Amazing support! Informative and uplifting. I start everyday by checking in to see how my fellow survivors and fighters are and end every day with a prayer for us all!!! LUNGevity is one of the few non profit who actually use your money for research which is another thing I love
I was diagnosed with lung cancer in 2000, 3 months after my mom died of lung cancer. It was before the internet boom and I felt so alone and scared. I was a single mom with 10 year old twin boys and no family around. Within about 6 months of my diagnosis, I started becoming familiar with the world wide web, but there was very little to nothing on lung cancer.
Then I found LUNGevity. I was no longer alone. I now have a community, a family. LUNGevity's site is comprehensive and the message board is a life saver to me.
The support from LUNGevity, has been a lifeline to me. Not only does one get emotional support, but we learn more about different protocols from each other than the doctors!
I think one of the most powerful events LUNGevity sponsors is the annual HOPE SUMMIT. There is so much emotion and support for one another. Words cannot describe what it is like to be able to be yourself, your "cancer self" for one whole weekend.
My biggest challenge has been dealing with the anxiety of leaving my sons without me. I am a single mom and my sons have no other relatives that could be in their lives if something should happen to me. Also, I was diagnosed with LC a few months after my mom passed from the same LC. My children were young and with me while I was taking care of her and we watched her waste away and die. A few months later I was diagnosed and the hardest thing was for me to tell my sons I had cancer too. They were 10 years old (I have twin boys) and I had to go to the hospital for a week, recuperate from surgery and then have chemo treatments, so I knew I would have to be honest and talk with them. It was so hard. I had no one to turn to who really understood. And then I found LUNGevity. The support from LUNGevity, has been a lifeline to me. Not only does one get emotional support, but we learn more about different protocols from each other than the doctors! Also, spends more dollars on research for a cure than other organizations. I think one of the most powerful events LUNGevity sponsors is the annual HOPE SUMMIT. There is so much emotion and support for one another. Words cannot describe what it is like to be able to be yourself, your "cancer self" for one whole weekend.
As a patient I registered for a survivorship conference organized by LUNGevity. Prior to arrival I had lost hope in my situation. After a two day conference I regained a sense of hope & companionship with other patient survivors as well as a greater grasp for looking forward to the future!
Top notch organization with the highest quality, dedicated employees. The services they provide those of us whose lives had been affected by lung cancer are beyond compare.
My first Hope Summit was in 2014. I left with such hope and inspiration and couldn't believe the amount of survivors I got to meet in person. Lungevity not only helps to connect other survivors to give hope and inspire us to keep fighting but they also are the number one non-profit that donates towards lung cancer research. Research is so critically needed for such an insatiable, deadly disease like this. I thank Lungevity staff for their deep dedication and all they do to raise awareness about lung cancer and help survivors live in the process.
If you have lung cancer, get in touch with LUNGevity. If you research treatments for lung cancer, get in touch with LUNGevity. If you need HOPE, get in touch with LUNGevity.
Lungevity provides information,support , fellowship,and valuable connections to other lung cancer survivors and caregivers. As an 11 year survivor, I can't adequately describe the support and connections that i have received through Lungevity. Their staff tirelessly works to provide support and information and the organization funds meaningful research aimed at finding a cure for lung cancer.
This is just an amazing group! No matter how you want your support, you can find it here. There is a message board so you can post questions or just what you are worried about to get written support. If you just need to type it out to get a rant out, do it here and half a dozen people will give you virtual hugs and pats on the back. If you are wondering what post-op will be like, people will share their stories.
If you prefer to have some one on one support they will find you someone to email or phone who understands what you are going thru because they have been thru it too. They try to match you as close as possible for diagnosis and anything else you prefer... if you want to make sure that you are matched with someone your gender, age group, family situation... ask away and if they know of someone that fits the bill, you will have a new friend.
Then there is the annual Hope Summit in DC! Informative speakers, yummy meals and more and more survivors every year!! I can hardly wait til May for the next one!!
There is no better place for lung cancer support!
I thank God that I found them and only wish I had found them sooner!!
I LOVE LUNGEVITY Foundation. I found this foundation last year while attempting to find some type of support group in my area. What I found was HOPE!!!!. They welcomed me in and I went to a regional hope summit. Through that I became part of the Alumni and found some neighboring members. We began a support group in my area for Lung Cancer Survivors. I went to the National Summit in DC. Met many survivors and gained more hope. LUNGEVITY gave me a life line partner. I met her while in DC at the Summit. Now I try to be a life line partner and it feels great to be able to help others. One of the greatest things I love about this foundation is the ongoing support I get from the members as well as Katie Brown. I don't feel or believe I have to go through this cancer journey alone. Great organization.
I was diagnosed with non small cell Stage 4 lung cancer in April 2014. I had no one to talk to about my fears and questions. The Cancer Society gave me the number of Lungevity. These people are terrific. Within 2 days Katie had me in touch with someone who has the same type of cancer. I've finished one round of chemo and will start Round 2 shortly. Then that 1st mentor had a set-back and Katie got me another mentor as soon as I asked for one. There is such a stigma about lung cancer, almost as if we caused it. One breast cancer survivor even asked me how much I smoked to bring it on myself. I would be lost without the caring support of these people.