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June 23, 2010

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June 23, 2010

My sister was diagnosed with lupus in 2005. Our family knew very little about the disease. The LFNC was instrumental in provided us the resources and information we needed to learn about this disease. The education classes and confereneces were so helpful to my sister. I was so impressed with this organization and what they offered to lupuis patients that I knew I wanted to be more involved and so joined the Board.

The Great!

I've personally experienced the results of this organization in...

My sister has lupus and has attended many of the educational classes and conferences the the LFNC offers. It has been so helpful in providing her the information that she needs.

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How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

June 23, 2010

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June 23, 2010

My wife has lupus and we try to support various groups that fund research of this disease as well as provide information for those suffering from lupus and their families. The information that LFNC provides has always been helpful. Their various publications are well-written, concise and deal with the concerns of those who have lupus. Additionally, they give us current information on significant research that is taking place. We happily support LFNC to the best of our ability.

The Great!

I've personally experienced the results of this organization in...

giving my wife and myself information that is useful fo us.

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What I've enjoyed the most about my experience with this nonprofit is...

The excellence of their publications and the innovative fund-raising.

If this organization had 10 million bucks, it could...

help fund more research.

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010

June 23, 2010

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June 23, 2010

I have been involved on the Board of LFNC and applaud the commitment of its members, staff and supporters, to provide ongoing education and counseling for those affilcted with Lupus. Through their efforts, they bring answers to troubling questions about the disease and guidance for those in need of assistance.

The Great!

I've personally experienced the results of this organization in...

Participation on the Board

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What I've enjoyed the most about my experience with this nonprofit is...

The highly talented managment and their forward thinking ideas for the Organization.

The kinds of staff and volunteers that I met were...

Committed to providing the best education and counseling possible regarding the lupus disease.

If this organization had 10 million bucks, it could...

Provide much more outreach and awareness of the organizations services to the public.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

June 23, 2010

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June 23, 2010

I am a registered nurse, a person diagnosed with lupus and a person who ran a support group. There were no support groups when I was diagnosed that were near by. The L.F.N.C. helped me start a group which I ran for several years with their support. I would have never attempted to do this without their support. I hope I helped a few people when I did do the group. It became too difficult for me to do the group and work so I had to give up the group. I appreciate the L. F.N.C. for all their help and know they have helped many people through out the years. Sincerely~Sheila Thompson, M.S.N.

The Great!

I've personally experienced the results of this organization in...

They helped me set up a support group.

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How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010

June 23, 2010

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June 23, 2010

My family and I participated in the Run/Walk for Lupus for the past two years... I am grateful to have the opportunity to show my sister how much we support and love her! We made it into an annual family & friends get together and its been a rewarding and fun experience!

The Great!

I've personally experienced the results of this organization in...

the annual walks this group organizes.

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How frequently have you been involved with the organization?

About once a year

When was your last experience with this nonprofit?

2010

June 23, 2010

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June 23, 2010

I am most grateful for Lupus Foundation of Northern California for the information they provide. I was diagnosed with lupus at the age of 47 and had no idea what this disease was or could do. Through the Lupus Foundation of Northern California I have been kept up to date on new drugs to treat lupus and which I have had a chance to discuss with my doctor. I would be at a complete loss if it were not for the Lupus Foundation of Northern California.

The Great!

I've personally experienced the results of this organization in...

its ability to keep me informed of new drugs that are emerging and new information that is always forthcoming.

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What I've enjoyed the most about my experience with this nonprofit is...

is the great information that keeps coming about the disease i have.

How frequently have you been involved with the organization?

About once a year

When was your last experience with this nonprofit?

2010

June 23, 2010

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June 23, 2010

LFNC has always been and excellent resource for me and my family. I appreciate all the information they provide on their website and through their newsletters.

The Great!

I've personally experienced the results of this organization in...

I have learned about new ways to treat lupus through their website and newsletters.

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How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

June 23, 2010

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June 23, 2010

As a parent of a lupus patient, I rely on LFNC to keep our family informed of lupus-related news via email. I have also attended several of the brown-bag lunch talks and found them to be very informative and relevant.

The Great!

I've personally experienced the results of this organization in...

Receiving periodic emails has been an effective way to stay on top of lupus news. It prompts proactive communication within our family and with the doctors at my daughter's visits.

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How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010

June 23, 2010

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June 23, 2010

As the parent of a child with lupus, LFNC has been an invaluable resource. We have benefited immeasurably from their informational online chats, publications, online resources and conferences. In addition, our daughter has been able to take an active role in organizing a fundraising team for the lupus walk. This has given her an opportunity to take action and meet others with lupus and arthritis, which has been very helpful to her coping with the illness.

The Great!

I've personally experienced the results of this organization in...

Conferences, Lupus Walk.

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How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010

June 23, 2010

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June 23, 2010

Being diagnosed with Lupus was scary. I had heard of it but knew nothing about it. When you have a diagnosis of a chronic disease the symthoms are constantly changing. I needed a resource that had current information as well as support to help me through each step. LF has given me that. I have attended symposiums, read the website, blogged others in my situation. All of this was only available with the help of LFNC. Thank you..

The Great!

I've personally experienced the results of this organization in...

San Jose, CA. website

Ways to make it better...

If I had to make changes to this organization, I would...

Hope they could present more symposiums in the San Jose area. Education and support.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

education and support.

The kinds of staff and volunteers that I met were...

helpful, knowledgable.

If this organization had 10 million bucks, it could...

host more grassworks meetings. Send their magazine to those affected by Lupus for free.

Ways to make it better...

I could have attended a support symposium.

In my opinion, the biggest challenges facing this organization are...

continuing to reach the people who need the help the most.

One thing I'd also say is that...

thank goodness the LF is there for me and my young son.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

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