Lung Cancer Alliance

Rating: 4.85 stars   79 reviews

Issues:

Location: 888 16th Street, N.W. Suite 150 Washington DC 20006 USA

Mission: Ending injustice and saving lives through an alliance of advocacy, education and support.
Results: Over the past year, more than 12,000 personal telephone calls and email requests were managed by our professional and caring staff, delivering customized support packets to improve outcomes. We also expanded a network of 1,500 medical facility contacts nationwide who share our educational support materials to the newly diagnosed and their loved ones so that they know they are not alone and we are here to help. We launched efforts to educate the millions at high risk about their life-saving options, encouraging conversations with their doctors about early detection. To date, more than 100 medical facilities have joined our coalition to make sure that screening is done right and well at centers of excellence across the U.S. We have trained thousands of advocates to educate elected and public health officials about the disease, securing almost $70 million to date in public health dollars for research and early detection. Because we do not accept public funding, and these dollars fund research directly, we are able to leverage your support at least 10-fold. We also launched the first nationwide awareness campaign addressing the stigma of lung cancer head-on. With more than 300 million impressions to date, the campaign continues to grow over social media channels. Learm more at: www.NoOneDeservesToDie.org. These combined efforts will help meet our vision of reducing lives lost to lung cancer by half by 2020. With your continued help and support, we will achieve this realistic and attainable goal.
Target demographics: The milions living with or at risk for lung cancer
Direct beneficiaries per year: At least 12,000
Geographic areas served: Nationwide
Programs: Community& Support Services Program: Providing free, one-on-one support, information, and referrals to patients, at risk individuals and their loved ones through telephone and online support services, delivering customized education packets to make informed decisions and improve outcomes. Education Program: Conducting national awareness campaigns, including No One Deserves to Die, National Shine A Light on Lung Cancer Vigil, Team Lung Love and Give A Scan to educate the public about the facts, dispel myths, and share calls to action to eliminate stigma, increase research funding and save lives. Health Policy Program: Advocating for multiple millions in public health dollars for lung cancer research and early detection through a nationwide grassroots network of volunteer chapters, advocates and targeted policy strategies.
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Community Reviews

Rating: 5 stars  

I am a 10 year lung cancer survivor. Only 15% of us survive 5 years or more. When my best friend fell off her patio and was x-rayed at the emergency room, she was diagnosed with Stage 4 lung cancer. Six months later I had an occasional cough after having had a bad cold. After much nagging from my husband to go to the doctor (I accused him of overreacting because of my friend), I want to the doctor. I was diagnosed with Stage 3A lung cancer. We were both never smokers.


I was lucky. I was able to have surgery (the gold standard of care), my friend was not. She died 2 years after her diagnosis after the cancer had spread to her brain and lumbar.

When people learn I am a lung cancer survivor, they ask if I smoked. That question implies that a person who smokes deserves to die. No one deserves to die. The Lung Cancer Alliance actively works to erase the stigma of lung cancer, provide patient support services, and advocate for public health dollars for research.

The Lung Cancer Alliance is a major force in advocating for the Recalcitrant Cancer Act which charges NCI to develop a coordinated, comprehensive plan to provide research for cancers which have a low survival rate and specifically targets lung cancer.

I am a volunteer with the Lung Cancer Alliance to advocate for its goals.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

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1 previous review
Rating: 5 stars  

The Lung Cancer Alliance has motivated me to help create public awareness about lung cancer. There is a lot of stigma associated with the disease. LCA has given me the tools to help reverse it. I have gained the confidence to appear on radio and television and write letters to the editor. Little by little, I think I am making a difference.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

As a 2 year Lung Cancer survior Lung Cancer Alliance has given me hope and motivated me to fight for awareness from the stigma that goes with having lung cancer. Lung Cancer Alliance is the only national non-profit organization dedicated solely to providing support and advocacy for people living with or at risk for the disease. They have a great mission: ending injustice and saving lives through an alliance of advocacy, education and support. There vision is to reduce lung cancer mortality by at least 50% by 2020. I come from a family history of Lung Cancer and those words were music in my ears. I want my children and grandchildern to have a better chance and clear understanding of Lung Cancer and real change needs to come. With Lung Cancer Alliance I know in my heart they are at a tipping point and making a difference everyday.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

