Lung Cancer Alliance

Rating: 4.85 stars   79 reviews

Issues: Civil Rights, Health, Human Services, Cancer

Location: 888 16th Street, N.W. Suite 150 Washington DC 20006 USA

Mission: Ending injustice and saving lives through an alliance of advocacy, education and support.
Results: Over the past year, more than 12,000 personal telephone calls and email requests were managed by our professional and caring staff, delivering customized support packets to improve outcomes. We also expanded a network of 1,500 medical facility contacts nationwide who share our educational support materials to the newly diagnosed and their loved ones so that they know they are not alone and we are here to help. We launched efforts to educate the millions at high risk about their life-saving options, encouraging conversations with their doctors about early detection. To date, more than 100 medical facilities have joined our coalition to make sure that screening is done right and well at centers of excellence across the U.S. We have trained thousands of advocates to educate elected and public health officials about the disease, securing almost $70 million to date in public health dollars for research and early detection. Because we do not accept public funding, and these dollars fund research directly, we are able to leverage your support at least 10-fold. We also launched the first nationwide awareness campaign addressing the stigma of lung cancer head-on. With more than 300 million impressions to date, the campaign continues to grow over social media channels. Learm more at: www.NoOneDeservesToDie.org. These combined efforts will help meet our vision of reducing lives lost to lung cancer by half by 2020. With your continued help and support, we will achieve this realistic and attainable goal.
Target demographics: The milions living with or at risk for lung cancer
Direct beneficiaries per year: At least 12,000
Geographic areas served: Nationwide
Programs: Community& Support Services Program: Providing free, one-on-one support, information, and referrals to patients, at risk individuals and their loved ones through telephone and online support services, delivering customized education packets to make informed decisions and improve outcomes. Education Program: Conducting national awareness campaigns, including No One Deserves to Die, National Shine A Light on Lung Cancer Vigil, Team Lung Love and Give A Scan to educate the public about the facts, dispel myths, and share calls to action to eliminate stigma, increase research funding and save lives. Health Policy Program: Advocating for multiple millions in public health dollars for lung cancer research and early detection through a nationwide grassroots network of volunteer chapters, advocates and targeted policy strategies.
2014 Top-Rated Nonprofit
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Community Reviews

Rating: 5 stars  

I am a Stage 4 Lung Cancer survivor who has just celebrated the 6 year milestone. Although treatment is ongoing and there are always surprises and new progression, I have a good quality of life. It is important for me to utilize this time and add purpose and leave a legacy. Through LCA I volunteer as a Phone Buddy to help others.
I post in chat rooms to share experiences with those who may be just starting a clinical trial that I have been on for two years. I use my coaching skills to help others locally and online. LCA is supportive and involved. Their efforts to help us with our first Shine a LIght on Lung Cancer in November is valuable.
Their recognition of outstanding Support Groups raises the awareness of patient needs and their work on Capital Hill is critical to research funding that contribute to our survivorship.

If I had to make changes to this organization, I would...

send more money their way to increase the funding for lung cancer even more.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

Being a survivor myself, I know how important it is to talk to people who have already traveled the road that many are traveling now. I love being a "Phone Buddy" and hope that I give some encouragement to those I talk too. I don't fool myself that everyone will have the same outcome I did (8 years survivor and cancer free) but if they can feel good about themselves and have a glimmer of hope that will make their lives better while fighting the fight of their life, that is what I want to do. Everyone fights battles of all kinds in their lives but if you can share yours with like minded people you actually get more reward out of doing it than the person you are talking too. I hope to continue with The Lung Cancer Alliance as long as I can.

If I had to make changes to this organization, I would...

It really isn't a change and I don't know how to do it but..........Get the word out there more somehow that there are people who will share their experiences with you if you desire to talk about your journey.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

In 2000 and 2003, though a NON SMOKER my entire life, I was stricken with lung cancer. My surgeon Dr. Christina Williamson had heard about Lung Cancer Alliance when they were in one room in Seattle, Washington trying to increase awareness about the number one cancer killer. They helped me immediately and made me feel I was not alone. Since then, LCA has moved to Washington, DC and done remarkable things for victims of lung cancer as well as families. I am so proud of what they are doing coast to coast and outside of the USA. They handle the disease by contributing to research, reaching out, advocating and leading the way. They are the best. Gail Matthews

If I had to make changes to this organization, I would...

LCA under the team leadership of Laurie Fenton Ambrose is amazing. Just keep on going as they are. I am so impressed with their growth and the way they reach out to help a disease that came from behind the rear of all diseases.

