ICAN, International Cancer Advocacy Network

Rating: 4.99 stars   140 reviews

Issues: Technology, Health, Philanthropy, Cancer

Location: ICAN Program Services (by appointment at our Metrocenter Phoenix offices) 27 West Morten Avenue Phoenix AZ 85021-7246 USA

Mission: ICAN provides Personalized Medicine Cancer Case Management Programs, through its customized patient advocacy services, to Stage IV patients who have been written off by their oncology teams. The organization specializes in complex and rare diagnoses, whether pediatric or adult cancers. ICAN, given years of experience with oncology issues and the anticancer drug pipeline, assists patients in the battle to extend life with high quality of life through physician referrals, cutting-edge information and advocacy services, clinical trials research, compassionate use analysis, molecular profiling services, and palliative care program services. ICAN has been profiled in Newsweek based on the still enduring complete remission of one of its breast cancer patients and in Pharmaceutical Executive Magazine (where ICAN was viewed as the exemplar of cancer patient advocacy--out of 5000 organizations to choose from). ICAN has also been featured in the Robert A. Nagourney, M.D.'s pivotal book "Outliving Cancer" and is featured in the upcoming biography of anticancer drug discoverer G. Robert Pettit, PhD (published in June 2015).
Results: When you are dealing with individual cancer patients and their specific cases, the metrics are extending time to progression and working toward disease-free survival. The question becomes "compared to what?" since no cancer patient is like any other cancer patient. The one metric that counts at ICAN is an overwhelming number of our patients, given the countless accolades we have received over the past 19 years, testify to ICAN's pivotal assistance in making a critical difference in life prolongation and quality of life issues. On the metric of "Was there a stone left unturned in the patient's journey with cancer?", our ICAN patients and their families resoundingly answer "No."
Target demographics: All ages, all socioeconomic backgrounds.
Direct beneficiaries per year: more than 1000 patient/spouse advocate/care partner/public inquiry cases at ICAN.
Geographic areas served: While we are headquartered in Phoenix/Scottsdale, we work throughout the USA and US territories; 53 countries worldwide
Programs: Our Personalized Medicine Cancer Case Management Programs and our Cancer Patient Advocacy and Clinical Trials Advocacy Programs--as well as ICAN's more than one hundred Named Programs (named by families in memory of or in honor of a loved one in the battle)--may be found on our website at http://askican.org
2015 Top-Rated Nonprofit
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EIN 86-0818253
602-618-0183
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Community Reviews

Rating: 5 stars  

ICAN is a great organization that prides itself on taking absolute care of every cancer patient who needs the information and help with treatment of this disease. Not only are they so caring and amazing, they truly seem to take interest in every person and it shows.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

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Rating: 5 stars  

ICAN IS A WONDERFUL Non-profit that is truly an advocate for the patient and its family(s). ICAN is exhaustive in their quest to get doctors, trials, support and information to those in need. I believe they are more out of the box thinkers and believe people / patients should not be sent home to die; all avenues must be explored, conventionally and in non-conventional ways. The people I have sent to ICAN have be very appreciative of the respect ICAN gives to each individual knowing that everyone has a unique case and story to tell. This would be a well deserved recognition for this extraordinary non-profit.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

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Rating: 5 stars  

I have volunteered for this organization for at least 10 events they have out on. One thing that is so great about this nonprofit is that they help someone no matter what kind of sickness they have. They can get you in touch with the greatest doctors around the country. They have helped countless people with sicknesses. I have referred two cancer patients, and they couldn't have been happier with their experience with ICAN. They are amazing!!

If I had to make changes to this organization, I would...

Absolutely nothing. This is a wonderful group of people and volunteers. And they all love to help.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

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Rating: 5 stars  

Both my wife and daughter developed cancer. Fortunately, my daughter - who had Ovarian Cancer over 11 years ago - is still alive and well. During her early cancer treatments ICAN was deeply involved and I believe helped save her life. My wife, unfortunately, did not survive her cancer, and though I had tried to have her see the physicians ICAN had suggested, and to follow a chemotherapy course strongly recommended by both ICAN and consultants, she refused.

I have been working with ICAN for over 10 years and believe that it is the most effective and well run cancer advocacy organization one will find in this country. The work they do is phenomenal

If I had to make changes to this organization, I would...

Raise a million dollars so they could help more people

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

When was your last experience with this nonprofit?

2013

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Rating: 5 stars  

I began as a Media Relations & Lobbying Volunteer in July 2010 & love it! My most interesting project was a legislative letter writing campaign urging Pennsylvania state legislators to approve equal insurance coverage for oral chemotherapy medicine. The majority of my projects have involved researching cancer articles & collecting media contact information. I studied public relations in college & am trying to get accepted to the Master's program at ASU West. I am in a wheelchair & can't handle a full-time job outside the home. Part-time, paid work in P.R. was too difficult to find. This was the best way to get my start in public relations. I am eternally grateful to Marcia Horn for giving me that chance!

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

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Rating: 5 stars  

ICAN is truly an incredible organization. The services it provides are unparalleled by any organization of its kind, and the level of involvement, investment, and caring for individual patients has exceeded my greatest expectations for what I had hoped to become involved with. The services that ICAN provides for patients, in what is undoubtedly the most difficult time in their lives, and at no cost, provides such hope. Marcia Horn, CEO,tirelessly works all hours of the day, 8 days a week, to ensure that ICAN patients receive the best possible care to maximize their chances of survival. The volunteer experience is of equal match, as Marcia takes the time to ensure that the volunteers are engaged to their best potential and provides unique opportunities to gain involvement and experience. I can't recommend ICAN highly enough...if advocacy were an Olympic sport, ICAN would win the gold.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

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Rating: 5 stars  

1 person found this review helpful

The International Cancer Advocacy Network (ICAN) is at the forefront of cancer patient care. Led by its extraordinary President/CEO, Marcia Horn, and guided by outstanding board members and scientific advisors, ICAN works tirelessly with cancer patients to ensure that they get the best care possible. ICAN was an early advocate for personalized medicine, well before the current paradigm shift towards molecular profiling became an integral part of patient care. ICAN's work with late stage cancer patients is remarkable, helping each patient on an individual basis, holding their hands as they address difficult clinical decisions. I have volunteered with ICAN as a member of the biomarkers council, where we provide scientific expertise in the areas of molecular profiling. ICAN also works to implement and advocate for changes in public policy that benefit cancer patients. ICAN helped a friend of mine with melanoma, guiding him through international roadblocks and helping him to access top clinicians, and for that I am most grateful.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

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Rating: 5 stars  

ICAN is a wonderful organization to volunteer with. I learned a great deal and felt like I made a difference.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

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Rating: 5 stars  

I have been a volunteer with ICAN for almost 3 years. I started out in one our research positions and gradually worked my way from that into Research Team Leader position and finally into my current role as Director of Strategic Planning and Operations for Research Services. I have never volunteered with an organization where each and every one of the volunteers were so committed, so dedicated and so wonderful. I am definitely feel honored that I can be part of organization with such a worthy cause and truly wonderful volunteers.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

I joined ICAN with hopes of giving my time to something that really matters, and it definitely lived up to my expectations! Everyone that I came in contact with was enthusiastic about her/his work, and being a part of such a helpful and experienced team gave me great confidence. My Research Team Leader, Aniko, had everything one can possibly ask for in a team leader, and I am happy to have had the chance to work with her! Being with ICAN helped me to gain insight into the world of research and taught me a lot of useful skills for my future. Each member of ICAN is extremely knowledgeable about his/her area of expertise, and I am proud to say that I was a part of this!

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful?