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60 Reviews
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June 21, 2010

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June 21, 2010

Back in 2005 I contacted IAHPC for the first time asking for help to start palliative care attention at Instituto de Cancerología in Guatemala, the national center for Cancer reference. The IAHPC response was immediate and of great help! I was introduced to other physicians around the world and was able to establish a personal net for inter-consultation in Palliative Care that has lasted to the present date. A month later I received a donation from the IAHPC of about 12 books related with the discipline, including the Oxford textbook of Palliative Medicine, all of them were absolutely useful since there were not educational resources for palliative care in my country and I couldn`t have had access to any printed material in Guatemala. I kept constant contact with the IAHPC from the first time, during this time I let them know about the situation of palliative care in Guatemala, I was being a pioneer in this field. There were not palliative care services or phycisians. Being a pioneer was very exiting for me, it was challenging but also was a big responsibility I was learning the principles while I was helping a lot of Guatemalans to die with dignity and without pain... but I was alone there, I needed to learn and observe good palliative care practices since it was not a familiar concept in my country, where there are considerable stigmas about end of life care and pain relief. By Octoher 2005, I sent an application and received a grant from the IAHPC to assist as a Foreign Fellow to the Palliative Care Unit at the MD Anderson which was an experience that marked a point of departure for my practice in Palliative Care. The time I spent there was busy from 6:45 to 5:00 observing patients, revising articles, participating in rounds team discussions, investigation projects and integrated care with the Palliative Care team leaded by Dr. Eduardo Bruera. The daily activity was completed making rounds and home visits at the Houston Hospice with Dr. Susan Krauter, one of the physicians that the IAHPC introduced to me some months ago. Dr. Krauter hosted me in her home and was willing to share with me the principles around hospice and end of life care, two concepts that were new for me. I`m greatful with all of them for their mentorship and help in developing my skills in palliative care. That time changed my life! It opened my eyes and my heart to many other possibilities I never imagined... I was clear that I didn`t have all the resources in Guatemala as the ones I observed in the institutions that I visited, but now I had the "whole pizza" scenario of what palliative care meant to be, a model of excelency in clinical attention, Palliative Care investigation, advocacy and education. From the start to the end, each day was challenging, a learning experience and life changing. Many of the partners around the world that followed up my beginings in Palliative Care have been close to me all this time since then, during this 5 years have some of them became, close loyal and signigicant friends, we all share our passion and work in Palliative Care. After my first visit to MD Anderson and Houston Hospice, I have been in contact constantly with the people of IAHPC and have received the newsletter in a regular basis. Through the newsletter I`ve access to great palliative care resources, I personally used the "How To Start" guide to structure a palliative care service for my institution, our unit was born with a vision of growing up to become a center of high quality in palliative care for Guatemala. Through the IAHPC newsletters I became involved in more activities and received more help to assist to other palliative care events as the Pain Policies Studies International Fellowship where I´m involved to eliminate the barriers for opioid access and availability in my country, a program that promotes the cooperative work between international experts, fellows and some of the local healthcare authorities in each country. I also applied to a period of clinical observation as an international fellow in Navarra, Spain, a scholarship support program that was created by cooperative partnership of IAHPC with other Palliative Care Associations in Latin America and Spain. I received the grant for that program and will be assisting in August and September 2010, to University Clinic of Navarra, with Dr. Carlos Centeno, one of the spanish pioneers in Palliative Care that worked to promote it as a speciality in Spain and Europe. Today, I`m completing an International Fellowship Program at San Diego Hospice, I was invited to apply to this program through the IAHPC. Nowadays, I am developing a Palliative Care Department in my hospital. My highest goal is high quality Palliative Care. I have started an education program that is now official for undergraduate medicine students. In 2007 I started a postgraduate education program for residents of internal medicine and anesthesiology that has been growing since October 2005, but still needs to be included in the official curriculum. Our team today counts with two physicians, two pshychologists a nurse and a social worker, we still work from the hospital and need to provide home based hospice as our next step. By the end of 2009 we attended 3,000 consultations, one third of them were new patients. I consult the IAHPC "Pallipedia" in a regular basis, and keep myself actualized with the articles and revisions that the IAHPC publishes. Also, I use the tools and resources for patient care provided by the IAHPC as the main source of referral to the students of medicine and residents that come to my department to receive education in palliative care. I live in an underdeveloped country, I work with the poorest population in Guatemala, with scarce resources from the government for palliative care. The generous, constant and consistent help I have received from IAHPC has been a blessing providing the finantial support that has allowed me to acquire professional education and periods of direct observation with recoginized authorities in this field, keeping me on the path of providing palliative care with the best standards of care according to my resources. There has been an important support for Guatemalan patients through my participation in all the educational activities in palliative care that where available for me through the contact with IAHPC. Each experience where I have became involved has helped me to develop new areas of attention in Palliative Care in Guatemala. One of the aspects that I really appreciate is the networking that the IAHPC offers among other palliative care professionals and institutions around the world, many of them, as I mentioned are now close and valuable fellows that share and follow our progresses in Guatemala. I also enjoy following up their work in their countries, this encourages me to go up my goals and provide palliative care based in our population needs. My devoted and sincere thanks to the IAHPC for all the support during this wonderful career as a pioneer in Palliative Care in Guatemala, I wish that the IAHPC could continue helping more nations, that as in my case start with an individual that provides palliative care in the middle of a huge population in need, scarce resources, and no education and development opportunities in their own countries

