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July 10, 2009

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July 10, 2009

AMAZING. What else can be said about a group that in a few short years has put a face on lung cancer all across the country. Opened the ndoors to the U.S. Congress and Senate to have the 1st ever bill passed for lung cancer research in the amount of $20 million. They have taken to task groups, and government agencies to insure they do the right thing for lung cancer. A major driving force for early detection. It does saves lives. LCA has been very responsible in making people understand that lung cancer is not a smokers disease and it is not anybodies fault why they have lung cancer. Just ask the very large group who never smoked in their life nor did anybody in their families. I have stage 4 lung cancer. LCA has so many programs that I was able to take advantage of and are available at no charge to everybody. LCA plays a very big part in helping me stay alive. I was told there is NO chance, go home and die, one of the 1st places that I turned to was LCA.Even though it is so hard to find people to get involved and help fight this terrible disease some do step up to the plate. I know. I decided I needed to get involved to help other as LCA has helped me. I was allowed to establish Lung Cancer Alliance Georgia. There is no other group in the country that does what they do. I hope you appreciate and realize it.

The Great!

I've personally experienced the results of this organization in...

Washington DC and in states with chapters. In all cases it has gone from ignorance of lung cancer to creating amazing awareness through education. LCA has made lung cancer a very recocognized disease in a very short time.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

They care more than anybody could ever know. The executive treats all of their volunteers as equals. They listen to everybody. We feel important or as they say we are important. They are amazing

The kinds of staff and volunteers that I met were...

1st rate, These are people who CARE. They are dedicated to winning the fight on lung cancer.

If this organization had 10 million bucks, it could...

Educate,train, create awareness nationally,open offices in all states. move their agenda up by years to beat the disease. It would be a dream come true.

When was your last experience with this nonprofit?

2009

July 10, 2009

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July 10, 2009

Besides lobbying for increased research and attention to lung cancer, LCA makes a point of confronting the terrible stigma attached to lung cancer (given its association with smoking in the mind of most people. Of course, not even smokers "deserve" lung cancer, but plenty of non-smokers, such as my sister who died of lung cancer in August 2008 and who never smoked, suffer not just the illness itself but also the attached stigma. This reminds me very much of the early days of AIDS when this terrible sense of guilt and debate over "innocent" victims as opposed to those who were thought somehow to be "deserving" of their illness. LCA is a powerful voice against this kind of ignorance.

The Great!

I've personally experienced the results of this organization in...

the positive response I get when I send their e-mail links to friends and family around the country.

Ways to make it better...

If I had to make changes to this organization, I would...

probably call for certain forms of civil disobedience similar to actions taken during the AIDS crisis by groups such as ACT UP.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

the steady flow of information that I know is accurate.

The kinds of staff and volunteers that I met were...

always polite, informed, and never preaching.

If this organization had 10 million bucks, it could...

move the national conversation on cancer of all kinds front and center, working for a cure.

Ways to make it better...

my sister had lived to speak on behalf of lung cancer survivors the way LCA does.

In my opinion, the biggest challenges facing this organization are...

fighting the stigmas still attached to lung cancer and persuading the government to fully fund lung cancer research.

One thing I'd also say is that...

I wish this organization did not have to exist.

When was your last experience with this nonprofit?

2009

July 10, 2009

more

July 10, 2009

Thank goodness for the LCA. Not only is this organization dedicated to those who are suffering from the horrible disease...and their family, they advocate on their behalf. Keep up the hard work!

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What I've enjoyed the most about my experience with this nonprofit is...

how LCA makes it personal to help every individual who walks through their door or calls them on the phone. They are helping people everyday. Their staff are angels.

When was your last experience with this nonprofit?

2009

July 10, 2009

more

July 10, 2009

I'm really glad the LC is on Facebook of all things. It really brings us all together..people whose loved ones had cancer..and possibly people who have this awful disease.

The Great!

I've personally experienced the results of this organization in...

The many members that have joined.

Ways to make it better...

If I had to make changes to this organization, I would...

More feedback...

Ways to make it better...

The "word" was spread even more over the Internet.

When was your last experience with this nonprofit?

2009

July 10, 2009

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July 10, 2009

When my father died of lung cancer in 2007, I was desperate to help fight this disease. The Lung Cancer Alliance not only welcomed me with open arms but also pointed me in the right direction, listened to my story, and provided some amazing support during a really tough time.

