ICAN, International Cancer Advocacy Network

Rating: 4.99 stars   140 reviews

Issues: Technology, Health, Philanthropy, Cancer

Location: ICAN Program Services (by appointment at our Metrocenter Phoenix offices) 27 West Morten Avenue Phoenix AZ 85021-7246 USA

Mission: ICAN provides Personalized Medicine Cancer Case Management Programs, through its customized patient advocacy services, to Stage IV patients who have been written off by their oncology teams. The organization specializes in complex and rare diagnoses, whether pediatric or adult cancers. ICAN, given years of experience with oncology issues and the anticancer drug pipeline, assists patients in the battle to extend life with high quality of life through physician referrals, cutting-edge information and advocacy services, clinical trials research, compassionate use analysis, molecular profiling services, and palliative care program services. ICAN has been profiled in Newsweek based on the still enduring complete remission of one of its breast cancer patients and in Pharmaceutical Executive Magazine (where ICAN was viewed as the exemplar of cancer patient advocacy--out of 5000 organizations to choose from). ICAN has also been featured in the Robert A. Nagourney, M.D.'s pivotal book "Outliving Cancer" and is featured in the upcoming biography of anticancer drug discoverer G. Robert Pettit, PhD (published in June 2015).
Results: When you are dealing with individual cancer patients and their specific cases, the metrics are extending time to progression and working toward disease-free survival. The question becomes "compared to what?" since no cancer patient is like any other cancer patient. The one metric that counts at ICAN is an overwhelming number of our patients, given the countless accolades we have received over the past 19 years, testify to ICAN's pivotal assistance in making a critical difference in life prolongation and quality of life issues. On the metric of "Was there a stone left unturned in the patient's journey with cancer?", our ICAN patients and their families resoundingly answer "No."
Target demographics: All ages, all socioeconomic backgrounds.
Direct beneficiaries per year: more than 1000 patient/spouse advocate/care partner/public inquiry cases at ICAN.
Geographic areas served: While we are headquartered in Phoenix/Scottsdale, we work throughout the USA and US territories; 53 countries worldwide
Programs: Our Personalized Medicine Cancer Case Management Programs and our Cancer Patient Advocacy and Clinical Trials Advocacy Programs--as well as ICAN's more than one hundred Named Programs (named by families in memory of or in honor of a loved one in the battle)--may be found on our website at http://askican.org
2015 Top-Rated Nonprofit
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EIN 86-0818253
602-618-0183
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Community Reviews

Rating: 5 stars  

Marcia Horn, and ICAN, as I have been told by my Father that they have been an amazing blessing for my Step-mom while she is battling canXer. She was diagnosed in July of 2013 with a breast malignancy, and Marcia has always been there for my day, as the care taker. No time of night was too late to reply to emails of worry that my dad had, and would quickly put his mind at ease. She has been a God send for my step-mom, and also for my dad. Thank you so much!!!!

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Role: General Member of the Public
Rating: 5 stars  

Marcia Horn, and ICAN, have been, probably my number one crutch in helping my wife and I make decisions while fighting this horrible disease. My wife was diagnosed in July of 2013 with a breast malignancy, and Marcia has always been there for me, as the care taker. Even after office hours she has always answered my emails and been so amazing with her information and help. Especially in the beginning she was so informative at a time when we were scared to death, not that we aren't still, but I was so lucky finding her and ICAN.

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1 previous review
Rating: 5 stars  

What a refreshing and helpful organization ICAN has turned out to be for me as care giver to my wife who was diagnosed with a malignancy in her breast this summer. Without knowing anything about this horrific disease, my wife and I didn't have a choice but to set out on a journey to fight and try to win each day in order to get her health back on track. ICAN has been like a beacon in the wilderness providing information, direction, and most of all positive energy to help us and give us hope as we
are now into the third month of what has been successful treatments. They came at a time when we needed friendship as well as knowledge about what we were facing.

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

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Rating: 5 stars  

I have several friends with different types of cancer. My first call on behalf of each friend goes to ICAN. Marcia Horn, executive director and co-founder, has an outstanding knowledge of worldwide resources and medical care to help with each particular type of cancer. She has surrounded herself with the best of the best and has steered me in the right direction each time. My friends can't believe the depth of understanding and specific information that ICAN provides. I have seen first-hand how ICAN has extended lives.

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

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Rating: 5 stars  

Throughout of my sister- law's fight with  lung cancer ICAN  was always there with her to explain thing that the doctors did not have time to explain. iCAN was there when ever critical decisions needed to be made. They were always there.   Jerry. Binder

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2011

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Role: General Member of the Public
Rating: 5 stars  

I moved to Phoenix in 2007 after being diagnosed with breat cancer & treated in New York back in 2005. In 2010 the cancer returned and not knowing many physicians here I turned to family for referrals. I was told to contact ICAN & spoke with a wonderful person who guided me with a plan of attack with many different doctors. If it were not for the generous help of great people I could not get through this.I am grateful to ICAN for all their assistance.

I've personally experienced the results of this organization in...

Physicians supplied for second opinions.

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2012

How did you learn about this organization?

Family member

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1 previous review
Rating: 5 stars  

When I was diagnosed with breast cancer for the second time I did not know where to turn for advice and referrals. I am new to the state of Arizona and was told about ICAN through a relative. I contacted Marcia Horn & she took hours on the phone & follow up e-mails helpiing me.
I am from New York and did not have the good fortune of having such a great service as ICAN; of course there were avenues to explore through the hospitals and breast cancer centers. It was left up to the individual to find good doctors.
What we need is a better recognition of ICAN nationwide to enhance the tools needed for helping people diagnosed with cancer.

I've personally experienced the results of this organization in...

Knowing I had someone to turn to for answers to ALL my questions.

If I had to make changes to this organization, I would...

Expand ICAN nationwide as a go to service for cancer patients.

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Role: General Member of the Public
Rating: 5 stars  

I found out about ICAN through their salon music programs.
I enjoyed listening to pianist, Ronald Jacobowitz, talk about the composers and their music and then play the best piano music I have heard.
While at the concerts I met other people interested in ICAN.
I volunteered for some office work working with delightful people .
In addition to my selfish pleasure of hearing the music I got a wonderful sense of satisfation when I was able to tell people with cancer about ICAN.
They always called back to tell me how wonderful , knowledgeable and empathetic Marcia Horn, the CEO of ICAN , was. She helped them through very trying times with sensitiviy and expertise.

I've personally experienced the results of this organization in...

The reports of people who have been helped by ICAN

If I had to make changes to this organization, I would...

Help them raise more money.

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

How did you learn about this organization?

Through the classical piano concerts that they sponsor.

When was your last experience with this nonprofit?

2011

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Rating: 4 stars  

What a great idea for a nonprofit...international advocacy for all cancer patients. I hope to learn more about you.

I've personally experienced the results of this organization in...

Not yet, but I hope to learn more

If I had to make changes to this organization, I would...

don't know

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Role: General Member of the Public
Rating: 5 stars  

My sister was a stage IV patient that was involved with ICAN. I can't even begin to tell anyone what a great resource this group was for her in her time of need. They not only helped us to interpet a multitude of medical information but also offered suggestions, alternative options and were able to give some idea of the effects of these treatments.
The ICAN team bent over backwards to be supportive in every way possible and really took a personal approach to my sisters care and well being!
I cannot thank them enough!

I've personally experienced the results of this organization in...

I was active in the support of my sisters care planning and helped to understand her options as her health declined.

If I had to make changes to this organization, I would...

If I as able I would donate more time and money so that they could offer more hope and assistance to those going through the battle of their lives.

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