International Wagr Syndrome Association
Rating: 5 stars 26 26 reviews
PO Box 769 Hanover PA 17331 USA
The mission of the IWSA is to promote international knowledge and awareness of WAGR syndrome and its complications and treatments, to stimulate research and to reach out to those affected by WAGR syndrome in an effort to improve their lives.
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3 people found this review helpful
The Wagr Syndrome Association was there when my granddaughter was born. The members have been lights in the darkness for my daughter and son-in-law as they navigate new territory. The medical research that the members of the group are participating in will lead to many new advancements in dealing with whilms tumor and obesity. The members always seem to be there for each other and being small in number they are big on support. It is difficult being a little known genetic disorder to get the same backing as the more well known deseases but the group perseveres and get itself out here when it counts. It's a dedicated, positive and hardworking group that deserves our support.
I've personally experienced the results of this organization in...
My granddaughters health
If I had to make changes to this organization, I would...