The Great!

I've personally experienced the results of this organization in...

their amazing and quick response. And the amount of federal funding they have secured for this awful disease

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

Their attitude, willingness to help and desperation to fight this disease.

The kinds of staff and volunteers that I met were...

AMAZING PEOPLE - true heroes.

If this organization had 10 million bucks, it could...

Activate more awareness, reach more people and hopefully put a dent into the funding for research / early detection.

When was your last experience with this nonprofit?

2009

July 10, 2009

more

July 10, 2009

The Lung Cancer Alliance keeps me informed and connected to the problems, issues, and solutions related to lung cancer. It is an invaluable resource to me, a lung cancer survivor (since 1999.) The proactive measures taken by the LCA provide me with an advocate, an advocate that speaks for me to the medical community, the legislative community, the media community. I could not do all this by myself. The LCA is a voice for the isolated cancer victim and gives that victim a little hope knowing that someone out there cares and is fighting for a cure! Thanks to the LCA!!

The Great!

I've personally experienced the results of this organization in...

Increased interest by the media and others in presenting the case for adequate treatment and funding for lung cancer.

Ways to make it better...

If I had to make changes to this organization, I would...

Give lots of recognition to the employees.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

Frequent contact with messages of hope and messages of action related to finding a cure to lung cancer.

The kinds of staff and volunteers that I met were...

Helpful, caring people who had experience and empathy for the people they were working with.

If this organization had 10 million bucks, it could...

Be more effective in spreading the word about the disease, help more people, become more effective advocates for people who cannot speak for themselves.

Ways to make it better...

More interest from the larger cancer fighting community in trying to fight this disease!

In my opinion, the biggest challenges facing this organization are...

Lung cancer is treated as a disease people deserve to get because they smoked. This is not an accurate perception but is a prevalent one in today's' world. The biggest obstacle is getting the word out that lung cancer affects all kinds of people!

One thing I'd also say is that...

I appreciate the contact I have made with the LCA. I no longer feel quite so isolated as I walk the daily walk of lung cancer victim.

When was your last experience with this nonprofit?

2009

July 10, 2009

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July 10, 2009

My father passed away in 2005 and LCA was one of the first people we went to for help with doing something for the cause. They not only pointed us in the right direction but I can truly call their staff a family friend. They have touched my family and I forever and I will be forever grateful for their help, research ,tools and knowledge of this disease. Thank you LCA and keep up the good work.

The Great!

I've personally experienced the results of this organization in...

ways of helping others. They have a very knowledgeable staff, which some are lung cancer survivors themselves.

Ways to make it better...

If I had to make changes to this organization, I would...

not change a thing.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

the warm and friendliness of each one of them. Also the money that they receive goes not only to fund their campaigns but for research and for helping other families as well, that is a rare thing to find.

The kinds of staff and volunteers that I met were...

absolutely amazing and I will remember them always.

If this organization had 10 million bucks, it could...

change the world as we know it about lung cancer and the "idea" that people think of it.

Ways to make it better...

I could of actually been a part of their group but my own life experiences prevented me of such.

In my opinion, the biggest challenges facing this organization are...

the politicians and going to D.C. and be heard.

One thing I'd also say is that...

LCA is a wonderful organization. I commend the founder and can only hope that all of their hard work and volunteers know that they are making a difference on a daily basis, thank you LCA!

When was your last experience with this nonprofit?

2008

July 10, 2009

more

July 10, 2009

Bravo to the Lung Cancer Alliance for all the good work they are doing on behalf of lung cancer survivors and their families.

Photos

The Great!

I've personally experienced the results of this organization in...

The introduction of the Lung Cancer Mortality Reduction Act

Ways to make it better...

If I had to make changes to this organization, I would...

I can't think of anything. They are great

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

Their unflagging commitment to the cause

The kinds of staff and volunteers that I met were...

All kinds. From my local chairs to Laurie Fenton-Ambrose the President of the LCA. All are committed to ending the stigma and resultant lack of funding that is the main reason why mortality rates remain so high

If this organization had 10 million bucks, it could...

Help lower the mortality from Lung Cancer which remains largely unchanged since 1971

Ways to make it better...

I'd found the LCA before my mother died of Lung Cancer in 2003

In my opinion, the biggest challenges facing this organization are...

