Lung Cancer Alliance

Rating: 4.85 stars   80 reviews

Issues: Civil Rights, Health, Human Services, Cancer

Location: 1700 K Street NW Suite 660 Washington DC 20006 USA

Mission: Saving lives and advancing research by empowering those living with and at risk for lung cancer.
Results: Over the past year, more than 12,000 personal telephone calls and email requests were managed by our professional and caring staff, delivering customized support packets to improve outcomes. We also expanded a network of 1,500 medical facility contacts nationwide who share our educational support materials to the newly diagnosed and their loved ones so that they know they are not alone and we are here to help. We launched efforts to educate the millions at high risk about their life-saving options, encouraging conversations with their doctors about early detection. To date, more than 300 medical facilities have joined our coalition to make sure that screening is done right and well at centers of excellence across the U.S. We have trained thousands of advocates to educate elected and public health officials about the disease, securing almost $90 million to date in public health dollars for research and early detection. Because we do not accept public funding, and these dollars fund research directly, we are able to leverage your support at least 10-fold. We also launched the first nationwide awareness campaign addressing the stigma of lung cancer head-on. With more than 300 million impressions to date, the campaign continues to grow over social media channels. Learn more at: www.NoOneDeservesToDie.org. These combined efforts will help meet our vision of reducing lives lost to lung cancer by half by 2020. With your continued help and support, we will achieve this realistic and attainable goal.
Target demographics: The milions living with or at risk for lung cancer
Direct beneficiaries per year: At least 12,000
Geographic areas served: Nationwide
Programs: Community& Support Services Program: Providing free, one-on-one support, information, and referrals to patients, at risk individuals and their loved ones through telephone and online support services, delivering customized education packets to make informed decisions and improve outcomes. Education Program: Conducting national awareness campaigns, including No One Deserves to Die, National Shine A Light on Lung Cancer Vigil, Team Lung Love and Give A Scan to educate the public about the facts, dispel myths, and share calls to action to eliminate stigma, increase research funding and save lives. Health Policy Program: Advocating for multiple millions in public health dollars for lung cancer research and early detection through a nationwide grassroots network of volunteer chapters, advocates and targeted policy strategies.
2014 Top-Rated Nonprofit
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Community Reviews

Rating: 5 stars  

When I was diagnosed with Stage 2 non small cell lung cancer in 2004, I discovered the Lung Cancer Alliance. I was happy to find an advocacy organization that supported lung cancer survivors and their families, especially since the American Cancer Society was still stigmatizing those diagnosed with lung cancer and doing nothing to assist them. As each year passed, I realized that I had a life to live and have volunteered with the Lung Cancer Alliance to be a Phone Buddy, speaker at Shine A Light in Northern California, and Advocacy Chair in the first Lung Love Run/Walk In Berkeley CA. The Lung Cancer Alliance gets my vote every time because of their tireless efforts on a national level on behalf of survivors, their friends and families, and those at high risk. I'm an example of long-term survival due to early detection and applaud the Lung Cancer Alliance for its valiant work to save lives and increase the survival rate of this deadly disease.

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Thank you for all that you do! With your ongoing efforts and hard work, together we will fight lung cancer! Keep up the fight.

Rating: 5 stars  

In 2000 and 2003, though a NON SMOKER my entire life, I was stricken with lung cancer. My surgeon Dr. Christina Williamson had heard about Lung Cancer Alliance when they were in one room in Seattle, Washington trying to increase awareness about the number one cancer killer. They helped me immediately and made me feel I was not alone. Since then, LCA has moved to Washington, DC and done remarkable things for victims of lung cancer as well as families. I am so proud of what they are doing coast to coast and outside of the USA. They handle the disease by contributing to research, reaching out, advocating and leading the way. They are the best. Gail Matthews

If I had to make changes to this organization, I would...

LCA under the team leadership of Laurie Fenton Ambrose is amazing. Just keep on going as they are. I am so impressed with their growth and the way they reach out to help a disease that came from behind the rear of all diseases.

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

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Rating: 5 stars  

When my daughter died from lung cancer, then I got it I was so devastated I didn't know where to turn Someone recommended Lung Cancer Alliance, and they have been wonderful! I have been to Capitol to fight for additional funding for research, and will continue to do so. The information, and support they give is nothing short of excellent!

If I had to make changes to this organization, I would...

Make none! All calls I made were handled on time, and with encouragement, and compassion all information was current and all staff were professional!

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

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1 previous review
Rating: 5 stars  

6 people found this review helpful

When my daughter died from lung cancer, then I was diganoised with lung cancer, I needed information! I turned to Lung Cancer Alliance. They not only sent me lots of information, but put me in touch with a telephone buddy, who called me and gave me much encouragement. I very much appreciated the help, information, and caring I got from them. I now am a telephone buddy, and I want to give back to all those who helped me through the diffucult times I had facing this unpleasent disease.

I've personally experienced the results of this organization in...

How scared people are helped, and the kindness this organization shows them.

If I had to make changes to this organization, I would...

Maybe put more information in hospitals and doctors offices, telling people there is help out there for lung cancer victums.

What I've enjoyed the most about my experience with this nonprofit is...

The caring people. The advocacy they are pursing for lung cancer research.

The kinds of staff and volunteers that I met were...

Helpful, kind, and caring!

If this organization had 10 million bucks, it could...

