Lungevity Foundation

Rating: 4.87 stars   60 reviews

Issues: Health

Location: 218 South Wabash Avenue Suite 540 Chicago IL 60604 USA

Mission: The mission of LUNGevity Foundation is to have a meaningful and immediate impact on improving lung cancer survival rates, ensure a higher quality of life for lung cancer patients, and provide a community for those impacted by lung cancer. In order to accomplish our mission, LUNGevity funds the most promising research into the early detection and successful treatment of lung cancer. LUNGevity also supports the largest national grassroots lung cancer network, as well as the largest online support community for those affected by lung cancer.
Results: Since 2002, LUNGevity-funded scientific research projects have totaled more than $14 million, with over $5 million granted to outstanding researchers in just the last two years. This represents an investment in 92 projects at 54 institutions in 23 states.
Programs: Research funding, education thru webinars and Ask the Experts, Lung Cancer Support Community Message Boards, LifeLine Support Buddy Phone Program, LinkUP Advocacy Program, online Caregiver Resource Center, Voices of Hope Videos, LUNGevity Lung Cancer Hope Summit for survivors.
2013 Top-Rated Nonprofit
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EIN 36-4433410
312-464-0716
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Community Reviews

Rating: 5 stars  

In 2009, at 39 years old, I was diagnosed with stage 3B non small cell lung cancer. I underwent brutal treatments for 10 agonizing weeks. Because of the stigma and the small # of lung cancer survivors, I really had no one to talk to about what I was going through, except for my mom, who is also a lung cancer survivor. Without her (my rock) I don't know how I would've made it through. She was always there to support, encourage, and remind me that "tomorrow will be better". I was lucky... most don't have anyone to turn to who has been there, done that. I wanted to share and give to others who may not have been so lucky and were fighting "alone". When I found LUNGevity, I was truly amazed at what this organization is all about. It gave me a voice; a way to touch and be touched in a way that gives and spreads hope to others as well as myself. This organization is all about the survivors, their families and caregivers. It funds vital research and provides information, support, and hope to all who are in need. I have attended the LUNGevity Survivor's Hope Summit two years in row and both experiences were magical. From the moment I walked in, I felt welcomed, accepted, embraced, and loved. I have NEVER experienced anything like it in all my life. Just being with all of the survivors gives me a renewed feeling of strength, empowerment, and unconditional love. I have made friendships that will last a lifetime and have gained the knowledge and ability to touch others as I have been touched. In the days just before the 2013 Hope Summit, I was going through a lot of not so happy things. I remember thinking, "I survived cancer for this?!". I was crying the morning I got onto the plane, but the moment I connected with the first "brother and sister survivors", I was all smiles. I suddenly remembered what it was all about! LUNGevity has opened many doors for me to help not only myself but others who need what we all crave... Love, support, encouragement, and hope. Through LUNGevity, I have been accepted to review applications for funding for research through the Department of Defense, and have been directed to the patient navigation institute where I was awarded a full scholarship to train to be an oncology patient navigator, None of this would've been possible without the guidance that LUNGevity provides, There is NO better nonprofit organization out there!!!

When was your last experience with this nonprofit?

2013

 
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Rating: 4 stars  

I was diagnosed stage four in 2009. I came through some very harsh treatments and made it. I have been cancer free for almost four years. During the first part of treatment and beyond, it was frustrating to have no support in our little town. I went through all the usual emotional issues and felt alone. I bumped into Lungevity by accident in a magazine ad. I looked it up online and found a great resource for support. I made many online friends who knew what I was going through and gladly accepted me. I have been to two of the Hope Summit gatherings in Wash. DC. I have learned so much from this wonderful group and feel like part of a big national family and beyond. I am aware of their tremendous fundraising efforts and all they do to help research. They work so hard and they know so many of us on a personal level too. They have made a huge impact during my recovery and continue on our behalf as patients, caregivers, survivors and families.

If I had to make changes to this organization, I would...

Team up with more foundations to have an even bigger voice.

Would you volunteer for this group again?

Likely

For the time you spent, how much of an impact did you feel your work or activity had?

Some

Did the organization use your time wisely?

Okay

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

 
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Rating: 5 stars  

Lungevity extends a warm welcome to everyone who is touched in some way by lung cancer.It is an organisation that is determined to fight the scourge of lung cancer on many different levels,investing $millions supporting lung cancer projects right down to supporting individual survivors,families and carers.Their interests extend beyond North America,reaching out worldwide,even to such places as Bonnie Scotland,which is where I live,almost five years ago,I was diagnosed with lung cancer,it was through searching the internet for some information on lung cancer,I discovered LUNGevity, reading through their website engaged me enough to want to become a member.I was accepted into a new family friends who are made up of survivors,carers and family members.It has been my priviledge to visit the USA on two occassions and meet with,many LUNGevity members and staff I had only contact with prior online.It is my intention to make future visits to the USA,to maintain and strengthen my links with LUNGevity.

If I had to make changes to this organization, I would...

