Lung Cancer Alliance

Rating: 4.85 stars   80 reviews

Issues: Civil Rights, Health, Human Services, Cancer

Location: 1700 K Street NW Suite 660 Washington DC 20006 USA

Mission: Saving lives and advancing research by empowering those living with and at risk for lung cancer.
Results: Over the past year, more than 12,000 personal telephone calls and email requests were managed by our professional and caring staff, delivering customized support packets to improve outcomes. We also expanded a network of 1,500 medical facility contacts nationwide who share our educational support materials to the newly diagnosed and their loved ones so that they know they are not alone and we are here to help. We launched efforts to educate the millions at high risk about their life-saving options, encouraging conversations with their doctors about early detection. To date, more than 300 medical facilities have joined our coalition to make sure that screening is done right and well at centers of excellence across the U.S. We have trained thousands of advocates to educate elected and public health officials about the disease, securing almost $90 million to date in public health dollars for research and early detection. Because we do not accept public funding, and these dollars fund research directly, we are able to leverage your support at least 10-fold. We also launched the first nationwide awareness campaign addressing the stigma of lung cancer head-on. With more than 300 million impressions to date, the campaign continues to grow over social media channels. Learn more at: www.NoOneDeservesToDie.org. These combined efforts will help meet our vision of reducing lives lost to lung cancer by half by 2020. With your continued help and support, we will achieve this realistic and attainable goal.
Target demographics: The milions living with or at risk for lung cancer
Direct beneficiaries per year: At least 12,000
Geographic areas served: Nationwide
Programs: Community& Support Services Program: Providing free, one-on-one support, information, and referrals to patients, at risk individuals and their loved ones through telephone and online support services, delivering customized education packets to make informed decisions and improve outcomes. Education Program: Conducting national awareness campaigns, including No One Deserves to Die, National Shine A Light on Lung Cancer Vigil, Team Lung Love and Give A Scan to educate the public about the facts, dispel myths, and share calls to action to eliminate stigma, increase research funding and save lives. Health Policy Program: Advocating for multiple millions in public health dollars for lung cancer research and early detection through a nationwide grassroots network of volunteer chapters, advocates and targeted policy strategies.
2014 Top-Rated Nonprofit
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Community Reviews

Rating: 5 stars  

10 people found this review helpful

I was diagnosed with Lung Cancer in Oct, 2006. As devastating as that news was, our family began researching all we could immediately. We became connected with the Relay For Life project through the American Cancer Society. This year, I was challenged to "Fight Back" at the Relay. I chose to learn as much as I could about the myths and stigma of lung cancer. Since I have never smoked, it was shocking that I experienced much of this prejudice during my diagnosis and treatment. Nurses, doctors and other health care professionals assumed I smoked. In doing all the research, I came across the Lung Cancer Alliance. They welcomed me and embraced me. They sent me an incredible amount of material, including a t shirt which read, "I never smoked and I have lung cancer", which I wore proudly at the Relay event in May. The information and educational material that they share is phenomenal. My experience with the organization has been rewarding and enlightening. I am so pleased that I found them and only hope I can give back.

I've personally experienced the results of this organization in...

the way that they share education/information.

If I had to make changes to this organization, I would...

not change anything

What I've enjoyed the most about my experience with this nonprofit is...

Corresponding with the local sponsor.

The kinds of staff and volunteers that I met were...

Very friendly, kind and extended themselves.

If this organization had 10 million bucks, it could...

Destroy the myths surrounding lung cancer, which could create an atmosphere where research specifically for a cure for lung cancer would exist.

Ways to make it better...

Nothing

In my opinion, the biggest challenges facing this organization are...

Getting the word out

One thing I'd also say is that...

Nothing

When was your last experience with this nonprofit?

2009-6-01

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Rating: 5 stars  

10 people found this review helpful

I am a lucky 6 year lung cancer survivor. I was diagnosed at stage 3A. I had surgery followed by chemotherapy and radiation treatment. As a result of the radiation, two of my coronary arteries became weakened and would not allow the plaque to come through. I had dual by-pass surgery 9 months ago as a consequence. I lost my father, uncle and two friends to lung cancer. We were all never smokers. I also lost two friends who had given up smoking decades ago. When I saw a newsletter in my surgeon's office published by the Lung Cancer Alliance, I knew I had to become its advocate to help erase the stigma, elevate awareness, and change public health policy. I am now working with the Lung Cancer Alliance as a "full time" volunteer to accomplish our goals. I feel very committed and am thankful to the Lung Cancer Alliance for the support, guidance and energy that has been provided to help realize our efforts.

I've personally experienced the results of this organization in...

patient support, Department of Defense bill appropriating $20M to lung cancer, and the introduction of HR2112 and S332 - Lung Cancer Mortality Reduction Act of 2009 - simultaneously in both Houses of Congress, and the updates and literature it provides.

