ICAN, International Cancer Advocacy Network

Rating: 4.99 stars   153 reviews

Address:

ICAN Program Services (by appointment at our Metrocenter Phoenix offices) 27 West Morten Avenue Phoenix AZ 85021-7246 USA

Mission:

ICAN provides Personalized Medicine Cancer Case Management Programs, through its customized patient advocacy services, to Stage IV patients who have been written off by their oncology teams. The organization specializes in complex and rare diagnoses, whether pediatric or adult cancers. ICAN, given years of experience with oncology issues and the anticancer drug pipeline, assists patients in the battle to extend life with high quality of life through physician referrals, cutting-edge information and advocacy services, clinical trials research, compassionate use analysis, molecular profiling services, and palliative care program services. ICAN has been profiled in Newsweek based on the still enduring complete remission of one of its breast cancer patients and in Pharmaceutical Executive Magazine (where ICAN was viewed as the exemplar of cancer patient advocacy--out of 5000 organizations to choose from). ICAN has also been featured in the Robert A. Nagourney, M.D.'s pivotal book "Outliving Cancer" and is featured in the upcoming biography of anticancer drug discoverer G. Robert Pettit, PhD (published in June 2015).

Results:

When you are dealing with individual cancer patients and their specific cases, the metrics are extending time to progression and working toward disease-free survival. The question becomes "compared to what?" since no cancer patient is like any other cancer patient. The one metric that counts at ICAN is an overwhelming number of our patients, given the countless accolades we have received over the past 20 years, testify to ICAN's pivotal assistance in making a critical difference in life prolongation and quality of life issues. On the metric of "Was there a stone left unturned in the patient's journey with cancer?", our ICAN patients and their families resoundingly answer "No."

Target demographics:

All ages, all socioeconomic backgrounds.

Direct beneficiaries per year:

more than 1000 patient/spouse advocate/care partner/public inquiry cases at ICAN.

Geographic areas served:

While we are headquartered in Phoenix/Scottsdale, we work throughout Arizona; across the US and all territories; 53 countries worldwide

Programs:

Our Personalized Medicine Cancer Case Management Programs and our Cancer Patient Advocacy and Clinical Trials Advocacy Programs--as well as ICAN's more than one hundred Named Programs (named by families in memory of or in honor of a loved one in the battle)--may be found on our website at http://askican.org

2016 Top-Rated Nonprofit
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More Info

602-618-0183
http://www.askican.org/

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Reviews for ICAN, International Cancer Advocacy Network

Role: Professional with expertise in this field
Rating: 5 stars  

Marcia Horn and ICAN have helped so many patients navigate the oncology world by providing resources and time to get the best care in the country. They are able to get access to almost any provider and drug available if that is what it takes to help a patient. ICAN doesn't take No for an answer and provides hope for families that often feel they have no other help or resources by helping them empower themselves through the complicated world of oncology. They need as much funding as possible because it means more patients can stay alive and beat cancer.

 
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Role: Professional with expertise in this field
Rating: 5 stars  

ICAN needs more funding to be able to work for more patients!

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

When was your last experience with this nonprofit?

2016

 
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Role: Professional with expertise in this field
Rating: 5 stars  

ICAN is a fantastic resource for patients and a topnotch advocacy organization. I have referred patients to ICAN and they go above and beyond to assist patients in need of resources as they struggle with a cancer diagnosis regardless of the location of the patient. They are well versed in the latest research and clinical trials. They have resources far and wide around the country through their strong relationships with patient volunteers as well as medical and academic contacts. I will continue to refer patients in need to ICAN.

 
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Role: Professional with expertise in this field
Rating: 5 stars  

Amazing organization. I referred friend who had Stage 3 lung cancer. This is precision medicine as it was intended to be.

 
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Role: Professional with expertise in this field
Rating: 5 stars  

The staff is dedicated, patient centered, and continuously provides "above and beyond" individualized service.

 
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Role: Professional with expertise in this field
Rating: 5 stars  

I have been aware of ICAN for only the past few months, but I have been truly amazed by the quality and extent of the services this organization provides to cancer patients and their care givers/families. Marcia Horn is a tireless patient advocate who goes far beyond the extra yard to ensure that the patients who contact ICAN get not only the best information regarding treatment options for their particular cancer, but also assist them getting access to the best physicans to treat them. ICAN also is working hard on various legislative fronts to ensure patient safety by ensuring that patients and their physicians will know what medication they are receiving as new biosimilar medications begin arriving on the market in the future for the treament of various cancers. ICAN is also working to obtain further governmental funding for research on rare cancers such as sarcomas. I am glad that my wife introduced me to ICAN and look forward to supporting and working with this organization in the future.