Invite them all to come to Scotland.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Some

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

 
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1 previous review
Rating: 5 stars  

1 person found this review helpful

I was dxd with lung cancer in Oct 2008,a death sentence I believed,my mind was in turmoil,thought of losing my wife and daughter forever was just so difficult to bear.Family and friends helped me tremendously from the start and through my chemo and surgery.On the successful course of treatments,I still was in need of the emotional support that my family and friends provided previous,but my cancer situation was wearing a bit thin on their patience with me,as one of my friends put it "Eric you have had all your treatments,the cancer is now gone for good,now forget it and get on with your life".My cancer issues were upsetting them,and I couldnt really blame them for wanting the subject dropped. Surfing the net one day,looking for some good news stories regarding lung cancer,I stumbled onto a site called LUNGevity,I had found something very special,a new family of friends just waiting for me to join them to share friendship,their knowledge and experiences with lung cancer,to make me realise I would never be alone again having to deal with my problems with lung cancer.I can testify that LUNGevity has been and is my saving grace.

I've personally experienced the results of this organization in...

In my everyday life

What I've enjoyed the most about my experience with this nonprofit is...

Its helped me to cope with my dx of lung cancer

The kinds of staff and volunteers that I met were...

First Class

If this organization had 10 million bucks, it could...

Invest and support funding a variety of projects that would improve the general outlook for all survivors of lung cancer.

When was your last experience with this nonprofit?

2010-7-01

 
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Review from Guidestar
Rating: 5 stars  

LUNGevity continues to set the standard for cancer advocacy organizations. Their level of professionalism and commitment to provide resources and patient support is unparalleled. I have had the extreme pleasure to work with them for the past two years during my cancer journey and no other organization comes close to the level of empathy, understanding, plus overall care and encouragement they provide on a continual basis.

Simply put, Amazing group of individuals working together towards a common cause and ultimately creating incredible results.

If I had to make changes to this organization, I would...

Add more resources to broaden their support.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

 
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1 previous review
Rating: 5 stars  

Last year I was introduced to Andrea Ferris and the LUNGevity organization. This was by far one of the best connections I've made in my life. And not because i'm a person with LC...It's because they're incredible at what they do in every facet of their mission. As an inoperable stage III NSCLC recipient, I was given a very short life expectancy. Upon receiving this prognosis, I asked my doctor what I should do next. He stated simply, "Go live your life'. That's all fine and dandy as far as quips go but I had no idea where to find or what level of support existed. I wanted to seek others who might be faced with a similar fate. As fate would have it, I was directed to LUNGevity to find this support. Across the board, from online chat support, medical updates, fund raising, awareness, stigma change, live events, and providing HOPE, I can find no flaw in this organization. The people who make up LUNGevity are smart, passionate, caring, giving and most of all, selfless individuals all committed to one goal - end death by lung cancer. I for one can think of few organizations I wish to support more...whether I had the disease or not. LUNGevity is simply amazing!

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

 
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Rating: 5 stars  

A first class organizatin. Great staff, great resources, and there for you whenever you need them. Thanks for everything you do LUNGevity!

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

 
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Rating: 5 stars  

I went to the dfw walk and it was really well put together and there were like 25 survivors and it was so moving to my family. They really care about what they are doing.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

 
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Rating: 5 stars  

The event every year is something my whole family looks forward to. LUNGevity gives them a way to honor our loved one and raise funds for research at the same time. Thank you LUNGevity. We are working to CURE LUNG CANCER!

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

 
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Rating: 5 stars  

I met LUNGevity when I was first diagnosed with lung cancer. I was diagnosed at 24 years old so I felt pretty alone, but LUNGevity changed that. I was instantly connected with people who knew exactly what I was going through, and it was wonderful to not feel alone anymore! Not only are the staff personable, respectful, and caring, but they all have been impacted by lung cancer in some way. Every single person affiliated with LUNGevity knows how hurtful lung cancer is, and we all want to stop it. LUNGevity Foundation is the best charity I have ever come across, because they are dedicated to not only finding a cure for this disease but also to emotionally help those impacted whether patient, family member, or friend. I would not be where I am without LUNGevity.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

 
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Rating: 5 stars  

I am a stage 4 NSCLC adenocarcinoma one year survivor. I found LUNGevity after I had been through my first rounds of chemotherapy and was on a genetically targeted therapy that was just beginning to work. My sisters formed a team at Ann Arbor, Michigan's Breathe Deep event. I started to explore the website and learned of Hope Summit 2012 when Katie Brown wrote me a thank you note for my donation to the Breathe Deep event. She also invited me to apply for a scholarship to attend Hope Summit for lung cancer survivors. I am a bit shy, so it was a big step to attend the Summit. I have gotten support and been involved with the LUNGevity online community ever since. I have begun to volunteer as a moderator in the discussion forums on the site. I did not know anyone with lung cancer. LUNGevity has supported me, given me friends that are also fighting cancer and has given me purpose again in my life. I love this organization and have so much respect for the folks that run it. They are the REAL DEAL!

Would you volunteer for this group again?

Likely

For the time you spent, how much of an impact did you feel your work or activity had?

Some

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

 
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Rating: 5 stars  

LUNGevity Foundation is a top notch non-profit organization. They truly care about lung cancer survivors and anyone affected by this deadly disease. I found LUNGevity after my father passed away and began to volunteer at a local event raising funds for much needed research. I wish I would have found LUNGevity while my father was still living to get much needed help. I am proud to say I volunteer for this amazing organization.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

 
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