Lungevity Foundation

Rating: 4.87 stars   60 reviews

Issues: Health

Location: 218 South Wabash Avenue Suite 540 Chicago IL 60604 USA

Mission: The mission of LUNGevity Foundation is to have a meaningful and immediate impact on improving lung cancer survival rates, ensure a higher quality of life for lung cancer patients, and provide a community for those impacted by lung cancer. In order to accomplish our mission, LUNGevity funds the most promising research into the early detection and successful treatment of lung cancer. LUNGevity also supports the largest national grassroots lung cancer network, as well as the largest online support community for those affected by lung cancer.
Results: Since 2002, LUNGevity-funded scientific research projects have totaled more than $14 million, with over $5 million granted to outstanding researchers in just the last two years. This represents an investment in 92 projects at 54 institutions in 23 states.
Programs: Research funding, education thru webinars and Ask the Experts, Lung Cancer Support Community Message Boards, LifeLine Support Buddy Phone Program, LinkUP Advocacy Program, online Caregiver Resource Center, Voices of Hope Videos, LUNGevity Lung Cancer Hope Summit for survivors.
2013 Top-Rated Nonprofit
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EIN 36-4433410
312-464-0716
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Community Reviews

Rating: 5 stars  

1 person found this review helpful

LUNGevity is a very powerful group of cancer warriors and their caregivers, who speak cancer and encourage each other, to see another sunrise. They devote every minute to lung cancer, which kills more people every year than the top four cancers combined. As a ten year stage four survivor, I am honored to be part of such a wonderful foundation.

 
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Rating: 5 stars  

I found Lungevity and an incredible dedicated group of people almost four years ago. The offer me, a lung cancer survivor, stage 4 diagnoses, a inner circle of people like myself who offer kindness, understanding, prayers, wishes and place to meet up and share our crazy roller coaster lifestyle. Many of us live in three, six or twelve month intervals between our scans. We reach out and get inspired, we reach out and get hope. Thanks, Audrey

 
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1 previous review
Rating: 5 stars  

In 2012 I had the good fortune to meet with many helpmates in this incredible organization. The outreach of this group goes far beyond what one might expect. Comprised of dedicated people from all walks of life, coming together to advocate, support and uphold the lung cancer community at large is to be praised on all levels. I've yet to experience from any other such organization the outreach that LUNGevity provides to mention a few, medical navigation
, emotional support, opportunities to inspire and encourage, it's a place to be real.

If I had to make changes to this organization, I would...

Have local chapters

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

 
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Rating: 5 stars  

I'm a four year lung cancer survivor currently facing a recurrence of my cancer. I was not really aware of LUNGevity until starting to fight this recurrence. I am most impressed with the quality of the people in the LUNGevity organization and specifically their commitment to improving the situations of survivors/patients like me. I have learned enough about the research funding focus of this organization to believe that its efforts will significantly help me and others facing this dreaded cancer--I also applaud LUNGevity's efforts to provide peer mentoring/support whenever and however needed.

If I had to make changes to this organization, I would...

I can't identify any necessary changes at this time.

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

 
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Rating: 5 stars  

Lungevity is an amazing organization. The support that they offer survivors and caregivers far surpasses ANY organization out there. When I was diagnosed seven years ago, they were the only organization out there offering hope. They raise money for the much needed and underfunded research.

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

 
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Rating: 5 stars  

Lungevity extends a warm welcome to everyone who is touched in some way by lung cancer.It is an organisation that is determined to fight the scourge of lung cancer on many different levels,investing $millions supporting lung cancer projects right down to supporting individual survivors,families and carers.Their interests extend beyond North America,reaching out worldwide,even to such places as Bonnie Scotland,which is where I live,almost five years ago,I was diagnosed with lung cancer,it was through searching the internet for some information on lung cancer,I discovered LUNGevity, reading through their website engaged me enough to want to become a member.I was accepted into a new family friends who are made up of survivors,carers and family members.It has been my priviledge to visit the USA on two occassions and meet with,many LUNGevity members and staff I had only contact with prior online.It is my intention to make future visits to the USA,to maintain and strengthen my links with LUNGevity.

If I had to make changes to this organization, I would...

Invite them all to come to Scotland.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Some

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

 
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1 previous review
Rating: 5 stars  

1 person found this review helpful

I was dxd with lung cancer in Oct 2008,a death sentence I believed,my mind was in turmoil,thought of losing my wife and daughter forever was just so difficult to bear.Family and friends helped me tremendously from the start and through my chemo and surgery.On the successful course of treatments,I still was in need of the emotional support that my family and friends provided previous,but my cancer situation was wearing a bit thin on their patience with me,as one of my friends put it "Eric you have had all your treatments,the cancer is now gone for good,now forget it and get on with your life".My cancer issues were upsetting them,and I couldnt really blame them for wanting the subject dropped. Surfing the net one day,looking for some good news stories regarding lung cancer,I stumbled onto a site called LUNGevity,I had found something very special,a new family of friends just waiting for me to join them to share friendship,their knowledge and experiences with lung cancer,to make me realise I would never be alone again having to deal with my problems with lung cancer.I can testify that LUNGevity has been and is my saving grace.

