Lung Cancer Alliance

Rating: 4.87 stars   95 reviews

Address:

1700 K Street NW Suite 660 Washington DC 20006 USA

Mission:

Saving lives and advancing research by empowering those living with and at risk for lung cancer.

Results:

Over the past year, more than 12,000 personal telephone calls and email requests were managed by our professional and caring staff, delivering customized support packets to improve outcomes. We also expanded a network of 1,500 medical facility contacts nationwide who share our educational support materials to the newly diagnosed and their loved ones so that they know they are not alone and we are here to help. We launched efforts to educate the millions at high risk about their life-saving options, encouraging conversations with their doctors about early detection. To date, more than 300 medical facilities have joined our coalition to make sure that screening is done right and well at centers of excellence across the U.S. We have trained thousands of advocates to educate elected and public health officials about the disease, securing almost $90 million to date in public health dollars for research and early detection. Because we do not accept public funding, and these dollars fund research directly, we are able to leverage your support at least 10-fold. We also launched the first nationwide awareness campaign addressing the stigma of lung cancer head-on. With more than 300 million impressions to date, the campaign continues to grow over social media channels. Learn more at: www.NoOneDeservesToDie.org. These combined efforts will help meet our vision of reducing lives lost to lung cancer by half by 2020. With your continued help and support, we will achieve this realistic and attainable goal.

Target demographics:

The milions living with or at risk for lung cancer

Direct beneficiaries per year:

At least 12,000

Geographic areas served:

Nationwide

Programs:

Community& Support Services Program: Providing free, one-on-one support, information, and referrals to patients, at risk individuals and their loved ones through telephone and online support services, delivering customized education packets to make informed decisions and improve outcomes. Education Program: Conducting national awareness campaigns, including No One Deserves to Die, National Shine A Light on Lung Cancer Vigil, Team Lung Love and Give A Scan to educate the public about the facts, dispel myths, and share calls to action to eliminate stigma, increase research funding and save lives. Health Policy Program: Advocating for multiple millions in public health dollars for lung cancer research and early detection through a nationwide grassroots network of volunteer chapters, advocates and targeted policy strategies.

2015 Top-Rated Nonprofit
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More Info

800-298-2436
http://www.lungcanceralliance.org

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Reviews for Lung Cancer Alliance

Role: General Member of the Public
Rating: 5 stars  

1 person found this review helpful

LCA is a wonderful organization with a wonderful staff. They are passionate about what they do and incredibly forward thinking. LCA fulfills it's mission with a positive energy. With a nonprofit budget, they sure do great things for the community and individuals affected by lung cancer!

 
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Rating: 5 stars  

I wish I had done more research and had known about Lung Cancer Alliance (LCA) when my stepdad was diagnosed with stage IV lung cancer in October 2008. In the years since he passed away on April 1, 2009, I have learned just how much critical work this dynamic nonprofit does for (most importantly) the people suffering from this awful disease, their family and loved ones, and their caretakers; advocating for more research and access to treatment; and carrying out public service campaigns to educate us all. LCA's work to dispel the myths associated with lung cancer have been particularly powerful for me. This organization is a shining example of what a health-related nonprofit can do to personally support those affected while lobbying for the resources to combat a devastating disease.

 
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Role: General Member of the Public
Rating: 5 stars  

My mother was diagnosed with stage 3B lung cancer in 2004. She underwent surgery and radiation treatment, passing 15 months after diagnosis, in August of 2006. The Alliance not only helped me during this very difficult time by providing me with resources to be a better caregiver to not only my young children, but also to my ailing mother as well as my father, who was rundown from being the primary caregiver himself. The Alliance continues to help provide me with medical developments which I keep abreast of so I can monitor how modern science is helping to find a cure. I also use the site as a staple to harness volunteer opportunities so I may stay involved in the fight that took my mother's and so many others' lives. We must beat this disease and with organizations like the Lung Cancer Alliance, we will!!

 
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Role: General Member of the Public
Rating: 5 stars  

Our son is living with stage IV lung cancer. He has the ALK tumor. He is a young husband and father of a three year old son. Believe me the support this group gives us is so important. Its' articles and drive to make new discoveries and funding for lung cancer gives us so much hope. Helping it reach its goals also gives us purpose. Our first experience was through Shine a Light last November. We are now hosting our own event. Thank you so much for your support.

