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124 Reviews
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February 29, 2012

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February 29, 2012

My wife has Stage IV Metastatic Breast Cancer. It can be quite a challenge to figure out the best approach to take in dealing with it. Marcia at ICAN has been very helpful. We informed her with what procedures, drugs and doctors we were using, then advised and encourage us on what we could do further.

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How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

February 29, 2012

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February 29, 2012

My experience with ICAN has kept me sane about a diagnosis that can send one spinning down a black hole because you are totally ignorant when you are first given such diagnosis. You do not think of breast cancer as coming to live with you and when it happens, it is a 24 hour nightmare from which you cannot wake up. Thanks to ICAN I was able to focus on what had to be done. The kind tone of an understanding voice that had answer after answer for me and my family has made the breast cancer diagnosis be what it is. We have faced it, we are working through it, and thanks to ICAN and its guidence, we have our lives back under control. Thank you, Marcia.

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How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

February 28, 2012

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February 28, 2012

ICAN advocates do great work for breast cancer patients! Helpful in all fields, caring, encouraging and information.

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2011

June 30, 2011

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June 30, 2011

I was diagnosed with Malignant Melanoma in January 2011 and underwent a full node removal under the arm in February. During the recovery period I was faced with many options regarding which clinical trial I could partake in, this is where I was introduced to the ICAN service. From the moment I contacted them I knew I was speaking to a team of people that really did understand what I was going through and the many decisions I was faced with. ICAN provided me with the most up to date research and analysis and we discussed many different options. Their guidance was 1st class and gave me the reassurance that I was so much in need of.

I wouldnt hesitate to recommend the services of ICAN, they really do put the client/patient first with the care an attention that is so greatly needed when dealing with Cancer.

The Great!

I've personally experienced the results of this organization in...

Yes, I received excellent help and advice from ICAN, and receive invaluable medical updates as soon as they become available.

Ways to make it better...

If I had to make changes to this organization, I would...

Help find a way of raising much needed funds to allow ICAN to help more people deal with their illness.

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

Via a close friend

What, if any, change in your life has this group encouraged?

My chosen path of medical treatment

When was your last experience with this nonprofit?

2011

June 30, 2011

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June 30, 2011

I found the “The International Cancer Advocacy Network (ICAN)” when I was first diagnosed with Stage 4 Melanoma. My doctors gave me 6-9 months to live and offered me palliative treatment. No one even mentioned clinical trials. In my desperation I searched for my own treatments and found Marcia at ICAN. Together ICAN assisted me in connecting to trials, and on some occasions even telephoning them to find out why it was taking so long to get back to me. ICAN knows time is precious and we don't have time to waste waiting....
ICAN also assisted me in researching and finding the most recent immunotherapy/drugs available, researched types of surgeries and pushed me to move forward in times I faltered. I needed support and they provided that, as professionals and as friends I could rely on in my times of distress. I am currently diagnosed as stage 4 melanoma and NED (No Evidence of Disease). I have been NED for 15 months. In June 2009 I was told I would be dead in 6-9 months...ICAN helped me make the life altering decisions that I can honestly say gave me life! I'm still standing and I am still here!!

The Great!

I've personally experienced the results of this organization in...

finding the resources I needed.

Ways to make it better...

If I had to make changes to this organization, I would...

I would like to see ICAN receive national funding.

February 29, 2012

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1 previous review
June 30, 2011

When I was diagnosed with breast cancer for the second time I did not know where to turn for advice and referrals. I am new to the state of Arizona and was told about ICAN through a relative. I contac... more

February 29, 2012

I moved to Phoenix in 2007 after being diagnosed with breat cancer & treated in New York back in 2005. In 2010 the cancer returned and not knowing many physicians here I turned to family for referrals. I was told to contact ICAN & spoke with a wonderful person who guided me with a plan of attack with many different doctors. If it were not for the generous help of great people I could not get through this.I am grateful to ICAN for all their assistance.

The Great!

I've personally experienced the results of this organization in...

Physicians supplied for second opinions.

More feedback...

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2012

How did you learn about this organization?

