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July 11, 2009

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July 11, 2009

In 1971 my father died from lung cancer. In 2007 my husband was diagnosed with small cell lung cancer and passed away in December 2007. I was shocked to realize that in 36 years nothing had changed in the course of treatment and, more importantly, the diagnosis. After losing the 2 most important men in my life to this horrible cancer, I found out about the Lung Cancer Alliance and became an advocate because people need to be educated about lung cancer and the fact that money is needed for research. This cancer KILLS MORE AMERICANS THAN ALL OTHER CANCERS COMBINED every year and A CURE MUST BE FOUND. The support and encouragement of this group is phenomenal and the word is getting out there as a result of LCA. Doctors who refuse to do CT scans or MRI's when asked by a patient's family must be censored and removed from practice. LCA is a professional organization and working extremely hard to get the word out. They are doing an awesome job.

The Great!

I've personally experienced the results of this organization in...

the way it has grown in the MA chapter and the interest it has generated.

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What I've enjoyed the most about my experience with this nonprofit is...

the commitment everyone has to educating the public and getting the word out about a need for major research and finding a cure.

The kinds of staff and volunteers that I met were...

people who all experienced lung cancer in their own families.

When was your last experience with this nonprofit?

2009

July 11, 2009

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July 11, 2009

When my mom was diagnosed with non-small cell lung cancer, I searched the web to find any information about it that I could. My resources were limited. After approaching Lunc Cancer Allinace for information, they sent me packets and booklets and books to read. To me it was comforting to know there were daughters, sons, husbands, wifes, sisters and brothers like me...facing what I was facing. The informatio they sent me was not good news. The average life span of a patient fighting non-small cell lung cancer is 13 months. My mom lived 13 months after diagnosis. Lung cancer must be put in the forfront of the mind. My mom never smoked and because of the stigmatism associated with lung cancer, her as well as countless other lives are lost. And just because someone smoked doesn't mean they deserve a death sentance. The funds to aid in survival need to increase and patients need to be given a fair fight! Heather Delaney

The Great!

I've personally experienced the results of this organization in...

supporting me and my family while battleing lung cancer.

Ways to make it better...

If I had to make changes to this organization, I would...

do every thing I could to raise funds and awerness of this horrible disease. They are doing a great job against all their odds!

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What I've enjoyed the most about my experience with this nonprofit is...

just the support they made available to me and my family during our battle.

The kinds of staff and volunteers that I met were...

compassionate

If this organization had 10 million bucks, it could...

it would only be a drop in the bucket, but might be able to build more awerness in the puublic and local communitities.

Ways to make it better...

there where more places in the Seattle area where my services can be used.

In my opinion, the biggest challenges facing this organization are...

the stigmatism associated with smoking and the lack of funding and research beacuse of the stigmatism.

One thing I'd also say is that...

LCA needs all the press and people talking about it to bring this matter to the forfront. It helped in my time of need and could do so much more with the public knowing more about them and the disease.

When was your last experience with this nonprofit?

2009

July 11, 2009

more

July 11, 2009

In the past two years I lost both my Mother and one of my best friends to lung cancer. Lung Cancer Alliance has been there for me throughout these two painful journeys. Their wealth of information kept me up to date on new treatments available, many of which helped both my Mom and my good friend through their battles. In addition they helped me become an advocate for this under funded, ignored cancer. I learned how to write to officials and when my voice needed to be heard. At the end of both my Mother's and my friend's lives when I was most helpless, I was able to write letters and feel I was doing something that will potentially help someone else even though my Mom and friend lost their battles. Without lung cancer alliance we wouldn't have the funding we now do for the number one cancer killer. THey have also given me the information that I need to educate the public about this disease. Whenever someone gives me sympathy about my losses I can recited the facts and figures of the disease and hopefully educate another ignorant member of the public. I couldn't do this without lung cancer alliance.

The Great!