 
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Rating: 5 stars  

1 person found this review helpful

I found this organization after my sister was diagnosed with stage IV lung cancer. Sadly she passed away 2 years ago. I was able to find support, ask questions & get educated from their site. I am also a runner so I signed up with Team Lung Love. You can run any race anytime & collect donations for LCA. These people have never hounded me for anything. They have wonderful support & give all they have to those in need. They are pushing hard in Washington for better screening so people can get diagnosed sooner & have a chance to live. So glad I found them & thank you so much for all you do.

When was your last experience with this nonprofit?

2014

 
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Rating: 5 stars  

1 person found this review helpful

Last year a friend of ours invited us to a candle vigil for lung cancer and we had nothing else that night so we joined her. Well we listened to personal life experiences, a medical professional and got some education. My husband was a heavy smoker at that time and had been having some breathing issues. So we got him into the doctors office armed with a request for specific testing (not normally done) and yes a few small spots were discovered. After months of follow up the spots were found to not be cancer-however my husband is well on his way to being a nonsmoker and other health issues were discovered in the process. We read the emails we signed up to receive, act on events-requests as best we can, pass on information and are forever grateful that the vigil, speakers and information were available for us at a cost of only our time. You are helping so many people as I know there are a lot more stories out there that are happening right now but are not being told. THANK YOU FOR ALL YOU DO!!! Debbie and John

 
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Thank you for your kind words. We are glad to hear that you both are doing well. We hope to see you at a Shine a Light this November!

Role: General Member of the Public
Rating: 5 stars  

I am a 6 year lung cancer survivor - and LCA has helped me through every part of my journey. From first diagnosis, through many times of 'scanxiety', through feelings of guilt for surviving (trust me - it happens), through on-going pain, etc. The people of LCA are my support. I have cried on their shoulders more times than I can count and there ALWAYS was someone there to help wipe my tears with their caring, understanding and love. This is an amazing and powerful organization and I will forever be a member and try to help others as I have been helped.

 
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Thank you for your kind words. Please know that we are always here for you. Keep up the fight!

Thank you for your kind words. Please know that we are always here for you. Keep up the fight!

Role: General Member of the Public
Rating: 4 stars  

I also found out about my lung cancer by accident and had a large wedge removed from my right lower lobe on June 27, 2013. The doctors told me the frozen section showed no malignancy, but the final pathology disagreed; I had Stage I adenocarcinoma. I just had my first f/u CAT scan and there has been no change, but I worry a lot about recurrence. I would love to have a support group close to where I live through LCA, but there is not one in the area. I support LCA by being a donor and trying to support others through their journey on the website.

If I had to make changes to this organization, I would...

Have more support groups available. Although my friends and family are supportive they really don't understand what I am going through.

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2013

 
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Role: General Member of the Public
Rating: 4 stars  

Late December 2010, I went to the Urgent Care thinking I had a sever bronchial infection. Had pneumonia and a "shadow" in the lung xray. Be the beginning of February 2011, it was decide to remove a large wedge of the upper right lobe of my lung and several small wedges. January 2012 saw return of several tumors. Started chemo at end of June 2012 until end of October 2012, Avastin only for 2 1/2 months and then pneumonia in January 2013 showed tumors back. Went back on chemo until April 2013 and have been on Tarceva since. I also have COPD and Crohn's. Chemo and Crohn's do not want to work well together. Due to sever dehydration, I have been hospitalized twice since on the Tarceva. Have finally gotten things under semi control and living well right now.

Will you volunteer or donate to this organization?

Unsure

How much of an impact do you think this organization has?

Some

When was your last experience with this nonprofit?

2013

 
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Rating: 5 stars  

I, too found out about my stage I lung cancer by accident. A routine x-ray revealed "a mass". My journey began that day and now, almost two years later, I am alive thanks to my amazing and wonderful doctor at Memorial Sloan Kettering Cancer Center. I joined the Lung Cancer Alliance to get support, information and most of all to share my continuing medical journey.
The stories we share are sometimes sad, hopeful, full of joy and love. Here's mine, I live life today and in the now. Thanks, LCA, for being my partner along this road.

If I had to make changes to this organization, I would...

Nothing, keep up the great work and keeping us updated on the latest treatment information.

Will you volunteer or donate to this organization?

Unsure

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

 
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