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79 Reviews
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December 28, 2011

My father and three friends, all of whom were never smokers died of lung cancer. I also lost three former smoker friends to the disease. I am a never smoker and was lucky to be diagnosed with Stage 3A lung cancer. I am an eight year survivor!I I want to help make a difference and save lives. That is why I am volunteering with the Lung Cancer Alliance.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Some

Did the organization use your time wisely?

Quite well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2011

May 2, 2011

I am a 42 year old woman living with Stage IV lung cancer. The Lung Cancer Alliance is a strong and vital organization in the fight against this historically neglected disease. They keep their eye on the ball and fight for the dollar...they look to level the playing field for federal funding as compared to many other diseases and medical conditions that have benefitted from far greater funding even though dramatically less fatal. They provide very personalized, high quality patient support programs. And the staff of the organization are bright, committed, passionate individuals.

The Great!

I've personally experienced the results of this organization in...

I have participated in training offered by this organization and worked directly with its talented staff. They have secured funding in the Department of Defense for lung cancer, which was unprecented (though not for other diseases).

Ways to make it better...

If I had to make changes to this organization, I would...

I wouldn't.

February 28, 2011

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February 28, 2011

I feel so fortunate to have found Lung Cancer Alliance. My Dad passed away after an 18-month battle with stage 4 non small cell lung cancer on May 29, 2009 at the age of 66. After witnessing my Dad's brave battle with this horrible disease and his devastating physical deterioration, I felt compelled to do something to continue his fight and make sure others didn't have to suffer as he did. In googling lung cancer organizations 5 months after my Dad passed away, I found that there weren't many organizations related to lung cancer. Around November 2009, I found Lung Cancer Alliance, the only national non-profit providing information, support, and advocacy for people living with lung cancer or at risk for the disease. I wish that I had known about Lung Cancer Alliance when my Dad was undergoing treatment. What an invaluable resource this would have been! When I found them in November 2009, I was told they were forming Team Lung Love for their inaugural run in Providence in May 2010. I'd never run a half-marathon before and like the Nike slogan, "Just do it"--I did. At that moment, I started a partnership with Lung Cancer Alliance that I know will continue throughout my life. Team Lung Love was one of the best experiences of my life in which I raised money and awareness for lung cancer. Team Lung Love has made me feel that anything is possible with hard work and a great team behind you. But that run was just the beginning. I could never have guessed all of the places that decision to run as part of Team Lung Love would bring me. I I continued to run as part of Team Lung Love. I was asked to be NYC Team Captain for Team Lung Philly and happily accepted, helping recruit members for the team. I also decided to organize a Shine A Light On Lung Cancer Vigil here in NYC as part of their annual Shine A Light program during Lung Cancer Awareness Month.
I also started speaking at local political and civic groups about lung cancer to educate people on the staggering facts about this underfunded disease that is the # 1 cancer killer in this country. Lung Cancer Alliance gave me the opportunity to make a difference. Through Lung Cancer Alliance, I found my voice as an advocate. Recently at the invitation of Lung Cancer Alliance, I had the opportunity to tell my Dad's story and advocate alongside fellow advocates on behalf of the Lung Cancer Mortality Reduction Act on Capitol Hill as part of their Capitol Forum. My work with their continued support continues at home to gain the support of my Congressman on this legislation.
Lung Cancer Alliance is an amazing organization that helps bring together people of varying backgrounds who share their connection to lung cancer whether through the loss of a friend or loved one or the fact that they are a survivor themselves. I have met an amazing group of people through this organization--people I am proud to call friends. I know everyone at Lung Cancer Alliance personally. They are friends on a mission working tirelessly to end the stigma associated with lung cancer. And so my journey with Lung Cancer Alliance continues. Next stop--running my next half-marathon as part of Team Lung Love Providence.

The Great!

I've personally experienced the results of this organization in...

Advocating on Capitol Hill with them on behalf of The Lung Cancer Mortality Reduction Act and seeing the momentum they have built and how they are fighting to reverse decades of stigma and neglect.

Ways to make it better...

If I had to make changes to this organization, I would...

There are no changes I would make at this time. They are the only organization out there doing what they are doing.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

Did your volunteer experience have an effect on you? (teaching you a new skill, or introducing new friends, etc.)

Yes, I wonderful group of people who had similar experiences. This group enabled us to bong and become friends and support each other.

How did this volunteer experience make you feel?

This volunteer experience made me feel empowered--as if I were making a difference.

When was your last experience with this nonprofit?

2011

February 13, 2011

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Review from Guidestar
February 13, 2011

I discovered LCA when someone who was like a Mother to me was diagnosed with Stage 4 lung cancer. Lung Cancer Alliance was there to provide information and support. Though Merrillyn Stevens lost her battle with the disease only 10 months after her diagnosis, Lung Cancer Alliance carries on the fight for all. I have personally met and spoken with several members of their staff, and many of their advocates. This is a top-notch organization completely dedicated to reversing decades of stigma and supporting those currently struggling with lung cancer. I respect members of the staff so much for what they've accomplished in such a short amount of time with the limited resources they have. They are so knowledgeable and professional, and sooooo caring. With LCA on our side, I know that someday we will win the fight against this deadly disease.

