Mission: The lam foundation urgently seeks safe and effective treatments and ultimately a cure for lam.
Results: go to http://www.thelamfoundation.org/images/pdfs/milestones.pdf
Target demographics: Women in their child bearing years 16-90
Programs: Research costs - the 17th annual lam international research and lamposium conference was held in chicago. The 3 day conference was attended by 108 physicians and scientists. Eighteen countries were represented at the conference. Fifteen grant applications were received for the fall funding cycle; the board approved one fellowship, one established investigator award, 2 pilot grants, and one special project for a total amount of $367,000 to be awarded over the next 3 years. The foundation hosted its first ever lam biomarker innovation summit; there were 48 participants in the summit ranging from stakeholders, patients, physicians and researchers. In 2014 lam expended $619,364 in grants to further the research for a cure.
patient services - the 17th annual lam international research and lamposium conference was held in chicago. The 3 day conference was attended by 152 patients and 116 family, friends and caregivers. Fifty eight patients attended the conference for the first time. The foundation sponsored regional meetings across the country for patients. The foundation provides support and information for the 3,000 plus women who have identified themselves as patients. Twice a year, the foundation produces journeys a publication which provides updates on the clinical research and how to live with lam.
clinical - the sos (safety of simvastation) trial began enrolling patients. A new lam clinic opened at keck hospital of usc in los angeles, california.