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The Great!

I've personally experienced the results of this organization in...

Starting my personal education in Palliative Care, helping me to set standards of best quality in attention, investigation, education and advocacy for my daily practice. IAHPC provided me with friends and colleagues, a real community support.

Ways to make it better...

If I had to make changes to this organization, I would...

I would promote more funds for the IAHPC! I have been blessed receiving valuable help from IAHPC, but I know of many colleagues in other countries that deserve the same opportunities I had to develop better services for their patients.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

They stablish a consistent relationship with me from the very first time I consulted them! They offered me information, support through others and close follow up to my situation, their help was constant and significant.

The kinds of staff and volunteers that I met were...

All of them have been always devoted to serve! During these years, they have demnostrated efficency in all the practical issues involved in their work, as well as ethical and cooperative relationships with the people that they work with.

If this organization had 10 million bucks, it could...

Develop a non profit organization to provide home based hospice services for Guatemalan cancer patients. I would also start an educational program in Palliative Care for Central American countries.

Ways to make it better...

My experience with the IAHPC has been the best!

In my opinion, the biggest challenges facing this organization are...

There are huge needs regarding Palliative Care in the world, they need more funds to extend the help to more persons and more countries around the world.

One thing I'd also say is that...

It has been through the contact with the IAHPC that I have had access to more education opportunities to develop my work, they offer access to their valuable newsletter that promotes education, investigation and sharing opportunities.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

June 21, 2010

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June 21, 2010

I have been able to see first hand the benefits of this organization and their hard work in the promotion and development of palliative care around the world. I receive their monthly newsletter and every month I am able to read and learn about new developments, the programs and individuals they support, how they help improve care to patients and their families.

The Great!

I've personally experienced the results of this organization in...

In the reports I receive as a donor on how the funds are spent, on the newsletter that I read every month and by being able to learn how hospice improves the quality of life of those who are lucky enough to receive it.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

By reading the reports from the grantees on how they have benefited and how much IAHPC has been of help to them.

If this organization had 10 million bucks, it could...

Help relieve suffering for thousands of patients and their families.

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010

June 21, 2010

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June 21, 2010

I began to work in Palliative care and Cancer pain management during the year 2003. While doing a training in a Palliative Care service at the National Institute of Oncology in Panama as a graduate student I came to know how far I was from being able to effectively interact with patients on cancer pain needing palliative care. At that moment I was already a Pharmacology professor with almost 20 years of teaching experience, with a strong background in pain research techniques but I lacked of clinical training in cancer pain management. I figured out that if that was my condition my students were, most probably, even in a worst position. I proposed a course on Pharmaceutical on cancer pain management that included not only pharmacology, pathophysiology and pharmacotherapy of cancer pain management but also a chapter on opioids availability and regulations. By now I have trained around 180 pharmacy students. But it was not only the year 2006 that my academic life made a real change in favor of my country: I applied to a fellowship from the University of Wisconsin with the International Pain Policy and Study Group and with other seven health care professional from all over the world I was accepted. The fellow was sponsored not only by Open Society Institute but also by IAHCP. Many persons were involved in our training, I would not be fare if I did not mention each one of this wonderful persons: Mary Callaway, Karen Ryan, Martha Maurer, David Joranson, Willhem Scholtem, Liliana de Lima. I was so lucky to have Liliana de Lima, form IAHPC as my direct mentor. The whole training, the support of University of Wisconsin, OSI and IAHPC ended in a major change in opioid´s prescription and dispensation in my country. This change is positively influencing opioids availability in Panama. I am still working in a second part of my fellowship but at the same time I became a mentor for a physician in Peru as part of a program coordinated by IAHPC and also became in touch with the National Plan of Palliative Care in Panama trough IAHPC. With these opportunities I have been able to increase palliative care knowledge not only in my School but also at national and international level. I was also invited during the last month of March to the 53rd meeting of the CND in Vienna where U.S.A presented a proposal to discuss during the next ten years not only measures to control misuse but also to increase opioids availability for medical and research purposes. Many organizations supported this initiative, which was approved. IAHPC, OSI and Human Right can be mentioned as leaders of this main idea. Prof. Rosa Buitrago de Tello, School of Pharmacy, University of Panama.

