LUNGEVITY FOUNDATION

Rating: 4.87 stars   60 reviews

Issues: Health

Location: 218 South Wabash Avenue Suite 540 Chicago IL 60604 USA

Mission: The mission of LUNGevity Foundation is to have a meaningful and immediate impact on improving lung cancer survival rates, ensure a higher quality of life for lung cancer patients, and provide a community for those impacted by lung cancer. In order to accomplish our mission, LUNGevity funds the most promising research into the early detection and successful treatment of lung cancer. LUNGevity also supports the largest national grassroots lung cancer network, as well as the largest online support community for those affected by lung cancer.
Results: Since 2002, LUNGevity-funded scientific research projects have totaled more than $14 million, with over $5 million granted to outstanding researchers in just the last two years. This represents an investment in 92 projects at 54 institutions in 23 states.
Programs: Research funding, education thru webinars and Ask the Experts, Lung Cancer Support Community Message Boards, LifeLine Support Buddy Phone Program, LinkUP Advocacy Program, online Caregiver Resource Center, Voices of Hope Videos, LUNGevity Lung Cancer Hope Summit for survivors.
2013 Top-Rated Nonprofit
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EIN 36-4433410
312-464-0716
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Community Reviews

Rating: 5 stars  

Lungevity is an amazing organization. The support that they offer survivors and caregivers far surpasses ANY organization out there. When I was diagnosed seven years ago, they were the only organization out there offering hope. They raise money for the much needed and underfunded research.

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

I met LUNGevity when I was first diagnosed with lung cancer. I was diagnosed at 24 years old so I felt pretty alone, but LUNGevity changed that. I was instantly connected with people who knew exactly what I was going through, and it was wonderful to not feel alone anymore! Not only are the staff personable, respectful, and caring, but they all have been impacted by lung cancer in some way. Every single person affiliated with LUNGevity knows how hurtful lung cancer is, and we all want to stop it. LUNGevity Foundation is the best charity I have ever come across, because they are dedicated to not only finding a cure for this disease but also to emotionally help those impacted whether patient, family member, or friend. I would not be where I am without LUNGevity.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

This is the hardest working charity I have found. For such a small group of people, they conduct dozens of walks and charitable benefits across the country in a single year. Their community outreach is so extensive. Their website and staff both help those affected with lung cancer and also for those who know someone affected by lung cancer. You can talk to someone who truly understands and that can help the body, as well as, the soul.

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

My biggest challenge has been dealing with the anxiety of leaving my sons without me. I am a single mom and my sons have no other relatives that could be in their lives if something should happen to me. Also, I was diagnosed with LC a few months after my mom passed from the same LC. My children were young and with me while I was taking care of her and we watched her waste away and die. A few months later I was diagnosed and the hardest thing was for me to tell my sons I had cancer too. They were 10 years old (I have twin boys) and I had to go to the hospital for a week, recuperate from surgery and then have chemo treatments, so I knew I would have to be honest and talk with them. It was so hard. I had no one to turn to who really understood. And then I found LUNGevity. The support from LUNGevity, has been a lifeline to me. Not only does one get emotional support, but we learn more about different protocols from each other than the doctors! Also, spends more dollars on research for a cure than other organizations. I think one of the most powerful events LUNGevity sponsors is the annual HOPE SUMMIT. There is so much emotion and support for one another. Words cannot describe what it is like to be able to be yourself, your "cancer self" for one whole weekend.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

I am a stage 4 NSCLC adenocarcinoma one year survivor. I found LUNGevity after I had been through my first rounds of chemotherapy and was on a genetically targeted therapy that was just beginning to work. My sisters formed a team at Ann Arbor, Michigan's Breathe Deep event. I started to explore the website and learned of Hope Summit 2012 when Katie Brown wrote me a thank you note for my donation to the Breathe Deep event. She also invited me to apply for a scholarship to attend Hope Summit for lung cancer survivors. I am a bit shy, so it was a big step to attend the Summit. I have gotten support and been involved with the LUNGevity online community ever since. I have begun to volunteer as a moderator in the discussion forums on the site. I did not know anyone with lung cancer. LUNGevity has supported me, given me friends that are also fighting cancer and has given me purpose again in my life. I love this organization and have so much respect for the folks that run it. They are the REAL DEAL!

Would you volunteer for this group again?

Likely

For the time you spent, how much of an impact did you feel your work or activity had?

Some

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

LUNGevity Foundation is a top notch non-profit organization. They truly care about lung cancer survivors and anyone affected by this deadly disease. I found LUNGevity after my father passed away and began to volunteer at a local event raising funds for much needed research. I wish I would have found LUNGevity while my father was still living to get much needed help. I am proud to say I volunteer for this amazing organization.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

Lungevity is a wonderful organization to be a apart of if you are living with Lung Cancer or know of someone who is living with this disease. Full of wonderful caring people who are there to inspire and motivate and share the tears with when you want to cry. they are a great group trying to make progress in the fight against Lung cancer every day in every way!! I have served as a moderator since my wife was fighting Lung Cancer and that has been about 8 years now. Since she passed away they have been there to support me in my grief and help me through the good and bad days !!

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

2 people found this review helpful

My husband was diagnoised with LC 6 years ago. I was so scared I thought it was a death sentence. I had nowhere to turn until I found Katie and Rick Brown's support webpage. It actually changed my life. There are so many people on there who are survivors and it they gave me such encouragment. And they are so knowledgable and helpful... My husband cancer came back 3 times. The last time he was treated with cyberknife and has been C free for 1 1/2 years the longest he has gone! It was LC help that introduced us to cyberknife... Katie and Rick to me are angels here on earth!! Also because LC is on the bottom of the list as far as funding, we joined Lungevity to help with awareness. We have been walking the South Jersey Heather Saler walk for 5 years now. We ourselves have raised over $20,000.00 over those 5 years. We are making a difference but we need VOLUNTEERS!!! Maryanne & Joel

I've personally experienced the results of this organization in...

2004 thru present

When was your last experience with this nonprofit?

2009-11-01

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Review from Guidestar
Rating: 5 stars  

3 people found this review helpful

My husband was diagnosed with lung cancer over five years ago. He has since passed away. LUNGevity was there for me as a wonderfully helpful support.

I've personally experienced the results of this organization in...

Their experiences, information and kind support throughout my membership. I couldn't ask for anything better.

What I've enjoyed the most about my experience with this nonprofit is...

LUNGevity is an organization that helped me with information, support and in sharing their excellent experience. There is no better support when a family or individual is diagnosed with lung cancer. They are the best.

When was your last experience with this nonprofit?

2010-1-01

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Review from Guidestar
Rating: 5 stars  

4 people found this review helpful

I was diagnosed with lung cancer last year and felt so alone until I found Lungevity. I fould the most wonderful support group I could ever want.

I've personally experienced the results of this organization in...

the support of all lung cancer patients, caregivers and love ones.

When was your last experience with this nonprofit?

2010-7-01

Was this review helpful? 
Review from Guidestar