Juvenile Bipolar Research Foundation, Inc.
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December 14, 2012
I'm from India and I follow the work of JBRF. Being so far away it would seem improbable that their work would touch lives here. But it does. My brother was diagnosed with Bipolar Disorder 8 years ago. He has been through 5 hospitalizations, more than a dozen drugs and ECT (Electro Convulsive Therapy). Yet, in all of those 8 years he has not remained symptom free for more than 3 months; that's all the "normal" days put together. The research done by Dr Papolos at JBRF has defined a set of characteristics (symptoms) of the disorder that are normally not associated with the disease (as per the DSM criteria). This approach opens up new ways to treat, control and maybe one day cure the disorder. The first step in this direction is the Ketamine study at JBRF. Coming back to my brother, he has more than 75% of the symptoms defined by Dr. Papolos. Once JBRF publishes the results of the Ketamine study, I hope his doctors would be able to prescribe Ketamine. And, after a decade of torment, may he find peace.
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Was your donation impactful?
Definitely
How likely is it that you would recommend that a friend donate to this group?
Likely
How likely are you to donate to this group again?
Definitely
When was your last experience with this nonprofit?
2012
1 person found this review helpful
December 8, 2012
1 person found this review helpful
Our 13 year old son was diagnosed with bipolar disorder at age five. He has struggled through two hospitalizations, 5 schools in 8 years and daily suffering that is indescribable. We tried all conventional medications. In July 2011, we put him under the care of Dr. Papolos who diagnosed him with the fear of harm phenotype, and he entered into the pilot Ketamine research study through JBRF. Not only is he now successfully attending school, but he can accept limits and navigate the ups and downs of daily life. For the first time we feel like he has a future. We are forever grateful for the important and necessary work of the JBRF. The lives of children like ours and their families and communities depend on it.
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How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
December 8, 2012
My daughter was diagnosed the week after her 8th birthday with ADD. Six months later she was diagnosed with ADHD and depression (by the same doctor). The cocktail of medications she was prescribed affected her horribly. She started have rapid and violent mood swings. She was unable to attend school. She began having visual hallucinations during the day. She became obsessed with death and blood and created horrid pictures. Before her 9th birthday we had to hospitalize her for her own safety. She is now 11 years old. She is still not able to attend a mainstream school. She is still not stabilized. She has no friends. She still wets her bed regularly. It's stressful for us to do anything outside the home with her because she continues to have visual hallucinations that invoke a violent response from her. She has no life. I am a supporter of JBRF because I am a believer in their research direction. I agree with JBRF that treatment is possible - the more science we know about the condition - everything that happens behind the ugly, scary behaviors - the sooner my daughter can be treated and given the life she and every other child on God's Earth deserve. I am following the ketamine study avidly. I pray for the day that this treatment can be given to my daughter and all children who are losing their childhood to bipolar disorder. This is so important.
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Was your donation impactful?
Definitely
How likely is it that you would recommend that a friend donate to this group?
Definitely
How likely are you to donate to this group again?
Definitely
When was your last experience with this nonprofit?
2012
May 12, 2012
The Juvenile Bipolar Research Foundation is dedicated to increasing the quality of life for children and families struggling with bipolar disorder. My husband and I are very thankful for the research that the JBRF is doing and the education this organization provides. Our son has participated in some of the studies over the years. It has been empowering to work toward solutions when faced with the trials and tribulations associated with this illness. JBRF is providing parents, educators, medical professionals and, even the children themselves, with a road map toward successful treatment. This is not and easy task. It requires hard work and financial support. It is heartbreaking to think of how much our children suffer with anxiety, low moods, high moods, anger, night terrors, medication side effects, etc, the list goes on. And yet we hope and pray daily that solutions will come, that our children and grandchildren may know peace and joy. These solutions can only come through continued research. Hopefully, one day, in the not too distant future, better options will be available and remission will be a reality for many.
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How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
May 10, 2012
2 people found this review helpful
I have been a consistent donor to the Juvenile Bipolar Research Foundation since its inception. It is the only organization that it totally focused on research - not intervention/politics/policy-making/advocacy/counseling. I have a son who has severe bipolar disorder and, while he will never be capable of attending college and creating a prosperous and independent life, I have great hope that his children (my grandchildren) will have good lives with good experiences and fulfillment. The gene may travel from generation to generation and create havoc throughout the years - but I have confidence that this little organization will save the lives of my grandchildren. JBRF is the only foundation pursuing independent "outside of the box" research - completely ignoring the politics of academia and government - and digging into pure science and biology and genetics. I am not a huge donor, but I am a donor with an enormous amount of belief. This is the little engine that could.
More feedback...
Was your donation impactful?
Likely
How likely is it that you would recommend that a friend donate to this group?
Definitely
How likely are you to donate to this group again?
Definitely
When was your last experience with this nonprofit?
2012
What specific problem, purpose, priority, or project prompted your gift?
I have a child who has struggled with bipolar disorder his entire life. I now have 2 grandchildren who quite likely have the gene. I want to invest in the future of my grandchildren (and their children).
Why did you make your donation at this time?
I made a donation to the Genetic study because it is consistently underfunded - yet it probably holds the answer to it all.
What would you tell others about this organization?
This is the "little engine that could". It is always the out layer that makes a true difference.
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