The Great!

I've personally experienced the results of this organization in...

The Lung Cancer Alliance has helped many people I know, including my best friend who lost her mother to Lung Cancer. They are on top of what's going on legislatively and in the medical community. They initiated the Shine a Light on Lung Cancer program, and now it's nationwide. We held a vigil in the Orlando area in November 2010 and will hold one again in 2011. Their support is amazing. They are making a difference.

Ways to make it better...

If I had to make changes to this organization, I would...

Give them tons of money so they can further the cause. They are responsible, educated, and honest, and they are doing GREAT THINGS!!

February 9, 2011

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Review from Guidestar
February 9, 2011

Words cannot describe how i feel about the LCA! I felt impowered the minute i met all who work for the LCA! Being an advocate, here in California, has not only been rewarding but has been making a difference.
My girlfriend Sheila died from lung cancer. We were friends for over 45 yrs!
Watching her go through this devastating cancer was ,need i say, most difficult. I was blessed to go to CAPITOL HILL and help with the legislation process to get lung cancer noticed, to give information and tell our stories. I am mad as hell that we are he most underfunded,ignored and stigmatized cancer! Along with the LCA and here in SAN DIEGO with
BREATH OF HOPE, we all, the volunteers AND the survivors will fight to be on the same playing field. For us to have the goal of conquering this cancer, to rid this cancer from our human experience! LCA is amazing! They are strong and I am proud to belong to this loving,caring, group of people! Watch out!
MONICA WAY

The Great!

I've personally experienced the results of this organization in...

everything i have been connected with LCA has been great.

Ways to make it better...

If I had to make changes to this organization, I would...

The only thing is to get more volunteers, hire more to keep this vision going

August 23, 2009

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August 23, 2009

When my husband received the shocking diagnosis of lung cancer (he didn't have any easily identifiable risk factors at the time), we turned to the well-know cancer/lung organizations to volunteer for Lung Cancer Awareness Month. Their response? Nothing, really. They only focus on smoking (my husband was a lifelong adamant non-smoker). The one organization which did respond immediately - Lung Cancer Alliance. LCA not only helped us organize a rally in a matter of days, but they continued to provide direction, training and support to further our advocacy withiin the state. Eventually I became volunteer C-Chair for LCA-CA. In all my experiences with LCA, I have seen their determined persistence and unrelenting efforts in the face of overwhelming stigma and apathy toward the disease. They produce an immense amount of work with an unprecedented low number of paid staff. This was made abundently clear to me when I would note the times on their return calls/emails during the late night or very early mornings. I have seen an immense change in the level of public discussion and a new interest in the disease (rather than simply the issue of smoking) on the part of established organizations over the six years since my husband's diagnosis. This is due directly to the efforts of Lung Cancer Alliance. I whole heartedly recommend this organization. With a significant increase in resources and support, we CAN achieve the LCA goal of NO MORE LUNG CANCER!

The Great!

I've personally experienced the results of this organization in...

Better awareness in the general public, medical professionals and among legislators, which has resulted in formal recognition (proclamations) and supportive legislation on state and federal levels. More support of the disease in other organizations.

Ways to make it better...

If I had to make changes to this organization, I would...

Expand its capabilites with use of new technologies to improve its networking capabilities.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

Their dedication and responsiveness.

The kinds of staff and volunteers that I met were...

completely dedicated to this cause and often worked themselves to exhaustion

If this organization had 10 million bucks, it could...

probably make a huge impact on lung cancer survival rates by increasing the rates of early detection and intervention.

Ways to make it better...

LCA appears to do all within its power to achieve its goals.

In my opinion, the biggest challenges facing this organization are...

improving public awareness of the organization and obtaining more resources.

One thing I'd also say is that...

Two thumbs UP, way UP on Lung Cancer Alliance.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2009

July 28, 2009

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July 28, 2009

I have been a lung cancer survivor for over 11 years. I became active with LCA shortly after my recovery and have remained an active advocate for this organization. During my journey with lung cancer I could find little information on lung cancer, treatment options, and support groups. I joined LCA because it was the only organization that was dedicated to supporting, education, and advocating for lung cancer patients and those at risk for the disease. This organization gave me the skills to advocate and lobby for lung cance patients here in Maine. Through their support I have been successful in getting a bill that I wrote passed to help raise awareness. I have also been very successful in meeting with our Govenor in declaring Lung Cancer Awareness Month. I have been successufl in holding public forums with the Governor and the legislative body. This is the only organization that has been active on a National level to change health care policy through legislative action. They see the challenges that need to be overcome and meet them head on. it is through their support and education that has helped me effect change in the State of maine

The Great!