Help lung cancer research programs, and have more screening for lung cancer.

Ways to make it better...

I really cannot think of any way.

In my opinion, the biggest challenges facing this organization are...

Lack of funds.

One thing I'd also say is that...

Thanks Lung Cancer Alliance for your wonderful help at a time when I needed it .

When was your last experience with this nonprofit?

2009-7-01

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Rating: 5 stars  

As a newly diagnosed lung cancer patient, I was overwhelmed with information. And since I was diagnosed with stage IV NSCLC, what I was reading was dismal and discouraging. Connecting with others that are surviving and joining in the fight to end the stigmas that lung cancer is only a smokers disease have helped me become hopeful about my future and survival.

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Quite well

When was your last experience with this nonprofit?

2013

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Rating: 5 stars  

1 person found this review helpful

When I lost my husband and his brother to lung cancer,I was devastated. I needed to process my feelings and learn more about this horrible disease. Both of these men stopped smoking 20 or more years before they were diagnosed;however,it was the lung cancer alliance that provided me with the facts that you never hear in the media.People look down on lung cancer patients because they smoked, regardless of the circumstances,but LCA through their diligence gets the facts out and takes the shame away. I mourn these precious souls everyday;but I am grateful to the LCA for being there for me and allowing me to hold my head up high and know that they are doing more than any other organization has ever done to see that research is done and everyone has a chance to know the truth about this dreaded disease.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

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Rating: 5 stars  

I am a 13 year lung cancer survivor who has been involved with the LCA for over 7 years. First I was given support by the many caring individuals that make up this organization. I have since giving back to other lung cancer survivors through this organization. I also have seen them push for legislative measures to support the research funding for this much maligned disease.

I've personally experienced the results of this organization in...

My view of how a few people can change people's attitudes towards a disease and the people affected by it.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

How did you find this group?

Internet search

What, if any, change in your life has this group encouraged?

To show support to my fellow cancer survivors.

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Rating: 5 stars  

2 people found this review helpful

When my mom was diagnosed with non-small cell lung cancer, I searched the web to find any information about it that I could. My resources were limited. After approaching Lunc Cancer Allinace for information, they sent me packets and booklets and books to read. To me it was comforting to know there were daughters, sons, husbands, wifes, sisters and brothers like me...facing what I was facing. The informatio they sent me was not good news. The average life span of a patient fighting non-small cell lung cancer is 13 months. My mom lived 13 months after diagnosis. Lung cancer must be put in the forfront of the mind. My mom never smoked and because of the stigmatism associated with lung cancer, her as well as countless other lives are lost. And just because someone smoked doesn't mean they deserve a death sentance. The funds to aid in survival need to increase and patients need to be given a fair fight! Heather Delaney

I've personally experienced the results of this organization in...

supporting me and my family while battleing lung cancer.

If I had to make changes to this organization, I would...

do every thing I could to raise funds and awerness of this horrible disease. They are doing a great job against all their odds!

What I've enjoyed the most about my experience with this nonprofit is...

just the support they made available to me and my family during our battle.

The kinds of staff and volunteers that I met were...

compassionate

If this organization had 10 million bucks, it could...

it would only be a drop in the bucket, but might be able to build more awerness in the puublic and local communitities.

Ways to make it better...

there where more places in the Seattle area where my services can be used.

In my opinion, the biggest challenges facing this organization are...

the stigmatism associated with smoking and the lack of funding and research beacuse of the stigmatism.

One thing I'd also say is that...

LCA needs all the press and people talking about it to bring this matter to the forfront. It helped in my time of need and could do so much more with the public knowing more about them and the disease.

When was your last experience with this nonprofit?

2009-1-01

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Rating: 5 stars  

6 people found this review helpful

The Lung Cancer Alliance keeps me informed and connected to the problems, issues, and solutions related to lung cancer. It is an invaluable resource to me, a lung cancer survivor (since 1999.) The proactive measures taken by the LCA provide me with an advocate, an advocate that speaks for me to the medical community, the legislative community, the media community. I could not do all this by myself. The LCA is a voice for the isolated cancer victim and gives that victim a little hope knowing that someone out there cares and is fighting for a cure! Thanks to the LCA!!

I've personally experienced the results of this organization in...

Increased interest by the media and others in presenting the case for adequate treatment and funding for lung cancer.

If I had to make changes to this organization, I would...

Give lots of recognition to the employees.

What I've enjoyed the most about my experience with this nonprofit is...

Frequent contact with messages of hope and messages of action related to finding a cure to lung cancer.

The kinds of staff and volunteers that I met were...

Helpful, caring people who had experience and empathy for the people they were working with.

If this organization had 10 million bucks, it could...

Be more effective in spreading the word about the disease, help more people, become more effective advocates for people who cannot speak for themselves.

Ways to make it better...

More interest from the larger cancer fighting community in trying to fight this disease!

In my opinion, the biggest challenges facing this organization are...

Lung cancer is treated as a disease people deserve to get because they smoked. This is not an accurate perception but is a prevalent one in today's' world. The biggest obstacle is getting the word out that lung cancer affects all kinds of people!

One thing I'd also say is that...

I appreciate the contact I have made with the LCA. I no longer feel quite so isolated as I walk the daily walk of lung cancer victim.

When was your last experience with this nonprofit?

2009-7-01

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