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 4 stars  

I also found out about my lung cancer by accident and had a large wedge removed from my right lower lobe on June 27, 2013. The doctors told me the frozen section showed no malignancy, but the final pathology disagreed; I had Stage I adenocarcinoma. I just had my first f/u CAT scan and there has been no change, but I worry a lot about recurrence. I would love to have a support group close to where I live through LCA, but there is not one in the area. I support LCA by being a donor and trying to support others through their journey on the website.

If I had to make changes to this organization, I would...

Have more support groups available. Although my friends and family are supportive they really don't understand what I am going through.

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 4 stars  

Late December 2010, I went to the Urgent Care thinking I had a sever bronchial infection. Had pneumonia and a "shadow" in the lung xray. Be the beginning of February 2011, it was decide to remove a large wedge of the upper right lobe of my lung and several small wedges. January 2012 saw return of several tumors. Started chemo at end of June 2012 until end of October 2012, Avastin only for 2 1/2 months and then pneumonia in January 2013 showed tumors back. Went back on chemo until April 2013 and have been on Tarceva since. I also have COPD and Crohn's. Chemo and Crohn's do not want to work well together. Due to sever dehydration, I have been hospitalized twice since on the Tarceva. Have finally gotten things under semi control and living well right now.

Will you volunteer or donate to this organization?

Unsure

How much of an impact do you think this organization has?

Some

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

I, too found out about my stage I lung cancer by accident. A routine x-ray revealed "a mass". My journey began that day and now, almost two years later, I am alive thanks to my amazing and wonderful doctor at Memorial Sloan Kettering Cancer Center. I joined the Lung Cancer Alliance to get support, information and most of all to share my continuing medical journey.
The stories we share are sometimes sad, hopeful, full of joy and love. Here's mine, I live life today and in the now. Thanks, LCA, for being my partner along this road.

If I had to make changes to this organization, I would...

Nothing, keep up the great work and keeping us updated on the latest treatment information.

Will you volunteer or donate to this organization?

Unsure

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

When my daughter died from lung cancer, then I got it I was so devastated I didn't know where to turn Someone recommended Lung Cancer Alliance, and they have been wonderful! I have been to Capitol to fight for additional funding for research, and will continue to do so. The information, and support they give is nothing short of excellent!

If I had to make changes to this organization, I would...

Make none! All calls I made were handled on time, and with encouragement, and compassion all information was current and all staff were professional!

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Was this review helpful? 
1 previous review
Rating: 5 stars  

6 people found this review helpful

When my daughter died from lung cancer, then I was diganoised with lung cancer, I needed information! I turned to Lung Cancer Alliance. They not only sent me lots of information, but put me in touch with a telephone buddy, who called me and gave me much encouragement. I very much appreciated the help, information, and caring I got from them. I now am a telephone buddy, and I want to give back to all those who helped me through the diffucult times I had facing this unpleasent disease.

I've personally experienced the results of this organization in...

How scared people are helped, and the kindness this organization shows them.

If I had to make changes to this organization, I would...

Maybe put more information in hospitals and doctors offices, telling people there is help out there for lung cancer victums.

What I've enjoyed the most about my experience with this nonprofit is...

The caring people. The advocacy they are pursing for lung cancer research.

The kinds of staff and volunteers that I met were...

Helpful, kind, and caring!

If this organization had 10 million bucks, it could...

Help lung cancer research programs, and have more screening for lung cancer.

Ways to make it better...

I really cannot think of any way.

In my opinion, the biggest challenges facing this organization are...

Lack of funds.

One thing I'd also say is that...

Thanks Lung Cancer Alliance for your wonderful help at a time when I needed it .

When was your last experience with this nonprofit?

2009-7-01

Was this review helpful? 
Rating: 4 stars  

1 person found this review helpful

I was found to have stage 1 lung cancer. It was found out by accident, I had gone to the Dr, for my gall bladder and they saw something on the x-ray. So immediately they sent me to a lung specialist. He watched it carefully for 6 months. then it started changing and they did a biopsy and came back as cancer. I had the best doctors in the world. They took out part of my right lung, then I went through chemo but now I am fine. I do go to a lung cancer support group but there was none around till this very nice gentleman started one. You don't ever see anything about lung cancer. Breast cancer things are all over .They need to have things for us too.

When was your last experience with this nonprofit?

2013

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Rating: 5 stars  

As a newly diagnosed lung cancer patient, I was overwhelmed with information. And since I was diagnosed with stage IV NSCLC, what I was reading was dismal and discouraging. Connecting with others that are surviving and joining in the fight to end the stigmas that lung cancer is only a smokers disease have helped me become hopeful about my future and survival.

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Quite well

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

Thank god there out there fighting for more funding for Lung Cancer. I have no problem donating to there organization.

If I had to make changes to this organization, I would...

None

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

Was this review helpful?