This charity has helped us so much since our son was diagnosed with wagr syndrome. Without it we would be lost in a sea of unknown terms & symptoms. We would feel so alone
IWSA is a really wonderful group. They support me by giving many usuful knowledge and mentally. I can't imagine how I go through this tough road without IWSA now.
I am continually amazed and inspired by how this group (association) has grown and expanded it's ability to help children with Wagr, and their families, to be informed, connected and stay strong together. God Bless you all. If you were looking for help a place to help your child and yourself not only live with, but thrive with this syndrome, you have come home. You will be welcomed and cared for here.
As a volunteer for this organization, I can vouch for the IWSA's determination to manage its income as carefully, thoughtfully, and transparently as possible. With an all-volunteer staff, negligible overhead, and passionate supporters, all of its resources go directly to programming.
And as a parent whose child has benefited tremendously from everything the IWSA does, I can testify to the fact that this group makes every dollar accomplish life-saving, life-changing things.
The IWSA was my life preserver when I was swimming in fear off what my son's future would be like. Their knowledge of this disorder was a huge help to not only my family, but our doctors too. We have met other parents who deal with what we do day to day and now they are part of our own "family". I would be lost without them!
I don't know what I would do without the IWSA. I have learned more about my child by talking and sharing with parents, than I could ever learn from a textbook. We would have NEVER learned about the NIH study without the support of the IWSA. This is a group that I will be forever connected to!