Oops! You must enter a search term greater than 3 characters.

Invite reviews

Invite friends and colleagues to share their experiences with this nonprofit
107 Reviews
1234.738325
| 1 ... 7 8 910 |
Write A Review
June 27, 2010

more

June 27, 2010

I contacted the Lupus Foundation of Northern California when I was diagnosed with lupus. I was able to attend a patient education class where my fears about living with lupus were calmed. I received encouragement and very practical information of how to take care of myself. I continue to be a member of the foundation because they keep me informed on the latest research on lupus and provide seminars/classes with credible professionals on such topics as diet and exercise, social security disability, emotional issues of a chronic illness and more.

The Great!

I've personally experienced the results of this organization in...

information about lupus and living with the disease and the side effects of medication I take or have taken. I receive encouragement to live an active life and take care of myself and to give back by supporting others with lupus.

More feedback...

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

June 26, 2010

more

June 26, 2010

I came to Bakersfield chapter of Bay Area Lupus Group (as it was known then)for support of my own health, emotional and family issues. I had an autoimmune disease similar to lupus, so the meeting had information helpful to me (on oral lesions, joint pain, fatigue, sun exposure worsening disease). The Bakersfield group got much of their information from the Bay Area Lupus Group (now Lupus Foundation of Northern California), especially on how one person's disease stressed the whole family. It takes strength to speak up for one's needs when the family needs the sick person NOT to have those needs. The Lupus Foundation of Northern California led the Bakersfield Lupus Support Group to encourage members to be honest about their emotional needs with their families. The Lupus Foundation of Northern California (then Bay Area Lupus Foundation) also led training for chapter officers. My training through BALF made a huge difference in my ability to organize in different groups later in my life, and I am grateful.

The Great!

I've personally experienced the results of this organization in...

Meeting needs for info on disease & emotional & family aspects of it for patients; training for officers of local support groups that provide info to patients in different areas; exciting fund-raising the Foundation does semi-annually+

More feedback...

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010

June 26, 2010

more

June 26, 2010

I found out I had Lupus about 20 years ago and the LFNC has been a great resource for me over the years with information and support. I have volunteered for them and been part of their fund raising efforts through the years. It has been important to me to have a place I can go to that understands what I am going through. LFNC is a great organization!

The Great!

I've personally experienced the results of this organization in...

I have been part of their Lupus walks, evening fund raisers, health fairs and they have always been a pleasure to work with and be part of their events.

More feedback...

How frequently have you been involved with the organization?

About once a year

When was your last experience with this nonprofit?

2010

June 26, 2010

more

June 26, 2010

After being diagnosed with lupus, I researched the condition extensively. But nothing could have prepared me for the emotional ramifications and challenging logistics that come with a chronic condition. LFNC helps me conserve my dwindling energy by providing summaries on the latest research, notification of studies and the backbone to local support groups and educational seminars. My first time attending a support group was invaluable, I finally met people "like me", not just by condition but by ambition as well. This was both heartening and discouraging and scary but it was important for me to see and understand the realities of creating a new lifestyle in which I can still be fulfilled. It is all a work in progress, and I know that the Lupus Foundation of Northern California is there if I need guidance / information.

The Great!

I've personally experienced the results of this organization in...

meetings, newsletters, educational seminars

More feedback...

How frequently have you been involved with the organization?

About once a year

When was your last experience with this nonprofit?

2010

June 25, 2010

more

June 25, 2010

When I was first diagnosed with Lupus, the rheumatologist I was going to did not provide me with any support or information. He even walked out of the exam room while I was asking him questions. I was frightened and had no idea what I was up against. The Lupus Foundation of Northern California provided me with the support and the information I was not receiving from that doctor. Through their education seminars and information pamphlets, I learned so much about my disease. I was relieved to know I was not alone and even more relieved to know my life was not over. The LFNC gave me the strength to assert myself and demand that I be a member of my medical team. Needless to say, I fired my first rheumatologist. I am very happy with my current doctor. I honestly believe I would not be doing as well as I am, had my sister not found the LFNC for me.

