Jacob's Cure, Inc.
Rating: 4.94 stars 18 18 reviews
PO Box 52 Rye NY 10580 USA
Jacob’s Cure is a 501c3, non-profit foundation that was created in September 2000. Jordana Holovach is the Founder and Director of Jacob’s Cure. She created the foundation because of her passion to save the life of her son, Jacob, who is afflicted with Canavan disease, a fatal genetic brain disorder. The sole mission of Jacob’s Cure is to fund research in Canavan disease that aims to cure thousands of children dying of Canavan disease today. Jacob’s Cure allocates monies raised to research, this is made possible due to volunteer staff and minimal overhead. Areas of research include gene-therapy, stem cell transplantation, pharmacological approaches and basic science in understanding the pathways of the disease. Because Canavan is a rare disorder, federal funding is scarce. It is through the efforts of Jacob’s Cure and the philanthropy of others that enables Canavan research to continue and a cure for Canavan a hopeful reality.
To date, Jacob’s Cure has funded two gene-therapy trials and is currently funding research towards a phase 1 stem-cell clinical trial aimed for 2011. Research efforts to date have slowed down and in some cases halted the progression of the disease in most of the children who received gene-therapy and have begun the recommended pharmacological regimen.
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Reviews for Jacob's Cure, Inc.
5 people found this review helpful
Jacob's Cure is very special to me. Not because I or a family member has Canavan disease but because Jordana Holovach has dedicated the last 15 years to saving her son's (and others like him) life and it is an honor to help her do it. The progress we have made is incredible and it's only because of the people involved.
I've personally experienced the results of this organization in...
seeingthe progress Jacob has made and the support new diagnosed families receive.
What I've enjoyed the most about my experience with this nonprofit is...
Making a difference for the better
The kinds of staff and volunteers that I met were...
If this organization had 10 million bucks, it could...
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About every week
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