Huntington's Disease Society of America, Inc.

Rating: 4.72 stars   106 reviews

Issues: Health

Location: 505 Eighth Avenue Suite 902 New York NY 10018 USA

Mission: The Huntington’s Disease Society of America is the largest 501(c)(3) non-profit volunteer organization dedicated to improving the lives of everyone affected by Huntington’s Disease. The Society works tirelessly to provide the family services, education, advocacy and research to provide help for today, hope for tomorrow to the more than 30,000 people diagnosed with HD and the 200,000 at-risk in the United States.
Target demographics: everyone affected by HD and their families.
Geographic areas served: all of the United Stated
2014 Top-Rated Nonprofit
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EIN 13-3349872
800-345-4372
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Community Reviews

Rating: 5 stars  

The HDSA is an extraordinary organization that helps a small community of patients that would not have the same level of support otherwise.

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2012

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Rating: 5 stars  

I have served as Treasurer for a local chapter of the Huntington's Disease Society of America for over a dozen years. The organization is totally dedicated to find a cure and to improve the quality of life for afflicted persons. I have always been impressed by the dedication of all the individuals I've has the pleasure of working with. They are dedicated and hard working!

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

I have a lifetime friend who is gene positive with Huntington Disease as well as so far her oldest son is also. She has three other children. Who might be too. This organization can keep families updated on the lastest things being done in research and can help them get in touch with much need support groups and services

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

I am new to the Delaware Chapter Board of Directors for HDSA. I feel that HDSA had moved in great strides in helping to educate and care for those suffering and the families of those suffering with Huntington's Disease. We have lost several cousins to this disease and it is a heart breaking demise for humans to struggle with. Please consider HDSA for your top great non-profit causes.

Will you volunteer or donate to this organization beyond what is required of board members?

Likely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful?