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82 Reviews
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November 20, 2012

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1 previous review
June 26, 2010

The Workshops that the SBI runs have changed my life in so many ways it is difficult for most people to imagine. I have started living my life for the first time in 30 years without the worry and anxi... more

November 20, 2012

Everyone at the IPA has always been helpful and supportive of anyone asking for help or advice. Since most of the members have "walked the walk", they understand the struggles that each person joining has in their life. My life has truly been transformed since finding the IPA over 10 years ago.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

June 26, 2010

The Workshops that the SBI runs have changed my life in so many ways it is difficult for most people to imagine. I have started living my life for the first time in 30 years without the worry and anxiety that used to be a part of my life everyday. Through the SBI I have also met so many amazing people and fellow travellers that have offered help and support in my work toward recovery. I don't know of any other venue where you could get help and meet people who understand living with Shy Bladder Syndrome and offer ways to work on recovery.

The Great!

I've personally experienced the results of this organization in...

every aspect of my life ... work, social settings, family life, dating, etc.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

The people I have met that have become lifelong friends.

The kinds of staff and volunteers that I met were...

very helpful and understanding.

If this organization had 10 million bucks, it could...

Hold regular Workshops in smaller cities around the globe to serve more people that can't travel.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

November 2, 2012

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November 2, 2012

The worst part about paruresis is thinking that you are alone. Through finding the IPA site, I discovered I wasn't alone and there were people out there who could help. With the information on the website, I was able to start down the long road of recovery. I have been to two workshops, and now am a group leader. Not only have I improved, but I have seen improvement in the quality of life of others. Truly a fantastic group.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Some

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

October 28, 2012

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1 previous review
June 25, 2010

I was total avoidant from public restrooms for over 30 years and tried most everything on my own to help myself, to no avail. IPA was my last desperate attempt at to salvage my freedom to live life t... more

October 28, 2012

This organization has changed my life in the most positive way. After 30+ years, I am truly free!!!

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

June 25, 2010

I was total avoidant from public restrooms for over 30 years and tried most everything on my own to help myself, to no avail. IPA was my last desperate attempt at to salvage my freedom to live life to its fullest. Before the Shy Bladder workshop I was frightened thinking, "if this does not work, I am out of options to free myself of this social phobia". The end of that workshop weekend brought me to the restroom of Comerica park during the 7th inning stretch. After one "misfire", I left the restroom and went back after a few minutes to relieve myself at a urinal with no dividers in between two men; we were almost toe to toe. Absolutely amazing to see what I was capable of. When I went home, I found support and began practicing aggressively what I learned. About 8 months after that, I can say I am a free man. It is hard work; when you are truly motivated to do it, you too will be free to pee :)

The Great!

I've personally experienced the results of this organization in...

Participating in workshops

Ways to make it better...

If I had to make changes to this organization, I would...

Do whatever possible to reach out to the men and women that help exists.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

It is a hidden gold mine for people with Shy Bladder.

The kinds of staff and volunteers that I met were...

Compassionate, understanding, caring and supportive.

If this organization had 10 million bucks, it could...

Bring Oprah out of the closet as a Shy Bladder sufferer - that would help awareness of this disorder.

Ways to make it better...

If the workshop was held in my town.

In my opinion, the biggest challenges facing this organization are...

Private funding to be able stay afloat, marketing efforts, etc.

One thing I'd also say is that...

I am grateful for IPA and the Shy Bladder Institute. That is why I give back to help fellow suffers in my community.

How frequently have you been involved with the organization?

About once a year

When was your last experience with this nonprofit?

2008

October 28, 2012

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October 28, 2012

This is the most informative site for those suffering from Paruresis. It was the site that I first discovered the name for my condition, and the efforts of those that run it have led to Urologist and others being educated about it. 5 super stars!

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

October 26, 2012

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1 previous review
February 5, 2011

Paruresis has been part of my life for more than 30 years affecting my quality of life. Only when I found IPA online did I realize that so many others experienced the same problem . By reading a book... more

October 26, 2012

Having endured many years coping with paruresis I have been really pleased to learn and share more with others. Although I still have some difficulty dealing with it, I have improved and understand it much more.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

February 5, 2011

Paruresis has been part of my life for more than 30 years affecting my quality of life. Only when I found IPA online did I realize that so many others experienced the same problem .

By reading a book obtained through IPA I began to understand this condition. Then I attended an IPA workshop
and began to make some progress. Improvement is slow but definite and I am now optimistic that I can overcome much of the aversion that I have to public washrooms.

The Great!

I've personally experienced the results of this organization in...

I am now much more able to use washrooms outside my residence.

Ways to make it better...

If I had to make changes to this organization, I would...

INcrase number of workshops

August 24, 2012

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August 24, 2012

I have had a shy bladder for over 50 years, and it was a constant source of worry. My first workshop with IPA and Steve Soifer in Detroit in about 2000 was a revelation; I discovered I was not alone, and that there was a solution to my problem. I have been to many workshops, and many practice sessions with a Toronto group, and the improvement has been amazing - and relieving! Don W

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

February 7, 2011

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1 previous review
June 28, 2010

I have dealt with Shy Bladder syndrome since as far back as I can remember. It was then considered a problem that only a child has trouble understanding. When we turn 18 we are considered adults. The ... more

February 7, 2011

I would like to take a moment and say how much IPA has helped me. I have struggled with a shy bladder for 90% of my young adulthood life, from the age of 17 until well into my 40s. It was tremendous relief to find the support on IPA users forum bulletin board. The term Paruresis has a more precise definition for this condition. Before there were broad ranging categories that only talked of generalized feelings which could range from lack of self esteem to social anxiety. There was no possible way to describe what I was going through.

I felt alienated from what other people were able to do. Until I found the support group at IPA. I had my library transfer their recovery book to my branch and started reading it from cover to cover. Little by little I was able to grasp the understanding recovery is a gradual process. It is very good to relate with other people who are suffering as well. The most benefit I found was that I could give other people encouragement. I am still having to suppress my anxious feelings. Basically my main concern is will there be any privacy. I have a feeling I am with a bigger majority of people who are thinking the same way. I can say it definitely helps to write things out. To get a better understanding of the problem, is to get it out from the inside and look it in front of myself. I now know not hide the embarrassment and to get the problem out “on the table” to say what is the problem from the very beginning, so others will know what I’m talking about if I seem a little nervous.

The Great!

I've personally experienced the results of this organization in...

Please read the whole text in the review above thank you.

Ways to make it better...

If I had to make changes to this organization, I would...

None.

June 28, 2010

I have dealt with Shy Bladder syndrome since as far back as I can remember. It was then considered a problem that only a child has trouble understanding. When we turn 18 we are considered adults. The problem just doesn't go away like a flick of a switch. At 18 I seriously started becoming more concerned and more pre-occupied with this every isolating problem. In my 30's I discovered a website called IPA for International Paruesis Association. From then on, I finally started to identify the problem. Shy Bladder actually has a technical name, Parursis. I became aware that I was not alone. There are many men and women out there of all ages who suffer. The benefits that I received from being able to share my experiences and offer my support to a bulletin board clearly out weigh any costs. In a nut shell, the most important lesson I've learned is to be up front and say what the problem is. I can't thank enough the people who run this site for providing an opportunity to share with and support the many who have lived with Shy Bladder Syndrome everyday of our lives.

The Great!

I've personally experienced the results of this organization in...

...in being able to use public restrooms where I wouldn't in the past.

More feedback...

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2009

February 4, 2011

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February 4, 2011

I was able to attend a workshop in Baltimore recently and that helped me immensely. Without the IPA I would be still wondering how to improve my phobia and seeking help in people and organizations with no knowledge of what paruresis actually is, let alone the methods to recover from it. For their continual support to thousands of people left in shame and in the dark the IPA provides information through their website and printed materials, provides support through leadership and an online forum, offers workshops with trained therapists for learning recovery techniques, and puts in many hours of research and advocacy for improving the lives of people with paruresis. There is no other source for such effective help and support available to us.

The Great!

I've personally experienced the results of this organization in...

My own work on the phobia, in leading a support group and in attending a workshop.

Ways to make it better...

If I had to make changes to this organization, I would...

Improve the visibility of the problem and in Canada, try to work with the medical system to help provide federal funding for holding more workshops in Canadian cities.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

Did your volunteer experience have an effect on you? (teaching you a new skill, or introducing new friends, etc.)

