ICAN, International Cancer Advocacy Network

Rating: 4.99 stars   124 reviews

Issues: Philanthropy, Cancer

Location: ICAN Program Services 27 West Morten Avenue Phoenix AZ 85021-7246 USA

Mission: ICAN provides Personalized Medicine Cancer Case Management Programs, through its customized patient advocacy services to Stage IV patients who have been written off by their oncology teams. The organization specializes in complex and rare diagnoses, whether pediatric or adult cancers. ICAN, given years of experience with oncology issues and the anticancer drug pipeline, assists patients in the battle to extend life with high quality of life through physician referrals, cutting-edge information and advocacy services, clinical trials research, compassionate use analysis, and palliative care program services.
Results: When you are dealing with individual cancer patients and their specific cases, the metrics are extending time to progression and working toward disease-free survival. The question becomes "compared to what?" since no cancer patient is like any other cancer patient. The one metric that counts at ICAN is an overwhelming number of our patients, given the countless accolades we have received over the past 15 years, testify to ICAN's pivotal assistance in making a critical difference in life prolongation and quality of life issues.
Target demographics: All ages, all socioeconomic backgrounds.
Direct beneficiaries per year: more than 1000 patient/spouse advocate/caregiver/public inquiry cases at ICAN.
Geographic areas served: USA and Abroad
Programs: Our Personalized Medicine Cancer Case Management Programs and our Cancer Patient Advocacy and Clinical Trials Advocacy Programs--as well as ICAN's more than one hundred Named Programs (named by families in memory of or in honor of a loved one in the battle)--may be found on our website at http://askican.org
2014 Top-Rated Nonprofit
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EIN 86-0818253
602-618-0183
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Community Reviews

Rating: 5 stars  

It is comforting to have an independent viewpoint and a resource to get questions answered. This organization does this with such compassion. Amazing. Thank you for all that you do. You touch the lives of so many people. We are so very grateful.

I've personally experienced the results of this organization in...

Getting questions answered

If I had to make changes to this organization, I would...

none!

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Rating: 5 stars  

Ican and Marcia Horn are a unknown blessing that more people should know about when it comes to health needs. We have turned to Marcia Horn two different times for help. She will bend over backwards to help you 24/7, whether at work or at home. She has a knowledge of the best professionals and doctors in the Phoenix area for all health situations.
Our two particular situations were MRSA and Drug INTERACTION, she was there for us on both cases and very helpful. Sondburgs

I've personally experienced the results of this organization in...

In following their expert advice.

If I had to make changes to this organization, I would...

Only promote it to more people who might need the same help that we received.

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Rating: 5 stars  

ICAN and Marcia Horn have been the first place our family has turned to in several critical health situations. Marcia is amazing with her knowledge of Dr's and specialists for every medical situation that we have had to deal with. She has helped our son find one of the best Pedicatric Gastrointerologist in the nation to help him with his medical condition, pointed us in right direction when our Father was in a burn unit from an explotion, was one of the first to realize and help us when a family member was in intensive care and had sepsis and helped us in so many other instances. We can't say enough about ICAN and personally don't know what we would have done without Marcia and her kindness to always help us. She has been there for us and helped us at any hour and we feel blessed to have someone like Marcia and ICAN that we can turn to. Paula Shapiro

I've personally experienced the results of this organization in...

the way it has helped our family in many medical situations

If I had to make changes to this organization, I would...

I can only hope that they can receive more money so that they can take their advocay services to even more patients.

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Rating: 5 stars  

I am an unusual reviewer for any nonprofit because I have worn virtually every hat that one can wear in any nonprofit organization.
I started out as a volunteer for ICAN (its former name was IFADD) in 1996 and volunteered at all of the special events that ICAN has held since.
My wife and I became vendors and donors of ICAN and sold art at various ICAN events.
I have also served on the staff and in senior positions on the IFADD/ICAN boards. I never dreamed that I would be an actual patient
of the organization's, but I became a patient in 2006 when I was diagnosed with pancreatic cancer. ICAN was the only member of my team
that predicted I would have pancreatic cancer based on their review of the biopsy findings which had been inconclusive to everyone except ICAN which understood right away the significance of some of the findings. Everyone else thought there might be a structural problem but no cancer. So ICAN, by urging me to get surgery as soon as possible, saved my life. They saved my life again when I recurred with thoracic metastases and counseled surgery.
I remain disease-free thanks to ICAN's constant advocacy services, life-saving information, and moral support throughout.
I have been a pancreatic cancer survivor for six years as of next month.
At every step on my journey, at every turning point, I have been able to rely on the no-holds-barred advocacy services of ICAN.
I have seen up close how this organization wastes nothing and operates on a shoestring yet produces more work than organizations with tens of millions of dollars in the bank. I have seen how ICAN staff with total devotion concentrate on Patient Services, morning, noon, and night, with a work ethic
and a level of productivity that would astound any observer and which leave all other nonprofit organizations frankly in the dust.
If you support any cancer organization, and if you support the strongest possible War on Cancer, I urge you, on behalf of patients like myself, to support this Great Nonprofit. If there is any organization that can help get the majority of cancer patients into stable disease or partial or complete remission, it is ICAN, and they can also help you achieve the highest possible quality of life. I have seen ICAN from every possible vantage point: from the Patient side, the Board Governance side, the Staff side, the Volunteer side, the Vendor/Donor/Supplier side, and this is a nonprofit that operates with the highest integrity and the highest possible productivity and results-oriented and highly energized work environment. This is a very exciting cancer organization to support and to see grow to the next level of accomplishment. Please join me by generously donating what you can and by remaining a donor year after year.

I've personally experienced the results of this organization in...

I've personally experienced the results of this organization in treating my ilness

If I had to make changes to this organization, I would...

Bring in more resources so ICAN can help more people

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Rating: 5 stars  

Wow! Talk about being available, compassionate, informative, and a ray of sunshine during a dark hour! Thank you for the blessing of your thoughts, ideas, and resources for my family and me.
Nancy Adam

I've personally experienced the results of this organization in...

Accessiblity to information and resources, guidance to effective care and treatment, and "I CAN" solutions.

If I had to make changes to this organization, I would...

Help find more sources of funding so more people can be served.

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Rating: 5 stars  

ICAN WAS EXTREMELY HELPFUL TO ME AND MY FAMILY DURING OUR DIFFICULT TIME WITH CANCER. THE GREATEST ACCOLADE I CAN GIVE IS THAT ICAN IS ALWAYS AVAILABLE TO HELP.

I've personally experienced the results of this organization in...

I HAVE CALLED MANY TIMES FOR DOCTOR REFERENCES AND FOR DIAGNOSES INFORMATION AND THEY WERE AVAILABLE AND EXTREMELY HELPFUL.

If I had to make changes to this organization, I would...

NONE

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Rating: 5 stars  

ICAN 's willingness and ability to assist cancer patients who are in dire situations is absolutely amazing. Marcia Horn , the head of ICAN, has provided extensive support to two of my dear friends, one of whom has mutiple myeloma, and another with head and neck cancer. In both cases, she has used her research expertise and vast knowledge of medical facilities and physicians who are top-notch innovators in their fields to provide my friends with detailed, relevant, and urgently needed information on seeking the best treatment for their cancer. In addition, she has been an advocate when they needed an assertive, knowlegable ally in order to receive prompt, appropriate care. Marcia Horn and ICAN are priceless! They have prolonged the lives of these patients while allowing them to maintain a quality of life that has permitted each of them to achieve a few more of their life goals and fulfill dreams they had believed were impossible after the diagnosis of cancer.

I've personally experienced the results of this organization in...

providing compassionate asssistance and advice on how to quickly find cutting-edge treatment for people suffering from late-stage cancers.

If I had to make changes to this organization, I would...

None! But I know that this nonprofit depends on contributions from charitable people, so I hope it receives the funding it truly deserves.

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Rating: 5 stars  

I am absolutely amazed with Marcia Horn and ICAN. My husband is in a late stage of Melanoma skin cancer and is currently going through treatment. We could not have felt more comfortable with the treatment options given to us if it wasn't for Marcia and her team. She is so quick to respond to questions and concerns we have and immediately makes us feel more comfortable about navigating through this deadly disease. I highly recommend ICAN to all cancer patients.

I've personally experienced the results of this organization in...

My husband has received an immense amount of information on the care and treatment of melanoma from Marcia Horn and her organization

If I had to make changes to this organization, I would...

Make this organization available to ALL cancer patients. It is needed all across the country.

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Rating: 5 stars  

Five years ago I was diagnosed with breast cancer and as often occurs encountered a number of difficulties. I was not sure what direction to take but knew it is important to learn and take initiative as said in Sun Tzu.
"In difficult ground, press on.
In encircled ground, devise stratagems.
In death ground, fight."

I am happy to say that with ICAN, an amazing organization, and with the great resources and assistance from Marcia Horn, the cancer has not returned! Marcia Horn was my expert in defining an amazing oncologist and other areas of direction. I offer my appreciation to her and ICAN and hope that we will never lose their support and direction.

I've personally experienced the results of this organization in...

An oncologist, research areas, assistance in cancer concerns that arrived and other support.

If I had to make changes to this organization, I would...

None. ICAN is a great support for support and direction.

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Rating: 5 stars  

Dear all, I have contacted ICAN and Marcia Horn a few months ago when we found that my mother has lung cancer. The next day Marcia wrote me an email with many usefull information I could use about the treatment options, analysis, doctors etc. Ever since, I know I can contact Marcia and Ican for any questions I might have and receive a few hours later the answers I needed. Their activity is really amazing and a real help for us.
Thank you so much for everything you do for the patients and their family!

I've personally experienced the results of this organization in...

My mothers treatment.

If I had to make changes to this organization, I would...

Expend thier activity in countries all over the world, including Romania.

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