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95 Reviews
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October 18, 2013

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October 18, 2013

I was at my annual lupus exam when I first learned about the Lupus Foundation of Northern California. There was a poster seeking participants for their 5K run that caught my interest. I had been looking into becoming a volunteer with some organization and decided the LFNC would be one of a personal interest to me.

The staff for the LFNC welcomed me with open arms and made me feel like I was part of the LFNC family. I have enjoyed working with many volunteers in our efforts to fundraise and help raise awareness about Lupus.

I look forward to many years as a volunteer and I hope that many others will come forward and join the LFNC organization.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

October 17, 2013

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October 17, 2013

I am a Senior in high school and my best friend and my great aunt are both Lupus patients. In knowing the effects of this disease on an individual, my mother and I searched for a place that we could volunteer at that would help us understand the disease more. We also just really wanted to show our support to all the strong Lupus patients. We received an e-mail that asked if we help send out newsletters and we immediately responded. A few days later, we came in and were greeted with warm smiles as we were introduced to all the other volunteers. All the people in the office were very passionate about what they were doing, whether it was labeling envelopes, folding papers, and even making calls for donations. The warm feeling I felt when I was volunteering, made me want to return to help out at another time. Since then, I have volunteered several times and have gotten close to the staff and other volunteers. I believe that this nonprofit organization does a wonderful job in spreading and supporting Lupus awareness and is a perfect place to seek help and information about this disease.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

September 4, 2013

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September 4, 2013

Lupus Foundation is a great organization. I've participated in the 5k walk to support my mother-in-law. and thought the run was a very good experience. I plan to come back next year to be a part of it again. I may even try jogging.

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Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2013

September 4, 2013

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September 4, 2013

I joined this to support my mother in law as well as all the other victims of lupus. It was a great experience and I believe participating in this helped to promote the awareness of this auto-immune disease and to get more people to help contribute for a good cause.

Ways to make it better...

If I had to make changes to this organization, I would...

None

More feedback...

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2013

September 4, 2013

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September 4, 2013

I always wanted to do a run to support something and the Lupus Foundation made my very first experience really memorable. Everyone was just so dedicated and nice, and the event itself was a blast! I had lots of fun and also became more aware of what Lupus is at the same time.

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Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2013

June 20, 2013

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June 20, 2013

LFNC provides valuable information and is a great resource for the Lupus community. I am impressed with the kind hearted , dedicated board members and volunteers. Keep doing what your doing!!!Great Job. Thank you for all that you do!.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

June 19, 2013

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2 previous reviews - show all
July 12, 2012

As a volunteer with LFNC, I've always been impressed with the dedication of the staff and the effort that they put forth to provide information, support, resources, and advocacy for patients with lupu... more

June 19, 2013

I've always been impressed with the dedication of the staff and volunteers at LFNC. They do an incredible job of educating and supporting individuals with this very severe and confusing disease, as well as helping families and friends understand and support those who have it. In addition, their advocacy work is truly admirable.

Ways to make it better...

If I had to make changes to this organization, I would...

No changes needed!

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

July 12, 2012

As a volunteer with LFNC, I've always been impressed with the dedication of the staff and the effort that they put forth to provide information, support, resources, and advocacy for patients with lupus, their families, and friends. They do an incredible job!

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

June 24, 2010

As a lupus patient, LFNC has provided me with information about the latest research related to lupus, opportunities to meet other lupus patients, and, as a volunteer, a chance to help others diagnosed with this very complex disease.

The Great!

I've personally experienced the results of this organization in...

Obtaining the most up-to-date information about lupus research.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

the people that I've met.

The kinds of staff and volunteers that I met were...

caring, compassionate, and professional.

If this organization had 10 million bucks, it could...

expand its outreach programs (especially to clients that are usually underserved)and increase its support of lupus-related research.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

May 9, 2013

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1 previous review
July 10, 2012

Lupus is a confusing, often isolating disease. It can manifest in so many ways, that even the best intentioned literature seems irrelevant or contrary to whatever the latest word from one's own doctor... more

May 9, 2013

Lupus can be a very confusing disease. LFNC puts on regular "mini-conferences" which bring together knowledgeable speakers with relevant information. The ones 'Ive attended on the latest developments in the treatment of Lupus have allowed me to be an informed partner in discussions with my doctors.

More feedback...

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

July 10, 2012

Lupus is a confusing, often isolating disease. It can manifest in so many ways, that even the best intentioned literature seems irrelevant or contrary to whatever the latest word from one's own doctor. LFNC not only sends out frequent announcements of new information, along with links to the full explanation of the announcement, but also sponsors frequent classes with a variety of experts who first talk, then take questions. They hold these classes in a variety of Northern California locales, maximizing the opportunity to attend for people who might not be able to make it to the main office in San Jose. Over the past couple of years, I've had at least 3 links to relevant information or an actual seminar come up just as I was realizing I needed more information on an issue.

More feedback...

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Quite well

When was your last experience with this nonprofit?

2012

April 23, 2013

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2 previous reviews - show all
July 30, 2012

I have Lupus and many times the foundations has provided me with support. This summer then sent me sunscreen just in time for camping and I hadn't gone camping in over 10 years. I was safe and confide... more

April 23, 2013

Lupus Foundation of No. California has been there for me through my most difficult moments dealing with Lupus. They keep me informed about what is out there for me to help me have a better quality of life. They are there for me when I question if I can fight the fight anymore. Having a chronic illness is a very lonely place but they make sure you are not alone. I think if they had the money they would have a bigger space for a wellness center for services as well. They are committed to service and helping those of us with autoimmune issues. I would be lost without them

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

July 30, 2012

I have Lupus and many times the foundations has provided me with support. This summer then sent me sunscreen just in time for camping and I hadn't gone camping in over 10 years. I was safe and confident after a talk with with them. They will never let someone be left in the dark about autoimmune issues. They are the light that gets us through and they ask us for nothing but what we can give at the time. Sometimes that is going in and stuffing envelopes and its a blast! They are a great team.

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

June 24, 2010

I received my diagnosis in 1995 and as time went on things just kept changing. You have a little of this and a little of that with a touch of this. I felt like one of my grandmothers old receipes. I turned to the foundation for assitance in understanding what the heck this disease was doing to me and what else to expect. They gave me the tools to try and help my family understand what kind of disease this really is and how it was weakening my body. They also gave me all the info on the new drugs so I could find the right treatment and assistance plans so I could get help to pay for them. They never let me down when I needed them. I am not a diagnosis I am a person with a name. Kathleen Soto of San Jose Ca 44 yrs old

The Great!

I've personally experienced the results of this organization in...

The new drug information and presenting it to my doctor in order to start Rituxan for a better treatment. Watching the Bylsta data now

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

The are always eager to help and always have an answer.

The kinds of staff and volunteers that I met were...

were very informative and compassionate.

If this organization had 10 million bucks, it could...

Help so many people and reach those who are to shy to call

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

April 22, 2013

more

April 22, 2013

Lupus of No. Calif. has helped me greatly over the past 11 years since being diagnosed with lupus and other autoimmune diseases. I live in the country and having the latest info. at my fingertips has been so reassuring. I have used their library and enjoy their newsletters. They have helped me with strategies for coping. I appreciate them being my advocate.

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

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