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June 14, 2010

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June 14, 2010

Our foundation was established because there simply is not enough research out there for post-lung transplant recipients. After lung transplantation a person has a high risk of developing rejection at any time, more so than with most solid organ transplants. You would think this would lead more health organizations, drug companies, etc. to invest in studies that would benefit those at risk? It's simply not happening. Doctors have to look to other studies done specifically for kidney transplantation, etc. for therapies and meds needed for lung transplant recipients. It's just not ideal, so the LTF is here to promote awareness and raise money to help initiate new studies for the many, many people who are post-lung transplant and hoping to continue to live life rejection-free! I am on of those hoping!

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The Great!

I've personally experienced the results of this organization in...

I am a lung transplant recipient. I know the money raised from this organization will go towards research. This research will benefit me and help find ways to combat chronic rejection.

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How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

June 14, 2010

more

June 14, 2010

The Lung Transplant Foundation (LTF) is building,from the ground up, an organization devoted to raising funding for research into chronic rejection in lung receipients. This organization, conceived by a caring physician and a patient, has been growing by leaps and bounds in the short time it has been running. The board is constructed of lung transplant recipients and people who care about recipients. We have launched a website and we are currently preparing for our first big event in the fall. We have some amazing people working on the established committees who inspire us and also direct us in fundraising. This organization provides hope to thousands of recipients who, even if healthy, have the spectre of chronic rejection hanging over their head as there is no known cure. This organization has already provided hope for recipients world-wide.

The Great!

I've personally experienced the results of this organization in...

my interactions with the international lung transplant community.

Ways to make it better...

If I had to make changes to this organization, I would...

give them the funding they need to start the research so desperately needed. Also, I would have money to pay an executive director or a full-time fundraiser.

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What I've enjoyed the most about my experience with this nonprofit is...

the sacrafice of time people make to support the organization and help it grow. Also, the leadership shown by fellow lung trabsplant recipients.

The kinds of staff and volunteers that I met were...

wonderful. I have been so inspired by the people who have had and still endure so many physical challenges yet devote their energy and expertise to further the cause of research, yet may never benefit from the fruits of their labor.

If this organization had 10 million bucks, it could...

fund multi-transplant center research into the causes of chronic rejection which is our mission.

Ways to make it better...

I could quit my day job and work full time at supporting the work of the Foundation.

In my opinion, the biggest challenges facing this organization are...

that we need more volunteers who are devoted and connected to lung transplant but who are not recipients. We need to have a very public presence in the community in order to make people aware of our cause.

One thing I'd also say is that...

this research is desperately needed. Since lung transplants are relatively rare it is hard to get research funding. However, as I can attest, lung transplants can be transformative. Recipies live fulfilling lives.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

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