I witnessed the amazing story of a young man too afraid to go on a school trip to a foreign country because he could not use a public washroom go through the graduated exposure therapy recommended by the IPA for two months. When he was improved enough he decided to go with the group and is now travelling in India. He is so immensely grateful and feels he has regained his life and freedom. He wants to thank us for helping him and that is amazing, but really he did all the hard work. I can relate to what he went through in my own personal experience and it is demanding work to recover.

How did this volunteer experience make you feel?

I give and recieve back. It is wonderful to be able to help others and be helped as well.

When was your last experience with this nonprofit?

2011

June 26, 2010

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June 26, 2010

I have suffered from Paruresis / Shy Bladder for over 25 years and would not have survived without the help of the IPA/Shy bladder institute. I have attended 3 workshops over the years and what I have learned from these workshops has helped me tremendously for what I need to do to overcome my shy bladder. With what I have learned from the IPA I have been able to start support groups here in New York and help others as well. They teach you the desentization techniques which is so crucial to helping overcome this problem. It's also nice to know that the IPA exists and that I always have someone to turn to for help, that is so important. If they did not exist I know I would have no one to turn to and that is very scary. Unfortunately the medical industry hasn't figured out how to treat paruresis effectively whereas the IPA has. The IPA does so much in terms of getting the word out to the world about how awful it is to have paruresis and how it paralyzes ones life and to let others know that help is readily available.

The Great!

I've personally experienced the results of this organization in...

the workshops that I have attended and the support group sessions that I have either led or attended

Ways to make it better...

If I had to make changes to this organization, I would...

help them figure out how we can get national exposure in order to help battle this problem

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

that I am not alone with this problem and there are others out there just like me. The shy bladder institute has brought us together

The kinds of staff and volunteers that I met were...

kind, compassionate and always helpful

If this organization had 10 million bucks, it could...

literally change the lives of every paruresis sufferer out there

Ways to make it better...

The workshops lasted longer so I could get more desentization work in.

In my opinion, the biggest challenges facing this organization are...

having the necessary funds to stay afloat.

One thing I'd also say is that...

I really appreciate knowing the IPA is there and that I can turn to them for help when needed.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2009

June 26, 2010

more

June 26, 2010

The International Paruresis Association (www.paruresis.org) is a relatively unknnown organisation which can be a life saver. For more than 40 years of my adult life I dealt with being pee shy. I had a phobia which almost always made it impossible for me to urinate if I thought anyone could see me or hear me pee. Although I did not think I was the only person with this condition, I was too ashamed of my shortcoming to talk about it with anyone else. Until I was in my 60's, I scheduled my life around never being more than a few hours away from the privacy of a toilet where I knew I would be safe. Then I discovered the website for the International Paruresis Association, and my life changed. The IPA is an enabling organization which teaches paruretics how to overcome what can be a debilitating phobia. The work is done by a tiny staff who conduct weekend workshops in the U.S. and some foreign countries, and by a volunteer staff who serve as leaders in an international network of support groups. I know of the benefits that can come from working with the IPA. After having attended several weekend workshops and having served as a support group leader for six years, I have first hand experience with people who are now able to do what they had once thought would be impossible for them. And I am such a person. The IPA teachings have enabled us to conquer our fear. Probably every telephone directory in this country contains the names of hundreds, if not thousands, of men and women with paruresis. It is estimated there are millions of us who have this phobia in varying degrees of intensity. But we don't talk about this, and the general public is unaware of us. Only a tiny number of paruretics know there is help available to us – much of it at no cost. Even much of the medical community does not know of the IPA and its services. The IPA is worthy of additional financial support – from government, from industry, and from individuals. It would benefit from having trained staff to raise public awareness of the organization and to make its services more widely available. The IPA could be involved in scientific research to benefit people who are pee shy. And the organization could sponsor legislation to ease the unintended burdens often placed on paruretics. Instead of changing the lives of relatively few people each year, the International Paruresis Association should be changing the lives of many.

The Great!

I've personally experienced the results of this organization in...

learning to loosen the grip of my paruresis and seeing other members of the organization do the same.

More feedback...

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

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