I've personally experienced the results of this organization in...

The work that I have done here in Maine with the Governor and legilative body.

Ways to make it better...

If I had to make changes to this organization, I would...

Continue lobbying on a federal level because there is were change can be effected.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

Learning how to be effective with the legislative body.

The kinds of staff and volunteers that I met were...

Simply outstanding. Ready to help and make a difference in the lung cancer community.

If this organization had 10 million bucks, it could...

Provide research grants.

Ways to make it better...

I am not sure that I could have had a better experience with LCA than what I have had over the last 10 years.

In my opinion, the biggest challenges facing this organization are...

Not enough staff.

One thing I'd also say is that...

I believe that this organization has grown in leaps and bounds since moving to the Washington DC.

When was your last experience with this nonprofit?

2009

July 27, 2009

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July 27, 2009

There are some fantastic lung cancer advocacy groups out there but this is the only one devoted to changing national policy and re-directing our tax dollars towards lung cancer research. Lung cancer kills more people than any other cancer (and twice as many women as breast cancer) but is the least funded of all of the major cancers. The Lung Cancer Alliance doesn't discriminate based on type of lung cancer, smoking history or anything else. They help people with lung cancer, period. They also have an excellent patient support program which includes a peer matching system and a fantastic online support group at www.inspire.com. I can't think of enough good things to say about this amazing organization.

The Great!

I've personally experienced the results of this organization in...

the powerful online support group that gives patients and their families a way to connect with others affected by lung cancer and stay informed as well as in touch.

Ways to make it better...

If I had to make changes to this organization, I would...

start a marathon program!

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

knowing that we're making a difference in changing how the world understands lung cancer, and possibly working towards raising more research dollars for this complicated, terrible disease.

The kinds of staff and volunteers that I met were...

smart, compassionate, a-political, unbiased and helpful.

If this organization had 10 million bucks, it could...

put a drop into the enormous bucket labeled "money needed to cure lung cancer."

Ways to make it better...

we'd been able to get more money allocated to lung cancer research and treatment. It's a slow process and I'm in it for the long haul!

In my opinion, the biggest challenges facing this organization are...

how many other organizations there are that try and compete rather than work with the Lung Cancer Alliance.

One thing I'd also say is that...

we need to find a cure for lung cancer.

When was your last experience with this nonprofit?

2009

July 27, 2009

more

July 27, 2009

Lung Cancer Alliance offers top notch and comprehensive patient support programs as well as works tirelessly for all of us affected by the disease by fighting to secure the funding from the federal government necessary to make an impact on its devastation. This is particuarly critical since so many other types of cancer are more highly prioritized by the public even though lung cancer is more deadly than any other.

The Great!

I've personally experienced the results of this organization in...

The first big commitment of funding from the federal government to provide much needed research.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

The people involved with the organization have their hearts in it. They make me believe that they are really fighting for me.

The kinds of staff and volunteers that I met were...

Exceptional. Bright. Caring. Personable.

If this organization had 10 million bucks, it could...

Make a big stride toward curing this devastatingly deadly disease.

When was your last experience with this nonprofit?

2009

July 24, 2009

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July 24, 2009

I have been involved with Lung Cancer Alliance for five years since I was diagnosed with lung cancer at the age of 44. I can not imagine my health journey without this nonprofit organization. The resources, employees and links have been instrumental in my care, support, awareness and advocacy. Lung Cancer Alliance is single handedly leading the fight for lung cancer patients and families to the media, government, research and medical community.

The Great!

I've personally experienced the results of this organization in...

legislation passed in the United States Congress.

Ways to make it better...

If I had to make changes to this organization, I would...

try to raise significant donations so that LCA could have more resources to do their valuable work.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

the feeling of comfort knowing there is an organization being my voice in the world while I devote my energies to fighting my cancer.

The kinds of staff and volunteers that I met were...

magnificent, caring, comforting, knowledgeable and resourceful.

If this organization had 10 million bucks, it could...

be able to double or triple their efforts to make a difference for lung cancer patients, supporters and family members. There is even a possibility with additional funds there could finally be an improvement in the survival rate for this terrible disease.

Ways to make it better...

there were more organization like LCA fighting for lung cancer patients, supporters and family members.

In my opinion, the biggest challenges facing this organization are...

the stigma of smoking and lung cancer. It will be important to educate the world that nonsmokers are also vulnerable to lung cancer.

One thing I'd also say is that...

thank god for the staff of the Lung Cancer Alliance!!!!!!!!!

When was your last experience with this nonprofit?

2009

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  1. Sending an email to clients, volunteers, donors, board members, and other partners with a link to your profile page.
  2. Putting a link on your Web site
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3 hours of volunteer time for this nonprofit will...

Host or join a Shine A Light on Lung Cancer Vigil in your community to raise awareness and provide hope, compassion and support for all those impacted.