I've personally experienced the results of this organization in...

increased awareness about lung cancer and increased funding for the disease. The organization gave me information to help my Mother and friend throughout their battle and gave me tools to wage my own battle against the disease.

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What I've enjoyed the most about my experience with this nonprofit is...

their compassion and ability to give me strength and tools to deal with my losses. When I felt my most helpless they were there with information and something constructive I could do. They are positive, responsive and get things done.

The kinds of staff and volunteers that I met were...

compasionate, bright and hard working.

If this organization had 10 million bucks, it could...

make increased strides to help lung cancer research. With most cancers a patient can be given hope and know that there is current research...lung cancer victims don't have this. It is the most underfunded of all cancers yet the leading killer.

When was your last experience with this nonprofit?

2009

July 10, 2009

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July 10, 2009

The people are AMAZING at this organization. They put their heart and soul into everything they do! In memory of my fater, every year we run a fundraiser and donate all earnings to Lung Cancer Alliance. They help those living with the disease and support those who have lost a loved one to the battle. We gained a lot of information on the disease through LCA!!!

The Great!

I've personally experienced the results of this organization in...

fighting to make progress for treatments and a cure for this terrible disease.

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What I've enjoyed the most about my experience with this nonprofit is...

the people who work there! I feel like part of the LCA family.

The kinds of staff and volunteers that I met were...

AMAZING!!! Especially Kay CoFrancesco!!

If this organization had 10 million bucks, it could...

change the face of this horrible disease! It would help so many people who are suffering or who sadly will be.

When was your last experience with this nonprofit?

2009

July 10, 2009

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July 10, 2009

This is a great group. My son had lung cancer and they were a big help to him and our family. We will always support this group!!!!

Photos

The Great!

I've personally experienced the results of this organization in...

fight against the stigma of lung cancer. We asa people must raise more support monies for lung cancer research!!!!!!!

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When was your last experience with this nonprofit?

2009

July 10, 2009

more

July 10, 2009

Amazing people in this organization doing outstanding things. While much of their focus is advocacy, patient support is their mainstay, and I'm so lucky. Every time I get a diagnosis, or have a question, I run to their office. I'm so fortunate to be blocks away. They have educated me, hugged me and cared for me and thousands of people just like me. I sincerely don't know what I would have done without Lung Cancer Alliance.

The Great!

I've personally experienced the results of this organization in...

the faces of its advocates, patients and caregivers.

Ways to make it better...

If I had to make changes to this organization, I would...

cry every day.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

the caring people that have educated me.

The kinds of staff and volunteers that I met were...

the very BEST in my forty years of nonprofit experiences.

If this organization had 10 million bucks, it could...

Run the type of education/communication program that it needs to, to save lives.

Ways to make it better...

they were funded to the max!

In my opinion, the biggest challenges facing this organization are...

lack of funding.

One thing I'd also say is that...

They give me HOPE.

When was your last experience with this nonprofit?

2009

July 10, 2009

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July 10, 2009

I learned about the LCA after my mother's death from lung cancer. Their support and encouragement immediately after my mother's death and now, two years later, has been unwavering. The LCA has placed a face next to the words: "lung cancer." Through its advocacy work and education, the LCA continues to fight for research funding and is a strong voice against the stigma associated with this disease. I have volunteered for the LCA by doing some translation work and by helping declare November as "Lung Cancer Awareness Month" in two states. The LCA also stays abreast of new legislation and makes this information available to the public. I know that many people benefit from the work done by the LCA. I am sure my mother would be proud.

The Great!

I've personally experienced the results of this organization in...

the increased awareness that legislators now have about lung cancer and the need for more research funding.

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If this organization had 10 million bucks, it could...

provide more educational materials to targeted populations in various languagues, create a documentary about the extraordinary lives of people who have fought this disease, and provide funding for research, research and more research.

When was your last experience with this nonprofit?

