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84 Reviews
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May 28, 2014

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1 previous review
February 14, 2011

I am 42 years old and have suffered with Paruresis since I was a child. I am not sure was caused this problem. For years I suffered thinking I was the only person in the world with this problem. I... more

May 28, 2014

I suffered for years not know what was wrong with me. I thought I was the only person who had the problem. Once I discovered the IPA, I finally realized that I was not alone and I now had a term for my condition. I had been to doctors in the past and none of them did anything for me. They did not even know why I could not go while someone was in the bathroom with me. Once I discovered that I had Paruresis, I began educating the doctors in my town on this condition. I am and always will be glad for the International Paruresis Associaton.

Ways to make it better...

If I had to make changes to this organization, I would...

I wish more people would support this great organization. It is the only one of its kind.

More feedback...

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2014

February 14, 2011

I am 42 years old and have suffered with Paruresis since I was a child. I am not sure was caused this problem. For years I suffered thinking I was the only person in the world with this problem. I even went to a local doctor, to see if he could help me. He could not help me or advise what was causing this condition. It was not till about ten years ago that I read an article in a national news paper did I realize what the condition was caused and that there was an organazion. I immediately went online to the Paruresis Association website. I finally had a name for my condition and I discovered for the first time that I was not the only person in the world who had this condition.

The Great!

I've personally experienced the results of this organization in...

This organization provides the information and the assistance to help everyone who is suffering from paruresis.

Ways to make it better...

If I had to make changes to this organization, I would...

I would not make any changes to this organization.

More feedback...

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

How did you learn about this organization?

Newspaper article

When was your last experience with this nonprofit?

2011

August 19, 2012

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August 19, 2012

Having suffered for paruresis for over 30 years, finding that an organization like the IPA existed was a life-changer. For the first time, I realized I was not alone. The IPA is the only organization I'm aware of that exists to tackle this condition, which has a moderate to severe impact on a small but significant minority of the population. By providing resources such as books and workshops, spreading awareness and hosting an online discussion forum, IPA has greatly improved the lives of many who suffer from paruresis.

More feedback...

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

February 9, 2011

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February 9, 2011

This organization helps with promoting workshops around the country. I attended one and it made a big difference in my life.

The Great!

I've personally experienced the results of this organization in...

Yes

Ways to make it better...

If I had to make changes to this organization, I would...

Expand it's services to help more people.

February 5, 2011

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February 5, 2011

Ever since I was ~ 10 years old I have had Shy Bladder. I thought I was the only one on Earth with this problem. It ruled my life. Then I found IPA.
Wow!!!! What a support system. I felt bad for those that had the same problem I had of course at different levels, but knowing there was help out
there like IPA was Heaven Sent. Oh yea, I am 52yrs old now and lived with Shy Bladder till I was ~50. This organization is a life changing group. Imagine holing urine for 12hrs and not being able to be social with friend till now.

The Great!

I've personally experienced the results of this organization in...

talking to others with the same problem

Ways to make it better...

If I had to make changes to this organization, I would...

Change Nothing

February 7, 2011

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1 previous review
June 28, 2010

I have dealt with Shy Bladder syndrome since as far back as I can remember. It was then considered a problem that only a child has trouble understanding. When we turn 18 we are considered adults. The ... more

February 7, 2011

I would like to take a moment and say how much IPA has helped me. I have struggled with a shy bladder for 90% of my young adulthood life, from the age of 17 until well into my 40s. It was tremendous relief to find the support on IPA users forum bulletin board. The term Paruresis has a more precise definition for this condition. Before there were broad ranging categories that only talked of generalized feelings which could range from lack of self esteem to social anxiety. There was no possible way to describe what I was going through.

I felt alienated from what other people were able to do. Until I found the support group at IPA. I had my library transfer their recovery book to my branch and started reading it from cover to cover. Little by little I was able to grasp the understanding recovery is a gradual process. It is very good to relate with other people who are suffering as well. The most benefit I found was that I could give other people encouragement. I am still having to suppress my anxious feelings. Basically my main concern is will there be any privacy. I have a feeling I am with a bigger majority of people who are thinking the same way. I can say it definitely helps to write things out. To get a better understanding of the problem, is to get it out from the inside and look it in front of myself. I now know not hide the embarrassment and to get the problem out “on the table” to say what is the problem from the very beginning, so others will know what I’m talking about if I seem a little nervous.

The Great!

I've personally experienced the results of this organization in...

Please read the whole text in the review above thank you.

Ways to make it better...

If I had to make changes to this organization, I would...

None.

June 28, 2010

I have dealt with Shy Bladder syndrome since as far back as I can remember. It was then considered a problem that only a child has trouble understanding. When we turn 18 we are considered adults. The problem just doesn't go away like a flick of a switch. At 18 I seriously started becoming more concerned and more pre-occupied with this every isolating problem. In my 30's I discovered a website called IPA for International Paruesis Association. From then on, I finally started to identify the problem. Shy Bladder actually has a technical name, Parursis. I became aware that I was not alone. There are many men and women out there of all ages who suffer. The benefits that I received from being able to share my experiences and offer my support to a bulletin board clearly out weigh any costs. In a nut shell, the most important lesson I've learned is to be up front and say what the problem is. I can't thank enough the people who run this site for providing an opportunity to share with and support the many who have lived with Shy Bladder Syndrome everyday of our lives.

The Great!

I've personally experienced the results of this organization in...

...in being able to use public restrooms where I wouldn't in the past.

More feedback...

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2009

June 25, 2010

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June 25, 2010

After suffering from paruresis for my entire cognitive life (over 30 years!!) and more importantly, at the brink of failing a UA random test for employment due to 'not producing a sample' I started doing some research online and stumbled into the IPA website. I spent the better part of a day reviewing the information they had on thier website. I followed thier advice and went to an urologist who 'diagnosed' me with paruresis and wrote a nice letter explaining this to my HR department. I also wrote a cover letter for them as outlined by the IPA information. To make a long story short it was succesful and they have since found other means to establish I am not using illegal substances. The days of sweating bullets over the stupid UA's was over. I immediately went back to the IPA's website and made a donation. The inforation and research they do is invaluable to people like me that have this pauresis condition. Although I have not attended any of thier workshopd, I have read the archives and have used many of thier techniques succesfully. The IPA is doing great work and I commend them for all thier time and involvment. Thank you IPA!!!

The Great!

I've personally experienced the results of this organization in...

Yes.....as I mentioned in the review portion; they have helped me greatly. The quality of my life has improved immensely.

More feedback...

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

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