International Paruresis Association, Inc.

Rating: 4.81 stars   108 reviews

Address:

P.O. Box 21237 Catonsville MD 21228 USA

Mission:

The International Paruresis Association is a 501(c)(3) nonprofit organization whose mission is to cure Paruresis (shy bladder) and improve the lives of all people affected.

Target demographics:

Anyone and everyone suffering from paruresis.

Geographic areas served:

Worldwide

Programs:

Shy Bladder Center, Worldwide IPA Support Groups, and Prisoners with Paruresis

2015 Top-Rated Nonprofit
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More Info

443-315-5250
http://www.paruresis.org/index.html

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Reviews for International Paruresis Association, Inc.

Rating: 5 stars  

1 person found this review helpful

Like many people who suffer from shy bladder syndrome, which makes it difficult or even impossible to urinate in public, I thought I was alone and without hope of overcoming my condition until I discovered IPA. The organization provides a support community, educational materials, and workshops, all of which have been very helpful to me.

 
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Rating: 5 stars  

This organization exceeds all expectations when it comes to serving its clients which I am one of. The work they do is truly amazing!!!!

 
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Rating: 5 stars  

2 people found this review helpful

My life has improved tremendously sense I started doing the workshops. I was seldom able to use a public restroom, or a bathroom at home if anyone was near the door.
I am now able to travel and seldom find it difficult to use public restrooms, including airplanes,boats, and trains.
Thank You
Kevin

 
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Rating: 5 stars  

2 people found this review helpful

Helped me know I was not alone with my condition - and that was worth more than gold!

 
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Rating: 5 stars  

1 person found this review helpful

I read Dr. Soifer's book, met 3 of the members of a local branch of IPA, and finally attended an IPA workshop together with about 20 other attendees who suffered from Shy Bladder Syndrome. Dr. Soifer is a compassionate educator and leader who helps people cope with and overcome SBS and the fear, shame and anxiety attached to it. IPA has helped me tremendously!

 
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Rating: 5 stars  

2 people found this review helpful

This organization and it staff have helped make dealing with shy bladder so much more possible. I thank God they exist to support those who endure this invisible condition.

 
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Rating: 5 stars  

1 person found this review helpful

This is an organization led by persons who themselves suffer from, struggle with, the condition that the organization exists to remediate. They are thus very highly motivated and disposed to work very hard for rather little pay. It is thus the ideal the sort of nonprofit.

 
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Rating: 5 stars  

This group helped me a great deal with shy bladder and advocates on behalf of people with shy bladder in the workplace

 
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Rating: 5 stars  

1 person found this review helpful

If only IPA had been around when I was in school! I never used the urinals in grade school, junior high, high school or college! I thought I was the only one in the world who could not do this thing that everyone else could do. It seemed so simple for them. Impossible for me.
The harder I tried, the worse it got. I snuck around. I went in alleys, bushes, held it in for hours and hours. Never told a soul.
Until I got into the long term relationship that I am still in and found some understanding. But that didn't change the fact that I could not pee at the movies .
Then I Googled "pee shy" late one night about eight years ago and up popped the IPA website! I went to the first local meeting that I could get to. I met people who I could talk to about paruresis (it had a name!).
The next meeting I made some progress and started to see that I could get better.
So I signed up for the very next workshop and flew from LAX to Detroit! The best thing Id ever done for my own well being. Before leaving Detroit and saying goodbye to my new friends I peed at the urinals at Comerica Stadium during a Tigers game!
Since then I've used the troughs at Dodger Stadium! That's right! I sometimes still have issues but it doesn't stop me from doing anything or going anywhere anymore. And it never will again!

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

 
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1 previous review
Rating: 5 stars  

1 person found this review helpful

Suffered with shy bladder syndrome for over 50 yrs before finding this fantastic organiza-tion. Went to local support group a couple of times and then a workshop. Eventually went to four workshops and have lead supports groups for three years. Where this phobia used to run my life and was sometimes a nightmare of searching for a safe place to pee, I am now free to go and do whatever I want. I use urinals at ball parks and gyms and never turn down invitations just because I am not famil-iar with the restroom situations. Life is much more fun. IPA is a great organization. In fact, it is a life saver that is virtually unknown by the public at large.

I've personally experienced the results of this organization in...

terms of improving the quality of my life and the lives of others both directly and indirectly. When one person stops having to hide a secret from their partner or spouse their entire relationship can change for the better.

If I had to make changes to this organization, I would...

make it more available to people who don't know about it. Shy bladder syndrome is a problem that most people don't understand or think is just a joke. It can limit a person's life to the point where they are actually housebound.

What I've enjoyed the most about my experience with this nonprofit is...

meeting people who share this phobia and have worked through the fear and gotten to the other side of it and helped me to get to the other side as well.

The kinds of staff and volunteers that I met were...

kind and friendly and open hearted. No one ever was doing this for their own ego.

If this organization had 10 million bucks, it could...

GET THE WORD OUT!!

Ways to make it better...

I could have spent more time with it. Unfortunately I had to work for a living.

In my opinion, the biggest challenges facing this organization are...

money, money, money and recognition.

One thing I'd also say is that...

Stephen Soifer, the founder, has almost single handedly run this organization for a dozen years with very little money out of his committment to the people who suffer with this phobia. He is a saint.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2009-1-01

 
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Role: Client Served
Rating: 5 stars  

IPA is a groundbreaking organization for people with shy bladder syndrome. Their workshops have been truly lifechanging for me and many others, and their education and advocacy are second to none. I struggled with paruresis for over 4 decades. The first workshop I attended was a liberating experience, and I have been to many others since then, and become a volunteer with the organization. They are led by a visionary, courageous, dedicated group of people.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

 
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