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July 28, 2009

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July 28, 2009

I was diagnosed in 1991. Later I found LBBC. It is the ONLY cancer charity I have ever donated to. This is because it has, without question, helped me more than any other cancer charity I am aware of.

The Great!

I've personally experienced the results of this organization in...

my own life as well as others.

Ways to make it better...

If I had to make changes to this organization, I would...

continue to employ all the people who work there now.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

the comprehensive information.

The kinds of staff and volunteers that I met were...

N/A

If this organization had 10 million bucks, it could...

hold more conferences.

Ways to make it better...

I really can't think of anything.

In my opinion, the biggest challenges facing this organization are...

how to keep their teleconferences on track better.

One thing I'd also say is that...

this organization can serve as a good example!

When was your last experience with this nonprofit?

2009

July 25, 2009

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July 25, 2009

I was diagnosed in the fall of '01, turned to LBBC first, and felt like I had found my guardian angels. Eight years later LBBC is still my main resource for education, information and support. The LBBC staff is incredibly caring, compassionate, and helpful. Their approach to women is so personal...you feel as if you're their only client, and as if your issues and concerns are the most important ones. How they do this is a mystery to me, given the size of this organization! All of LBBC's events and materials are framed hopefully and positively (e.g., annual conferences, Helpline, teleconferences,and publications). They are incredibly attuned to a philosophy of hope. (At one of the early conferences I attended, one of the speakers posted a chart with outcomes in percentages attached to specific diagnoses...not my idea of positive and hopeful. When I gave my feedback about this to the staff, they had already noted this and were already planning to give feedback to the speaker.) Whenever I felt most hopeless I just reached out to LBBC and left feeling like I could conquer this disease, or at least be around for a lot longer than I was fearing. Their Helpline volunteers and staff helped me sort through decisions about surgeries and treatments, and did this with incredible empathy, honesty and compassion. I obviously can't say enough about LBBC. I was lucky to know about them at the time of my diagnosis, and it's been my great fortune to have them in my life ever since.

The Great!

I've personally experienced the results of this organization in...

my ability to navigate the health care system and advocate for what I needed with the education, information and support I received from LBBC.

Ways to make it better...

If I had to make changes to this organization, I would...

keep on keeping on! Continue to nurture staff and volunteers; continue to grow, so we could reach even more women with more resources; ensure that the philosophy, values and mission were alive in the day to day work, just as they are today.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

the hope that they helped inspire in me when I was feeling least hopeful.

The kinds of staff and volunteers that I met were...

incredibly compassionate, hard-working, energetic, dedicated and hopeful.

If this organization had 10 million bucks, it could...

be that much larger and reach that many more women in need of their services!

Ways to make it better...

I hadn't had breast cancer! ;-) Given that I did, I can't think of anything that could have improved my interactions with LBBC and the richness and significance of my experience with them.

In my opinion, the biggest challenges facing this organization are...

probably resources and managing growth, given the general economic climate and the growing needs of women with breast cancer.

One thing I'd also say is that...

I wish every woman diagnosed with breast cancer knew about LBBC early in her diagnosis! What a difference that would make...

When was your last experience with this nonprofit?

2009

July 24, 2009

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July 24, 2009

Was diagnosed in April,'o9 w/ stage IV bc & just discovered LBBC on Facebook. Looks like a great, helping site and I plan to take advantage of its offerings once I learn more.

Ways to make it better...

If I had to make changes to this organization, I would...

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

beginning to learn about all it offers.

Ways to make it better...

I can find a listing of all it does.

When was your last experience with this nonprofit?

2009

July 23, 2009

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July 23, 2009

I was diagnose with breast cancer in 2007 and 2008 with stage IV. LBBC has helped me so much. They have educated me, supported me emotionally and beyond. I use them on a regular basis. I participate on their teleconference which are amazing and have participated to a conference as well which was recommended by my Doctor. This conference was a great experience and was way beyond my expectations. I met many ladies in the same situation as me and shared our experiences. I made many new contacts and learned so much on this conference. LBBC's information, support and service is absolutely great. LBBC has helped me immensely through my breast cancer journey which I really appreciate. I highly recommend LBBC without a doubt. Try it, you will love it!

The Great!

I've personally experienced the results of this organization in...

I've seen the results of this organization through the users and they are great.

Ways to make it better...

If I had to make changes to this organization, I would...

continue the good work.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

Is the conference in Phyladelphia and the teleconference.

The kinds of staff and volunteers that I met were...

Absolutely great.

If this organization had 10 million bucks, it could...

give much more grants for the breast cancer survivors for conferences etc.

Ways to make it better...

If the chat site was easyer friendly.

In my opinion, the biggest challenges facing this organization are...

is the continuing of improvement.

One thing I'd also say is that...

Keep up the good work!

When was your last experience with this nonprofit?

2009

July 22, 2009

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July 22, 2009

I was initially diagnosed with breast cancer in 1982 and then again in 2003. I turned to Living Beyond Breast Cancer and I have never looked else where. I get so much support; both intellectually and emotionally, from the staff as well as from the amazing women I have met there who share my disease. The organization is so inspiring that I have even chosen to work as a volunteer.

The Great!

I've personally experienced the results of this organization in...

my own personal experience. Everyone is willing to listen and find answers if needed. The conferences are informative and worth attending and the energy is amazing.

Ways to make it better...

If I had to make changes to this organization, I would...

continue to expand on information related to metastatic breast cancer. We seem to be a growing segment of the breast cancer population.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

getting to know the staff and the other volunteers who share my disease. They are "my support group."

The kinds of staff and volunteers that I met were...

informed,supportive and interested in helping. Every one seems willing to do whatever needs to be done to get the job done.

If this organization had 10 million bucks, it could...

I don't know about salaries but I assume that staff is under paid for the amount of work that is done. Many work evenings and weekends.

Ways to make it better...

I don't know what could be done to make my experience a better one. A cure perhaps?

In my opinion, the biggest challenges facing this organization are...

meeting the needs of the growing number of women who need are being diagnosed with breast cancer.

When was your last experience with this nonprofit?

2009

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