I've personally experienced the results of this organization in...

In my everyday life

What I've enjoyed the most about my experience with this nonprofit is...

Its helped me to cope with my dx of lung cancer

The kinds of staff and volunteers that I met were...

First Class

If this organization had 10 million bucks, it could...

Invest and support funding a variety of projects that would improve the general outlook for all survivors of lung cancer.

When was your last experience with this nonprofit?

2010-7-01

 
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Review from Guidestar
Rating: 5 stars  

5 people found this review helpful

When I was dx'd almost three years ago, I read the stats for advanced lung cancer--3 to 5 yrs. I was devastated. All my family and friends were at a distance. In my search for info about my cancer, I was fortunate to find the Lungevity support community. It saved my life then and supported me through every crisis real or imagined every since. Hopefully, I am now a member who can offer the same to others. A primary message, we are not a number, we are an individual.

I've personally experienced the results of this organization in...

Keeping hope that I can beat the odds relative to statistics for my cancer because I have met so many people who have.

If I had to make changes to this organization, I would...

not change anything.

What I've enjoyed the most about my experience with this nonprofit is...

Meeting in person people I've come to know on the site as I travel.

The kinds of staff and volunteers that I met were...

Great people.

Ways to make it better...

I got to a point where I could travel by air and do advocacy work.

In my opinion, the biggest challenges facing this organization are...

One thing I'd also say is that...

When was your last experience with this nonprofit?

2010-1-01

 
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Review from Guidestar
Rating: 5 stars  

7 people found this review helpful

When my wife was diagnosed with lung cancer in March 2010 the family and myself were totaly ignorant and confused. My eldest daughter discovered the web site and since then I have had only proffessional and personal advice from all the members. Every posting was promptly answered on and advice or compassionate help offered. We ar all in the same situation and Lungivity Foundation has proved its worth with all the help and also the reports of the research taking place to try and eradicate or better treat this terrible disease. My wife has passed away but I will continue visiting the site. Once again thank you or everything you did for me and the family

I've personally experienced the results of this organization in...

The caring of my wife

If I had to make changes to this organization, I would...

None

What I've enjoyed the most about my experience with this nonprofit is...

The compassion and help shown

The kinds of staff and volunteers that I met were...

I only met them on the website

If this organization had 10 million bucks, it could...

Let the world know about the disease and how to cope with it

Ways to make it better...

Nl

In my opinion, the biggest challenges facing this organization are...

Collecting funds to promote cancer awareness

One thing I'd also say is that...

They are the best

When was your last experience with this nonprofit?

2010-7-01

 
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Review from Guidestar
Role: General Member of the Public
Rating: 5 stars  

7 people found this review helpful

I came across Lungevity after the passing of my father in 2008. The people I met have been wonderful! They get you through the toughest of times and give you praise for exciting news! I don't know where I would be if I hadn't found this website.

I've personally experienced the results of this organization in...

a support setting.

If I had to make changes to this organization, I would...

change nothing!

What I've enjoyed the most about my experience with this nonprofit is...

they helped me get through a tough time

The kinds of staff and volunteers that I met were...

helpful and awesome!

If this organization had 10 million bucks, it could...

hopefully find a cure!

Ways to make it better...

I had discovered it earlier!

In my opinion, the biggest challenges facing this organization are...

the lack of funding for Lung Cancer due to the stigma it brings.

One thing I'd also say is that...

I am glad I found this site!

When was your last experience with this nonprofit?

2010-6-01

 
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Review from Guidestar
Role: General Member of the Public
Rating: 4 stars  

8 people found this review helpful

I first came across when I joined Facebook and became friends with those who had lost relatives ttis disease and tried to offer words comfort and understand from them what a wonderful job Lungevity do in thier support of those with this disease and their relatives - also came to know something of the fund raising which takes place

I've personally experienced the results of this organization in...

to keep in touch with what they are doing re fund raising and supporting suffers.

If I had to make changes to this organization, I would...

not do anything as from what I can see they are doing a great job anyway

What I've enjoyed the most about my experience with this nonprofit is...

kowing what it is doing for sufferers and their relatives

The kinds of staff and volunteers that I met were...

I have never met any of these people but understand from those that have what a great job they do.

If this organization had 10 million bucks, it could...

provide much more support for those in need

Ways to make it better...

I had know of this before

In my opinion, the biggest challenges facing this organization are...

lack of funding

One thing I'd also say is that...

they deserve to win some funding for their work in this field

How frequently have you been involved with the organization?

One time

When was your last experience with this nonprofit?

2010-1-01

 
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