I became a phone buddy for the Lung Cancer Alliance to help others discover the gift of early detection. Having just crossed the threshold of 5 years survivorship, I am testament that detection at Stage 1 is life affirming. The staff at LCA works tirelessly to have our voices heard and bring needed attention to the devastation of lung cancer on the lives of millions annually. It is an awesome organization.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Quite well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

As a lung cancer survivor and a volunteer, I am very grateful for the advocacy that Lung Cancer Alliance provides to so many. The integrity and credibility of the organization is second to none. I am most appreciative of LCA’s effective work in the area of public policy and care for and assistance for the patients and families with lung cancer.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

Lung Cancer Alliance works deligently to bring people together to promote real change. They are not about just throwing money at a problem, they are about changing policy to make a difference immediately.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

When I lost my mother to lung cancer, I was angry; angry that there was nothing I could do to help her or save her. A couple of years after she passed, a friend of one of my sisters saw a sign or posting about LCA's event "Shine a Light on Lung Cancer." Well, since my sisters and I never really heard anybody speak of lung cancer, we thought we should go to check it out. Well, am I glad we did! We were approached by Diane Daniels Legg, a co-chair of the New England Chapter of LCA, also fighting her own battle with lung cancer. She was so heartwarming and kind, and she really took an interest in us because we were so young when we lost our mom. We continued to attend the "Shine A Light on Lung Cancer" vigils, and in January of 2011, my sister Kristina and I joined LCA in advocating on Capitol Hill. That was one of the most rewarding and enlightening experiences I've had, and I have LCA to thank for that. Ever since that first Vigil, my sisters and I were hooked on this organization. Everybody who attends is so passionate and there for the same thing, to END LUNG CANCER! I am so lucky to be able to be apart of LCA, and I only wish that we knew of them while my mom was sick. For some odd/crazy reason, I feel like she might still be alive had we known about them then.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

The Lung Cancer Alliance helped me turn a negative (contracting lung cancer) into a positive (helping those on the same trail). Lung Cancer changed my life. The LCA gave me an opportunity to use that change to help others while at the same time helping myself.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

The LCA is one of the precious few sources of support for those afflicted or impacted by the deadliest of all cancers where, shamefully, almost no progress has been made in survival rates for forty years. My late wife (incidentally a non-smoker and athlete, like many who lose their lives to lung cancer annually) bravely fought the disease for nearly six years. In her final years, she was a passionate volunteer for the LCA - their staff and fellow volunteers made such a difference to her - she cherished the companionship, empathy, and shared purpose until the end.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2010

Was this review helpful? 
Rating: 5 stars  

The Lung Cancer Alliance stands alone as THE ADVOCATE for all patients and family members who have been touched by lung cancer. Before I found the Lung Cancer Alliance I was here in Springfield, Missouri casting about on my own...there were no support groups, no ribbons to wear, no survivors to cheer me on....that's because the survival rate for lung cancer is so low (15 to 17%) and very few make it to the 5 year mark. When I connected with the LCA, I instantly found a group who understood what I was going through...they reached out to me in many ways and continue to do so. Through the LCA I have been able to tell my story aa a two-time survivor of lung cancer so perhaps others won't feel so isolated. I know also that the Lung Cancer Alliance, through their national outreach, will speak for us and continue to fight for a cure to this devastating disease.!

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

My mom passed away due to lung cancer in 2002. It will be 10 years this September. At the time of her diagnosis she had been a 21 year non smoker. My biggest frustration was the futility of my Mom's passing at such a young age when she was so vibrant and had so much more to give to the world. She was also completely healthy otherwise. In 2009 due to a recruiting e-mail at work I found out about Lung Cancer Alliance. I was immediately impressed with the passion and commitment of the organization and in time I became even more impressed with what this organization has accomplished. I am proud to be a part of it.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Quite well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful?