Ican, International Cancer Advocacy Network

Rating: 4.99 stars   140 reviews

Issues: Technology, Health, Philanthropy, Cancer

Location: ICAN Program Services (by appointment at our Metrocenter Phoenix offices) 27 West Morten Avenue Phoenix AZ 85021-7246 USA

Mission: ICAN provides Personalized Medicine Cancer Case Management Programs, through its customized patient advocacy services, to Stage IV patients who have been written off by their oncology teams. The organization specializes in complex and rare diagnoses, whether pediatric or adult cancers. ICAN, given years of experience with oncology issues and the anticancer drug pipeline, assists patients in the battle to extend life with high quality of life through physician referrals, cutting-edge information and advocacy services, clinical trials research, compassionate use analysis, molecular profiling services, and palliative care program services. ICAN has been profiled in Newsweek based on the still enduring complete remission of one of its breast cancer patients and in Pharmaceutical Executive Magazine (where ICAN was viewed as the exemplar of cancer patient advocacy--out of 5000 organizations to choose from). ICAN has also been featured in the Robert A. Nagourney, M.D.'s pivotal book "Outliving Cancer" and is featured in the upcoming biography of anticancer drug discoverer G. Robert Pettit, PhD (published in June 2015).
Results: When you are dealing with individual cancer patients and their specific cases, the metrics are extending time to progression and working toward disease-free survival. The question becomes "compared to what?" since no cancer patient is like any other cancer patient. The one metric that counts at ICAN is an overwhelming number of our patients, given the countless accolades we have received over the past 19 years, testify to ICAN's pivotal assistance in making a critical difference in life prolongation and quality of life issues. On the metric of "Was there a stone left unturned in the patient's journey with cancer?", our ICAN patients and their families resoundingly answer "No."
Target demographics: All ages, all socioeconomic backgrounds.
Direct beneficiaries per year: more than 1000 patient/spouse advocate/care partner/public inquiry cases at ICAN.
Geographic areas served: While we are headquartered in Phoenix/Scottsdale, we work throughout the USA and US territories; 53 countries worldwide
Programs: Our Personalized Medicine Cancer Case Management Programs and our Cancer Patient Advocacy and Clinical Trials Advocacy Programs--as well as ICAN's more than one hundred Named Programs (named by families in memory of or in honor of a loved one in the battle)--may be found on our website at http://askican.org
2015 Top-Rated Nonprofit
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EIN 86-0818253
602-618-0183
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Community Reviews

Rating: 5 stars  

My experience with ICAN has kept me sane about a diagnosis that can send one spinning down a black hole because you are totally ignorant when you are first given such diagnosis. You do not think of breast cancer as coming to live with you and when it happens, it is a 24 hour nightmare from which you cannot wake up. Thanks to ICAN I was able to focus on what had to be done. The kind tone of an understanding voice that had answer after answer for me and my family has made the breast cancer diagnosis be what it is. We have faced it, we are working through it, and thanks to ICAN and its guidence, we have our lives back under control. Thank you, Marcia.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

 
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Rating: 5 stars  

ICAN advocates do great work for breast cancer patients! Helpful in all fields, caring, encouraging and information.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2011

 
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Rating: 5 stars  

I was diagnosed with Malignant Melanoma in January 2011 and underwent a full node removal under the arm in February. During the recovery period I was faced with many options regarding which clinical trial I could partake in, this is where I was introduced to the ICAN service. From the moment I contacted them I knew I was speaking to a team of people that really did understand what I was going through and the many decisions I was faced with. ICAN provided me with the most up to date research and analysis and we discussed many different options. Their guidance was 1st class and gave me the reassurance that I was so much in need of.

I wouldnt hesitate to recommend the services of ICAN, they really do put the client/patient first with the care an attention that is so greatly needed when dealing with Cancer.

I've personally experienced the results of this organization in...

Yes, I received excellent help and advice from ICAN, and receive invaluable medical updates as soon as they become available.

If I had to make changes to this organization, I would...

Help find a way of raising much needed funds to allow ICAN to help more people deal with their illness.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

Via a close friend

What, if any, change in your life has this group encouraged?

My chosen path of medical treatment

When was your last experience with this nonprofit?

2011

 
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Rating: 5 stars  

I found the “The International Cancer Advocacy Network (ICAN)” when I was first diagnosed with Stage 4 Melanoma. My doctors gave me 6-9 months to live and offered me palliative treatment. No one even mentioned clinical trials. In my desperation I searched for my own treatments and found Marcia at ICAN. Together ICAN assisted me in connecting to trials, and on some occasions even telephoning them to find out why it was taking so long to get back to me. ICAN knows time is precious and we don't have time to waste waiting....
ICAN also assisted me in researching and finding the most recent immunotherapy/drugs available, researched types of surgeries and pushed me to move forward in times I faltered. I needed support and they provided that, as professionals and as friends I could rely on in my times of distress. I am currently diagnosed as stage 4 melanoma and NED (No Evidence of Disease). I have been NED for 15 months. In June 2009 I was told I would be dead in 6-9 months...ICAN helped me make the life altering decisions that I can honestly say gave me life! I'm still standing and I am still here!!

