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November 9, 2013

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1 previous review
June 26, 2010

Suffered with shy bladder syndrome for over 50 yrs before finding this fantastic organiza-tion. Went to local support group a couple of times and then a workshop. Eventually went to four workshops an... more

November 9, 2013

If only IPA had been around when I was in school! I never used the urinals in grade school, junior high, high school or college! I thought I was the only one in the world who could not do this thing that everyone else could do. It seemed so simple for them. Impossible for me.
The harder I
tried, the worse it got. I snuck around. I went in alleys, bushes, held it in for hours and hours. Never told a soul.
Until I got into the long term relationship that I am still in and found some understanding. But that didn't change the fact that I could not pee at the movies .
Then I Googled "pee shy" late one night about eight years ago and up popped the IPA website! I went to the first local meeting that I could get to. I met people who I could talk to about paruresis (it had a name!).
The next meeting I made some progress and started to see that I could get better.
So I signed up for the very next workshop and flew from LAX to Detroit! The best thing Id ever done for my own well being. Before leaving Detroit and saying goodbye to my new friends I peed at the urinals at Comerica Stadium during a Tigers game!
Since then I've used the troughs at Dodger Stadium! That's right! I sometimes still have issues but it doesn't stop me from doing anything or going anywhere anymore. And it never will again!

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

June 26, 2010

Suffered with shy bladder syndrome for over 50 yrs before finding this fantastic organiza-tion. Went to local support group a couple of times and then a workshop. Eventually went to four workshops and have lead supports groups for three years. Where this phobia used to run my life and was sometimes a nightmare of searching for a safe place to pee, I am now free to go and do whatever I want. I use urinals at ball parks and gyms and never turn down invitations just because I am not famil-iar with the restroom situations. Life is much more fun. IPA is a great organization. In fact, it is a life saver that is virtually unknown by the public at large.

The Great!

I've personally experienced the results of this organization in...

terms of improving the quality of my life and the lives of others both directly and indirectly. When one person stops having to hide a secret from their partner or spouse their entire relationship can change for the better.

Ways to make it better...

If I had to make changes to this organization, I would...

make it more available to people who don't know about it. Shy bladder syndrome is a problem that most people don't understand or think is just a joke. It can limit a person's life to the point where they are actually housebound.

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What I've enjoyed the most about my experience with this nonprofit is...

meeting people who share this phobia and have worked through the fear and gotten to the other side of it and helped me to get to the other side as well.

The kinds of staff and volunteers that I met were...

kind and friendly and open hearted. No one ever was doing this for their own ego.

If this organization had 10 million bucks, it could...

GET THE WORD OUT!!

Ways to make it better...

I could have spent more time with it. Unfortunately I had to work for a living.

In my opinion, the biggest challenges facing this organization are...

money, money, money and recognition.

One thing I'd also say is that...

Stephen Soifer, the founder, has almost single handedly run this organization for a dozen years with very little money out of his committment to the people who suffer with this phobia. He is a saint.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2009

October 26, 2012

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October 26, 2012

IPA is a groundbreaking organization for people with shy bladder syndrome. Their workshops have been truly lifechanging for me and many others, and their education and advocacy are second to none. I struggled with paruresis for over 4 decades. The first workshop I attended was a liberating experience, and I have been to many others since then, and become a volunteer with the organization. They are led by a visionary, courageous, dedicated group of people.

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How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

October 26, 2012

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October 26, 2012

In my lifetime, I have suffered from various afflictions including severe depression (numerous suicide attempts) & eating disorders (below 100 lbs for three years), but the most disabling of all these was the paruresis I have had for over 40yrs. This is a disorder kept secret by both its sufferers & ignorance in our society. I believed I was alone in this afliction until I discovered the IPA some three yrs ago. I have found the IPA to be a help for the helpless- a nonprofit which is truly dedicated to helping paruretics overcome this disorder. This is a nonprofit which definitely gets results & changes lives for the better. In my opinion, the IPA is worthy to be a top-rated nonprofit, both now & in the years to come.

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How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Quite well

When was your last experience with this nonprofit?

2012

September 6, 2012

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September 6, 2012

I have suffered from Paruresis since childhood. I attempted to manage my condition through my career and personal life by avoiding fluids and running or bathing to dehydrate before travel or social events. The 14 hour flights to Asia were the worst! Many miserable and painful memories. Through IPA I learned to self cath.....learned what and where to buy catheters and supplies and had some helpful tips. I was successful the first time I tried and it was/is extremely easy and painless. Now I can travel freely anywhere and not worry about long bus rides or plane trips. Thanks to IPA....several visits to urologists were useless....they did not understand or help. Free after 50 years!

