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108 Reviews
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September 13, 2014

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1 previous review
July 15, 2012

I volunteer as a co-facilitator of the San Francisco Lupus Support Group. Without the Lupus Foundation of Northern California (LFNC) our support group wouldn't exist. I am thankful to the LFNC b/c the... more

September 13, 2014

In times of trouble, I’ve turned to the Lupus Foundation of Northern California for knowledge, advice, and comfort through special programs and the San Francisco Lupus Support Group/Sub Chapter, both of which I’ve been able to participate in. They've been given me opportunities to share my story at their conferences, in return I receive plenty of support. I’ve been a member of the Lupus Foundation of Northern California (LFNC) since 1999 (it was formerly known as the Bay Area Lupus Foundation). I’ve been co-facilitator of the San Francisco Sub Chapter for the past 10 years. Since my co-facilitator has moved to Sacramento this year, I now facilitate the support group. Thanks to them I was able to meet other facilitators around Northern California at our state capitol. We were able to share lupus stories and our ideas on how to improve what we do for our support group members.There’s a reason for why things happen—good or bad. I’ve always had a calling in life and that is to educate and spread awareness about lupus. The LFNC gives me the opportunity to fulfill this purpose. I am very thankful for the opportunities they give me!!
July 15, 2012

I volunteer as a co-facilitator of the San Francisco Lupus Support Group. Without the Lupus Foundation of Northern California (LFNC) our support group wouldn't exist. I am thankful to the LFNC b/c they've given ME the opportunity to spread lupus awareness not only through the support group but by giving me the honor to share my lupus story as a speaker at educational programs, fundraising events, and public Bay Area fairs. Their educational programs, as well as their website, online weekly newsletters, seasonal "Newsletter" magazines, Bay Area support groups, and their lupus library, unite not only lupus patients, but also the SF Bay area and outer Bay area communities. They help patients learn how to cope with lupus through their informative activities with a small staff (3) and volunteers who are personable, compassionate, and tender. With the partnership with the nationwide Lupus Research Institute, the LFNC does their best to raise funds and support the goal to find better treatments, a cause and a cure for lupus. This is just a smidgen on why the LFNC should be considered one of the top nonprofits in the United States.

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A New Purpose in Life

The Great!

I've personally experienced the results of this organization in...

+ Participating as a speaker for their mini-conferences and seeing the amount of people who attend these events + Seeing the number of participants grow throughout the years in the "Walk for Lupus 5K Run/Walk" + How effective the organization's outreach is by seeing new donors and retention of current donors

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Did your volunteer experience have an effect on you? (teaching you a new skill, or introducing new friends, etc.)

Volunteering as a co-facilitator & participating with LFNC continually renews my spirit in spreading lupus awareness knowing that I can help others dealing with the disease. It is my outlet in being able to inspire others through my story of survival from kidney failure, CNS lymphoma, and MRSA -- all caused by lupus and its treatments.

How did this volunteer experience make you feel?

Extremely happy that I am able to live my life's purpose!

August 29, 2014
1 person found this review helpful

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August 29, 2014
1 person found this review helpful

I have volunteered at LFNC since I retired nearly 7 years ago. It has been and continues to be an amazing trip. I have watched the organization grow and change as the world around it grows and changes. However, its mission and goals remain consistent. It continues to promote lupus awareness, to educate and provide information to patients, their families and caregivers through conferences, education classes and electronic newsletters. It also continues to support external research through fund raising activities like the 5K Run/Walk or the Gala. Volunteering 7 years ago most often meant filing, folding, stuffing, and mailings. Now, it is much more likely I will be asked to work on the computer, entering and editing data and researching. There are many fun activities to be done. In addition, I have had the opportunity to meet many wonderful people, staff, board members, lupus patients and their families, as well as other volunteers. I look forward to many more years of helping out at this great nonprofit organization.
August 29, 2014

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August 29, 2014

Very grateful for all the work that LFNC does for Lupus patients and their families over the years! A terrific group of dedicated, caring, committed staff and volunteers that provide education and support through their conferences, fundraisers/walk/run, and meetings. LFNC - truly provides support for patients, caregivers and the whole Lupus community. Keep up the great job! Thank you.
August 29, 2014

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August 29, 2014

I have volunteered at LFNC for about two years in the office and with their 5K run/walks and they were all very wonder experiences. The staff is friendly and kind to the volunteers and dedicated to Lupus patients and families. I have met many nice people and made some good friends volunteering at the organization.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2014

August 29, 2014

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August 29, 2014

I Volunteered LFNC for the 5K run/walk it was a very nice experience. All of the volunteers of this organization are so kind. Met lots of wonderful people all coming together for great cause.
August 28, 2014

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August 28, 2014

I contacted LFNC many years ago when my lupus journey first began. LFNC was extremely helpful then and continues to be a strong organization that has definitely exceeded my expectations. Dedicated, caring, kind group of individuals who care deeply about helping lupus patient and their families. Can't say enough how it has helped me and continues to do so.
August 28, 2014

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1 previous review
July 12, 2012

Lupus Foundation of Northern California has been a great resource of information for me. They send out very informative information weekly in their news letters that are helpful and give updates on ev... more

