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June 30, 2011

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June 30, 2011

I found the “The International Cancer Advocacy Network (ICAN)” when I was first diagnosed with Stage 4 Melanoma. My doctors gave me 6-9 months to live and offered me palliative treatment. No one even mentioned clinical trials. In my desperation I searched for my own treatments and found Marcia at ICAN. Together ICAN assisted me in connecting to trials, and on some occasions even telephoning them to find out why it was taking so long to get back to me. ICAN knows time is precious and we don't have time to waste waiting....
ICAN also assisted me in researching and finding the most recent immunotherapy/drugs available, researched types of surgeries and pushed me to move forward in times I faltered. I needed support and they provided that, as professionals and as friends I could rely on in my times of distress. I am currently diagnosed as stage 4 melanoma and NED (No Evidence of Disease). I have been NED for 15 months. In June 2009 I was told I would be dead in 6-9 months...ICAN helped me make the life altering decisions that I can honestly say gave me life! I'm still standing and I am still here!!

The Great!

I've personally experienced the results of this organization in...

finding the resources I needed.

Ways to make it better...

If I had to make changes to this organization, I would...

I would like to see ICAN receive national funding.

February 29, 2012

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1 previous review
June 30, 2011

When I was diagnosed with breast cancer for the second time I did not know where to turn for advice and referrals. I am new to the state of Arizona and was told about ICAN through a relative. I contac... more

February 29, 2012

I moved to Phoenix in 2007 after being diagnosed with breat cancer & treated in New York back in 2005. In 2010 the cancer returned and not knowing many physicians here I turned to family for referrals. I was told to contact ICAN & spoke with a wonderful person who guided me with a plan of attack with many different doctors. If it were not for the generous help of great people I could not get through this.I am grateful to ICAN for all their assistance.

The Great!

I've personally experienced the results of this organization in...

Physicians supplied for second opinions.

More feedback...

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2012

How did you learn about this organization?

Family member

June 30, 2011

When I was diagnosed with breast cancer for the second time I did not know where to turn for advice and referrals. I am new to the state of Arizona and was told about ICAN through a relative. I contacted Marcia Horn & she took hours on the phone & follow up e-mails helpiing me.
I am from New
York and did not have the good fortune of having such a great service as ICAN; of course there were avenues to explore through the hospitals and breast cancer centers. It was left up to the individual to find good doctors.
What we need is a better recognition of ICAN nationwide to enhance the tools needed for helping people diagnosed with cancer.

The Great!

I've personally experienced the results of this organization in...

Knowing I had someone to turn to for answers to ALL my questions.

Ways to make it better...

If I had to make changes to this organization, I would...

Expand ICAN nationwide as a go to service for cancer patients.

June 30, 2011

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June 30, 2011

I was diagnosed with two cases of Cancer simultaneously: Melanoma & Esophageal.

ICAN connected me with a MOHS (I never before even heard of MOHS) surgeon who removed the Melanoma. Now, unless I point it out, no one even sees the scar on the middle of my forehead.

ICAN connected
me with a Medical Oncologist and a Radiation Oncologist.

Now, quarterly PET/CAT & Endoscopy find no evidence of Cancer in my esophagus!

The Great!

I've personally experienced the results of this organization in...

I'd get a phone call from ICAN telling me to be at a particular Doctor's office tomorrow at 10:30. Later that day, I'd get a call telling me to be at another Doctor's office at 2:30. I was actually driving between two Doctor's offices, when my cell phone rang with a third Doctor's office confirming my appointment for the following day!

Ways to make it better...

If I had to make changes to this organization, I would...

If I had to make changes to ICAN, I would make it bigger so that they could handle a larger patient load.

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2011

June 30, 2011

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June 30, 2011

Marcia & ICAN were extremely instrumental in assisting my sister who had stage four lung cancer. Marcia is considered to be a hero to our family! She gave my sister direction & hope during her final year of life. Words cannot express the gratitude we feel for ICAN & Marcia. My sister was so happy to be involved with such a great organization.

The Great!

I've personally experienced the results of this organization in...

ICAN & Marcia assisting with finding support & doctors to assist my sister in her greatest time of need.

Ways to make it better...

If I had to make changes to this organization, I would...

Provide ICAN services to even more stage four cancer patients!

June 30, 2011

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June 30, 2011

When my Dad was diagnosed with amyloidosis, we didn't know where to go for information because it is so rare. We were referred to Marcia,
who was wonderful about providing insight into the technical aspects of
the disease and confirmation that we were proceeding with the proper treatment.

The Great!

I've personally experienced the results of this organization in...

We were able to make medical decisions because we had accurate information at a very emotional time.

Ways to make it better...

If I had to make changes to this organization, I would...

I would love for iCAN to have a higher profile to enable them to help more people!

June 30, 2011

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June 30, 2011

I DON'T KNOW WHAT WE WOULD HAVE DONE WITH THE HELP AND COMPASSION WE RECEIVED FROM MARCIA HORN AND ICAN!!! WE WERE IN CRISIS MODE WHEN WE RECEIVED OUR DIAGNOSIS AND MARCIA WAS AMAZING...SHE WAS ABLE TO INFORM US AND GET INFORMATION TO OUR FAMILY THAT HELPED US GET THROUGH A VERY DIFFICULT AND EMOTIONAL TIME....ICAN NEEDS TO BE RECOGNIZED FOR ALL THE GOOD THEY DO FOR FOLKS LIKE US. HOPEFULLY THEY WILL RECEIVE THE DONATIONS THEY NEED TO REACH EVEN MORE FOLKS IN NEED OF THEIR SERVICES!

