Lung Cancer Alliance

Rating: 4.87 stars   95 reviews

Nonprofit Issues:

Civil Rights, Health, Human Services, Cancer

Address:

1700 K Street NW Suite 660 Washington DC 20006 USA

Mission:

Saving lives and advancing research by empowering those living with and at risk for lung cancer.

Results:

Over the past year, more than 12,000 personal telephone calls and email requests were managed by our professional and caring staff, delivering customized support packets to improve outcomes. We also expanded a network of 1,500 medical facility contacts nationwide who share our educational support materials to the newly diagnosed and their loved ones so that they know they are not alone and we are here to help. We launched efforts to educate the millions at high risk about their life-saving options, encouraging conversations with their doctors about early detection. To date, more than 300 medical facilities have joined our coalition to make sure that screening is done right and well at centers of excellence across the U.S. We have trained thousands of advocates to educate elected and public health officials about the disease, securing almost $90 million to date in public health dollars for research and early detection. Because we do not accept public funding, and these dollars fund research directly, we are able to leverage your support at least 10-fold. We also launched the first nationwide awareness campaign addressing the stigma of lung cancer head-on. With more than 300 million impressions to date, the campaign continues to grow over social media channels. Learn more at: www.NoOneDeservesToDie.org. These combined efforts will help meet our vision of reducing lives lost to lung cancer by half by 2020. With your continued help and support, we will achieve this realistic and attainable goal.

Target demographics:

The milions living with or at risk for lung cancer

Direct beneficiaries per year:

At least 12,000

Geographic areas served:

Nationwide

Programs:

Community& Support Services Program: Providing free, one-on-one support, information, and referrals to patients, at risk individuals and their loved ones through telephone and online support services, delivering customized education packets to make informed decisions and improve outcomes. Education Program: Conducting national awareness campaigns, including No One Deserves to Die, National Shine A Light on Lung Cancer Vigil, Team Lung Love and Give A Scan to educate the public about the facts, dispel myths, and share calls to action to eliminate stigma, increase research funding and save lives. Health Policy Program: Advocating for multiple millions in public health dollars for lung cancer research and early detection through a nationwide grassroots network of volunteer chapters, advocates and targeted policy strategies.

2015 Top-Rated Nonprofit
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More Info

800-298-2436
http://www.lungcanceralliance.org

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Reviews for Lung Cancer Alliance

Rating: 5 stars  

1 person found this review helpful

I lost my sister to lung cancer on Jan 4, 2013, four days after she was diagnosed. My world was turned upside down and I had friends and family asking who they should make donations to. I found Lung Cancer Alliance listed as one of the top ten cancer organizations. I had no idea how close to my heart they would become. They are champions of their cause and I am honored to be a part of it. Their team is made up of caring, compassionate, determined people who are trying to make changes that will help those with lung cancer and those at risk for lung cancer. I recently attended the LCA Summit in Washington, DC with my daughter and it was one of the best experiences of my life. Thank you all; the team at LCA, the surivors and those who have lost loved ones. I believe we made a difference and isn't that what we are here for?

 
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Thank you! It was wonderful having you and your daughter at the Summit in DC. We truly did make a difference for our community. Keep up the fight!

Rating: 5 stars  

I am a Stage 4 Lung Cancer survivor who has just celebrated the 6 year milestone. Although treatment is ongoing and there are always surprises and new progression, I have a good quality of life. It is important for me to utilize this time and add purpose and leave a legacy. Through LCA I volunteer as a Phone Buddy to help others.
I post in chat rooms to share experiences with those who may be just starting a clinical trial that I have been on for two years. I use my coaching skills to help others locally and online. LCA is supportive and involved. Their efforts to help us with our first Shine a LIght on Lung Cancer in November is valuable.
Their recognition of outstanding Support Groups raises the awareness of patient needs and their work on Capital Hill is critical to research funding that contribute to our survivorship.

If I had to make changes to this organization, I would...

send more money their way to increase the funding for lung cancer even more.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

 
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Rating: 5 stars  

Being a survivor myself, I know how important it is to talk to people who have already traveled the road that many are traveling now. I love being a "Phone Buddy" and hope that I give some encouragement to those I talk too. I don't fool myself that everyone will have the same outcome I did (8 years survivor and cancer free) but if they can feel good about themselves and have a glimmer of hope that will make their lives better while fighting the fight of their life, that is what I want to do. Everyone fights battles of all kinds in their lives but if you can share yours with like minded people you actually get more reward out of doing it than the person you are talking too. I hope to continue with The Lung Cancer Alliance as long as I can.

