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June 8, 2010

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June 8, 2010

This very special group of people have a goal of supporting the children and families that have been touched by Cancer. This goal is both narrow in focus and broad in scope because each and every situation is so different! Every day they are looking for ways that will best help those individual children and their families. It includes the special Wii stations that have been built up and provided to various hospitals in various configurations to meet the room requirements. Or it may be providing resources to find and understand the long process that is being embarked upon and what is available to meet those needs. This could be help with the reams of paperwork & forms that have to be filled out, providing "overnight" bags, different gift cards for coffee or food to take you a little bit further without having to leave your childs side or gas to get back and forth. While the hospital takes care of the sick child, no one (except the parent(s) or family) take care of the other siblings and what they need for day to day activities. This incredible group of selfless, tireless, hardworking people only want to want to make the child's and families time the best it can be under those circumstances while the scientific community finds a way to eradicate Cancer from the face of the planet!

The Great!

I've personally experienced the results of this organization in...

Helping to build the Wii stations for the different rooms where the children have to be (sometimes for many hours) and now have something interactive to help them get through the treatments.

Ways to make it better...

If I had to make changes to this organization, I would...

Try streamline all of the ideas that come poring in. Many times there are so many more ideas for helping others, fund raising, getting the message out or building awareness that the small team tries to do it all at once.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

Opening my eyes to a world that I didn't know about, and then being able to help in my small way to try and make it a little better for others.

The kinds of staff and volunteers that I met were...

Incredible, Amazing, Outstanding, Caring, Kind, Forward thinking, and really want to change this process

If this organization had 10 million bucks, it could...

Make a whole lot of children and their families have several less things to worry about. After all, dealing with Childhood Cancer is more than ANY one should EVER have to deal with...

Ways to make it better...

I had more time and $$ to offer to make things better for more people

In my opinion, the biggest challenges facing this organization are...

How to handle getting the ideas into actionable projects

One thing I'd also say is that...

These guys are what good people do every day

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

June 8, 2010

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June 8, 2010

Because there’s no cure, there’s kidsSTRONG. I must have said that 100 times over the last year that I have been a volunteer. What makes us different? It’s the little things. We know, through experience, that sick children don’t play on adult schedules. We know that sick children are children and need to play. We mounted a program to install Wii Game systems in the Children’s BMT Units at our local hospitals. We know that as family and friends of child in treatment want to help but don’t know how. What brand of tissue holds up the best? What anti-bacterial lotion doesn’t chap your hands? How can I help raise funds to cover the expenses that aren’t covered by insurance to help my friend whose child is sick? We come from the front lines of this life long battle. We are or have developed programs that help to take care of the little things. I love that at kidsSTRONG we balance the creativity that comes from being small and entrepreneurial with the practical expertise.

The Great!

I've personally experienced the results of this organization in...

We set out to improve the quality of life for the kids undergoing treatment. One of the parents told us that his child looks forward to Chemo Day because he can play unlimited games. Less stress+smiles= better quality of life for everyone. That's results.

Ways to make it better...

If I had to make changes to this organization, I would...

Get the word out. We are so lucky to get able to manage on word of mouth so far, but we want to help more kids and their families.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

I love that at kidsSTRONG it's the little things that have the biggest impact.

The kinds of staff and volunteers that I met were...

amazing, high tech/low tech/and no tech working together to get results.

If this organization had 10 million bucks, it could...

change lives,support families both during treatment and after, support Social Workers so that they spend more time with families and less time with paperwork

Ways to make it better...

we had more funds and more time in the day.

In my opinion, the biggest challenges facing this organization are...

publicity. We need to get our name out there to grow and help more families.

One thing I'd also say is that...

kidsSTRONG was born out of the front lines. We focus on results. We ask questions and get answers. It is a great experience to renew your heart and mind.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2009

June 2, 2010

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June 2, 2010

kidsSTRONG a very special organization whose mission is to vastly improve the childhood cancer experience by providing emotional, educational and financial support to children and families touched by cancer, while increasing awareness and funding research toward a cure. I volunteer my time as a board member to help raise funds and fulfill this mission of kidsSTRONG. The kidsSTRONG team is amazing. In just 18 months, kidsSTRONG built an online grassroots support community of over 400,000 and growing stronger everyday. They have built and deployed Wii Systems for recreational therapy -helping families cope better with treatment isolation. Their events are fun, well-planned and easy to jump in and make a difference. I encourage everyone who wants to make a difference in the lives of children touched by cancer to endorse kidsSTRONG and make a difference today.

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The Great!

I've personally experienced the results of this organization in...

kidsSTRONG has accomplished in such a short amount of time. Everyday I see the positive differences kidsSTRONG team members are making in lives of children undergoing cancer treatment treatment.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

making a difference in the lives of children touched by cancer.

The kinds of staff and volunteers that I met were...

inspiring, compassionate, sincere, resourceful, honest, and fun-loving.

If this organization had 10 million bucks, it could...

SAVE LIVES!!!

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

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