Kennedys Disease Association

Rating: 4.55 stars   11 reviews

Issues: Health, Cancer

Location: PO Box 1105 Coarsegold CA 93614 USA

Mission: The objectives of the Kennedy''s Disease Association are:1. Financially support and promote medical research to find a treatment or cure for Kennedy''s Disease2. Improve awareness of Kennedy''s Disease in the medical community3. Create a support system for those living with Kennedy''s Disease4. Increase public awareness about Kennedy''s Disease and its effects on families5. Share information about Kennedy''s Disease for those who seek it.
Programs: Fund Kennedy's Disease research grants, support groups, bi-weekly chat sessions, maintain a comprehensive website that provides Kennedy's Disease information for those who seek it, educate the neurological community and the public, participate in an annual conference for Kennedy's Disease with researchers from around the world.
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Community Reviews

Rating: 4 stars  

Hello, my name is Peter D Glick and I live in Kentucky. I was diagnosed in the early 1980's with ALS. My mother passed away in 1982 from complications of ALS. My desease progressed very slowly and in 1997 I was rediagnosed with SBMA or Kennedy's Disease. My Neurologist had a single page of information on the Disease. Thanks to the KDA website and linked information sites I found many pages of information. At the KDA Conferences, starting in 2001, I gained additional information and support. Several years ago I participated in a fund raising effort and feel proud that the resulting money collected helped to fund more research directed by the KDA. KDA is an excellent group of caring and dedicated members that are always there if more support and hope is needed.

I've personally experienced the results of this organization in...

Information technology and friendship.

If I had to make changes to this organization, I would...

Not change any thing.

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Rating: 4 stars  

I have just been diagnosed with Kennedy's Disease and had no idea what it was or what to expect. KDA mantains an excellent website that explains the disease. I found details on symptoms, the cause and excercises I could do to maintain my strenght.

I've personally experienced the results of this organization in...


If I had to make changes to this organization, I would...

Update website more oftem.

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