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April 26, 2009

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April 26, 2009

Does this organization even exist anymore? Their website has closed and there hasn't been a newsletter or convention for 5 years. I'd be careful donating to this organization!!!

The Great!

I've personally experienced the results of this organization in...

the conventions they did hold were well organized and you had access to doctors doing research on lissencephaly.

Ways to make it better...

If I had to make changes to this organization, I would...

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Ways to make it better...

what they promised was delivered (newsletters, etc.).

When was your last experience with this nonprofit?

2005

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