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November 18, 2010

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November 18, 2010

Hello, my name is Peter D Glick and I live in Kentucky. I was diagnosed in the early 1980's with ALS. My mother passed away in 1982 from complications of ALS. My desease progressed very slowly and in 1997 I was rediagnosed with SBMA or Kennedy's Disease. My Neurologist had a single page of information on the Disease. Thanks to the KDA website and linked information sites I found many pages of information. At the KDA Conferences, starting in 2001, I gained additional information and support. Several years ago I participated in a fund raising effort and feel proud that the resulting money collected helped to fund more research directed by the KDA. KDA is an excellent group of caring and dedicated members that are always there if more support and hope is needed.

The Great!

I've personally experienced the results of this organization in...

Information technology and friendship.

Ways to make it better...

If I had to make changes to this organization, I would...

Not change any thing.

November 16, 2010

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Review from Guidestar
November 16, 2010

I have just been diagnosed with Kennedy's Disease and had no idea what it was or what to expect. KDA mantains an excellent website that explains the disease. I found details on symptoms, the cause and excercises I could do to maintain my strenght.

The Great!

I've personally experienced the results of this organization in...

researching

Ways to make it better...

If I had to make changes to this organization, I would...

Update website more oftem.

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