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February 9, 2011

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Review from Guidestar
February 9, 2011

Words cannot describe how i feel about the LCA! I felt impowered the minute i met all who work for the LCA! Being an advocate, here in California, has not only been rewarding but has been making a difference.
My girlfriend Sheila died from lung cancer. We were friends for over 45 yrs!
Watching her go through this devastating cancer was ,need i say, most difficult. I was blessed to go to CAPITOL HILL and help with the legislation process to get lung cancer noticed, to give information and tell our stories. I am mad as hell that we are he most underfunded,ignored and stigmatized cancer! Along with the LCA and here in SAN DIEGO with
BREATH OF HOPE, we all, the volunteers AND the survivors will fight to be on the same playing field. For us to have the goal of conquering this cancer, to rid this cancer from our human experience! LCA is amazing! They are strong and I am proud to belong to this loving,caring, group of people! Watch out!
MONICA WAY

The Great!

I've personally experienced the results of this organization in...

everything i have been connected with LCA has been great.

Ways to make it better...

If I had to make changes to this organization, I would...

The only thing is to get more volunteers, hire more to keep this vision going

August 23, 2009

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August 23, 2009

When my husband received the shocking diagnosis of lung cancer (he didn't have any easily identifiable risk factors at the time), we turned to the well-know cancer/lung organizations to volunteer for Lung Cancer Awareness Month. Their response? Nothing, really. They only focus on smoking (my husband was a lifelong adamant non-smoker). The one organization which did respond immediately - Lung Cancer Alliance. LCA not only helped us organize a rally in a matter of days, but they continued to provide direction, training and support to further our advocacy withiin the state. Eventually I became volunteer C-Chair for LCA-CA. In all my experiences with LCA, I have seen their determined persistence and unrelenting efforts in the face of overwhelming stigma and apathy toward the disease. They produce an immense amount of work with an unprecedented low number of paid staff. This was made abundently clear to me when I would note the times on their return calls/emails during the late night or very early mornings. I have seen an immense change in the level of public discussion and a new interest in the disease (rather than simply the issue of smoking) on the part of established organizations over the six years since my husband's diagnosis. This is due directly to the efforts of Lung Cancer Alliance. I whole heartedly recommend this organization. With a significant increase in resources and support, we CAN achieve the LCA goal of NO MORE LUNG CANCER!

The Great!

I've personally experienced the results of this organization in...

Better awareness in the general public, medical professionals and among legislators, which has resulted in formal recognition (proclamations) and supportive legislation on state and federal levels. More support of the disease in other organizations.

Ways to make it better...

If I had to make changes to this organization, I would...

Expand its capabilites with use of new technologies to improve its networking capabilities.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

Their dedication and responsiveness.

The kinds of staff and volunteers that I met were...

completely dedicated to this cause and often worked themselves to exhaustion

If this organization had 10 million bucks, it could...

probably make a huge impact on lung cancer survival rates by increasing the rates of early detection and intervention.

Ways to make it better...

LCA appears to do all within its power to achieve its goals.

In my opinion, the biggest challenges facing this organization are...

improving public awareness of the organization and obtaining more resources.

One thing I'd also say is that...

Two thumbs UP, way UP on Lung Cancer Alliance.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2009

July 28, 2009

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July 28, 2009

I have been a lung cancer survivor for over 11 years. I became active with LCA shortly after my recovery and have remained an active advocate for this organization. During my journey with lung cancer I could find little information on lung cancer, treatment options, and support groups. I joined LCA because it was the only organization that was dedicated to supporting, education, and advocating for lung cancer patients and those at risk for the disease. This organization gave me the skills to advocate and lobby for lung cance patients here in Maine. Through their support I have been successful in getting a bill that I wrote passed to help raise awareness. I have also been very successful in meeting with our Govenor in declaring Lung Cancer Awareness Month. I have been successufl in holding public forums with the Governor and the legislative body. This is the only organization that has been active on a National level to change health care policy through legislative action. They see the challenges that need to be overcome and meet them head on. it is through their support and education that has helped me effect change in the State of maine

The Great!

I've personally experienced the results of this organization in...

The work that I have done here in Maine with the Governor and legilative body.

