Jacob's Cure, Inc.

Rating: 4.94 stars   17 reviews

Issues: Health, Cancer

Location: PO Box 52 Rye NY 10580 USA

Mission: Jacob’s Cure is a 501c3, non-profit foundation that was created in September 2000. Jordana Holovach is the Founder and Director of Jacob’s Cure. She created the foundation because of her passion to save the life of her son, Jacob, who is afflicted with Canavan disease, a fatal genetic brain disorder. The sole mission of Jacob’s Cure is to fund research in Canavan disease that aims to cure thousands of children dying of Canavan disease today. Jacob’s Cure allocates monies raised to research, this is made possible due to volunteer staff and minimal overhead. Areas of research include gene-therapy, stem cell transplantation, pharmacological approaches and basic science in understanding the pathways of the disease. Because Canavan is a rare disorder, federal funding is scarce. It is through the efforts of Jacob’s Cure and the philanthropy of others that enables Canavan research to continue and a cure for Canavan a hopeful reality.
Results: To date, Jacob’s Cure has funded two gene-therapy trials and is currently funding research towards a phase 1 stem-cell clinical trial aimed for 2011. Research efforts to date have slowed down and in some cases halted the progression of the disease in most of the children who received gene-therapy and have begun the recommended pharmacological regimen.
2010 Top-Rated Nonprofit
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EIN 13-4136564
9145024249
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Community Reviews

Rating: 4 stars  

Jacobs Cure is an amazing organization. It is an incredible resource for families affected by Canavan Disease. It allow families, like ourselves, the opportunity to share and learn from each other. Because of Jordana's strength and tireless efforts, she has helped raise awareness and bring research to the forefront of Canavan Disease. Jordana is an inspiration to all and has provided hope for all Canavan familes.

I've personally experienced the results of this organization in...

I have been able to meet other Canavan families and share our children's experiences.

If I had to make changes to this organization, I would...

Wouldn't change anything. Jordana and Sarah are doing a wonderful job!

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Rating: 5 stars  

9 people found this review helpful

Jacob's Cure is an organization that is not only dedicated to its cause but determined to find a cure and stop at nothing. I have known Jordana for many years and have traveled with her many times on behalf of Jacob's Cure and have seen her 'in action.' She is my inspiration and her team of volunteers and supporters couldn't be stronger.

I've personally experienced the results of this organization in...

I have seen results in Jordana's son Jacob as he has exceeded his life expectancy thanks to the drive of Jordana's Organization.

If I had to make changes to this organization, I would...

I'd make it a global organization as this is the one foundation that is 100% 'hands on' while keeping managing costs close to nothing while the proceeds go directly towards research. This team is outstanding.

What I've enjoyed the most about my experience with this nonprofit is...

working with extraordinary people and seeing results.

The kinds of staff and volunteers that I met were...

out of the ballpark.

If this organization had 10 million bucks, it could...

find a cure for not only Canavan Disease but other diseases too.

Ways to make it better...

I was able to contribute more time!

In my opinion, the biggest challenges facing this organization are...

always that the clock is ticking for these children.

One thing I'd also say is that...

the founder, Jordana Holovach is my inspiration.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010-6-01

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Rating: 5 stars  

5 people found this review helpful

From seeing Jacob's Cure start from the very beginning to what it is now, i have seen an empire grow. Jordana has shown to everyone what sacrifice is all about. She went out and educated the public about this rare disorder. Jordana's true compassion and willingness for her child makes her a role model for everyone.

I've personally experienced the results of this organization in...

Yes!

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010-5-01

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Rating: 5 stars  

10 people found this review helpful

I have had the privledge of working closely with Jordana Holovach as I cared for Jacob for over five years as his nurse. I watched Jacob's Cure from it's inception, take it's first baby steps. This organization has never been just about a Mother and her unending quest to save the life of her child, but about all the families having to face the realities of this disease. This extraordinary woman and this organization has helped so many by funding research and education so that families faced with this devastating diagnosis no longer have to face this alone.

I've personally experienced the results of this organization in...

Many different fund raising events. Helped personally with a local high school raise money through basketball tournament all proceeds donated to Jacob's Cure.

What I've enjoyed the most about my experience with this nonprofit is...

Being personally touched by Jordana, Jacob and all who donate so much of their time.

The kinds of staff and volunteers that I met were...

extraordinarily dedicated to the cause of fund raising.

If this organization had 10 million bucks, it could...

Continue to fund the enormous costs of continuing research.

How frequently have you been involved with the organization?

About once a year

When was your last experience with this nonprofit?

2010-5-01

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Rating: 5 stars  

10 people found this review helpful

Jordana Holovach has dedicated her life to saving the life of her son Jacob and lives of millions of others. I have worked side by side with Jordana and other members of the organization and can tell you first hand how extraordinary this charity is. Jacob's Cure educates and funds research in very successful and unique ways. Whether through their last Gala event or advertisements on Taxi TV or through the Helen Ficalora "smile" charm or the annual Casino night/Bowling event, Jacob's Cure, is always looking for new ways to spread awareness and raise funds and make sure family and friends of Jacob's Cure have fun in the process.

I've personally experienced the results of this organization in...

This is an amazing organization.

If I had to make changes to this organization, I would...

There are no changes that could be made.

What I've enjoyed the most about my experience with this nonprofit is...

helping to save Jacob's life.

The kinds of staff and volunteers that I met were...

exceptional, extraordinary people with huge hearts.

If this organization had 10 million bucks, it could...

continue to fund research for a cure.

Ways to make it better...

government funding was increased.

In my opinion, the biggest challenges facing this organization are...

increased costs.

One thing I'd also say is that...

I can't imagine anyone meeting Jordana and Jacob and NOT wanting to help.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010-3-01

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