Living Beyond Breast Cancer
Rating: 5 stars 25 25 reviews
354 W Lancaster Ave Suite 224 Haverford PA 19041 USA
Our mission is to empower all women affected by breast cancer to live as long as possible with the best quality of life.
1,200+ attendees annually to our conferences 8,000 listeners to our teleconferences 600+ callers to our Survivors' Helpline 110,000 unique visitors to lbbc.org 70,000 educational brochures distributed
We assist women at all stages of diagnosis, treatment and recovery with information, connection and support. LBBC's programs address medical, psychosocial, emotional, legal and financial concerns. In addition to our extensive resources for all women affected by breast cancer, we offer special programs for women who are newly diagnosed; women with metastatic breast cancer; African-American and Latina women; young women; and women at high risk for developing breast cancer.
Direct beneficiaries per year:
Geographic areas served:
National conferences - national events providing information in large sessions and interactive workshops led by breast cancer experts to help women and caregivers make informed decisions. Webinars - monthly education seminars, accessible by phone or online, highlighting specific topics related to breast cancer. Community meetings - small, regional gatherings bringing experts, women and families together for information and interaction on subjects of interest.
young women's initiative - living beyond breast cancer's young women's initiative provides education and support programs tailored to the unique needs of women diagnosed with breast cancer before age 45. The initiative, which began in november 2011, is funded by a five year cooperative agreement with centers for disease control and prevention. To date, we have expanded web content for young women, trained 29 young women to be cancer advocates within their communities, developed five online videos about health topics relevant to young women, held four webinars for healthcare providers, and trained 22 young women to serve on our breast cancer helpline.
publications:"guides to understanding breast cancer and metastatic breast cancer series" - booklets addressing needs of the just diagnosed, in treatment, years beyond diagnosis or living with metastatic disease. "insight" - quarterly newsletter containing profiles of women affected by breast cancer and articles on important medical and quality of life topics.
other program services include lbbc. Org, breast cancer helpline and outreach programs.
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Reviews for Living Beyond Breast Cancer
17 people found this review helpful
LBBC is the best organization I have found for delivering current information on all stages, effects, and treatments for breast cancer, particularly metastatic cancer. Through their teleconferences, transcripts, and other forms of communication, they provide a forum where leaders in the field discuss specific issues such as pain management, the impact of new clinical trials, conventional best practices, and much more. LBBC is a patient-advocate. Their information is understandable but sufficiently sophisticated that you can become a real member of your treatment team.
I've personally experienced the results of this organization in...
my engaging more effectively in my own cancer treatment and helping others do the same by discussing LBBC reports with friends with cancer. LBBC gives you the tools for responsible patient empowerment.
If I had to make changes to this organization, I would...
Continue and expand its reach, holding at least one of its conferences on the west coast. I would also find a way to collaborate with the Kaiser Foundation or others similar in preventive treatment and research.
What I've enjoyed the most about my experience with this nonprofit is...
I am much more knowledgeable about this disease and can discuss its treatment (pain, clinical trials, different chemotherapy and radiation regimens) with medical professionals.
The kinds of staff and volunteers that I met were...
knowledgeable and responsive. They treat people with cancer with respect and hope.
If this organization had 10 million bucks, it could...
expand its conferences and seminars throughout the United States and add more teleconferences on new areas of interest, such as biologic research. It could also engage in certain types of research - patient-based - for which is already has a base.
Ways to make it better...
LBBC had provided more information on metastatic cancer. Whether because of my comments or not, the nonprofit is now doing this. (Women with metastatic cancer are dealing with the incurable part of the disease.)
In my opinion, the biggest challenges facing this organization are...
financial. In any nonprofit in the cancer field, one must not have to face the choice of losing one's independence by become dependent on drug company sponsorship.
One thing I'd also say is that...
The organization is a slim and creative assemblage of people whose actions are directed by the kinds of information its participants need to know.
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