If I had to make changes to this organization, I would...

give clearer messages. Sometimes, I am not sure of what will be or can be done - dual messages.

What I've enjoyed the most about my experience with this nonprofit is...

the passion, commitment and professionalism of the staff.

The kinds of staff and volunteers that I met were...

professional, committed and passionate.

If this organization had 10 million bucks, it could...

hire staff to organize and fully support state chapters in all the states.

Ways to make it better...

there were quicker follow-through and clearer messages.

In my opinion, the biggest challenges facing this organization are...

Lack of funds to organize and fully support state chapters in all the states.

One thing I'd also say is that...

When was your last experience with this nonprofit?

2009-7-01

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Rating: 5 stars  

5 people found this review helpful

In 1971 my father died from lung cancer. In 2007 my husband was diagnosed with small cell lung cancer and passed away in December 2007. I was shocked to realize that in 36 years nothing had changed in the course of treatment and, more importantly, the diagnosis. After losing the 2 most important men in my life to this horrible cancer, I found out about the Lung Cancer Alliance and became an advocate because people need to be educated about lung cancer and the fact that money is needed for research. This cancer KILLS MORE AMERICANS THAN ALL OTHER CANCERS COMBINED every year and A CURE MUST BE FOUND. The support and encouragement of this group is phenomenal and the word is getting out there as a result of LCA. Doctors who refuse to do CT scans or MRI's when asked by a patient's family must be censored and removed from practice. LCA is a professional organization and working extremely hard to get the word out. They are doing an awesome job.

I've personally experienced the results of this organization in...

the way it has grown in the MA chapter and the interest it has generated.

What I've enjoyed the most about my experience with this nonprofit is...

the commitment everyone has to educating the public and getting the word out about a need for major research and finding a cure.

The kinds of staff and volunteers that I met were...

people who all experienced lung cancer in their own families.

When was your last experience with this nonprofit?

2009-7-01

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Rating: 5 stars  

2 people found this review helpful

Amazing people in this organization doing outstanding things. While much of their focus is advocacy, patient support is their mainstay, and I'm so lucky. Every time I get a diagnosis, or have a question, I run to their office. I'm so fortunate to be blocks away. They have educated me, hugged me and cared for me and thousands of people just like me. I sincerely don't know what I would have done without Lung Cancer Alliance.

I've personally experienced the results of this organization in...

the faces of its advocates, patients and caregivers.

If I had to make changes to this organization, I would...

cry every day.

What I've enjoyed the most about my experience with this nonprofit is...

the caring people that have educated me.

The kinds of staff and volunteers that I met were...

the very BEST in my forty years of nonprofit experiences.

If this organization had 10 million bucks, it could...

Run the type of education/communication program that it needs to, to save lives.

Ways to make it better...

they were funded to the max!

In my opinion, the biggest challenges facing this organization are...

lack of funding.

One thing I'd also say is that...

They give me HOPE.

When was your last experience with this nonprofit?

2009-7-01

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Role: Volunteer
Rating: 5 stars  

7 people found this review helpful

AMAZING. What else can be said about a group that in a few short years has put a face on lung cancer all across the country. Opened the ndoors to the U.S. Congress and Senate to have the 1st ever bill passed for lung cancer research in the amount of $20 million. They have taken to task groups, and government agencies to insure they do the right thing for lung cancer. A major driving force for early detection. It does saves lives. LCA has been very responsible in making people understand that lung cancer is not a smokers disease and it is not anybodies fault why they have lung cancer. Just ask the very large group who never smoked in their life nor did anybody in their families. I have stage 4 lung cancer. LCA has so many programs that I was able to take advantage of and are available at no charge to everybody. LCA plays a very big part in helping me stay alive. I was told there is NO chance, go home and die, one of the 1st places that I turned to was LCA.Even though it is so hard to find people to get involved and help fight this terrible disease some do step up to the plate. I know. I decided I needed to get involved to help other as LCA has helped me. I was allowed to establish Lung Cancer Alliance Georgia. There is no other group in the country that does what they do. I hope you appreciate and realize it.

I've personally experienced the results of this organization in...

Washington DC and in states with chapters. In all cases it has gone from ignorance of lung cancer to creating amazing awareness through education. LCA has made lung cancer a very recocognized disease in a very short time.

What I've enjoyed the most about my experience with this nonprofit is...

They care more than anybody could ever know. The executive treats all of their volunteers as equals. They listen to everybody. We feel important or as they say we are important. They are amazing

The kinds of staff and volunteers that I met were...

1st rate, These are people who CARE. They are dedicated to winning the fight on lung cancer.

If this organization had 10 million bucks, it could...