2009

July 10, 2009

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July 10, 2009

My experience with Lung Cancer Alliance has been so positive. I lost my sister to Lung Cancer five years ago. I contacted them and they were so informative, encouraging and warm. The staff is dedicated to do whatever possible to prevent our family and friends and future generations from deadly outcomes from this horrible disease. The staff and volunteers leave no stone unturned.

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If this organization had 10 million bucks, it could...

make the biggest difference in preventing the biggest cancer killer of all time from claiming more victims.

When was your last experience with this nonprofit?

2009

July 10, 2009

more

July 10, 2009

AMAZING. What else can be said about a group that in a few short years has put a face on lung cancer all across the country. Opened the ndoors to the U.S. Congress and Senate to have the 1st ever bill passed for lung cancer research in the amount of $20 million. They have taken to task groups, and government agencies to insure they do the right thing for lung cancer. A major driving force for early detection. It does saves lives. LCA has been very responsible in making people understand that lung cancer is not a smokers disease and it is not anybodies fault why they have lung cancer. Just ask the very large group who never smoked in their life nor did anybody in their families. I have stage 4 lung cancer. LCA has so many programs that I was able to take advantage of and are available at no charge to everybody. LCA plays a very big part in helping me stay alive. I was told there is NO chance, go home and die, one of the 1st places that I turned to was LCA.Even though it is so hard to find people to get involved and help fight this terrible disease some do step up to the plate. I know. I decided I needed to get involved to help other as LCA has helped me. I was allowed to establish Lung Cancer Alliance Georgia. There is no other group in the country that does what they do. I hope you appreciate and realize it.

The Great!

I've personally experienced the results of this organization in...

Washington DC and in states with chapters. In all cases it has gone from ignorance of lung cancer to creating amazing awareness through education. LCA has made lung cancer a very recocognized disease in a very short time.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

They care more than anybody could ever know. The executive treats all of their volunteers as equals. They listen to everybody. We feel important or as they say we are important. They are amazing

The kinds of staff and volunteers that I met were...

1st rate, These are people who CARE. They are dedicated to winning the fight on lung cancer.

If this organization had 10 million bucks, it could...

Educate,train, create awareness nationally,open offices in all states. move their agenda up by years to beat the disease. It would be a dream come true.

When was your last experience with this nonprofit?

2009

July 10, 2009

more

July 10, 2009

Besides lobbying for increased research and attention to lung cancer, LCA makes a point of confronting the terrible stigma attached to lung cancer (given its association with smoking in the mind of most people. Of course, not even smokers "deserve" lung cancer, but plenty of non-smokers, such as my sister who died of lung cancer in August 2008 and who never smoked, suffer not just the illness itself but also the attached stigma. This reminds me very much of the early days of AIDS when this terrible sense of guilt and debate over "innocent" victims as opposed to those who were thought somehow to be "deserving" of their illness. LCA is a powerful voice against this kind of ignorance.

The Great!

I've personally experienced the results of this organization in...

the positive response I get when I send their e-mail links to friends and family around the country.

Ways to make it better...

If I had to make changes to this organization, I would...

probably call for certain forms of civil disobedience similar to actions taken during the AIDS crisis by groups such as ACT UP.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

the steady flow of information that I know is accurate.

The kinds of staff and volunteers that I met were...

always polite, informed, and never preaching.

If this organization had 10 million bucks, it could...

move the national conversation on cancer of all kinds front and center, working for a cure.

Ways to make it better...

my sister had lived to speak on behalf of lung cancer survivors the way LCA does.

In my opinion, the biggest challenges facing this organization are...

fighting the stigmas still attached to lung cancer and persuading the government to fully fund lung cancer research.

One thing I'd also say is that...

I wish this organization did not have to exist.

When was your last experience with this nonprofit?

2009

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3 hours of volunteer time for this nonprofit will...

Host or join a Shine A Light on Lung Cancer Vigil in your community to raise awareness and provide hope, compassion and support for all those impacted.