The stigma associated with Lung Cancer

One thing I'd also say is that...

This organization is great. Please donate and if you have time, volunteer

When was your last experience with this nonprofit?

2009

November 19, 2008

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November 19, 2008

I only wish my family had found the Lung Cancer Alliance when my father was diagnosed and before he passed. We struggled to find support services and the latest information about lung cancer therapies. At a time when we needed to be entirely focused on my father and his treatment, we were doing a lot of unnecessary legwork trying to get answers, searching for help. The avenues we tried didn't have much advice and didn't offer any hope. This young organization is largely unknown amidst other national nonprofits that have been around for a long time, but who hold a broader focus. It is going to take a laser like focus to bring lung cancer into the pubic debate, secure funding, and make dramatic inroads in survival rates. The LCA is top notch, cost efficient and entirely focused on LUNG CANCER. They are leading the movement to reverse decades of stigma and neglect by empowering patients, elevating awareness and changing health policy. If you or a loved one are impacted by lung cancer, you need to get connected to this organization. You or your loved one will benefit - and LCA can't change health policy without YOU. Become a face in the fight.

The Great!

I've personally experienced the results of this organization in...

$2O MILLION FOR NEW LUNG CANCER RESEARCH NOW LAW President Signs Government Funding Bill -- Includes Top LCA Priority WASHINGTON, D.C. [September 30, 2008]--Tonight, the President signed into law funding for fiscal year 2009. Included in this omnibus measure is money to fund the Department of Defense and a new $20 million Lung Cancer Research Program. Lung Cancer Alliance President and CEO Laurie Fenton-Ambrose called the new program “a turning point for lung cancer.” “This is the breakthrough we have all been working so hard for – our advocates, patients and their families, our staff and our Board,” she said. Fenton-Ambrose credited the chairmen of the House and Senate Defense Appropriations Subcommittees for their support and commitment to the new lung cancer research program. The legislation notes that lung cancer is the most lethal of all cancers, taking more lives each year than all other major cancers combined and that military personnel have heightened exposure to lung cancer carcinogens. “Priority should be given to the development of the integrated components to identify, treat and manage early curable lung cancer”, it states. The bill requires the Army to provide a plan for how the funds will be spent and submit that plan to Congress within 120 days.

Ways to make it better...

If I had to make changes to this organization, I would...

Hire a few more staff people to help expedite their great work. But, that is always a challenge because you want to maintain your cost efficieny and make the best use of donor dollars. But with more volunteers and donors, perhaps they will be able to.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

Feeling empowered. When my father was diagnosed, it was hard to find any hope. While it is too late for my late father, my friend's father, and countless others, I want to be a voice for change so it doesn't have to continue.

The kinds of staff and volunteers that I met were...

Lung cancer survivors and other loved ones of those impacted by lung cancer.

If this organization had 10 million bucks, it could...

Raise awareness and reverse decades of stigma. If you are diagnosed with lung cancer, should the first question people ask you be, "Did you smoke?" Would you blame someone for getting breast or prostate cancer? More than 65% of new cases are in never smokers or people who quit decades ago. Secondly, this organization could help to drive research spending on lung cancer to priority research that might yield improved therapies or a cure.

Ways to make it better...

There were more people already involved. There is much work to be done. Don't let your voice be silent.

In my opinion, the biggest challenges facing this organization are...

1. The need to mobilize a significantly sized nationwide grassroots effort. 2. The low survival rate for this disease which often means that patients are too sick to get involved. More caregivers and loved ones need to join this fight and become the steady backbone for this movement, allowing our loved ones to put their health first and participate when they can. 3. The public stigma about smoking and lung cancer. Whether you are a smoker or not, no one deserves lung cancer. 4. Securing more federal funding in a down economy.

One thing I'd also say is that...

Finally! An organization willing to talk about lung cancer and take on a tough fight. It won't be easy, but we have to start somewhere. If not now, then when?

When was your last experience with this nonprofit?

2008

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5 tips for getting reviews...

  1. Sending an email to clients, volunteers, donors, board members, and other partners with a link to your profile page.
  2. Putting a link on your Web site
  3. Including a link in your email newsletter
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3 hours of volunteer time for this nonprofit will...

Host or join a Shine A Light on Lung Cancer Vigil in your community to raise awareness and provide hope, compassion and support for all those impacted.