Family member

June 30, 2011

When I was diagnosed with breast cancer for the second time I did not know where to turn for advice and referrals. I am new to the state of Arizona and was told about ICAN through a relative. I contacted Marcia Horn & she took hours on the phone & follow up e-mails helpiing me.
I am from New
York and did not have the good fortune of having such a great service as ICAN; of course there were avenues to explore through the hospitals and breast cancer centers. It was left up to the individual to find good doctors.
What we need is a better recognition of ICAN nationwide to enhance the tools needed for helping people diagnosed with cancer.

The Great!

I've personally experienced the results of this organization in...

Knowing I had someone to turn to for answers to ALL my questions.

Ways to make it better...

If I had to make changes to this organization, I would...

Expand ICAN nationwide as a go to service for cancer patients.

June 30, 2011

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June 30, 2011

I was diagnosed with two cases of Cancer simultaneously: Melanoma & Esophageal.

ICAN connected me with a MOHS (I never before even heard of MOHS) surgeon who removed the Melanoma. Now, unless I point it out, no one even sees the scar on the middle of my forehead.

ICAN connected
me with a Medical Oncologist and a Radiation Oncologist.

Now, quarterly PET/CAT & Endoscopy find no evidence of Cancer in my esophagus!

The Great!

I've personally experienced the results of this organization in...

I'd get a phone call from ICAN telling me to be at a particular Doctor's office tomorrow at 10:30. Later that day, I'd get a call telling me to be at another Doctor's office at 2:30. I was actually driving between two Doctor's offices, when my cell phone rang with a third Doctor's office confirming my appointment for the following day!

Ways to make it better...

If I had to make changes to this organization, I would...

If I had to make changes to ICAN, I would make it bigger so that they could handle a larger patient load.

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2011

June 30, 2011

more

June 30, 2011

Marcia & ICAN were extremely instrumental in assisting my sister who had stage four lung cancer. Marcia is considered to be a hero to our family! She gave my sister direction & hope during her final year of life. Words cannot express the gratitude we feel for ICAN & Marcia. My sister was so happy to be involved with such a great organization.

The Great!

I've personally experienced the results of this organization in...

ICAN & Marcia assisting with finding support & doctors to assist my sister in her greatest time of need.

Ways to make it better...

If I had to make changes to this organization, I would...

Provide ICAN services to even more stage four cancer patients!

June 30, 2011

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June 30, 2011

When my Dad was diagnosed with amyloidosis, we didn't know where to go for information because it is so rare. We were referred to Marcia,
who was wonderful about providing insight into the technical aspects of
the disease and confirmation that we were proceeding with the proper treatment.

The Great!

I've personally experienced the results of this organization in...

We were able to make medical decisions because we had accurate information at a very emotional time.

Ways to make it better...

If I had to make changes to this organization, I would...

I would love for iCAN to have a higher profile to enable them to help more people!

June 30, 2011

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June 30, 2011

I DON'T KNOW WHAT WE WOULD HAVE DONE WITH THE HELP AND COMPASSION WE RECEIVED FROM MARCIA HORN AND ICAN!!! WE WERE IN CRISIS MODE WHEN WE RECEIVED OUR DIAGNOSIS AND MARCIA WAS AMAZING...SHE WAS ABLE TO INFORM US AND GET INFORMATION TO OUR FAMILY THAT HELPED US GET THROUGH A VERY DIFFICULT AND EMOTIONAL TIME....ICAN NEEDS TO BE RECOGNIZED FOR ALL THE GOOD THEY DO FOR FOLKS LIKE US. HOPEFULLY THEY WILL RECEIVE THE DONATIONS THEY NEED TO REACH EVEN MORE FOLKS IN NEED OF THEIR SERVICES!

The Great!

I've personally experienced the results of this organization in...

VALUABLE INFORMATION ON WHAT TO DO AND WHERE TO TURN AFTER THE HORRIBLE DIAGNOSIS OF CANCER!

Ways to make it better...

If I had to make changes to this organization, I would...

THEY NEED ALL THE DONATIONS AVAILABLE TO HELP ICAN REACH EVEN MORE FOLKS IN NEED OF THEIR SERVICES! MARCIA HORN IS AMAZING!!!

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