Ican, International Cancer Advocacy Network

Rating: 4.99 stars   140 reviews

Issues: Technology, Health, Philanthropy, Cancer

Location: ICAN Program Services (by appointment at our Metrocenter Phoenix offices) 27 West Morten Avenue Phoenix AZ 85021-7246 USA

Mission: ICAN provides Personalized Medicine Cancer Case Management Programs, through its customized patient advocacy services, to Stage IV patients who have been written off by their oncology teams. The organization specializes in complex and rare diagnoses, whether pediatric or adult cancers. ICAN, given years of experience with oncology issues and the anticancer drug pipeline, assists patients in the battle to extend life with high quality of life through physician referrals, cutting-edge information and advocacy services, clinical trials research, compassionate use analysis, molecular profiling services, and palliative care program services. ICAN has been profiled in Newsweek based on the still enduring complete remission of one of its breast cancer patients and in Pharmaceutical Executive Magazine (where ICAN was viewed as the exemplar of cancer patient advocacy--out of 5000 organizations to choose from). ICAN has also been featured in the Robert A. Nagourney, M.D.'s pivotal book "Outliving Cancer" and is featured in the upcoming biography of anticancer drug discoverer G. Robert Pettit, PhD (published in June 2015).
Results: When you are dealing with individual cancer patients and their specific cases, the metrics are extending time to progression and working toward disease-free survival. The question becomes "compared to what?" since no cancer patient is like any other cancer patient. The one metric that counts at ICAN is an overwhelming number of our patients, given the countless accolades we have received over the past 19 years, testify to ICAN's pivotal assistance in making a critical difference in life prolongation and quality of life issues. On the metric of "Was there a stone left unturned in the patient's journey with cancer?", our ICAN patients and their families resoundingly answer "No."
Target demographics: All ages, all socioeconomic backgrounds.
Direct beneficiaries per year: more than 1000 patient/spouse advocate/care partner/public inquiry cases at ICAN.
Geographic areas served: While we are headquartered in Phoenix/Scottsdale, we work throughout the USA and US territories; 53 countries worldwide
Programs: Our Personalized Medicine Cancer Case Management Programs and our Cancer Patient Advocacy and Clinical Trials Advocacy Programs--as well as ICAN's more than one hundred Named Programs (named by families in memory of or in honor of a loved one in the battle)--may be found on our website at http://askican.org
2015 Top-Rated Nonprofit
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EIN 86-0818253
602-618-0183
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Community Reviews

Rating: 5 stars  

ICAN is proving to be a leader in the fight against cancer. Working with patients to battle their unique challenges, the International Cancer Advocacy Network has helped countless families take on the task.

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Rating: 5 stars  

Over the past 6 years, I have had the pleasure of volunteering with ICAN and I can honestly say it is a wonderful experience. As Director of Research Services, I have the honor of working with some of the finest and most dedicated individuals around. Without Andrew Young (our Director of HR), Michele Ouellet (our Citation Editor), all of our extraordinary Research Team Leaders and as well as our truly committed Web Research…I can honestly we could never accomplish our goals so each and every one of them is truly appreciated on so many levels. ICAN is a truly amazing organization and it is truly needed in this world.

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Rating: 5 stars  

Truly amazing organization! I contacted ICAN for a friend of mine in China. Marcia and Scott provided valuable information and endless consultations. They are very sensitive to cultural barriers and practice differences and was able to put together a panel of experts from US and China to help my friend! I am so amazed by ICAN's powerful network, from cancer researchers, clinicians, to patient advocates. And it is this network of selfless, passionate, and knowledgeable experts who provide hope to my friend that the family and I are forever grateful.

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Rating: 5 stars  

I have been both a volunteer and a seeker of help from ICAN, International Cancer Advocacy Network for about a year and a half. I have been more than impressed with the one-on-one, professional, and highly-educated information, resources, and referrals provided -- and provided now, when I needed it. No waiting rooms at ICAN. You move to the front of the line immediately.

Marcia K. Horn is a modern day Mother Theresa. I don’t know how she has enough hours in the day to respond and interact so personally with each patient or family member, friend, or caregiver who comes to ICAN for assistance.

I feel honored to have been accepted as a volunteer in this excellent organization. I screened organizations prior to volunteering to see how much of the donations they receive actually go to those they serve. Guess what? About 94 percent of all monies taken in goes to patients and patient services. Almost all the staff is like me— volunteer and logging long hours—because we believe in the cause and we see that ICAN is one darned good and exceptional organization.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Quite well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2015

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Rating: 5 stars  

My brother in law was given a short window to live and I recommended that my sister call and within ten minutes Marcia the president was giving wise counsel they needed to extend his life in a quality way.
Just last month one of my clients mentioned that her chemo drug was no longer going to be available through insurance. One call to Ms. Horn and she is now receiving her medication. Her response was, "Last week we had no hope but this week we have hope."
Marcia Horn is truly amazing and has assembled a team that is second to none.

