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June 22, 2010

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June 22, 2010

The IAHPC Traveling Scholarship Program was started in 1999 and is designed to provide support to palliative care workers from developing countries who wish to attend a meeting, conference, seminar, internship or any other educational activity. IAHPC has supported Traveling Scholars from many developing countries in Africa, Asia, South Pacific, South East Asia, Latin America and Eastern Europe. To read the names of the grantees of this program, click here. Through the Traveling Scholarship Program, IAHPC is making a significant difference to the progress of palliative care in the developing world. The organization gratefully acknowledges the generous financial support of our sponsors and donors who make this program possible. This is an ongoing program and applications are accepted throughout the year. However, for certain events, IAHPC may set deadlines in order to be able to review and complete the process before the event starts. I have been involved in palliative care since 2002. We were the pioneers in the field in our region with the opulation of 3300000 and information and skills obtaining was and is of vital importance for specialists and palliative care advocates. The IAHPC supported my attendance the EAPC Congress which was held in Vienna in 2009 and the EAPC Research Congress in Glasgow in 2010. It was important to attedn the Congresses because I share the Congressws' information with Russian speaking specialists.

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The Great!

I've personally experienced the results of this organization in...

attending some international palliative care events with full financial support of this organization.

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What I've enjoyed the most about my experience with this nonprofit is...

+support of education for specialists +provides most recent information on all events in palliative care +provides all information needed to specialists through the website +helps people shae information and find everything and everyone involved in car

The kinds of staff and volunteers that I met were...

excellent

If this organization had 10 million bucks, it could...

help advacated develop palliative care worldwide help organise palliative care services worldwide and releive patients' suffering promote excellent education for medical staff

How frequently have you been involved with the organization?

About once a year

When was your last experience with this nonprofit?

2010

June 22, 2010

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June 22, 2010

The International Association for Hospices and Palliative Care has helped and contributed for the development of Palliative Care around the World. Give finantial support to physicians,nurses, physicologist and diferent health profesionals to participate in educational courses in the country and in other countries. Give finantial support to attend to International Congresses They have a web page with information related with palliative care very useful for people around the world, but I sepcially mention Latinamerica, Argentina, where we have limited access to journals.

The Great!

I've personally experienced the results of this organization in...

Personally I received support for the development of a Distance Learning Program in Latin America, in Spanish.

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What I've enjoyed the most about my experience with this nonprofit is...

Receiving monthly information.

The kinds of staff and volunteers that I met were...

Excellent.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

June 21, 2010

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June 21, 2010

For many years I've been following the dedication and restless work of the small group of people leading and supporting this association. Because of the lack of consciousness of what palliative care really is, the mission of this association is extremely difficult. There is a huge amount of money and resources invested searching for a cure for life-threatening diseases, but every year millions of people face the disheartening reality of only some weeks of months of life left. Providing these people a minimal quality of life and some relief for the physical and psychological pain, makes all the difference for them and for their families. Unfortunately, the attention paid and the resources invested in this area, specially in undeveloped countries, are almost nonexistent. This is what IAHPC is trying to change.

The Great!

I've personally experienced the results of this organization in...

Thanks to the IAHPC efforts, I've seen some countries starting to discuss or even incorporating palliative care philosophy as a part of their health care legislation.

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How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010

June 21, 2010

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June 21, 2010

In the past, I studied to become pediatric intensive care physician. The main purpose of that decision was to fight against dead. Why? Well, with our husband we had two preemies baby in different pregnancies. It was to hard to believed that we can control everything but death. After I finished the felloship when I started to work in pediatric intensive care at the social security hospital. During that time, parents taught me different answers I wasn't expected to learn. It was their way to handle lost, death, their fear and so on. I learned too much and I decided to start a planning step to organize pediatric palliative care for an oncology pediatric hospital. After two years of working hard in this they accepted the propossal and I started to work full time in palliative care since august, 2005. This institution have a great philosophy in the attention of onchologic patients but not other part of the country. So I decided to volunteer in: I volunteer as physician helping in the organization of a hospice por pediatric pallive patients in Guatemala city. Everytime we summit a plan for maintenence of a hospice all say that they give money for health not for hospice. And we continue with this dream. This is a foundation different from the hospital that I work. I volunteer giving conferences to an Association for Palliative Care Patients (Adults) in Guatemala. And also in counceling about the organization of their institution. I volunteer giving lectures in Bioethic, specially related with end of life dilemas to a public University named San Carlos de Guatemala. I volunteer giving my opinion in the redaction of a preliminary law in palliative care for Guatemala hoping that someday we will have a law in palliative care. I've been preparing as volunteer, in the education of the personal who will be enrolled in the hospice in the future. Sometimes I advice people at the end of life care in decision making process. We are working in a Bioethical comittes for UNOP.

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I've personally experienced the results of this organization in...

How different physicians, volunteers, have been involved in palliative care in Guatemala. And hospice have been walking in planning the next step that will be equipment for the house and then opening the hospice. Many peolpe are interested in bioethics.

Ways to make it better...

If I had to make changes to this organization, I would...

1) Prepare people with scientific approach specially in making projects for funding. 2) I wold prepare lawyers to fight for the law of palliative care in Guatemala.

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What I've enjoyed the most about my experience with this nonprofit is...

To fight against people who son't think that a hospice cannot be done.

The kinds of staff and volunteers that I met were...

Business women.

If this organization had 10 million bucks, it could...

Make three big steps: 1- Prepare people for funding 2- Furniture and getting the equipment for hospice. 3- Projecting to the community with education, publicity in rural areas.

Ways to make it better...

If there will be other people scientific prepared for funding and organizing.

In my opinion, the biggest challenges facing this organization are...

Funding and growing by learning in a scientific way and not just with the heart.

