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June 21, 2011

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June 21, 2011

LBBC was a lifeline for me as I was drowning in the news that after 10 years I had had a recurrence of breast cancer. My original surgeon had retired and as I was wondering where to go next ( this was in 1994), an article appeared prominently in the Phila Inquirer about a young radiation oncologist starting an organization to help women cope with a breast cancer diagnosis. I immediately dialed the number printed in the newspaper and, of all things, Dr. Marisa Weiss herself answered the phone. I think she was in her kitchen at home - lots of background noise. She calmly listened to my story and helped me focus on moving forward toward treatment second time around, assuring me that the three surgeons I had selected all had good reputations in the area. We must have spent 1/2 hour on the phone. I will never forget how helpful, calming and reassuring she was to me - a perfect stranger! After treatment I immediately signed on for the first Survivor Helpline training class and worked the phones for many years before retiring. LBBC is one of the best run organizations I have encountered and I feel privileged to have been a part of it.

The Great!

I've personally experienced the results of this organization in...

attending the annual Fall Conference and getting specific, useful information and in having access to the giants in breast cancer research and medicine who speak at the event.

Ways to make it better...

If I had to make changes to this organization, I would...

I really think LBBC is close to perfection.

July 28, 2009

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July 28, 2009

This organization provides incredible, free brochures on many cancer topics. Their brochure on understanding pathology reports gave me the information I needed to catch a critical error in my own pathology report. This changed my course of treatment and was a potential lifesaver.

The Great!

I've personally experienced the results of this organization in...

women gaining knowledge about their disease.

Ways to make it better...

If I had to make changes to this organization, I would...

be very satisfied with the assistance that was being provided.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

their teleconferences are informative and can be replayed.

The kinds of staff and volunteers that I met were...

supportive and helpful.

If this organization had 10 million bucks, it could...

extend its programs.

Ways to make it better...

booklets I want now were available.

In my opinion, the biggest challenges facing this organization are...

funding.

One thing I'd also say is that...

thanks!

When was your last experience with this nonprofit?

2009

July 24, 2009

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July 24, 2009

Was diagnosed in April,'o9 w/ stage IV bc & just discovered LBBC on Facebook. Looks like a great, helping site and I plan to take advantage of its offerings once I learn more.

Ways to make it better...

If I had to make changes to this organization, I would...

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

beginning to learn about all it offers.

Ways to make it better...

I can find a listing of all it does.

When was your last experience with this nonprofit?

2009

July 23, 2009

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July 23, 2009

I was diagnose with breast cancer in 2007 and 2008 with stage IV. LBBC has helped me so much. They have educated me, supported me emotionally and beyond. I use them on a regular basis. I participate on their teleconference which are amazing and have participated to a conference as well which was recommended by my Doctor. This conference was a great experience and was way beyond my expectations. I met many ladies in the same situation as me and shared our experiences. I made many new contacts and learned so much on this conference. LBBC's information, support and service is absolutely great. LBBC has helped me immensely through my breast cancer journey which I really appreciate. I highly recommend LBBC without a doubt. Try it, you will love it!

The Great!

I've personally experienced the results of this organization in...

I've seen the results of this organization through the users and they are great.

Ways to make it better...

If I had to make changes to this organization, I would...

continue the good work.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

Is the conference in Phyladelphia and the teleconference.

The kinds of staff and volunteers that I met were...

Absolutely great.

If this organization had 10 million bucks, it could...

give much more grants for the breast cancer survivors for conferences etc.

Ways to make it better...

If the chat site was easyer friendly.

In my opinion, the biggest challenges facing this organization are...

is the continuing of improvement.

One thing I'd also say is that...

Keep up the good work!

When was your last experience with this nonprofit?

2009

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