ICAN, International Cancer Advocacy Network

Rating: 4.99 stars   124 reviews

Issues: Philanthropy, Cancer

Location: ICAN Program Services 27 West Morten Avenue Phoenix AZ 85021-7246 USA

Mission: ICAN provides Personalized Medicine Cancer Case Management Programs, through its customized patient advocacy services to Stage IV patients who have been written off by their oncology teams. The organization specializes in complex and rare diagnoses, whether pediatric or adult cancers. ICAN, given years of experience with oncology issues and the anticancer drug pipeline, assists patients in the battle to extend life with high quality of life through physician referrals, cutting-edge information and advocacy services, clinical trials research, compassionate use analysis, and palliative care program services.
Results: When you are dealing with individual cancer patients and their specific cases, the metrics are extending time to progression and working toward disease-free survival. The question becomes "compared to what?" since no cancer patient is like any other cancer patient. The one metric that counts at ICAN is an overwhelming number of our patients, given the countless accolades we have received over the past 15 years, testify to ICAN's pivotal assistance in making a critical difference in life prolongation and quality of life issues.
Target demographics: All ages, all socioeconomic backgrounds.
Direct beneficiaries per year: more than 1000 patient/spouse advocate/caregiver/public inquiry cases at ICAN.
Geographic areas served: USA and Abroad
Programs: Our Personalized Medicine Cancer Case Management Programs and our Cancer Patient Advocacy and Clinical Trials Advocacy Programs--as well as ICAN's more than one hundred Named Programs (named by families in memory of or in honor of a loved one in the battle)--may be found on our website at http://askican.org
2014 Top-Rated Nonprofit
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EIN 86-0818253
602-618-0183
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Community Reviews

Rating: 5 stars  

ICAN is truly an incredible organization. The services it provides are unparalleled by any organization of its kind, and the level of involvement, investment, and caring for individual patients has exceeded my greatest expectations for what I had hoped to become involved with. The services that ICAN provides for patients, in what is undoubtedly the most difficult time in their lives, and at no cost, provides such hope. Marcia Horn, CEO,tirelessly works all hours of the day, 8 days a week, to ensure that ICAN patients receive the best possible care to maximize their chances of survival. The volunteer experience is of equal match, as Marcia takes the time to ensure that the volunteers are engaged to their best potential and provides unique opportunities to gain involvement and experience. I can't recommend ICAN highly enough...if advocacy were an Olympic sport, ICAN would win the gold.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

The International Cancer Advocacy Network (ICAN) is at the forefront of cancer patient care. Led by its extraordinary President/CEO, Marcia Horn, and guided by outstanding board members and scientific advisors, ICAN works tirelessly with cancer patients to ensure that they get the best care possible. ICAN was an early advocate for personalized medicine, well before the current paradigm shift towards molecular profiling became an integral part of patient care. ICAN's work with late stage cancer patients is remarkable, helping each patient on an individual basis, holding their hands as they address difficult clinical decisions. I have volunteered with ICAN as a member of the biomarkers council, where we provide scientific expertise in the areas of molecular profiling. ICAN also works to implement and advocate for changes in public policy that benefit cancer patients. ICAN helped a friend of mine with melanoma, guiding him through international roadblocks and helping him to access top clinicians, and for that I am most grateful.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

ICAN is a wonderful organization to volunteer with. I learned a great deal and felt like I made a difference.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

I have been a volunteer with ICAN for almost 3 years. I started out in one our research positions and gradually worked my way from that into Research Team Leader position and finally into my current role as Director of Strategic Planning and Operations for Research Services. I have never volunteered with an organization where each and every one of the volunteers were so committed, so dedicated and so wonderful. I am definitely feel honored that I can be part of organization with such a worthy cause and truly wonderful volunteers.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

I joined ICAN with hopes of giving my time to something that really matters, and it definitely lived up to my expectations! Everyone that I came in contact with was enthusiastic about her/his work, and being a part of such a helpful and experienced team gave me great confidence. My Research Team Leader, Aniko, had everything one can possibly ask for in a team leader, and I am happy to have had the chance to work with her! Being with ICAN helped me to gain insight into the world of research and taught me a lot of useful skills for my future. Each member of ICAN is extremely knowledgeable about his/her area of expertise, and I am proud to say that I was a part of this!

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

I am a Research Team Lead volunteer with ICAN's Lobular Breast Cancer Research Team. I really enjoy being able to contribute to a great cause like ICAN. It feels good to be able to donate a little time with an organization that has such a great impact. It has been one of the most rewarding volunteer experiences I have been engaged with!

