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July 28, 2009

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July 28, 2009

I have been a lung cancer survivor for over 11 years. I became active with LCA shortly after my recovery and have remained an active advocate for this organization. During my journey with lung cancer I could find little information on lung cancer, treatment options, and support groups. I joined LCA because it was the only organization that was dedicated to supporting, education, and advocating for lung cancer patients and those at risk for the disease. This organization gave me the skills to advocate and lobby for lung cance patients here in Maine. Through their support I have been successful in getting a bill that I wrote passed to help raise awareness. I have also been very successful in meeting with our Govenor in declaring Lung Cancer Awareness Month. I have been successufl in holding public forums with the Governor and the legislative body. This is the only organization that has been active on a National level to change health care policy through legislative action. They see the challenges that need to be overcome and meet them head on. it is through their support and education that has helped me effect change in the State of maine

The Great!

I've personally experienced the results of this organization in...

The work that I have done here in Maine with the Governor and legilative body.

Ways to make it better...

If I had to make changes to this organization, I would...

Continue lobbying on a federal level because there is were change can be effected.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

Learning how to be effective with the legislative body.

The kinds of staff and volunteers that I met were...

Simply outstanding. Ready to help and make a difference in the lung cancer community.

If this organization had 10 million bucks, it could...

Provide research grants.

Ways to make it better...

I am not sure that I could have had a better experience with LCA than what I have had over the last 10 years.

In my opinion, the biggest challenges facing this organization are...

Not enough staff.

One thing I'd also say is that...

I believe that this organization has grown in leaps and bounds since moving to the Washington DC.

When was your last experience with this nonprofit?

2009

July 27, 2009

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July 27, 2009

There are some fantastic lung cancer advocacy groups out there but this is the only one devoted to changing national policy and re-directing our tax dollars towards lung cancer research. Lung cancer kills more people than any other cancer (and twice as many women as breast cancer) but is the least funded of all of the major cancers. The Lung Cancer Alliance doesn't discriminate based on type of lung cancer, smoking history or anything else. They help people with lung cancer, period. They also have an excellent patient support program which includes a peer matching system and a fantastic online support group at www.inspire.com. I can't think of enough good things to say about this amazing organization.

The Great!

I've personally experienced the results of this organization in...

the powerful online support group that gives patients and their families a way to connect with others affected by lung cancer and stay informed as well as in touch.

Ways to make it better...

If I had to make changes to this organization, I would...

start a marathon program!

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

knowing that we're making a difference in changing how the world understands lung cancer, and possibly working towards raising more research dollars for this complicated, terrible disease.

The kinds of staff and volunteers that I met were...

smart, compassionate, a-political, unbiased and helpful.

If this organization had 10 million bucks, it could...

put a drop into the enormous bucket labeled "money needed to cure lung cancer."

Ways to make it better...

we'd been able to get more money allocated to lung cancer research and treatment. It's a slow process and I'm in it for the long haul!

In my opinion, the biggest challenges facing this organization are...

how many other organizations there are that try and compete rather than work with the Lung Cancer Alliance.

One thing I'd also say is that...

we need to find a cure for lung cancer.

When was your last experience with this nonprofit?

2009

July 27, 2009

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July 27, 2009

Lung Cancer Alliance offers top notch and comprehensive patient support programs as well as works tirelessly for all of us affected by the disease by fighting to secure the funding from the federal government necessary to make an impact on its devastation. This is particuarly critical since so many other types of cancer are more highly prioritized by the public even though lung cancer is more deadly than any other.

The Great!

I've personally experienced the results of this organization in...

The first big commitment of funding from the federal government to provide much needed research.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

The people involved with the organization have their hearts in it. They make me believe that they are really fighting for me.

The kinds of staff and volunteers that I met were...

Exceptional. Bright. Caring. Personable.

If this organization had 10 million bucks, it could...

Make a big stride toward curing this devastatingly deadly disease.

When was your last experience with this nonprofit?