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

August 28, 2012

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1 previous review
February 6, 2011

I'm one of millions of people who suffer from Paruresis or Shy Bladder Syndrome. Like most sufferers, I've spent most of my life keeping my problem a secret, too embarassed to tell anyone that often ... more

August 28, 2012

I'm 61 and I've suffered from Paruresis most of my life. For me, and milions of others who suffer from this social phobia, the IPA is the best source of information about the condition and how to cope with it. I've attended an IPA workshop and read some literature from the IPA store, including Dr. Soifer's book, Shy Bladder Syndrome. The workshop experience was extremely helpful. It showed me that I could make progress with my problem, and has given me confidence to face social situations where having a shy bladder could be uncomfortable and embarassing. I shared my notes from the workshop with my urologist and my psychiatrist, and they both appreciated the information. My urologist said, "You're educating me about this condition." With continued desentization exercises, I expect to make much more progress. IPA has given me the tools.

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How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Likely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2010

February 6, 2011

I'm one of millions of people who suffer from Paruresis or Shy Bladder Syndrome. Like most sufferers, I've spent most of my life keeping my problem a secret, too embarassed to tell anyone that often have difficulty urinating in a public restroom or whenever other people are present. Thanks to International Paruresis Association, I've learned about gradual desensitization exercise which are helping me to ameliorate my symptoms. I appreciate the knowledge and emotional support of this organization. Even doctors often lack information about Shy Bladder Syndrome. In fact, my urologist has thanked me for sharing with him the information I've received from IPA publications and workshops.

The Great!

I've personally experienced the results of this organization in...

I practice the desensitization techniques several times weekly and this has given me confidence to go places and be with other people.

Ways to make it better...

If I had to make changes to this organization, I would...

IPA is doing a great job but is stuggling financially. Better funding would help it to reach more people and fulfill its mission.

August 26, 2012

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August 26, 2012

I'm 34 and suffered from paruresis since I was a teenager. I came across the IPA website a few years ago. Since then, I've attended a workshop and several practice sessions. The treatments I learned have had such a positive experience in my life and paruresis is rarely a concern for me anymore. The steps to recovery begin with sharing your problem with others. I kept this a secret from everyone for many years, thinking I was alone. Since discussing the problem with others, it lifted a huge amount of stress off my shoulders. Thank you IPA you have saved my life!!

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How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2011

August 25, 2012

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August 25, 2012

I suffered from from Paruresis for over 50 years, and I was sure that I was absolutely alone with this until I discovered the IPA during an Internet search. The workshop that I attended in Chicago in 2010 was the first step in my recovery process, and the graduated exposure techniques that have been constantly practicing have carried my recovery to a point where my condition now has very little affect on my daily life. This has been such a positively life-changing experience for me that I have since become a support group leader so that I can help others in turn.

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How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

August 22, 2012

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August 22, 2012

The biggest thing I learned about paruresis through IPA is that I am not alone. The workshop I attended was very informative and I learned to adjust my perspective on this condition. I am not cured of paruresis but live comfortably with it and it rarely stops me for doing what I want. This level of comfort would not have been possible without IPA's assistance. I have told all of my close friends of my condition and we laugh about it. They have, in turn, told me about other friends of theirs with paruresis and I have passed the IPA website information on to them.

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How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2007

August 21, 2012

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August 21, 2012

I have been dealing with Paruresis for about 40 years. Until my wife found an article in the newspaper discussing this phobia, I thought I was the only one with it. After attending a workshop in Las Vegas, I realized that help was possible. So I joined a group in Orange County CA and I have been particpating for several years. Ed and I formed a group in the Long Beach/Lakewood areas and we have kept it up mainly because we are the only group in the greater Los Angeles area--which is a shame. Although we have gotten a good number of participants through the website, we need more publicity in other media. The IPA program is great but we need to do a better job of getting the word out.

More feedback...

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Quite well

When was your last experience with this nonprofit?

2012

August 20, 2012

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August 20, 2012

I was 15 years old the first memory I have of not being able to relieve myself around other people, at that time my brother and father. From that earliest memory, and every day since ( I am now almost 60 y/o) I have lived with fear of entrapment or not being able to relieve myself. Although I ended up in professional sales career where it is common at meetings to have the "5 minute" bathroom breaks with other salesmen, this phobia has had a huge negative and worrisome effect in my life. Only within the last 6 months did I become aware that others had a similar problem. I found out through IPA website. Since then, I participated in weekend session that has since brought me to a point where I can now relieve myself in public bathrooms much of the time. This is a program of continual work to overcome and I know to have ultimate victory will take some additional time. Yet, even with the small success, in my life it is huge! I encourage anyone with bashful bladder to investigate this program. If only I could have done this in my 20s' I would have saved 45 years of hell.

The Great!

I've personally experienced the results of this organization in...

It has helped me overcome a lifetime phobia that has caused significant embarrassment and discomfort.

Ways to make it better...

If I had to make changes to this organization, I would...

Nothing I know of

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Quite well

When was your last experience with this nonprofit?

2012

How did you find this group?

On the web through general heading and subject searches

What, if any, change in your life has this group encouraged?

Enormous change for the good...since the first engagement with the organization.

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