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

My first contact with the International Cancer Advocacy Network (ICAN) occurred in late December, 2011 in conjunction with a diagnosis of Stage 1 Breast Cancer. I needed information to make informed decisions about treatment options. Speaking with ICAN's resident angel, President and CEO Marcia Horn, I encountered someone who was professional, knowledgeable, dedicated, and compassionate. By the end of our phone call, I had a plan of action and hope for the future. I couldn't have asked for a better Christmas gift!

I am a Communications, Marketing, and Design professional who is very selective about the organizations with whom I volunteer because it is important to me to live my values in all aspects of my life. No one at ICAN asked me to volunteer. I offered my skills and time about a week after my initial contact with the organization because a follow-up call with Marcia made it exceeding clear that ICAN is a patient advocacy organization steeped in integrity and totally focused on helping each individual patient win his or her personal battle with cancer. The organization places a premium on providing each patient with the most up-to-date and accurate treatment and resource information for his or her particular cancer. They are sensitive to each patient's situation while also being supportive and encouraging.

So what's it like to be an ICAN volunteer? After two months and literally tons of hours, I can honestly state that being an ICAN volunteer is a totally positive experience! The organization has high standards and expectations as it strives for excellence in every aspect of its operations. Praise and encouragement are abundant. The staff, leadership, and even other volunteers go out of their way to let you know that you and your work are valued. Moreover, you have the satisfaction of knowing that your contributions are making a difference, not just in your particular area of service, but to the well-being and effectiveness of the entire organization and, by extension, to cancer patients residing all over the globe. Awesome responsibility and equally awesome personal rewards

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

I am a Research Team Leader. I supervise (via email) all the work that several research interns do and review the end product before it is posted to the ICAN website.
I know that ICAN truly appreciates all of its volunteers! They are very kind and responsive to all their volunteers and they care deeply for the cancer patients they support and help. I have volunteered at numerous organizations over the years and this is one of the most integrity-filled and best-run nonprofit organizations that I have every worked with.
I am a certified project management professional and a CPA who has worked at top notch organizations in the business world so my expectations about quality and integrity are very high -- and I can say that ICAN meets and exceed all my expectations.
A few hours a week can make a big difference in the lives of the cancer patients that ICAN helps. All your efforts provide support to so many all over the world. The work can be done when it is convenient for you and ICAN works with you to provide the type of volunteer work that you desire. I would recommend this organization to anybody looking for a rewarding volunteer experience!

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

I am a member of the public and a sometime volunteer.
I was first introduced to ICAN through their musical events at which the great pianist, Ronald Jacobowitz, entranced and educated the audience. He not only played beautiful classical piano music but gave us background information on the composers their times and the musical developments i.e. early to late Beethoven. Through the people I met at these musical events I learned about the important and wonderful work ICAN is doing.
I have been able to give ICAN and Marcia Horn- ICAN's CEO- contacts to people in Phoenix and elsewhere in the world who have had need of a cancer advocate. They have all reported to me how helpful Marcia Horn has been to them and their families. In some cases they just felt full of despair and hopeless before they contacted ICAN. Marcia helped them see what they could do to help the cancer patient and find the best current medical care. ICAn is there locally and globally.

I've personally experienced the results of this organization in...

Calls thanking me for Marcia's help

If I had to make changes to this organization, I would...

Get it better known and raise more money for ICAN

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

What one change could this group make that would improve your volunteer experience?

I don't know.

Did your volunteer experience have an effect on you? (teaching you a new skill, or introducing new friends, etc.)

Through the musical events we met intelligent, warm and fun people. I also felt good that by putting people in touch with ICAN I helped ease theri suffering.

How did this volunteer experience make you feel?

that I had done something useful.

When was your last experience with this nonprofit?

2011

Was this review helpful? 
Rating: 5 stars  

Ican facilitates cancer patients , who are under stress, to find the treatment center that is doing the the most advanced work in their area of caner.
A friend in Boston called me. She was understandably very tense and stressed. Her grandson had just been diagnosed with cancer.

Her husband was an eye doctor but they were looking for cancer treatment expertise. ICAN , she later told me, was able to talk to them knowledgeably , with sympathy, empathy and care.

I've personally experienced the results of this organization in...

In reports from several friends wo have told me how they wee helped by ICAN

If I had to make changes to this organization, I would...

Increase their fnding

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Quite well

Would you recommend this group to a friend?

Definitely

What one change could this group make that would improve your volunteer experience?

can;t think of anything

Did your volunteer experience have an effect on you? (teaching you a new skill, or introducing new friends, etc.)

Gave me a sense of satisfavction for I heard how my friends and others were helped.

How did this volunteer experience make you feel?

Very good

When was your last experience with this nonprofit?

2011

Was this review helpful?