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Rating: 5 stars  

This is an amazing organization! I have volunteered and worked with Marcia Horn and ICAN for a number of years and enjoyed raising money and making great friends. Suddenly a few months ago ICAN took on a different meeting in my life when I was informed that a close friend was diagnosed with Ovarian cancer. As soon as I received the information, I called Marcia and she went to work and spoke personally with my friend. Never mind that it was 9:45pm on a Friday night. Marcia took the bull by the horns and gave specific step by step instructions and phone numbers. As a result, and due to our fast acting, my friend is now 94% cancer free. The entire process from diagnosis to final results was 3 weeks. Without Marcia Horn and the ICAN organization, my friend would never have received the level of care that she did. Thank you!

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Rating: 5 stars  

I began volunteering with ICAN 4 years ago and have been a Research Team Leader for 3 of those years. The organization is comprised of dedicated, passionate people at all levels, particularly Regina Marie Klopfer and Marcia Horn who provide strong, compassionate leadership. Every ICAN volunteer, regardless of his or her background, is a valued member of the team. It has been such a privilege to be part of an organization that is a driving force for oncology patient advocacy at every level. ICAN is a truly special organization doing phenomenal work.

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1 previous review
Rating: 5 stars  

I have had the immense pleasure of working with ICAN for 3 years as both an intern and a Research Team Leader. The commitment of ICAN's leadership to serving cancer patients, caregivers, and families is unmistakable and results in a deeply-embedded service ethic that permeates the entire organization. Volunteers at every level are given honest feedback and a network of support that enables them to fully develop and contribute their skills while working within a very diverse team. ICAN strives to ensure cancer patients have access to cutting-edge, evidence-based medicine, and every patient served by ICAN is provided with individualized support to navigate the patient journey. Having cultivated a culture of compassion and an extensive network of experts, Marcia Horn has built an organization with a special capacity to make a profound difference.

If I had to make changes to this organization, I would...

I wouldn't change a thing. ICAN simply needs further funding to help reach a greater number of patients.

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

When was your last experience with this nonprofit?

2013

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Rating: 5 stars  

I started out at ICAN as Web Research Intern. In this position, I searched online for articles related to Esophageal Cancer. I enjoyed this position because it gave me an opportunity to learn about cancer. Searching for and reviewing articles helped me earn about how cancer develops, methods used to detect and diagnose, how cancer drugs work, causes of cancer and actions a person can take to reduce their risk of cancers. Volunteering for ICAN is also good position for someone who doesn't have the time to learn about cancers, the causes of it, and how to prevent it because it exposes you to the resources you need to learn about it and forces you to devote the time to learn for yourself. The effort you make benefits you and others. Finally, I like the position because it gives me an opportunity to help another person and rebuild their hope. I like the work ICAN does and how it strives to encourage a person at the late stage of their life to hold on, keep trying, and stands with them till the end. It's an organization with excellent values. In my new position, I get to review abstracts collected by other volunteers. The position has helped me improve in my organization skills. I have to keep track of topics assigned, whom topics are assigned, when topics are due, maintain contact with volunteers to check on status of assignments, review, and provide feedback. It helps both volunteers develop transferrable skills that are valuable in the workforce and in school.

I think ICAN is a great organization to volunteer for. They provided beneficial and needed services to people who otherwise may not be aware or have access to free of charge. It helps patients stay aware, become better and informed decision makers so they can become more involved in healthcare they receive or team players with their physicians in treating their conditions. Doctors do not always have the time to do the extra legwork to research a patients’ condition or look at the latest in treatment for their condition. ICAN does the legwork for them so they can also be a better resource for their patients. For the staff and volunteers, it gives them an opportunity to develop transferable skills that help them in the workforce and school. ICAN services and work benefit everyone around the world. It being on the web gives doctors and cancer patients from around the world access to a library of resources in one location that they otherwise may not be able to have access to due to poverty or other factors.

To be able to continue doing their great work, ICAN needs more funding. I hope you can see that your money will not be wasted after reading this and the other reviews.

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Rating: 5 stars  

Amazing organization with amazing people. This organization truly did help me when I needed advice and I needed guidance with a family member who was struggling with the cancer battle. I've been volunteering for this now for over 3 years, and I cannot stress enough how awesome this place is. We collect the most up to date literature on cancers and distribute the information to oncologists, patients, and families so that way they can have the most up to date resources when fighting this ugly disease. With more information available, patients are able to make the best, most informed decisions regarding their patient care, and thus, get better results.

Thank you ICAN!

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Rating: 5 stars  

1 person found this review helpful

I've been volunteering for ICAN for about 6 years now (since I was a Junior in college) and it has been an amazing experience. Not only has it been a rewarding experience volunteering my time, but it has been an absolute privilege and joy working for people who are so compassionate and understanding about the cause. Marcia Horn and Regina Marie Klopfer are exemplary leaders and an honor to work for. They make sure you are comfortable in your volunteering role and are very appreciative of the time you put into ICAN. All in all, it's been a wonderful six years and I look forward to dedicating many more years to come.

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