Ways to make it better...

If I had to make changes to this organization, I would...

Continue lobbying on a federal level because there is were change can be effected.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

Learning how to be effective with the legislative body.

The kinds of staff and volunteers that I met were...

Simply outstanding. Ready to help and make a difference in the lung cancer community.

If this organization had 10 million bucks, it could...

Provide research grants.

Ways to make it better...

I am not sure that I could have had a better experience with LCA than what I have had over the last 10 years.

In my opinion, the biggest challenges facing this organization are...

Not enough staff.

One thing I'd also say is that...

I believe that this organization has grown in leaps and bounds since moving to the Washington DC.

When was your last experience with this nonprofit?

2009

July 27, 2009

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July 27, 2009

There are some fantastic lung cancer advocacy groups out there but this is the only one devoted to changing national policy and re-directing our tax dollars towards lung cancer research. Lung cancer kills more people than any other cancer (and twice as many women as breast cancer) but is the least funded of all of the major cancers. The Lung Cancer Alliance doesn't discriminate based on type of lung cancer, smoking history or anything else. They help people with lung cancer, period. They also have an excellent patient support program which includes a peer matching system and a fantastic online support group at www.inspire.com. I can't think of enough good things to say about this amazing organization.

The Great!

I've personally experienced the results of this organization in...

the powerful online support group that gives patients and their families a way to connect with others affected by lung cancer and stay informed as well as in touch.

Ways to make it better...

If I had to make changes to this organization, I would...

start a marathon program!

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

knowing that we're making a difference in changing how the world understands lung cancer, and possibly working towards raising more research dollars for this complicated, terrible disease.

The kinds of staff and volunteers that I met were...

smart, compassionate, a-political, unbiased and helpful.

If this organization had 10 million bucks, it could...

put a drop into the enormous bucket labeled "money needed to cure lung cancer."

Ways to make it better...

we'd been able to get more money allocated to lung cancer research and treatment. It's a slow process and I'm in it for the long haul!

In my opinion, the biggest challenges facing this organization are...

how many other organizations there are that try and compete rather than work with the Lung Cancer Alliance.

One thing I'd also say is that...

we need to find a cure for lung cancer.

When was your last experience with this nonprofit?

2009

July 27, 2009

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July 27, 2009

Lung Cancer Alliance offers top notch and comprehensive patient support programs as well as works tirelessly for all of us affected by the disease by fighting to secure the funding from the federal government necessary to make an impact on its devastation. This is particuarly critical since so many other types of cancer are more highly prioritized by the public even though lung cancer is more deadly than any other.

The Great!

I've personally experienced the results of this organization in...

The first big commitment of funding from the federal government to provide much needed research.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

The people involved with the organization have their hearts in it. They make me believe that they are really fighting for me.

The kinds of staff and volunteers that I met were...

Exceptional. Bright. Caring. Personable.

If this organization had 10 million bucks, it could...

Make a big stride toward curing this devastatingly deadly disease.

When was your last experience with this nonprofit?

2009

July 24, 2009

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July 24, 2009

I have been involved with Lung Cancer Alliance for five years since I was diagnosed with lung cancer at the age of 44. I can not imagine my health journey without this nonprofit organization. The resources, employees and links have been instrumental in my care, support, awareness and advocacy. Lung Cancer Alliance is single handedly leading the fight for lung cancer patients and families to the media, government, research and medical community.

The Great!

I've personally experienced the results of this organization in...

legislation passed in the United States Congress.

Ways to make it better...

If I had to make changes to this organization, I would...

try to raise significant donations so that LCA could have more resources to do their valuable work.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

the feeling of comfort knowing there is an organization being my voice in the world while I devote my energies to fighting my cancer.

The kinds of staff and volunteers that I met were...

magnificent, caring, comforting, knowledgeable and resourceful.

If this organization had 10 million bucks, it could...

be able to double or triple their efforts to make a difference for lung cancer patients, supporters and family members. There is even a possibility with additional funds there could finally be an improvement in the survival rate for this terrible disease.

Ways to make it better...

there were more organization like LCA fighting for lung cancer patients, supporters and family members.