The Great!

I've personally experienced the results of this organization in...

Through their seminars and information pamphlets, I have received the support and information I need to help me battle this disease.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

the understanding I receive. I have never gotten the common "But you don't llok sick" comment, which so often occurs when people know nothing about lupus.

The kinds of staff and volunteers that I met were...

kind, genuine and supportive. They are always curteous and have smiles on their faces, even when you can tell it's hectic in the office. They are all pationate aabout this cause.

If this organization had 10 million bucks, it could...

spread the word about lupus and provide support for so many more patients. It's sad that lupus affects so many, but is known to so few.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

June 25, 2010

more

June 25, 2010

Upon being diagnosed with lupus, I immediately began searching for information to help me understand and deal with this chronic disease. The Lupus Foundation of Northern California provided information and support. It has been eighteen years since then, and I continue to make use of their services through the newsletters and workshops.

The Great!

I've personally experienced the results of this organization in...

learning how to cope with chronic fatigue and pain.

More feedback...

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010

June 24, 2010

more

June 24, 2010

Hello, I am a Lupus Nephritis survivor. I was diagnosed about the same time that LFNC was started, about 30 years ago. I immediately looked lupus up in the encyclopedia where I found the words, "life expectancy is 5 years." Luckily my neighbor knew a woman who was involved in the Lupus Foundation. I called her and I immediately went to a meeting of lupus sufferers like myself. I ordered pamphlets and any information I could to understand this disease I had contracted. The issues of the Lupus Foundation that came twice a year and the newsletters from LFNC I read and studied and I believe that it is because I learned about my disease that I am still living today. The internet didn't exist then and had it not been for the Lupus Foundation where would I have gone? I learned how to communicate with my doctors and how to cope with living a life that was so different from the life I had imagined. I know that LFNC helps people like me everyday and I am proud of my membership and I will always stay a member.

The Great!

I've personally experienced the results of this organization in...

the information and support they provide to help lupus patients understand their disease and live the best life possible.

More feedback...

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010

June 24, 2010

more

June 24, 2010

My husband is a lupus pt, who to this day is still somewhat in denial. I find the website to be very supportive for me and often forward positive news info to my husband in hopes of encouragement. This site has a fountain of information for those impacted by lupus. Thank you.

The Great!

I've personally experienced the results of this organization in...

positive information for future treatment options.

More feedback...

How frequently have you been involved with the organization?

One time

When was your last experience with this nonprofit?

2010

June 23, 2010

more

June 23, 2010

My sister was diagnosed with lupus in 2005. Our family knew very little about the disease. The LFNC was instrumental in provided us the resources and information we needed to learn about this disease. The education classes and confereneces were so helpful to my sister. I was so impressed with this organization and what they offered to lupuis patients that I knew I wanted to be more involved and so joined the Board.

The Great!

I've personally experienced the results of this organization in...

My sister has lupus and has attended many of the educational classes and conferences the the LFNC offers. It has been so helpful in providing her the information that she needs.

More feedback...

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

June 23, 2010

more

June 23, 2010

My wife has lupus and we try to support various groups that fund research of this disease as well as provide information for those suffering from lupus and their families. The information that LFNC provides has always been helpful. Their various publications are well-written, concise and deal with the concerns of those who have lupus. Additionally, they give us current information on significant research that is taking place. We happily support LFNC to the best of our ability.

The Great!

I've personally experienced the results of this organization in...

giving my wife and myself information that is useful fo us.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

The excellence of their publications and the innovative fund-raising.

If this organization had 10 million bucks, it could...

help fund more research.

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010

Filter by reviewer role:

Support This Nonprofit

Help this nonprofit get more reviews

5 tips for getting reviews

5 tips for getting reviews...

  1. Sending an email to clients, volunteers, donors, board members, and other partners with a link to your profile page.
  2. Putting a link on your Web site
  3. Including a link in your email newsletter
  4. Putting a link in the signature of your email
    Putting a link on your facebook page and status updates
  5. Tweeting out a link to your twitter followers