The Great!

I've personally experienced the results of this organization in...

VALUABLE INFORMATION ON WHAT TO DO AND WHERE TO TURN AFTER THE HORRIBLE DIAGNOSIS OF CANCER!

Ways to make it better...

If I had to make changes to this organization, I would...

THEY NEED ALL THE DONATIONS AVAILABLE TO HELP ICAN REACH EVEN MORE FOLKS IN NEED OF THEIR SERVICES! MARCIA HORN IS AMAZING!!!

June 30, 2011

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June 30, 2011

It is comforting to have an independent viewpoint and a resource to get questions answered. This organization does this with such compassion. Amazing. Thank you for all that you do. You touch the lives of so many people. We are so very grateful.

The Great!

I've personally experienced the results of this organization in...

Getting questions answered

Ways to make it better...

If I had to make changes to this organization, I would...

none!

June 29, 2011

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June 29, 2011

Ican and Marcia Horn are a unknown blessing that more people should know about when it comes to health needs. We have turned to Marcia Horn two different times for help. She will bend over backwards to help you 24/7, whether at work or at home. She has a knowledge of the best professionals and doctors in the Phoenix area for all health situations.
Our two particular situations were MRSA and Drug INTERACTION, she was there for us on both cases and very helpful. Sondburgs

The Great!

I've personally experienced the results of this organization in...

In following their expert advice.

Ways to make it better...

If I had to make changes to this organization, I would...

Only promote it to more people who might need the same help that we received.

June 29, 2011

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June 29, 2011

ICAN and Marcia Horn have been the first place our family has turned to in several critical health situations. Marcia is amazing with her knowledge of Dr's and specialists for every medical situation that we have had to deal with. She has helped our son find one of the best Pedicatric Gastrointerologist in the nation to help him with his medical condition, pointed us in right direction when our Father was in a burn unit from an explotion, was one of the first to realize and help us when a family member was in intensive care and had sepsis and helped us in so many other instances. We can't say enough about ICAN and personally don't know what we would have done without Marcia and her kindness to always help us. She has been there for us and helped us at any hour and we feel blessed to have someone like Marcia and ICAN that we can turn to. Paula Shapiro

The Great!

I've personally experienced the results of this organization in...

the way it has helped our family in many medical situations

Ways to make it better...

If I had to make changes to this organization, I would...

I can only hope that they can receive more money so that they can take their advocay services to even more patients.

June 29, 2011

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June 29, 2011

I am an unusual reviewer for any nonprofit because I have worn virtually every hat that one can wear in any nonprofit organization.
I started out as a volunteer for ICAN (its former name was IFADD) in 1996 and volunteered at all of the special events that ICAN has held since.
My wife and I
became vendors and donors of ICAN and sold art at various ICAN events.
I have also served on the staff and in senior positions on the IFADD/ICAN boards. I never dreamed that I would be an actual patient
of the organization's, but I became a patient in 2006 when I was diagnosed with pancreatic cancer. ICAN was the only member of my team
that predicted I would have pancreatic cancer based on their review of the biopsy findings which had been inconclusive to everyone except ICAN which understood right away the significance of some of the findings. Everyone else thought there might be a structural problem but no cancer. So ICAN, by urging me to get surgery as soon as possible, saved my life. They saved my life again when I recurred with thoracic metastases and counseled surgery.
I remain disease-free thanks to ICAN's constant advocacy services, life-saving information, and moral support throughout.
I have been a pancreatic cancer survivor for six years as of next month.
At every step on my journey, at every turning point, I have been able to rely on the no-holds-barred advocacy services of ICAN.
I have seen up close how this organization wastes nothing and operates on a shoestring yet produces more work than organizations with tens of millions of dollars in the bank. I have seen how ICAN staff with total devotion concentrate on Patient Services, morning, noon, and night, with a work ethic
and a level of productivity that would astound any observer and which leave all other nonprofit organizations frankly in the dust.
If you support any cancer organization, and if you support the strongest possible War on Cancer, I urge you, on behalf of patients like myself, to support this Great Nonprofit. If there is any organization that can help get the majority of cancer patients into stable disease or partial or complete remission, it is ICAN, and they can also help you achieve the highest possible quality of life. I have seen ICAN from every possible vantage point: from the Patient side, the Board Governance side, the Staff side, the Volunteer side, the Vendor/Donor/Supplier side, and this is a nonprofit that operates with the highest integrity and the highest possible productivity and results-oriented and highly energized work environment. This is a very exciting cancer organization to support and to see grow to the next level of accomplishment. Please join me by generously donating what you can and by remaining a donor year after year.

The Great!

I've personally experienced the results of this organization in...

I've personally experienced the results of this organization in treating my ilness

Ways to make it better...

If I had to make changes to this organization, I would...

Bring in more resources so ICAN can help more people

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Join one of our literature updating teams if you like Web research OR join our Trash and Treasures (garage sales) project and help recruit items for our next sale. Volunteer