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53 Reviews
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September 11, 2013

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September 11, 2013

I was involved with Lungevity as a supporter of a local event 2 years ago. Little did I know I would be diagnosed with Lung Cancer and all the emotions and questions that come with it. Lungevity has been an essential tool for me and my family to help us navigate the confusion and questions of a disease that has few research dollars yet kills more people. The stigma of lung cancer for a person who never smoked is unreal. I was embarrassed to disclose my diagnosis. Lungevity has helped me deal with everything - and given me a voice to be an advocate and help others. They are an important lifeline.

Ways to make it better...

If I had to make changes to this organization, I would...

not change a thing. I think they are on the right track and have a great mission statement and staff to complete their 'awesomeness'.

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

July 23, 2013

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July 23, 2013

I have been involved with Lungevity for over a year now. They have been awesome in providing emotional support along with treatment options. I have non-small cell and my girlfriend Penny has small cell extensive. Katie Brown with Lungevity has been extremely helpful in putting us in touch with people that could help Penny in her fight. We both attended the Hope Summit in May in Arlington, VA. and make contact with other survivors and gained valuable information on how to fight this disease. I am also am a Lifeline Support Partner and have been able to offer one on one support to other survivors that I have been put in touch with through Lungevity

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How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

October 6, 2012

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October 6, 2012

I live in a small community where there are not a lot of resources. Lungevity has been invaluable both in support and understanding, as well as up-to-date information on the latest treatments and research. I would simply be lost without them.

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How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

October 6, 2012

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October 6, 2012

The support You can find here and the caring warm experience of being welcomed into this community of others who understand is simply amazing. I can't describe how it's changed my life and the life of so many others.

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How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

October 2, 2012

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October 2, 2012

My biggest challenge has been dealing with the anxiety of leaving my sons without me. I am a single mom and my sons have no other relatives that could be in their lives if something should happen to me. Also, I was diagnosed with LC a few months after my mom passed from the same LC. My children were young and with me while I was taking care of her and we watched her waste away and die. A few months later I was diagnosed and the hardest thing was for me to tell my sons I had cancer too. They were 10 years old (I have twin boys) and I had to go to the hospital for a week, recuperate from surgery and then have chemo treatments, so I knew I would have to be honest and talk with them. It was so hard. I had no one to turn to who really understood. And then I found LUNGevity. The support from LUNGevity, has been a lifeline to me. Not only does one get emotional support, but we learn more about different protocols from each other than the doctors! Also, spends more dollars on research for a cure than other organizations. I think one of the most powerful events LUNGevity sponsors is the annual HOPE SUMMIT. There is so much emotion and support for one another. Words cannot describe what it is like to be able to be yourself, your "cancer self" for one whole weekend.

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

July 22, 2013

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1 previous review
October 2, 2012

Last year I was introduced to Andrea Ferris and the LUNGevity organization. This was by far one of the best connections I've made in my life. And not because i'm a person with LC...It's because the... more

July 22, 2013

LUNGevity continues to set the standard for cancer advocacy organizations. Their level of professionalism and commitment to provide resources and patient support is unparalleled. I have had the extreme pleasure to work with them for the past two years during my cancer journey and no other organization comes close to the level of empathy, understanding, plus overall care and encouragement they provide on a continual basis.

Simply put, Amazing group of individuals working together towards a common cause and ultimately creating incredible results.

Ways to make it better...

If I had to make changes to this organization, I would...

Add more resources to broaden their support.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

October 2, 2012

Last year I was introduced to Andrea Ferris and the LUNGevity organization. This was by far one of the best connections I've made in my life. And not because i'm a person with LC...It's because they're incredible at what they do in every facet of their mission. As an inoperable stage III NSCLC recipient, I was given a very short life expectancy. Upon receiving this prognosis, I asked my doctor what I should do next. He stated simply, "Go live your life'. That's all fine and dandy as far as quips go but I had no idea where to find or what level of support existed. I wanted to seek others who might be faced with a similar fate. As fate would have it, I was directed to LUNGevity to find this support. Across the board, from online chat support, medical updates, fund raising, awareness, stigma change, live events, and providing HOPE, I can find no flaw in this organization. The people who make up LUNGevity are smart, passionate, caring, giving and most of all, selfless individuals all committed to one goal - end death by lung cancer. I for one can think of few organizations I wish to support more...whether I had the disease or not. LUNGevity is simply amazing!

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

July 25, 2010

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Review from Guidestar
July 25, 2010

I was diagnosed with lung cancer last year and felt so alone until I found Lungevity. I fould the most wonderful support group I could ever want.

The Great!

I've personally experienced the results of this organization in...

the support of all lung cancer patients, caregivers and love ones.

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When was your last experience with this nonprofit?

2010

July 10, 2010

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Review from Guidestar
July 10, 2010

I can testify to the fact that there are no more horrifying words to hear than, "You have lung cancer", and it becomes a part of who you are for as long as you may survive. I have found no better place to interact with other lung cancer survivors and caregivers than Lung Cancer Support Community. Katie has done an amazing job as founder and director of it.

The Great!

I've personally experienced the results of this organization in...

the online Lung Cancer Support Community, which is the best online support group I've seen, and as a survivor speaker at fundraising events.

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What I've enjoyed the most about my experience with this nonprofit is...

my continued sharing with other survivors and caregivers and the feeling that I'm doing something to help.

If this organization had 10 million bucks, it could...

help it bring about the better early detection and treatments that this disease so desperately needs.

When was your last experience with this nonprofit?

2010

July 10, 2010

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Review from Guidestar
July 10, 2010

LUNGevity has given me a place to receive and give on-line support to others impacted by lung cancer - be they patients, survivors, caregivers, family, or friends. Being able to find others who have been through the same or similar treatment has been a great resource. I am particularly grateful that this site maintains a respectful attitude to different opinions. I'm guessing the site moderators have a hand in that. Katie Brown's attitude of loving kindness permeates the discussions.

The Great!

I've personally experienced the results of this organization in...

my ability to maintain a balanced approach to my health care.

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What I've enjoyed the most about my experience with this nonprofit is...

the laughter and kindness shared by posters.

If this organization had 10 million bucks, it could...

go a long way towards funding an effective screening for early detection of lung cancer and improve survival rates.

When was your last experience with this nonprofit?

2010

July 10, 2010
1 person found this review helpful

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Review from Guidestar
July 10, 2010
1 person found this review helpful

In 2008 I was diagnosed with lung cancer for the second time. In 1998, when I was first diagnosed, I tried to find some type of support group, but there was nothing. In 2008, when I tried again to find some type of support group, I was so pleased to find Lungevity. Initially, the people at Lungevity gave me hope, and they continue to do so to this day. I would not want to have to go through this journey without them.

The Great!

I've personally experienced the results of this organization in...

Support and information for lung cancer patients and their families.

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When was your last experience with this nonprofit?

2010

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3 hours of volunteer time for this nonprofit will...

Mentor someone walking the lung cancer journey, contact local hospitals to distribute Get Connected materials, man a booth at a cfc or health fair, volunteer for one of our Breathe Deep events, contribute administrative skills in our DC or Chicago offices, intern for the foundation, spread the word about us and what we do via social media- and many more opportunities. Contact us today. Volunteer