2009

July 24, 2009

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July 24, 2009

I have been involved with Lung Cancer Alliance for five years since I was diagnosed with lung cancer at the age of 44. I can not imagine my health journey without this nonprofit organization. The resources, employees and links have been instrumental in my care, support, awareness and advocacy. Lung Cancer Alliance is single handedly leading the fight for lung cancer patients and families to the media, government, research and medical community.

The Great!

I've personally experienced the results of this organization in...

legislation passed in the United States Congress.

Ways to make it better...

If I had to make changes to this organization, I would...

try to raise significant donations so that LCA could have more resources to do their valuable work.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

the feeling of comfort knowing there is an organization being my voice in the world while I devote my energies to fighting my cancer.

The kinds of staff and volunteers that I met were...

magnificent, caring, comforting, knowledgeable and resourceful.

If this organization had 10 million bucks, it could...

be able to double or triple their efforts to make a difference for lung cancer patients, supporters and family members. There is even a possibility with additional funds there could finally be an improvement in the survival rate for this terrible disease.

Ways to make it better...

there were more organization like LCA fighting for lung cancer patients, supporters and family members.

In my opinion, the biggest challenges facing this organization are...

the stigma of smoking and lung cancer. It will be important to educate the world that nonsmokers are also vulnerable to lung cancer.

One thing I'd also say is that...

thank god for the staff of the Lung Cancer Alliance!!!!!!!!!

When was your last experience with this nonprofit?

2009

July 17, 2009

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July 17, 2009

I LOVE LOVE LOVE this organization. Thank God for the voice they provide for lung cancer patients and their families...and for those for whom we have lost. After losing my wonderful, beautiful Mom to lung cancer after a courageous 7-year battle, I found LCA and am so grateful for what they do. Thank you to all those who work tirelessly at LCA and who are making it possible to increase the survival odds of this terrible disease.

More feedback...

The kinds of staff and volunteers that I met were...

passionate, smart and willing to do whatever it takes to get the message out!

When was your last experience with this nonprofit?

2009

July 15, 2009

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July 15, 2009

I have been involved with Lung Cancer Alliance for the past five years. They are the voice for those who have lost their battle to lung cancer and those still fighting. I found the LCA after I was diagnosed with lung cancer in 2004. LCA is strong when you are weak and caring when you need an ear to listen. They fight everyday to change the numbers of our family and friends who have or may have to face lung cancer during their lifetime.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

The people who work on our behalf everyday.

If this organization had 10 million bucks, it could...

Fund lung cancer research which is so badly needed.

When was your last experience with this nonprofit?

2009

July 13, 2009

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July 13, 2009

My Mom has been fighting Lung Cancer for almost 3 years now and because she is my mom, sister and best friend rolled into one it has been very difficult for me. LCA always keeps me informed as a member what is going on in the US concerning the fight against lung cancer and I also feel encouraged by reading stories from other members and stories posted by the LCA myself. I have gotten quite a few people to join as well because I feel so strongly about this organization. They are helping so many people fighting this awful, awful disease and also helping the families as well.

The Great!

I've personally experienced the results of this organization in...

Always keeps me informed as a member as to what is going on across the US concerning the fight against LC.

Ways to make it better...

If I had to make changes to this organization, I would...

More feedback...

If this organization had 10 million bucks, it could...

Get Lung Cancer the research and exposure it deserves so maybe someday we can cure this wretched disease!!!

Ways to make it better...

Can not think of anything at this time

When was your last experience with this nonprofit?

2009

July 13, 2009

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July 13, 2009

I was diagnosed with Lung Cancer in Oct, 2006. As devastating as that news was, our family began researching all we could immediately. We became connected with the Relay For Life project through the American Cancer Society. This year, I was challenged to "Fight Back" at the Relay. I chose to learn as much as I could about the myths and stigma of lung cancer. Since I have never smoked, it was shocking that I experienced much of this prejudice during my diagnosis and treatment. Nurses, doctors and other health care professionals assumed I smoked. In doing all the research, I came across the Lung Cancer Alliance. They welcomed me and embraced me. They sent me an incredible amount of material, including a t shirt which read, "I never smoked and I have lung cancer", which I wore proudly at the Relay event in May. The information and educational material that they share is phenomenal. My experience with the organization has been rewarding and enlightening. I am so pleased that I found them and only hope I can give back.