Educate,train, create awareness nationally,open offices in all states. move their agenda up by years to beat the disease. It would be a dream come true.

When was your last experience with this nonprofit?

2009-7-01

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Rating: 5 stars  

3 people found this review helpful

When my father died of lung cancer in 2007, I was desperate to help fight this disease. The Lung Cancer Alliance not only welcomed me with open arms but also pointed me in the right direction, listened to my story, and provided some amazing support during a really tough time.

I've personally experienced the results of this organization in...

their amazing and quick response. And the amount of federal funding they have secured for this awful disease

What I've enjoyed the most about my experience with this nonprofit is...

Their attitude, willingness to help and desperation to fight this disease.

The kinds of staff and volunteers that I met were...

AMAZING PEOPLE - true heroes.

If this organization had 10 million bucks, it could...

Activate more awareness, reach more people and hopefully put a dent into the funding for research / early detection.

When was your last experience with this nonprofit?

2009-6-01

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Rating: 5 stars  

31 people found this review helpful

I only wish my family had found the Lung Cancer Alliance when my father was diagnosed and before he passed. We struggled to find support services and the latest information about lung cancer therapies. At a time when we needed to be entirely focused on my father and his treatment, we were doing a lot of unnecessary legwork trying to get answers, searching for help. The avenues we tried didn't have much advice and didn't offer any hope. This young organization is largely unknown amidst other national nonprofits that have been around for a long time, but who hold a broader focus. It is going to take a laser like focus to bring lung cancer into the pubic debate, secure funding, and make dramatic inroads in survival rates. The LCA is top notch, cost efficient and entirely focused on LUNG CANCER. They are leading the movement to reverse decades of stigma and neglect by empowering patients, elevating awareness and changing health policy. If you or a loved one are impacted by lung cancer, you need to get connected to this organization. You or your loved one will benefit - and LCA can't change health policy without YOU. Become a face in the fight.

I've personally experienced the results of this organization in...

$2O MILLION FOR NEW LUNG CANCER RESEARCH NOW LAW President Signs Government Funding Bill -- Includes Top LCA Priority WASHINGTON, D.C. [September 30, 2008]--Tonight, the President signed into law funding for fiscal year 2009. Included in this omnibus measure is money to fund the Department of Defense and a new $20 million Lung Cancer Research Program. Lung Cancer Alliance President and CEO Laurie Fenton-Ambrose called the new program “a turning point for lung cancer.” “This is the breakthrough we have all been working so hard for – our advocates, patients and their families, our staff and our Board,” she said. Fenton-Ambrose credited the chairmen of the House and Senate Defense Appropriations Subcommittees for their support and commitment to the new lung cancer research program. The legislation notes that lung cancer is the most lethal of all cancers, taking more lives each year than all other major cancers combined and that military personnel have heightened exposure to lung cancer carcinogens. “Priority should be given to the development of the integrated components to identify, treat and manage early curable lung cancer”, it states. The bill requires the Army to provide a plan for how the funds will be spent and submit that plan to Congress within 120 days.

If I had to make changes to this organization, I would...

Hire a few more staff people to help expedite their great work. But, that is always a challenge because you want to maintain your cost efficieny and make the best use of donor dollars. But with more volunteers and donors, perhaps they will be able to.

What I've enjoyed the most about my experience with this nonprofit is...

Feeling empowered. When my father was diagnosed, it was hard to find any hope. While it is too late for my late father, my friend's father, and countless others, I want to be a voice for change so it doesn't have to continue.

The kinds of staff and volunteers that I met were...

Lung cancer survivors and other loved ones of those impacted by lung cancer.

If this organization had 10 million bucks, it could...

Raise awareness and reverse decades of stigma. If you are diagnosed with lung cancer, should the first question people ask you be, "Did you smoke?" Would you blame someone for getting breast or prostate cancer? More than 65% of new cases are in never smokers or people who quit decades ago. Secondly, this organization could help to drive research spending on lung cancer to priority research that might yield improved therapies or a cure.

Ways to make it better...

There were more people already involved. There is much work to be done. Don't let your voice be silent.

In my opinion, the biggest challenges facing this organization are...

1. The need to mobilize a significantly sized nationwide grassroots effort. 2. The low survival rate for this disease which often means that patients are too sick to get involved. More caregivers and loved ones need to join this fight and become the steady backbone for this movement, allowing our loved ones to put their health first and participate when they can. 3. The public stigma about smoking and lung cancer. Whether you are a smoker or not, no one deserves lung cancer. 4. Securing more federal funding in a down economy.

One thing I'd also say is that...

Finally! An organization willing to talk about lung cancer and take on a tough fight. It won't be easy, but we have to start somewhere. If not now, then when?

When was your last experience with this nonprofit?

2008-1-01

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