was labeling envelopes, folding papers, and even making calls for donations. The warm feeling I felt when I was volunteering, made me want to return to help out at another time. Since then, I have volunteered several times and have gotten close to the staff and other volunteers. I believe that this nonprofit organization does a wonderful job in spreading and supporting Lupus awareness and is a perfect place to seek help and information about this disease.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

LFNC provides valuable information and is a great resource for the Lupus community. I am impressed with the kind hearted , dedicated board members and volunteers. Keep doing what your doing!!!Great Job. Thank you for all that you do!.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Was this review helpful?