I've personally experienced the results of this organization in...

finding the resources I needed.

If I had to make changes to this organization, I would...

I would like to see ICAN receive national funding.

 
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Role: General Member of the Public
Rating: 5 stars  

I moved to Phoenix in 2007 after being diagnosed with breat cancer & treated in New York back in 2005. In 2010 the cancer returned and not knowing many physicians here I turned to family for referrals. I was told to contact ICAN & spoke with a wonderful person who guided me with a plan of attack with many different doctors. If it were not for the generous help of great people I could not get through this.I am grateful to ICAN for all their assistance.

I've personally experienced the results of this organization in...

Physicians supplied for second opinions.

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2012

How did you learn about this organization?

Family member

 
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1 previous review
Rating: 5 stars  

When I was diagnosed with breast cancer for the second time I did not know where to turn for advice and referrals. I am new to the state of Arizona and was told about ICAN through a relative. I contacted Marcia Horn & she took hours on the phone & follow up e-mails helpiing me.
I am from New York and did not have the good fortune of having such a great service as ICAN; of course there were avenues to explore through the hospitals and breast cancer centers. It was left up to the individual to find good doctors.
What we need is a better recognition of ICAN nationwide to enhance the tools needed for helping people diagnosed with cancer.

I've personally experienced the results of this organization in...

Knowing I had someone to turn to for answers to ALL my questions.

If I had to make changes to this organization, I would...

Expand ICAN nationwide as a go to service for cancer patients.

 
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Rating: 5 stars  

I was diagnosed with two cases of Cancer simultaneously: Melanoma & Esophageal.

ICAN connected me with a MOHS (I never before even heard of MOHS) surgeon who removed the Melanoma. Now, unless I point it out, no one even sees the scar on the middle of my forehead.

ICAN connected me with a Medical Oncologist and a Radiation Oncologist.

Now, quarterly PET/CAT & Endoscopy find no evidence of Cancer in my esophagus!

I've personally experienced the results of this organization in...

I'd get a phone call from ICAN telling me to be at a particular Doctor's office tomorrow at 10:30. Later that day, I'd get a call telling me to be at another Doctor's office at 2:30. I was actually driving between two Doctor's offices, when my cell phone rang with a third Doctor's office confirming my appointment for the following day!

If I had to make changes to this organization, I would...

If I had to make changes to ICAN, I would make it bigger so that they could handle a larger patient load.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2011

 
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Rating: 5 stars  

Marcia & ICAN were extremely instrumental in assisting my sister who had stage four lung cancer. Marcia is considered to be a hero to our family! She gave my sister direction & hope during her final year of life. Words cannot express the gratitude we feel for ICAN & Marcia. My sister was so happy to be involved with such a great organization.

I've personally experienced the results of this organization in...

ICAN & Marcia assisting with finding support & doctors to assist my sister in her greatest time of need.

If I had to make changes to this organization, I would...

Provide ICAN services to even more stage four cancer patients!

 
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Rating: 5 stars  

When my Dad was diagnosed with amyloidosis, we didn't know where to go for information because it is so rare. We were referred to Marcia,
who was wonderful about providing insight into the technical aspects of
the disease and confirmation that we were proceeding with the proper treatment.

I've personally experienced the results of this organization in...

We were able to make medical decisions because we had accurate information at a very emotional time.

If I had to make changes to this organization, I would...

I would love for iCAN to have a higher profile to enable them to help more people!

 
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Rating: 5 stars  

I DON'T KNOW WHAT WE WOULD HAVE DONE WITH THE HELP AND COMPASSION WE RECEIVED FROM MARCIA HORN AND ICAN!!! WE WERE IN CRISIS MODE WHEN WE RECEIVED OUR DIAGNOSIS AND MARCIA WAS AMAZING...SHE WAS ABLE TO INFORM US AND GET INFORMATION TO OUR FAMILY THAT HELPED US GET THROUGH A VERY DIFFICULT AND EMOTIONAL TIME....ICAN NEEDS TO BE RECOGNIZED FOR ALL THE GOOD THEY DO FOR FOLKS LIKE US. HOPEFULLY THEY WILL RECEIVE THE DONATIONS THEY NEED TO REACH EVEN MORE FOLKS IN NEED OF THEIR SERVICES!

I've personally experienced the results of this organization in...

VALUABLE INFORMATION ON WHAT TO DO AND WHERE TO TURN AFTER THE HORRIBLE DIAGNOSIS OF CANCER!

If I had to make changes to this organization, I would...

THEY NEED ALL THE DONATIONS AVAILABLE TO HELP ICAN REACH EVEN MORE FOLKS IN NEED OF THEIR SERVICES! MARCIA HORN IS AMAZING!!!

 
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Rating: 5 stars  

It is comforting to have an independent viewpoint and a resource to get questions answered. This organization does this with such compassion. Amazing. Thank you for all that you do. You touch the lives of so many people. We are so very grateful.

I've personally experienced the results of this organization in...

Getting questions answered

If I had to make changes to this organization, I would...

none!

 
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