In my opinion, the biggest challenges facing this organization are...

the stigma of smoking and lung cancer. It will be important to educate the world that nonsmokers are also vulnerable to lung cancer.

One thing I'd also say is that...

thank god for the staff of the Lung Cancer Alliance!!!!!!!!!

When was your last experience with this nonprofit?

2009

July 17, 2009

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July 17, 2009

I LOVE LOVE LOVE this organization. Thank God for the voice they provide for lung cancer patients and their families...and for those for whom we have lost. After losing my wonderful, beautiful Mom to lung cancer after a courageous 7-year battle, I found LCA and am so grateful for what they do. Thank you to all those who work tirelessly at LCA and who are making it possible to increase the survival odds of this terrible disease.

More feedback...

The kinds of staff and volunteers that I met were...

passionate, smart and willing to do whatever it takes to get the message out!

When was your last experience with this nonprofit?

2009

July 15, 2009

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July 15, 2009

I have been involved with Lung Cancer Alliance for the past five years. They are the voice for those who have lost their battle to lung cancer and those still fighting. I found the LCA after I was diagnosed with lung cancer in 2004. LCA is strong when you are weak and caring when you need an ear to listen. They fight everyday to change the numbers of our family and friends who have or may have to face lung cancer during their lifetime.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

The people who work on our behalf everyday.

If this organization had 10 million bucks, it could...

Fund lung cancer research which is so badly needed.

When was your last experience with this nonprofit?

2009

July 13, 2009

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July 13, 2009

My Mom has been fighting Lung Cancer for almost 3 years now and because she is my mom, sister and best friend rolled into one it has been very difficult for me. LCA always keeps me informed as a member what is going on in the US concerning the fight against lung cancer and I also feel encouraged by reading stories from other members and stories posted by the LCA myself. I have gotten quite a few people to join as well because I feel so strongly about this organization. They are helping so many people fighting this awful, awful disease and also helping the families as well.

The Great!

I've personally experienced the results of this organization in...

Always keeps me informed as a member as to what is going on across the US concerning the fight against LC.

Ways to make it better...

If I had to make changes to this organization, I would...

More feedback...

If this organization had 10 million bucks, it could...

Get Lung Cancer the research and exposure it deserves so maybe someday we can cure this wretched disease!!!

Ways to make it better...

Can not think of anything at this time

When was your last experience with this nonprofit?

2009

July 13, 2009

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July 13, 2009

I was diagnosed with Lung Cancer in Oct, 2006. As devastating as that news was, our family began researching all we could immediately. We became connected with the Relay For Life project through the American Cancer Society. This year, I was challenged to "Fight Back" at the Relay. I chose to learn as much as I could about the myths and stigma of lung cancer. Since I have never smoked, it was shocking that I experienced much of this prejudice during my diagnosis and treatment. Nurses, doctors and other health care professionals assumed I smoked. In doing all the research, I came across the Lung Cancer Alliance. They welcomed me and embraced me. They sent me an incredible amount of material, including a t shirt which read, "I never smoked and I have lung cancer", which I wore proudly at the Relay event in May. The information and educational material that they share is phenomenal. My experience with the organization has been rewarding and enlightening. I am so pleased that I found them and only hope I can give back.

The Great!

I've personally experienced the results of this organization in...

the way that they share education/information.

Ways to make it better...

If I had to make changes to this organization, I would...

not change anything

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

Corresponding with the local sponsor.

The kinds of staff and volunteers that I met were...

Very friendly, kind and extended themselves.

If this organization had 10 million bucks, it could...

Destroy the myths surrounding lung cancer, which could create an atmosphere where research specifically for a cure for lung cancer would exist.

Ways to make it better...

Nothing

In my opinion, the biggest challenges facing this organization are...

Getting the word out

One thing I'd also say is that...

Nothing

When was your last experience with this nonprofit?

2009

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5 tips for getting reviews...

  1. Sending an email to clients, volunteers, donors, board members, and other partners with a link to your profile page.
  2. Putting a link on your Web site
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3 hours of volunteer time for this nonprofit will...

Host or join a Shine A Light on Lung Cancer Vigil in your community to raise awareness and provide hope, compassion and support for all those impacted.