August 28, 2014

Lupus foundation of Northern California became a great help to me when I was first diagnosed with SLE Lupus 9 years ago. Through my rheumatologists office visits I found a flyer of the Alameda subchapter support group. I make it a priority to make all the monthly meetings, because they are encouraging and the group members have become like family. Through the years of attending this support group and going to educational class/seminars the LFNC hosts locally, I am now leading their Youth Support Groiup the Hangout once a month. Its a privilege and honor to be able to volunteer and help the foundation to continue reaching out to our community and instilling hope in the lives of those of us affected with this illness day in and day out. Their dedication and love the staff outpours to us is amazing.
July 12, 2012

Lupus Foundation of Northern California has been a great resource of information for me. They send out very informative information weekly in their news letters that are helpful and give updates on events that are coming up, giving you the opportunity to volunteer as well. When I go visit the office they always make me feel like family. They have now given me the opportunity to lead one of their Youth Support Groups and its been a great experience. The conferences that they set up for lupus patients are also very good, I have attended two of them and every time I learn something new even after having lupus for 7 years.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

August 26, 2014

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August 26, 2014

As the daughter of the former CFO of Orange County Volunteer, I have volunteered at many non-profits since I was very young, but never have I encountered a community so warm, welcoming, and giving as that of the Lupus Foundation of Northern California, the LFNC. The staff is dedicated to selflessly serving the lupus community by providing venues, setting up conference rooms for support groups, detailing online sources, issuing insurance for all volunteers on duty--and that's just the beginning of the list. By volunteering with LFNC, as I do, you become a part of this community and culture of giving and helping those who are struggling during some of the most difficult moments in their lives with the debilitating and often invisible and ignored disease. I cannot commend LFNC enough for their hard work and dedication, and it is my pleasure to be associated with them.
August 25, 2014

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2 previous reviews - show all
July 10, 2012

The Lupus Foundation of Northern California has been a part of my life for the past 15 years. First, as a newly diagnosed client seeking information and support. The organization provided literature,... more

August 25, 2014

I have been a volunteer for the LFNC for approximately 27 years. I first became involved when I was newly diagnosed and was seeking information and support. The organization was there to meet my educational and emotional needs. The administration is very supportive and encourages members to become involved, therefore I used my professional experience as a registered nurse to help teach classes, lead support groups and volunteer in other capacities. This nonprofit really stands out in its mission to raise awareness of lupus, support those who suffer from lupus and their families, support legislation to increase funding for research, and directly supply funding for lupus research. For this reason, LFNC should be one of the top great nonprofits in the country.
July 10, 2012

The Lupus Foundation of Northern California has been a part of my life for the past 15 years. First, as a newly diagnosed client seeking information and support. The organization provided literature, videos and classes. I also found support in one of their subchapter support groups. I met others suffering the same issues and made friends for life. As I became familiar with the chronic nature of the disease, I decided to give back by becoming a volunteer. I utilized my background as a nurse to assist as a spokesperson, teacher and coleader of a support group. During this time I earned how many people have been served by this great nonprofit.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

June 27, 2010

The LFNC was there for me when I was first diagnosed with lupus in 1997 with educational groups, videos, books, and support groups. Once I was comfortable and educated, I gave back to the organization by volunteering as a nurse in their annual run and helping with their classes and support groups. This nonprofit organization not only does wonders to support persons with lupus and their families it also supports research for lupus.

The Great!

I've personally experienced the results of this organization in...

Support, friends, and knowledge.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

The suoortive staff, the colleagues I have met in my support group. the educational meetings.

The kinds of staff and volunteers that I met were...

Very committed to lupus research and helping people with lupus.

If this organization had 10 million bucks, it could...

Do more community outreach and education. More money for lupus research. help people pap for expensive medicine such as Rituxan

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

August 18, 2014

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3 previous reviews - show all
June 19, 2013

I've always been impressed with the dedication of the staff and volunteers at LFNC. They do an incredible job of educating and supporting individuals with this very severe and confusing disease, as w... more

August 18, 2014

I have volunteered at many non-profits, but LFNC stands out among them because of the dedication of the staff and how much they care about supporting lupus patients and their families and friends. In addition to providing important information, LFNC does an incredible job advocating on their behalf, to get them the support and resources that are needed at the state and national level.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2014

June 19, 2013

I've always been impressed with the dedication of the staff and volunteers at LFNC. They do an incredible job of educating and supporting individuals with this very severe and confusing disease, as well as helping families and friends understand and support those who have it. In addition, their advocacy work is truly admirable.

Ways to make it better...

If I had to make changes to this organization, I would...

No changes needed!

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

July 12, 2012

As a volunteer with LFNC, I've always been impressed with the dedication of the staff and the effort that they put forth to provide information, support, resources, and advocacy for patients with lupus, their families, and friends. They do an incredible job!

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

June 24, 2010

As a lupus patient, LFNC has provided me with information about the latest research related to lupus, opportunities to meet other lupus patients, and, as a volunteer, a chance to help others diagnosed with this very complex disease.

The Great!

I've personally experienced the results of this organization in...

Obtaining the most up-to-date information about lupus research.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

the people that I've met.

The kinds of staff and volunteers that I met were...

caring, compassionate, and professional.

If this organization had 10 million bucks, it could...

expand its outreach programs (especially to clients that are usually underserved)and increase its support of lupus-related research.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

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