Rating: 5 stars 38 38 reviews
4015 Executive Park Drive Cincinnati OH 45241 USA
The lam foundation urgently seeks safe and effective treatments and ultimately a cure for lam.
go to http://www.thelamfoundation.org/images/pdfs/milestones.pdf
Women in their child bearing years 16-90
Research costs - the 17th annual lam international research and lamposium conference was held in chicago. The 3 day conference was attended by 108 physicians and scientists. Eighteen countries were represented at the conference. Fifteen grant applications were received for the fall funding cycle; the board approved one fellowship, one established investigator award, 2 pilot grants, and one special project for a total amount of $367,000 to be awarded over the next 3 years. The foundation hosted its first ever lam biomarker innovation summit; there were 48 participants in the summit ranging from stakeholders, patients, physicians and researchers. In 2014 lam expended $619,364 in grants to further the research for a cure.
patient services - the 17th annual lam international research and lamposium conference was held in chicago. The 3 day conference was attended by 152 patients and 116 family, friends and caregivers. Fifty eight patients attended the conference for the first time. The foundation sponsored regional meetings across the country for patients. The foundation provides support and information for the 3,000 plus women who have identified themselves as patients. Twice a year, the foundation produces journeys a publication which provides updates on the clinical research and how to live with lam.
clinical - the sos (safety of simvastation) trial began enrolling patients. A new lam clinic opened at keck hospital of usc in los angeles, california.
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Reviews for Lam Foundation
10 people found this review helpful
The LAM Foundation is an amazing grass roots organization that does an outstanding job of carrying out its mission to support LAM patients and provide funding for researchers to help find a cure for this disease. We are blessed to have such a strong organization for such a rare disease. The foundation continuously provides support for the LAM patients. The pace of science for LAM has been remarkable. This would not have been possible without the efforts of The LAM Foundation. The LAM Foundation truly is a model organization.
I've personally experienced the results of this organization in...
I have been part of many fundraisers for The LAM Foundation. They have been extremely gracious and supportive of the fundraisers. They go above and beyond with anything they do.
If I had to make changes to this organization, I would...
Raise more money for the organization :)
What I've enjoyed the most about my experience with this nonprofit is...
the support they have offered.
The kinds of staff and volunteers that I met were...
If this organization had 10 million bucks, it could...
Ways to make it better...
I don't think it could have been better- they are the BEST!
In my opinion, the biggest challenges facing this organization are...
we need to raise more money to fund more research!
One thing I'd also say is that...
this is truly an amazing organization. I am so proud to be a part of it :)
How frequently have you been involved with the organization?
About every month
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