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108 Reviews
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July 10, 2012

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Review from Guidestar
July 10, 2012

I support and appreciate all that the Lupus Foundation does to help both those affected by Lupus.

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Will you volunteer or donate to this organization?

Unsure

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2012

July 10, 2012

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Review from Guidestar
July 10, 2012

My Mother died from this disease in 1971 at the very young age of 32. As if that was not hard enough to bear, a very good friend of mine also passed away from Lupus at the prime of her life! Finally, I have a step-sister who also has the disease, but she is managing the symptoms wonderfully, thank goodness. For some reason this disease has been a big part of my life. The Lupus Foundation is a place I feel I can help with donations, and in the long run help other people who have this disease! I am comforted to have this organization keep me informed of the latest developments in curing Lupus! I also look forward to the annual Run?Walk for Lupus!! Keep up the great work!

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Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2012

July 6, 2010

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July 6, 2010

Many, many years ago I donated and walked for one of the fundraisers because a young woman I knew had systemic lupus. Previous to that walk I knew nothing about lupus. I learned recently that the young woman has had a transplant and is doing well. Last year I was diagnosed with subcutaneous lupus. Although it is not the more serious diagnosis, very little is known about it and it is difficult to research the kind that I have. I emailed the foundation requesting information; but didn't expect to hear anything back. Not only did I get a written personal information but references, and aphone number to call with questions. I am very impressed by this organization! Pamela

The Great!

I've personally experienced the results of this organization in...

Personal response to questions.

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How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010

July 4, 2010

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July 4, 2010

I found the organization on Facebook. Years ago a friend of mine revealed to me about his lupus diagnosis, so I tried to read up and research about this little-known disease. Through their website and their eNewsletters I've learned much about lupus. Lots of useful information, especially on research development. I've made it a point to donate to the organization whenever there is the opportunity. Glad to support such a great organization.

The Great!

I've personally experienced the results of this organization in...

Their fundraising events and their online materials

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How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

July 1, 2010

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July 1, 2010

LFNC has provided me with so many supportive oppurtunites for me since I found about them over a year ago. They run a youth support group that has been so helpful to me. I love getting together with other people my age that understand what I am going through. I participated in a webcast with LFNC about teens with lupus. I had never experienced anything like that before and loved having the chance to be part of it! The annual walk that is put on by LFNC is always a great time. It is so good to see so many people coming together for such a good cause.

The Great!

I've personally experienced the results of this organization in...

Being part of the youth support group run by LFNC.

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How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010

June 30, 2010

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June 30, 2010

When my sister, Sophia Lin's third child was born, she already didn't have enough time in the day. It was completely frustrating to try to pin down the different ailments that began to plague her, such as swollen glands, stiff fingers, constant fatigue and on on on while caring for a new born and his two siblings. Prescriptions, never ending concern, doctors, teaching hospitals were all added to my sister's already impossible schedule. While we as her family loved and supported her there was little that we knew and understood. Then one day, my sister was diagnosed with Lupus. This part of the journey led us to LFNC. A one stop resource that both patient and loved ones could learn from through current conversations, networking, professional research, invaluable peer support, and organized pro-activity to make a difference in a heretofore little known mystery disease.

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The Great!

I've personally experienced the results of this organization in...

Learning through the written resources and panels provided, having a sister who is much more confident in taking charge of her disease through her participation with LFNC.

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What I've enjoyed the most about my experience with this nonprofit is...

knowledge and support

The kinds of staff and volunteers that I met were...

heros!

If this organization had 10 million bucks, it could...

go further with research and provide more outreach to Lupus Sufferers

How frequently have you been involved with the organization?

About once a year

When was your last experience with this nonprofit?

2010

June 30, 2010

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June 30, 2010

My daughter, Diemmi Nguyen was diagnosed with Lupus when she was 5 years old Lupus was rare and we had very little knowledge about it. However the Lupus Foundation Of Northern California (LFNC) gave us a tremendous amount of support and assisted us in many different ways. She was giving all of the treatment that she needed and we learned how and what to look for so that she could have a healthy life. The organization helped her gain more confidence and never give up. Unfortunately, the Lupus spread and destroyed her body very quickly and she passed away within a month. It was hard to watch her go, but without the incredible from the doctors and the many Lupus organizations, including the LFNC, my daughter would not had such a wonderful, memorable, and meaningful final 19 years of her life. So, THANK YOU for all the support and help that many doctors,and LFNC have provided to us and we are confident that they will continue helping many more patients.

The Great!

I've personally experienced the results of this organization in...

LFNC has provided us with their knowledge not only help my daughter but also help others as well.

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What I've enjoyed the most about my experience with this nonprofit is...

the continue education about Lupus

The kinds of staff and volunteers that I met were...

compassionate,kind,and caring

If this organization had 10 million bucks, it could...

they could study/research more about Lupus and raise more awareness of the disease to the Lupus patients and also to those are not familiar with the it.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

June 30, 2010

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June 30, 2010

I have learned much about lupus from the Lupus Foundation of Northern California’s education and advocacy programs. Their electronic e-newsletter has some great articles, with health and life management tips that are great for lupus patients (and are often applicable to those without lupus too). And their facebook page often reports on stories where lupus patients or new drug possibilities are in the news.

The Great!

I've personally experienced the results of this organization in...

receiving important information and education. And seeing the community created through their events

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How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010

June 29, 2010

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June 29, 2010

After years of strange symptoms that would come and go, I remember sitting in my doctors office being told that "you don't want to have lupus". I was then refered to see a rheumatlolgist, which took a few months to get an appointment. Knowing nothing about lupus I went to the public library and the only book I found was outdated and I read I had only 10 years to live! Somehow I found out that there was a Lupus Foundation ongoing support group in my city. I found out that lupus was not a death sentence and that I could take action to be as healthy as possible. I become more educated about lupus, suppported, and became a member of Lupus Foundation. I continue to receive valuable info from their website that keeps me up to date on research and medication and offers me hope that soon there may more curing medication for people with lupus.

The Great!

I've personally experienced the results of this organization in...

Because of my involvment with Lupus Foundation, I now have the knowledge/tools to handle what my living with lupus brings me. The articles and support group also helped my family gain an understanding of what I am going through and how they can help me.

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How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

June 29, 2010

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June 29, 2010

I am a rheumatologist in the San Francisco Bay Area and have worked with the LFNC since I was a fellow in 1986. Initially, I only used the organization to refer my patients for informative materials and support groups. Later when I became a faculty member at Stanford, I became a speaker for the annual Lupus meeting for many years. For more than a decade that I have been in private practice, I have been a reviewer of articles for the news magazine. The LFNC chapter has been a tremendous resource for my patients and I refer my lupus patients to the organization routinely. R. Elaine Lambert, M.D. Overall rating above expectations

The Great!

I've personally experienced the results of this organization in...

see above

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How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

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