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July 23, 2012

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July 23, 2012

I was diagnosed with lupus in 2006 at the age of 35 and felt truly lost in the dark. As I began coping with the illness, I discovered the LFNC, and from reading the articles and personal stories, I began feeling a sense of support and community, without even meeting anyone in person. I signed up for the annual lupus walk with my family of 12, and was completely inspired by all the other members walking. I continue to receive the email newsletter from LFNC and look forward to reading the latest news about lupus. I have also recommended LFNC to a friend recently diagnosed with lupus.

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How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

July 23, 2012

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1 previous review
June 26, 2010

I have used Lupus Foundation of Northern California a lot. When I was first diagnosed I ordered information from them and went to several lectures. Through a lecture I found a local support group. ... more

July 23, 2012

I was diagnosed with Lupus in 1986. Through the Lupus Foundation I have learned much about what Lupus is and how to treat it. Most importantly for me has been the ongoing information on how to live my life to the fullest while dealing with the fatigue, pain and other symptoms of Lupus.

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How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

June 26, 2010

I have used Lupus Foundation of Northern California a lot. When I was first diagnosed I ordered information from them and went to several lectures. Through a lecture I found a local support group. I got most of my information about lupus from this information and lectures. I still look forward to my newsletters and updates from LFNC. A very good foundation!

The Great!

I've personally experienced the results of this organization in...

my education about Lupus.

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How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

July 19, 2012

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Review from Guidestar
July 19, 2012

When first diagnosed with Lupus my Rheumatologist suggested I contact the LFNC for information and support. I did so, and attended a conference for those newly diagnosed with SLE. The conference was informative, and most important to me, I knew I was getting up to date and correct information. Now, over 20 years later, I am still a member and I continue to learn from the newsletters - the LFNC provides an invaluable service to patients and family. I would highly recommend teh LFNC to anyone who has SLE or any type of immune system disease.

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How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

July 17, 2012

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July 17, 2012

LFNC DOES A GREAT JOB OF GETTING THE INFORMATION OUT ABOUT LUPUS. MUCH OF THE GENERAL POPULATION DOES NOT KNOW MUCH ABOUT THIS PREVALENT DISEASE. THE NEWSLETTERS ARE INFORMATIVE AND ARE UP TO DATE WITH THE NEWEST INFORMATION ON PERTINENT RESEARCH AND NEW DEVELOPMENTS IN THE FIELD. THERE ARE OFTEN STORIES OF PATIENTS WHO HAVE HAD SUCCESS OR GOOD ADVICE FOR FELLOW PATIENTS. THE E-NEWSLETTERS ALSO HAVE INFORMATION ON INSURANCE ISSUES WHICH CAN BE SO IMPORTANT TO PATIENTS WITH CHRONIC DISEASE. PATIENTS WHO WANT SUPPORT GROUPS OR SOURCES FOR MORE INFORMATION CAN FIND THESE AT LFNC.

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How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Quite well

When was your last experience with this nonprofit?

2012

July 17, 2012

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Review from Guidestar
1 previous review
June 30, 2010

When I was first diagnosed with Lupus in 1996, I found their newsletter in my rheumatologist's office with a timely article that applied specifically to me. I became a member of the organization and ... more

July 17, 2012

I have been involved with the Lupus Foundation of No. Calif since I was first diagnosed with lupus in 1996. At that time they served my needs by providing information and teaching me how important it was to educate myself. I have volunlteered, done fundraising, served on the Board and started a support group with a grant from the LFNC 10 years ago. I have seen the organization change to meet the current needs of all lupus patients. They have especially stepped up efforts to provide support and information to young people with lupus through social networks. I am very proud to be associated with the LFNC.

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Will you volunteer or donate to this organization beyond what is required of board members?

Likely

How much of an impact do you think this organization has?

A lot

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2012

June 30, 2010

When I was first diagnosed with Lupus in 1996, I found their newsletter in my rheumatologist's office with a timely article that applied specifically to me. I became a member of the organization and through their services I learned about lupus and how to manage my disease in a pro-active positive way.

The Great!

I've personally experienced the results of this organization in...

Knowledge is power and the LFNC has provided me with the knowledge and power to not only help myself but others as well.

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How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

July 15, 2012

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Review from Guidestar
July 15, 2012

I volunteer as a co-facilitator of the San Francisco Lupus Support Group. Without the Lupus Foundation of Northern California (LFNC) our support group wouldn't exist. I am thankful to the LFNC b/c they've given ME the opportunity to spread lupus awareness not only through the support group but by giving me the honor to share my lupus story as a speaker at educational programs, fundraising events, and public Bay Area fairs. Their educational programs, as well as their website, online weekly newsletters, seasonal "Newsletter" magazines, Bay Area support groups, and their lupus library, unite not only lupus patients, but also the SF Bay area and outer Bay area communities. They help patients learn how to cope with lupus through their informative activities with a small staff (3) and volunteers who are personable, compassionate, and tender. With the partnership with the nationwide Lupus Research Institute, the LFNC does their best to raise funds and support the goal to find better treatments, a cause and a cure for lupus. This is just a smidgen on why the LFNC should be considered one of the top nonprofits in the United States.

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A New Purpose in Life

The Great!

I've personally experienced the results of this organization in...

+ Participating as a speaker for their mini-conferences and seeing the amount of people who attend these events + Seeing the number of participants grow throughout the years in the "Walk for Lupus 5K Run/Walk" + How effective the organization's outreach is by seeing new donors and retention of current donors

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Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Did your volunteer experience have an effect on you? (teaching you a new skill, or introducing new friends, etc.)

Volunteering as a co-facilitator & participating with LFNC continually renews my spirit in spreading lupus awareness knowing that I can help others dealing with the disease. It is my outlet in being able to inspire others through my story of survival from kidney failure, CNS lymphoma, and MRSA -- all caused by lupus and its treatments.

How did this volunteer experience make you feel?

Extremely happy that I am able to live my life's purpose!

July 15, 2012

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Review from Guidestar
July 15, 2012

I was diagnosed with Lupus 20 years ago and it was life changing for me. I used the Lupus Foundation of Norther California as my resource of information about the disease. They also directed me to support group that got me through the first few years. I direct those who I come in contact with to the Lupus Foundation and they thank me as their experience is similar to mine. Although, having Lupus is something I have made my peace with I continue to read all the info that the Foundaton provides. I also donate to them as I persoanlly know the value they offer to their clients.

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How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

July 14, 2012

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July 14, 2012

I have Lupus It REALLY helps to get information about what one can do it help be as healthy as one can:D I'm on SSA + SSI I don't have $$ or health to help!

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Will you volunteer or donate to this organization?

Unsure

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2012

July 13, 2012

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Review from Guidestar
July 13, 2012

LFNC has a dedicated team of volunteers that are committed to helping patients with lupus. They provide vital local services that the larger lupus organizations cannot provide.

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Will you volunteer or donate to this organization beyond what is required of board members?

Likely

How much of an impact do you think this organization has?

A lot

Will you tell others about this organization?

Likely

When was your last experience with this nonprofit?

2012

July 13, 2012

more

Review from Guidestar
July 13, 2012

I have been a member for over twenty years. Initially the group was a terrific resource for learning about Lupus when I was first diagnosed. I went on to facilitate a Lupus support group in my area for several years. I am in remission for the most part now, but continue my membership as a way of keeping myself up to date on the latest treatments and information.

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How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

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