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June 28, 2011

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June 28, 2011

The IWSA was my life preserver when I was swimming in fear off what my son's future would be like. Their knowledge of this disorder was a huge help to not only my family, but our doctors too. We have met other parents who deal with what we do day to day and now they are part of our own "family". I would be lost without them!

The Great!

I've personally experienced the results of this organization in...

The IWSA has helped me know what tests my son needs to help him live a full life. They have kept me informed of what medical issues to look out for so we can catch them early and improve his health. Their list-serve has been a true blessing as it has helped me connect with other families who are dealing with the same issues we are.

Ways to make it better...

If I had to make changes to this organization, I would...

None

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

Did your volunteer experience have an effect on you? (teaching you a new skill, or introducing new friends, etc.)

Volunteering for the IWSA has given me more compassion for families dealing with medical issues.

June 12, 2011

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June 12, 2011

I don't know what I would do without the IWSA. I have learned more about my child by talking and sharing with parents, than I could ever learn from a textbook. We would have NEVER learned about the NIH study without the support of the IWSA. This is a group that I will be forever connected to!

The Great!

I've personally experienced the results of this organization in...

Better healthcare, better services at school, access to professionals, knowledge, power, and understanding

Ways to make it better...

If I had to make changes to this organization, I would...

encourage more parents to get involved in helping the organization on a day to day basis.

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