Oops! You must enter a search term greater than 3 characters.

Invite reviews

Invite friends and colleagues to share their experiences with this nonprofit
84 Reviews
1234.809525
Previous | Next
Write A Review
February 13, 2011

more

February 13, 2011

I am 24 years old and have been suffering from Paruresis since I can remember. It is difficult to pin point what triggered this condition but my difficulty urinating in public really became a problem during high school and college with large public functions and such. As most people with paruresis will explain, and I am not different, you think that you're the only one with this problem. It forces you to "avoid" the issue, making life out in public a very difficult thing. One spring day a year ago I decided enough was enough and did a google search for shy bladder. I had heard of the problem shy bladder but didn't think it was real, just that something was wrong with me only. To my surprise and amazement I found the International Paruresis Association website and the shy bladder center workshops and forum. I was so excited! Such as weight off my shoulders. I took the first step and called the office and spoke with Yvonne, who made me feel so comfortable. We spoke for a bit and she filled me in on shy bladder workshops. I quickly signed up for my first in Boston last June. What began as a pretty nerve wrecking experience (actually exposing myself fully for the first time) turned into one of the most beneficial experiences of my life. I have been to one additional workshop since then, only due to a busy schedule. I would go to them once a week if I could. But I have made numerous friends through the IPA including Dr. Steve Soifer who is an amazing person for helping so many people with this condition. Everything that IPA does has been a blessing for me. I am currently on the Board of Directors in a minor role but hope to help this organization improve in the future because I truly cannot describe in words how much it has helped my life. I recommend getting involved with this organization for anyone who suffers from paruresis, you won't regret it. Overall this is the most beneficial non-profit organization out there. This phobia is so unique and can be so crippling to sufferers that the continuation of the IPA is so, so important. Whether or not we win an award, the benefits of this organization needs to be made public. As well as the truth of this condition that people with paruresis are not alone and the IPA is here to help.

The Great!

I've personally experienced the results of this organization in...

monthly board members and IPA workshop sessions

Ways to make it better...

If I had to make changes to this organization, I would...

Improvements are of course present, but it takes time and money. Things we hope to accomplish are outlined and are being worked on through monthly meetings by the Board of Directors.

February 5, 2011

more

February 5, 2011

I've been involved with IPA for about ten years now, and it is truly a life-changing organization. I joined mainly because I wanted to travel but my fear kept me from doing so. I now have a passport and am a frequent traveler.

I've attended two IPA workshops for shy bladder treatment.
They are unlike anything any doctor, therapist, or psychiatrist has ever done for me. It is really amazing to be in a room full of people who know the same shame you experience. The knowledge provided at these workshops and on IPA's website is diverse- people explore the many psychological and medical methods for how they are able to move beyond this painful condition, but the actual practice that occurs at the workshops really is powerful and would be difficult to recreate at any doctor's office.

IPAs objectives are equally diverse- not only helping people recover from shy bladder, but working to change drug-testing laws to accommodate paruretics; and working to influence public restroom access and design to accommodate paruretics. There is just so much to be accomplished by this organization, and it's the only one like it out there!

The Great!

I've personally experienced the results of this organization in...

all the time- at work, while traveling, shopping, in other people's homes. I try to remind myself everyday, when I'm able to urinate somewhere where I previously could not, how great it is to recover from something so debilitating.

Ways to make it better...

If I had to make changes to this organization, I would...

Increase funding and awareness. IPA is a small organization with a small budget, but it needs to be on the radar of every urologist in the country .

More feedback...

Will you volunteer or donate to this organization beyond what is required of board members?

Likely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Likely

June 26, 2010

more

June 26, 2010

Had Shy Bladder for all of my life, learned to live with it although it altered the way I did everything, from go to a ballgame to going to a movie.... I found the Shy Bladder Institute and through workshops and following their advice, was able to deal with the issue. The support from the group was incredible and they've helped me with this life longdisability.

The Great!

I've personally experienced the results of this organization in...

The changes in my life have been incredible - as a result of their support

More feedback...

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

Previous | Next
Write A Review

Filter by reviewer role:

Support This Nonprofit

Help this nonprofit get more reviews

5 tips for getting reviews

5 tips for getting reviews...

  1. Sending an email to clients, volunteers, donors, board members, and other partners with a link to your profile page.
  2. Putting a link on your Web site
  3. Including a link in your email newsletter
  4. Putting a link in the signature of your email
    Putting a link on your facebook page and status updates
  5. Tweeting out a link to your twitter followers