The Great!

I've personally experienced the results of this organization in...

This organization has been supporting my training during the last three and a half years. Two major’s changes I could mention as achieved under their support: 1) Changes in Panama regulations on opioid´s prescription and dispensation. Decree No. 320 , Jun 22nd 2009. 2) United States resolution presented and approved during the 53rd meeting of CND in Vienna, March 2010. The resolution favored the discussion of opioids availability during the next 10 years and not only opioid´s restrictions to avoid misuse. The organization is also supporting opioids availability in Chile, Mexico, Guatemala, Colombia and Argentina in collaboration of others fellows from the University of Wisconsin

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How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

June 19, 2010

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June 19, 2010

IAHPC has done a lot and is still doing a great deal to advance palliative care globally, and especially in the developing countries. IAHPC has supported training, advocating for essential palliative care drugs, developing Palliative care guidelines and bringing palliative care providers from around the world together.

The Great!

I've personally experienced the results of this organization in...

Through support from IAHPC, I have been supported to present papers at palliative care conferences; I have been able, together with others, start a national palliative care association in my country-Kenya and have continuously received technical support.

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How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

June 19, 2010

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1 previous review
November 23, 2009

I have been involved as a board member and Vice-Chair of the International Association for Hospice and Palliative (IAHPC) Care, Inc. since its inception. Prior to this, I was the Vice-president of ... more

June 19, 2010

The International Association for Hospice and Palliative Care strives to promote hospice and palliative care services in developing countries. We do this through our newsletter, by providing grants for travel for health professionals in developing countries to attend international meetings, sending world experts to developing countries to teach for two weeks, awarding grants to universities, colleges, to support a faculty position to teach and develop a palliative care curriculum. We do all this, plus more, on a very small and limited budget and we have done so for many years. Bill Farr

The Great!

I've personally experienced the results of this organization in...

Since the inception of the organization some many, many years ago. Always as a non-paid person and volunteer, as well as a financial supporter. This works because we care and make every dollar count!!!!

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What I've enjoyed the most about my experience with this nonprofit is...

Dedicated volunteer Board Members and a poorly paid staff that are dedicated to the cause.

The kinds of staff and volunteers that I met were...

Top notch

If this organization had 10 million bucks, it could...

Make a huge difference for people with advanced and life threatening diseases -- that is make them comfortable, pain free and address all their needs, whether physical, emotional, spiritual, social, etc. and help the families cope with reality.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

November 23, 2009

I have been involved as a board member and Vice-Chair of the International Association for Hospice and Palliative (IAHPC) Care, Inc. since its inception. Prior to this, I was the Vice-president of the International Hospice Institute and the successor organization the International Hospice Institute and College, which was the immediate predecessor of the IAHPC. The IAHPC has been actively involved in promoting hospice and palliative care education in developing countries. To this end, we send experts to these resource poor countries in order to develop a culturally sensitive educational program for the whole host of service providers in programs aimed at alleviating the pain and other symptoms in patients with far-advanced and terminal diseases. In addition, we provide funds to selected care providers in developing countries to attend educational programs in various parts of the world. We also support a faculty member for three years in a resource poor country who is dedicated to developing a new hospice/palliative care educational program in their hospital and university. We publish free booklets, and e-books for use by resource poor countries. We also send out a free e-newsletter each month to over 8,000 persons each month. We do all of this very efficiently and on a very small budget.

The Great!

I've personally experienced the results of this organization in...

many countries where hospice and palliative care have blossomed as a result of our initiatives.

Ways to make it better...