The Great!

I've personally experienced the results of this organization in...

the way that they share education/information.

Ways to make it better...

If I had to make changes to this organization, I would...

not change anything

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

Corresponding with the local sponsor.

The kinds of staff and volunteers that I met were...

Very friendly, kind and extended themselves.

If this organization had 10 million bucks, it could...

Destroy the myths surrounding lung cancer, which could create an atmosphere where research specifically for a cure for lung cancer would exist.

Ways to make it better...

Nothing

In my opinion, the biggest challenges facing this organization are...

Getting the word out

One thing I'd also say is that...

Nothing

When was your last experience with this nonprofit?

2009

July 11, 2009

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July 11, 2009

I am a lucky 6 year lung cancer survivor. I was diagnosed at stage 3A. I had surgery followed by chemotherapy and radiation treatment. As a result of the radiation, two of my coronary arteries became weakened and would not allow the plaque to come through. I had dual by-pass surgery 9 months ago as a consequence. I lost my father, uncle and two friends to lung cancer. We were all never smokers. I also lost two friends who had given up smoking decades ago. When I saw a newsletter in my surgeon's office published by the Lung Cancer Alliance, I knew I had to become its advocate to help erase the stigma, elevate awareness, and change public health policy. I am now working with the Lung Cancer Alliance as a "full time" volunteer to accomplish our goals. I feel very committed and am thankful to the Lung Cancer Alliance for the support, guidance and energy that has been provided to help realize our efforts.

The Great!

I've personally experienced the results of this organization in...

patient support, Department of Defense bill appropriating $20M to lung cancer, and the introduction of HR2112 and S332 - Lung Cancer Mortality Reduction Act of 2009 - simultaneously in both Houses of Congress, and the updates and literature it provides.

Ways to make it better...

If I had to make changes to this organization, I would...

give clearer messages. Sometimes, I am not sure of what will be or can be done - dual messages.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

the passion, commitment and professionalism of the staff.

The kinds of staff and volunteers that I met were...

professional, committed and passionate.

If this organization had 10 million bucks, it could...

hire staff to organize and fully support state chapters in all the states.

Ways to make it better...

there were quicker follow-through and clearer messages.

In my opinion, the biggest challenges facing this organization are...

Lack of funds to organize and fully support state chapters in all the states.

When was your last experience with this nonprofit?

2009

July 11, 2009

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July 11, 2009

I was diagnosed with stage 4 lung cancer in Dec 07.Still here!!Not just here, I am enjoying my new life.Due to the new targeted therapy drug Tarceva I have a great quality of life while i continue to fight.I will beat this for my sons.I really am the luckiest cancer patient i know!I wish everyone could live their life like i am without the diagnosis.The worse thing about cancer to me is making sure insurance knows i will question all mistakes.Fighting insurance along with ca is my new full time job!I would love to be someone that could help when you are down.We all have those days.I live for results every three months.Every three months is a gift....

The Great!

I've personally experienced the results of this organization in...

My friends on facebook have learned you can have lung ca without ever have smoked.

Ways to make it better...

If I had to make changes to this organization, I would...

Not know how which is why i am thankful to you!

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

Being able to tell my story

If this organization had 10 million bucks, it could...

Find new drugs that target cancer cells.

Ways to make it better...

this organization is great as is

One thing I'd also say is that...

It is true . I feel like i am walking on the shoulders of those who have gone before me. And i thank them all every night in my prayers

When was your last experience with this nonprofit?

2008

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3 hours of volunteer time for this nonprofit will...

Host or join a Shine A Light on Lung Cancer Vigil in your community to raise awareness and provide hope, compassion and support for all those impacted.