Hemophilia Foundation of Northern California
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I have been a member of this organization for over 25 years. Like most people I did not know what hemophilia was until I birthed a son with hemophilia in the early 1980's. This foundation has been there for this small community helping at every turn deal with it's current issues. In the 80's it was HIV infection. Today we are a younger community dealing with healthcare reimbursement issues. This foundation does the best it can by providing a Summer Camp for children that would not be accepted at a regular camp. We provide a Family Camp to educate and teach families how to cope with their children's diagnosis. We offer bi-lingual services to families that need it. We partner with the blood fractionators and pharmaceuticals that make the life saving Factor medication by bringing needed social & educational programs. Please consider donating to this foundation as your money would do more to support this small community because it functions like larger more well known foundations.
The Great!
I've personally experienced the results of this organization in...
myself. I have been served by this community when my son was diagnosed at 7 months. By the time he was 2 HIV was a new word in living with hemophilia. I watched as my son's mentors passed away. Each one of them gave all they could to the new one's in
Ways to make it better...
If I had to make changes to this organization, I would...
promote more education. I would have more scholarships available to further educate our community that must make their living by employing their brains and not their body.
More feedback...
What I've enjoyed the most about my experience with this nonprofit is...
The life long friendships. They are my second family and sometimes my first because they have walked in my shoes.
The kinds of staff and volunteers that I met were...
extraordinary people.
If this organization had 10 million bucks, it could...
help find a cure for hemophilia.
Ways to make it better...
the community. I have done all I can to be there for those who have come after me. We could use more staff to do a better job of outreaching, educating and fundraising.
In my opinion, the biggest challenges facing this organization are...
funds. We need to keep the community involved in healthcare issues that are needed to continue their basis medical needs.
One thing I'd also say is that...
one day, hopefully soon we will have a cure and no one will ever have to suffer bleeding into their joints and living with pain.
How frequently have you been involved with the organization?
About every week
When was your last experience with this nonprofit?
2009
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