One thing I'd also say is that...

I apprecciate this opportunity to let us share how some countries have just very few invertion in palliative care comparing to others.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

June 21, 2010

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June 21, 2010

Over the course of several years I have used the assistance if the IAHPC to help determine whether dying patients who wish to go back to their native countries can received hospice and/or palliative care services there, and how to make referrals to the agencies in their native country. They are prompt and accurate in the information they give and represent an extremely important area of clinical practice. They also give scholarships to persons to go to other countries to teach palliative care.

The Great!

I've personally experienced the results of this organization in...

helping determine whether there are palliative care/hospice services in a variety of countries, thereby enabling clinicians to make appropriate referrals for persons who are terminally ill in the US and wish to go home to thier native counries to die

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How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010

June 21, 2010

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June 21, 2010

International Association for Hospice and Palliative Care is a gift to the global healthcare community. They are extremely effective at connecting those in need of resources with those that have resources. As an organization they are aware of each countries public policy on death and dying, and pull together resources to advocate for change when needed. They maintain a well informed website that is continuously updated with worldwide provider lists, directories, resources, and educational materials. When funding is available, IAHPC will provide traveling scholarships for those healthcare professionals wanting to expand there education through conferences and educational materials that might not otherwise be able to afford it. They have earned and deserve support from those that can.

The Great!

I've personally experienced the results of this organization in...

International Healthcare Conference Hospice and Palliative Care in Developing Countries at UCSF Fresno, Fresno, CA USA

Ways to make it better...

If I had to make changes to this organization, I would...

Find ways to fund their staffing needs so that they could reach even more people.

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What I've enjoyed the most about my experience with this nonprofit is...

Their willingness to help. Every staff member you reach makes you feel like you are the most important person they have talked to that day. They are always willing to post upcoming healthcare events on their calendar.

The kinds of staff and volunteers that I met were...

Very knowledgeable about various countries lack of resources, wants and needs, and policies regarding death and dying. They are proactive in looking for potential solutions.

If this organization had 10 million bucks, it could...

Change negative worldviews of the need for hospice and palliative care to one of compassion.

Ways to make it better...

I didn't have to see them struggle and fight for healthcare reform contry by country, county by county, township by township, for the use of opiods in pallitive medicine.

In my opinion, the biggest challenges facing this organization are...

Lack of funding to get the resources to those in remote locations that have very few resouces.

One thing I'd also say is that...

As terminal diseases increase, Donations to IAHPC will make a difference by bringing long lasting positive change to end-of-life care in developing countries.

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2009

June 21, 2010

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June 21, 2010

While searching for hospice and palliative care information I found the IAHPC website. It has lots of very useful information and resources.

The Great!

I've personally experienced the results of this organization in...

I was seeking specific information on hospices around the world and found IAHPC's International Directory to be very useful.

Ways to make it better...

If I had to make changes to this organization, I would...

No changes keep up the good work you do.

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What I've enjoyed the most about my experience with this nonprofit is...

Easy to find information.

The kinds of staff and volunteers that I met were...

fantastic. They are all very dedicated.

If this organization had 10 million bucks, it could...

help hospice & palliative care around the world. The money would help to stop people suffering when dying and educate doctors in end-of-life care.

Ways to make it better...

Everything was just great!

In my opinion, the biggest challenges facing this organization are...

the need for donations.

One thing I'd also say is that...

Everyone is very dedicated at the IAHPC. They help many people around the world.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

June 21, 2010

more

June 21, 2010

The International Association for Hospices and Palliative Care has helped in Latinamerica and in my case in Colombia with the strengthening of Palliative Care. They have: 1. Support Workshops with The Ministry of Health and regulators to improve opioid availability, 2. Give finantial support to physicians,nurses, physicologist and diferent health profesionals to participate in educational courses in the country and in other countries. 3. Give finantial support to attend to International Congress where I adquired tools for my professional practice 4. They have a web page with information related with pallaitive care very useful for people in our country 5. Support for our work trying to improve laws and regulations in our country.

The Great!

I've personally experienced the results of this organization in...

Improve of opioid availability in my country. Palliative care law that is being discuss in the chamber of the Senate in Colombia. Support for the participation in International Congress. Improve educational courses for different professionals

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How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

June 21, 2010

more

June 21, 2010

I have been involved in palliative care for more than 20 years. During this time the challenges facing health professionals have grown in complexity and in scale. For those of us working in less developed countries, in addition to advanced cancer, end stage organ failure and progressive neurological diseases, we are now faced with HIV/AIDS and XDR TB. I have been inspired by the capacity of colleagues in the various national and international associations of hospice and palliative care to rise to these challenges. I have had the privilege of working with these colleagues in research, writing textbooks on palliative care, and more recently, participating in leadership training for physicians involved in palliative care. Without organisations such as IAHPC, we would have struggled to cope and may have given up trying to find ways to meet these challenges. I read the newsletter and review articles from IAHPC regularly every month. There is always something to learn from each edition. Many of the international associations in health care are inclined to focus on the needs and interests of North America and Europe. IAHPC is truly international in its activities and emphasis.

The Great!

I've personally experienced the results of this organization in...

As mentioned above: Collaboration in research, writing for textbooks and leadership training.

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How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

June 21, 2010

more

June 21, 2010

Website and e-mail alerts are very efficient in educating audience about issues of pain care and palliative care. Their special expertise is bringing an international focus to the subject. My understanding and viewpoint has been enhanced and broadened due to their efforts.

The Great!

I've personally experienced the results of this organization in...

I am an intractable pain patient with full body CRPS and other health issues. As I age, I know there will be complications with my end of life pain care. I want to be as educated and empowered as possible, and in touch with those who could help me.

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How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

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