If I had to make changes to this organization, I would...

It really isn't a change and I don't know how to do it but..........Get the word out there more somehow that there are people who will share their experiences with you if you desire to talk about your journey.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

 
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Rating: 5 stars  

I am a Lung Cancer Survivor and have volunteered with LCA for about 7 or 8 yrs. I am a Phone Buddy and am very pleased with the role. I spend an hour or more with a patient, sometime more. It is a give and take conversation. I enjoy talking with patients and am so glad that I am able to help others. I want to personally thank LCA for making this program possible.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

 
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Rating: 1 stars  

I volunteered to be a phone buddy and spent over an hour in a telephone interview. As a three-time lung cancer survivor including surgery, chemo and CyberKnife radiation, I was assured I would be in demand
because there was only one other phone buddy who had had CyberKnife treatmentat that time.
Months went by without contact. I was called a second time for another interview and again never heard a word.
I am now a fourth-time survivor (survovor to me meaning at least one clean PET scan between treatments.
Why the assurance and time investment if I'm not going to be used ?
Phil
wuzzfuzz11743@verizon.net

Would you volunteer for this group again?

No

For the time you spent, how much of an impact did you feel your work or activity had?

None

Did the organization use your time wisely?

Badly

Would you recommend this group to a friend?

No

When was your last experience with this nonprofit?

2011

 
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Rating: 5 stars  

I attended a conference last year with Lung Cancer Alliance and found it to be one of the best organized, most cost effective organization I have seen. The conference stayed on topic, accomplished its mission and created a wonderful and productive experience for all who attended. The organization raises funds for what it needs and has a great deal of transparency. I have known quite a few non-profits and this one ranks very, very high on my list. The leadership, both lay and professional, is excellent!

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

 
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Rating: 5 stars  

I am a 10 year lung cancer survivor. Only 15% of us survive 5 years or more. When my best friend fell off her patio and was x-rayed at the emergency room, she was diagnosed with Stage 4 lung cancer. Six months later I had an occasional cough after having had a bad cold. After much nagging from my husband to go to the doctor (I accused him of overreacting because of my friend), I want to the doctor. I was diagnosed with Stage 3A lung cancer. We were both never smokers.


I was lucky. I was able to have surgery (the gold standard of care), my friend was not. She died 2 years after her diagnosis after the cancer had spread to her brain and lumbar.

When people learn I am a lung cancer survivor, they ask if I smoked. That question implies that a person who smokes deserves to die. No one deserves to die. The Lung Cancer Alliance actively works to erase the stigma of lung cancer, provide patient support services, and advocate for public health dollars for research.

The Lung Cancer Alliance is a major force in advocating for the Recalcitrant Cancer Act which charges NCI to develop a coordinated, comprehensive plan to provide research for cancers which have a low survival rate and specifically targets lung cancer.

I am a volunteer with the Lung Cancer Alliance to advocate for its goals.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

 
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1 previous review
Rating: 5 stars  

The Lung Cancer Alliance has motivated me to help create public awareness about lung cancer. There is a lot of stigma associated with the disease. LCA has given me the tools to help reverse it. I have gained the confidence to appear on radio and television and write letters to the editor. Little by little, I think I am making a difference.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

 
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Rating: 5 stars  

As a 2 year Lung Cancer survior Lung Cancer Alliance has given me hope and motivated me to fight for awareness from the stigma that goes with having lung cancer. Lung Cancer Alliance is the only national non-profit organization dedicated solely to providing support and advocacy for people living with or at risk for the disease. They have a great mission: ending injustice and saving lives through an alliance of advocacy, education and support. There vision is to reduce lung cancer mortality by at least 50% by 2020. I come from a family history of Lung Cancer and those words were music in my ears. I want my children and grandchildern to have a better chance and clear understanding of Lung Cancer and real change needs to come. With Lung Cancer Alliance I know in my heart they are at a tipping point and making a difference everyday.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

 
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Rating: 5 stars  

I became a phone buddy for the Lung Cancer Alliance to help others discover the gift of early detection. Having just crossed the threshold of 5 years survivorship, I am testament that detection at Stage 1 is life affirming. The staff at LCA works tirelessly to have our voices heard and bring needed attention to the devastation of lung cancer on the lives of millions annually. It is an awesome organization.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Quite well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

 
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Rating: 5 stars  

As a lung cancer survivor and a volunteer, I am very grateful for the advocacy that Lung Cancer Alliance provides to so many. The integrity and credibility of the organization is second to none. I am most appreciative of LCA’s effective work in the area of public policy and care for and assistance for the patients and families with lung cancer.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

 
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