If I had to make changes to this organization, I would...

expand the current service as finances allow. I would increase the number of Traveling Fellows (experts to the countries) and Traveling Scholars (educational opportunities for those in developing countries to go elsewhere for short courses).

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

To see a positive impact due to our interventions on the health care outcomes of patients who were literally suffering with severe pain in resource poor countries prior to our interventions and to see this happen year after year.

The kinds of staff and volunteers that I met were...

Very dedicated professionals.

If this organization had 10 million bucks, it could...

literally help reduce the suffering of millions of people in resource poor countries by educating physicians, nurses, social workers, volunteers, physical therapists, etc. in the profession of hospice and palliative care.

Ways to make it better...

I can't think of one thing that was negative during my many years of service to the IAHPC other than it would be wonderful to have more financial resources so we can do more!

In my opinion, the biggest challenges facing this organization are...

Finding financial resources to do more.

One thing I'd also say is that...

we need your financial help! Thank you for your consideration.

When was your last experience with this nonprofit?

2009

June 19, 2010

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June 19, 2010

This organisation has a real vision to advocate for and facilitate effective hospice and palliative care worldwide. As an academic in this filed, I have seen the effect of this organisation in different countries and situations. Thus although I am too busy, I have this year volunteered to join the board, and was fortunate to be voted on.

The Great!

I've personally experienced the results of this organization in...

promoting networking and knowledge transfer

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

enthusiastic contacts with visionary people

The kinds of staff and volunteers that I met were...

enthusiastic and knowledgeable

If this organization had 10 million bucks, it could...

.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

June 19, 2010

more

June 19, 2010

IAHPC is a wonderful organisation which succeeds in fostering international development of Palliative Care on an extremely tight budget, thanks to the incredible amount of work performed by the people working for the organisation. I am proud and honoured to serve as a Board member for IAHPC.

The Great!

I've personally experienced the results of this organization in...

several contexts, especially international congresses where participants from developing countries where able to attend because of IAHPC.

More feedback...

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

June 19, 2010

more

June 19, 2010

I have been the recipient of travelling fellowships which have enabled me to plan and deliver much needed training programs to eager, highly motivated interdisciplinary palliative care teams. The IAHPC is one organization that I am fully behind because I have seen first hand the conditions that physicians, nurses, counsellors, spiritual care providers, and volunteers must work in. The IAHPC is completely dedicated to supporting professionals from around the world to connect and share information and resources. They tirelessly promote education in the field and support leaders, and people in positions of power to put pressure on governing bodies to change regulations to benefit the most vulnerable people. The IAHPC must be financially support in their work because they bring together people who have the knowledge, the skills, the power, and the motivation to make a difference.

The Great!

I've personally experienced the results of this organization in...

I seen the excellent results of training in Africa and Nepal, where local staff were empowered to develop their own programs to provide improved patient and family care.

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How frequently have you been involved with the organization?

About once a year

When was your last experience with this nonprofit?

2010

April 9, 2010

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Review from Guidestar
April 9, 2010

My first contact with IAHPC was in 1993, when the Founder (Dr Josephine Magno from the Philippines) and her initial colleagues, visited me in Washington when I was trying to raise funds for the vision we had for palliative care in Africa. Since then I have watched this organisation grow, assisting people in poorer countries to bring relief to the suffering. I was most surprised to be chosen as the first person to receive their Vittorio Ventafrida Award in 2002, as a recognition for initiating palliative care in Africa and Asia. This brought to me a gift of 2,000$ for my use. At that time our team was struggling with personal debts and growing families. They needed a credit union. The money went into the credit union and started it off. This has been run completely by the employees of Hospice Africa Uganda and gives relief from financial burden to many. Those on our team work very hard and under difficult circumstances to bring relief of suffering and suffer personal losses as they lose patients and support families through to bereavement. IAHPC has supported students from poorer countries to attend our programmes for training like the Diploma in palliative medicine, conferred by Makerere University but owned by HAU. As a Board Member, I am in a position to be part of decision making and to be privy to their accounts. I am quite convinced that this organisation makes a great impression on the spread of palliative care to the poorer areas of the world, and works with enormous integrity.

The Great!

I've personally experienced the results of this organization in...

assisting people in poorer countries to bring relief to the suffering.

More feedback...

If this organization had 10 million bucks, it could...

increase the number of people that it is able to support around the globe, so that people who are facing terminal illnesses do not have to suffer.

When was your last experience with this nonprofit?

2009

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