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July 28, 2009

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July 28, 2009

Living Beyond Breast Cancer has given me the Support Group that I desperately needed. They have supplied me with information that I would not have gotten any where else. I am improved and informed by their choice of on-line speakers and publications. GREAT JOB LBBC!!

The Great!

I've personally experienced the results of this organization in...

the broadening of my knowlege of my condition and the strengthening of my confidence in my treatment of my breast cancer.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

the availability of information. Not all lectures or publications pertain to my situation and I can pick and choose at my own discretion what is useful to me.

When was your last experience with this nonprofit?

2009

July 28, 2009

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July 28, 2009

There are not enough stars to rate this organization. I am 3rd generation woman affected by cancer. Both my mom and my sister have passed. Because of the impact this disease has had on my family I have decided to fight it with all I have. Because of that I am more than a survivor; and I will live and thrive inspite of it. LBBC is responsible for helping me stay informed, positive, and connected. And I dont even live in PA! Your teleconferences are great, and I can listen to them again and again. Your annual conferences in Philly are the best. I'm still living and feeding off the last one! Thank you, thank you for all that you do!

The Great!

I've personally experienced the results of this organization in...

in helping us better understand triple negative cancer, cancer and african american women, working while fighting cancer. YES! LBBC, YOU ARE GREAT!!!

Ways to make it better...

If I had to make changes to this organization, I would...

Step back and give you all the resources I could find to help you keep doing what you are doing! You made me stop crying (feeling sorry for myself because my mom and sister werent around). I felt and still feel empowered. Thanks again.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

Even though I live in Maryland, your resources are often just a touch away (on the internet). I am able to share information with my friends in NJ, FL, and CT. Way to go LBBC!

The kinds of staff and volunteers that I met were...

Great people. I felt diginity and respect from them. They made me feel like it was o.k. to laugh, cry or whatever. No question was too stupid...Empowerment.

If this organization had 10 million bucks, it could...

Expand to Maryland (I did say that already, didnt I?)

Ways to make it better...

I lived in Philly (LOL)!

In my opinion, the biggest challenges facing this organization are...

$$ to grow into Maryland (where I live). I have the wellness community, and other places, but LBBC did it!

One thing I'd also say is that...

Please keep up the great work. It's not easy, and it may not be for a while. But please know that you have made a difference in the lives of women and men around the country and around the world.

When was your last experience with this nonprofit?

2009

July 28, 2009

more

July 28, 2009

LBBC has been the most helpful educational program I have found in the 11 years of fighting cancer. It keeps me in the real world of the living while being up to date factual about my medical condition. It allows me to choose the specific aspects of the disease that I am dealing with at the moment and empowers me with the knowledge that I need without overwhelming me.It is truly a great backup to my medical treatment,and I recommend the program to all friends who face the terrifying CA diagnosis.

The Great!

I've personally experienced the results of this organization in...

the way that I am living my life with cancer and am able to encourage otheres with the disease.

Ways to make it better...

If I had to make changes to this organization, I would...

Give myself a huge pat on the back and keep on doing it.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

I can pick and choose from the variety of educational offerings that are most helpful to my condition and personality.

The kinds of staff and volunteers that I met were...

The doctors who brought the latest research down to my level of understanding and the editors who got it to me.

If this organization had 10 million bucks, it could...

It could help with the research and getting the results to the medical world and the patients.

Ways to make it better...

I had access to printed material to give to newly diagnosed friends who have not heard about LBBC.

In my opinion, the biggest challenges facing this organization are...

To spread their help beyond the Philadelphia area to women all over the USA and beyond. They already do this with the internet and mailings but the gatherings etc might be more far reaching.

When was your last experience with this nonprofit?

2009

July 28, 2009

more

July 28, 2009

I was diagnosed in 1991. Later I found LBBC. It is the ONLY cancer charity I have ever donated to. This is because it has, without question, helped me more than any other cancer charity I am aware of.

The Great!

I've personally experienced the results of this organization in...

my own life as well as others.

Ways to make it better...

If I had to make changes to this organization, I would...

continue to employ all the people who work there now.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

the comprehensive information.

The kinds of staff and volunteers that I met were...

N/A

If this organization had 10 million bucks, it could...

hold more conferences.

Ways to make it better...

I really can't think of anything.

In my opinion, the biggest challenges facing this organization are...

how to keep their teleconferences on track better.

One thing I'd also say is that...

this organization can serve as a good example!

When was your last experience with this nonprofit?

2009

July 25, 2009

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July 25, 2009

I was diagnosed in the fall of '01, turned to LBBC first, and felt like I had found my guardian angels. Eight years later LBBC is still my main resource for education, information and support. The LBBC staff is incredibly caring, compassionate, and helpful. Their approach to women is so personal...you feel as if you're their only client, and as if your issues and concerns are the most important ones. How they do this is a mystery to me, given the size of this organization! All of LBBC's events and materials are framed hopefully and positively (e.g., annual conferences, Helpline, teleconferences,and publications). They are incredibly attuned to a philosophy of hope. (At one of the early conferences I attended, one of the speakers posted a chart with outcomes in percentages attached to specific diagnoses...not my idea of positive and hopeful. When I gave my feedback about this to the staff, they had already noted this and were already planning to give feedback to the speaker.) Whenever I felt most hopeless I just reached out to LBBC and left feeling like I could conquer this disease, or at least be around for a lot longer than I was fearing. Their Helpline volunteers and staff helped me sort through decisions about surgeries and treatments, and did this with incredible empathy, honesty and compassion. I obviously can't say enough about LBBC. I was lucky to know about them at the time of my diagnosis, and it's been my great fortune to have them in my life ever since.

The Great!

I've personally experienced the results of this organization in...

my ability to navigate the health care system and advocate for what I needed with the education, information and support I received from LBBC.

Ways to make it better...

If I had to make changes to this organization, I would...

keep on keeping on! Continue to nurture staff and volunteers; continue to grow, so we could reach even more women with more resources; ensure that the philosophy, values and mission were alive in the day to day work, just as they are today.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

the hope that they helped inspire in me when I was feeling least hopeful.

The kinds of staff and volunteers that I met were...

incredibly compassionate, hard-working, energetic, dedicated and hopeful.

If this organization had 10 million bucks, it could...

be that much larger and reach that many more women in need of their services!

Ways to make it better...

I hadn't had breast cancer! ;-) Given that I did, I can't think of anything that could have improved my interactions with LBBC and the richness and significance of my experience with them.

In my opinion, the biggest challenges facing this organization are...

probably resources and managing growth, given the general economic climate and the growing needs of women with breast cancer.

One thing I'd also say is that...

I wish every woman diagnosed with breast cancer knew about LBBC early in her diagnosis! What a difference that would make...

When was your last experience with this nonprofit?

2009

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