 
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Role: Professional with expertise in this field
Rating: 5 stars  

My association with ICAN started five years ago when I joined as Web Research Intern, transitioned to Research Team Leader and now working as member of International Physicians Council. During my time at ICAN, I've been extremely impressed by the program's commitment towards health care and cancer research excellence. Personally, I feel so blessed and grateful to have known and worked with such fantastic team without whose dedication and commitment, the gargantuan task of cancer projects can't be completed.

Not only have I enjoy working with Regina (Director Research Services), I learnt the dynamics of effective team management. She has always stood by me and my team whenever we need her and smoothed many hitches by her unconditional hand of cooperation at all times. Her strong work ethic, uplifting spirit, and wonderful attitude makes her an asset for ICAN.

Another person whom I've really enjoy working is Michèle . She is a brilliant Citation Editor who painstakingly corrects every assignment that is sent her way . She has a remarkable ability to oversee a large project without losing sight of the little things.

Last but not the least, The dynamic and passionate leadership of Marcia makes this Non Profit stand out amongst others. I feel that Marcia is an exceptional leader and a genuinely good person. Not only she brings a keen intellect to all quarters of ICAN, she enhances the ICAN community with her worldliness and humanism.

Because though I have branched out higher, the roots have grown a bit more deeper .
As they say " Even the smallest act of caring for another person is like a drop of water -it will make ripples throughout the entire pond...”
I sincerely hope that our ICAN family ripples reach far and wide and make difference in lives of those in need.

 
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1 previous review
Rating: 5 stars  

ICAN has been a wonderful organization to work with. It truly celebrates diversity by bringing together people of different cultures, backgrounds and professions at crux of passion : of helping others. My journey with has been amazing as well as rewarding for ICAN helped me grow as a professional as well as person. Being a Research Team Leader,I had an opportunity to work closely with CEO, Marcia K Horn and Director Research Services, Regina Marie Klopfer. Found them thoroughly professional and always there to smooth the glitches for the team members. ICAN's deep commitment towards empowering late stage cancer patients with latest treatments and approaches speaks volumes for the kind of inspiring organization it is. Outstanding Patient care, high volunteer satisfaction and high professionalism makes ICAN a class apart

I strongly recommend and urge to support ICAN in any way you can. It definitely needs more funding so that even more patients can be helped!

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

When was your last experience with this nonprofit?

2013

 
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Role: Professional with expertise in this field
Rating: 5 stars  

I have been fortunate to work with so many dedicated volunteers over the last two years as part of ICAN’s Research Administration team. I think the most important attribute of ICAN is our quest to always have the timeliest up to date knowledge for doctors, medicines and procedures / trials matched to the patients and families we serve. Most all virtual volunteers rapidly adapt to their assignments from the instructional information we provide and become productive contributors within days of coming on board. The information collected from volunteers goes through a multi-tier process to ensure accuracy and relevance before ever reaching final output for dissemination.

If I had to make changes to this organization, I would...

Like to see more people with financial resources contribute towards patient causes.

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

When was your last experience with this nonprofit?

2013

 
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Role: Professional with expertise in this field
Rating: 5 stars  

I've been working with ICAN volunteers for about a year and been blown away by the level of commitment of not only the volunteers but the staff as well. All the volunteers questions are quickly resolved allowing the volunteers to focus on their work to help as many patients as possible.

If I had to make changes to this organization, I would...

Increased funding would allow the org to reach many more patients.

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

When was your last experience with this nonprofit?

2013

 
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Role: Professional with expertise in this field
Rating: 5 stars  

I have volunteered for ICAN for almost a year. I considered it to be one of the most serious, well organized and truly devoted to patient care cancer organizations I have had the pleasure to work with. As an MD., I consider my time to be valuable, therefore I'm really thorough about where I spend my free time at. ICAN provides volunteering options for all kinds of professionals as well as accommodating to all types of schedules.

If I had to make changes to this organization, I would...

Work on the public relations area, since I know there are a lot of serious committed professionals that are willing to dedicate part of their free time to volunteer, however they are worried about the responsibilities and the time that it may take.

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

A lot

Will you recommend this organization to others?

Definitely

When was your last experience with this nonprofit?

2013

 
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