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June 28, 2010

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June 28, 2010

As co-founder of the Dare To Hope Foundation, I am always looking for valuable & real information on rare diseases. Jacob's Cure is an amazing resource for families affected by Canavan's Disease, dedicated to awareness, research and support for those families.

The Great!

I've personally experienced the results of this organization in...

its involvement with the Global Genes Project, bringing awareness for all rare diseases

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How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

June 16, 2010

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June 16, 2010

Jacob is magical and Jordana his mother is a real go getter. Please watch the video and see how much progress has been made in the treatment of this brain disease through Jacob's cure and how this science can help other too. The quality of life of these children and their families is improving all the time. It still takes a tremendous amount of effort and money to keep moving forward. Please give generously to Jacob's Cure and know that not one cent of your money or time will go to waste. You can feel proud that you you are helping families and improving the future of health care for us all.

The Great!

I've personally experienced the results of this organization in...

Seeing the progress of children with Canavan

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How frequently have you been involved with the organization?

One time

When was your last experience with this nonprofit?

2010

June 15, 2010

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June 15, 2010

Jordana Holovach has dedicated her life to saving the life of her son Jacob and lives of millions of others. I have worked side by side with Jordana and other members of the organization and can tell you first hand how extraordinary this charity is. Jacob's Cure educates and funds research in very successful and unique ways. Whether through their last Gala event or advertisements on Taxi TV or through the Helen Ficalora "smile" charm or the annual Casino night/Bowling event, Jacob's Cure, is always looking for new ways to spread awareness and raise funds and make sure family and friends of Jacob's Cure have fun in the process.

The Great!

I've personally experienced the results of this organization in...

This is an amazing organization.

Ways to make it better...

If I had to make changes to this organization, I would...

There are no changes that could be made.

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What I've enjoyed the most about my experience with this nonprofit is...

helping to save Jacob's life.

The kinds of staff and volunteers that I met were...

exceptional, extraordinary people with huge hearts.

If this organization had 10 million bucks, it could...

continue to fund research for a cure.

Ways to make it better...

government funding was increased.

In my opinion, the biggest challenges facing this organization are...

increased costs.

One thing I'd also say is that...

I can't imagine anyone meeting Jordana and Jacob and NOT wanting to help.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

June 7, 2010

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June 7, 2010

Jacob's Cure, Inc. is an awesome nonprofit organization that helps children and families with Canavan's Disease. They have done wonders with gene therapy to help children live longer and have some quality of life for those who are afflicted with this devastating disease.

The Great!

I've personally experienced the results of this organization in...

Learning what is now being done to advance the research and gene therapy for this disease.

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How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

June 5, 2010
1 person found this review helpful

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June 5, 2010
1 person found this review helpful

My son who is 3 years old now was diagnosed with Canavan at 5 months. Dr. Leone, who is the main researcher for Canavan Disease, gave me Jordana's information and referred me to Jacob's Cure site. It was just so great to get some sort of information and support about Canavan at the time when you are really lost and the doctors you see have absolutely no experience with this disease because it's so rare. Jacob's Cure Organization is the number one non-profit organization that has raised so much money for research through their hard work and dedication. Its the only thing that gives me HOPE that one day there will be a cure for Canavan Disease and my child will be able to walk and talk like a normal human being. Jordana and Jacob's Cure Organization are amazing for the work that they do to raise awareness and donations for this very rare and devastating disease.

The Great!

I've personally experienced the results of this organization in...

getting support and information on Canavan Disease when no one else could offer any help.

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How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

June 2, 2010
1 person found this review helpful

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June 2, 2010
1 person found this review helpful

if it wasn't for Jordana and Jacob's cure we would of never known what to do when we found out our daughter Lilliana had canavan disease. i stumbled upon their website and contacted them to find out if they knew what i could do. Jordana emailed me within a few minutes of me clicking send and told me to contact the dr leone in New Jersey. we are very greatful for Jacobs cure. we wish we could only do more to help.

The Great!

I've personally experienced the results of this organization in...

our daughter has canavan disease so all the wonderful work jacobs cure does benifits her.

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What I've enjoyed the most about my experience with this nonprofit is...

their hard work and dedication

The kinds of staff and volunteers that I met were...

very kind

If this organization had 10 million bucks, it could...

definitely save a lot of children

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2008

June 2, 2010

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June 2, 2010

The tireless effort of the founders do whatever is necessary to find a cure for this rare disease is amazing

The Great!

I've personally experienced the results of this organization in...

Attending a function. Knowing the family involved and seeing what an impact this charity has on their lives

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How frequently have you been involved with the organization?

One time

When was your last experience with this nonprofit?

2007

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