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February 24, 2011

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Review from Guidestar
February 24, 2011

HLAA is an organization for people with hearing loss, started by a very special person, Rocky Stone in 1979. HLAA's philosophy is three-pronged: education, advocacy and support. We begin by finding out everything we can about our hearing loss - what causes it, what to do about it, how to understand the changes it brings to our lives. Secondly, by becoming educated consumers, we begin to pinpoint the things that are lacking in society for people with hearing loss and we learn how to advocate for ourselves and others. Third, we realize that if it weren't for HLAA, we would be lost in self-pity and frustration about our hearing loss, and we begin to reach out to others. We pay it forward. HLAA is truly vital to the 36 million people with hearing loss in the United States. Hearing loss affects everyone.

The Great!

I've personally experienced the results of this organization in...

every aspect of my daily life.

Ways to make it better...

If I had to make changes to this organization, I would...

It would have more members so they could accomplish more good.

February 24, 2011

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Review from Guidestar
February 24, 2011

I have been an active member of HLAA for four years, from the time I became a bilateral Cochlear Implant user. I have been profoundly deaf since birth and wore hearing-aids for 49 years I felt very isolated and lost in my world before receiving Cochlear implants in both ears. My Cochlear implants opened the doors to a new and much more rewarding life for me. But it wasn't enough until I found HLAA that I was able to begin to fully participate in this new world. HLAA helped me to learn how to cope in the hearing world through attendance at many chapter meetings and listening to representations from great speakers every month. I also learned good strategies to overcome my fears and improve communication skills with family, friends, and in normal every day transactions. But most of all to help build up my confidence in hearing so many new and different sounds that my hearing aids either weren't able to pick up or differentiate or were just not the actual sounds that one hears with normal hearing. Speakers at HLAA meetings also gave me lots of information about the use of advanced technologies such as Captel phones, closed captions in movies and theatres, Cart, Looping, and many others. I have also met wonderful people who have been very helpful, friendly, and supportive. I no longer feel alone since being around people with hearing impairements who can share their stories with similar experiences and to learn from one another. Now that I know there is an organziation for those of us with hearing loss at all level, it has become a very sociable and enjoyable experience. But there is still so much more to learn. . I look forward to every meeting!

Overall, HLAA's mission is to open the world of communication to people with hearing loss through information, education, advocacy and support. HLAA is working very hard to build up, expand, and improve services for hearing-impaired people by providing open captions and loops in all areas, through education and advocacy to the public, and by supporting so many other hearing-related activities. HLAA has been a life changer for me! I have helped to raise funds and actively participated in our our annual NYC Walk4Hearing for the past three years. I also serve as a member of the NYC Walk and Manhattan chapter Planning Committees. It has been a pleasure to share my story with all of you.

The Great!

I've personally experienced the results of this organization in...

Helped me to adapt to my Cochlear implants and meet other hearing-impaired people with similar stories and problems; understand that I am not alone in my own non-hearing world and that there is an organization that can help people like me. Also helped me to became more aware of the problems of hearing-impaired people all over the country and what we can do to help.

Ways to make it better...

If I had to make changes to this organization, I would...

Nothing that I would change. We need to increase the awareness of hearing-impaired and normal hearing people about HLAA and the problems of deafness and attract more support from both sectors.

February 23, 2011

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Review from Guidestar
February 23, 2011

Hearing loss is invisible and no one dies of it, hence it has not captured the media attention of the more obvious disabilities. Along came Self Help for Hard of Hearing People in 1979, the first organization to recognize the needs of people with a hearing loss. Now named Hearing Loss Association of America the organization that started in the founder's (Rocky Stone's) basement is a thriving and growing national organization devoted to educating people with hearing loss, advocating for their rights, and providing reams of information to help them live successfully with a hearing loss. This organization now as 250 chapters throughout country dedicated to helping people learn and cope with their loss. I found the organization as a graduate student in 1982 when I was writing my thesis on Self Help for people with hearing loss. There was a glaring lack of information about hearing loss in libraries. There also was no internet to google information. A small article in a local newspaper inviting people to attend a meeting of Self Help for Hard of Hearing People caught my attention. i was amazed at what the people were learning about their hearing loss but especially about how to cope with it. A few days after this meeting I wrote to the founder and within days a large box of information about hearing loss arrived. My thesis was a success and I was hooked on the organization. Almost 30 years later I am still involved and still learning. The advocacy of the staff and members throught the country helped to ensure that all of the technology being developed would find its way into the hands of the people who needed it. This organization has helped thousands of us learn to deal with hearing loss in a positive way and has hastened the development of technology for all people with hearing loss.We also learned to laugh at ourselves. What a blessing we were given!

The Great!

I've personally experienced the results of this organization in...

Meeting hundreds of people who learned to cope with hearing loss and taught others how to do so. It gave me confidence in my ability to function successfully in my job, in the hearing world!

Ways to make it better...

If I had to make changes to this organization, I would...

like it to have the resources to reach out to the millions of hard of hearing people who are still denying their hearing loss and to have the financial resources to develop a national program to educate teenagers about noise induced hearing loss.

February 22, 2011

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Review from Guidestar
February 22, 2011

As a professional learning to live in a hearing world, I have spent all of my life quietly struggling to lip-read my family members, teachers, employers and friends. Having been born with a severe hearing loss in both ears, my parents began working early on with educators and administrators to enable me to move out of the special education classroom and into the main-streamed classrooms with other hearing students. Hence began a life of sitting in the front row to lip-read, speech and language classes, after learning to speak at the U of Illinois at 3 1/2 years of age. The Hearing Loss Assn. of America provides advocacy, education, training, support for parents and family members, and educators to let more little children make enormous strides to live, and someday, work in a hearing world. They provide the life-changing keys to success for America's children. As a volunteer, giving back to my community, I have gone into classrooms and worked with students, parents, and teachers to share HLAA-learned skills and support in Maryland and Idaho. As a professional accountant, I have volunteered in work places to teach employers the skills needed to work with the deaf and hard of hearing. HLAA is ready to take America into the next century!

The Great!

I've personally experienced the results of this organization in...

The impact of HLAA has been simply moving. My experiences with HLAA began in 1988, by a visit to Frederick, Maryland's local chapter whose volunteers welcomed a profoundly hard of hearing person to his first life changing meeting. I spent an exhilarating hour learning how HLAA provides support for individuals with counseling, guidance, education, and hearing loss skills training. The skills they began teaching me in 1988 are used by me each and every day.

Ways to make it better...

If I had to make changes to this organization, I would...

Allow knowledge of HLAA to reach every corner of our vast country. Its quiet support for the large numbers of America's citizens with hearin loss and its work with other community support organizations, like Lions Club International, should be heard from sea to shining sea. The more that this organization is known, the more skills that we will all have access to for dealing with the most invisible of challenges, that of hearing loss.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

What one change could this group make that would improve your volunteer experience?

Enable HLAA to have chapters in all 50 states and territories in a number sufficient to allow people with hearing loss to be assisted by their volunteers and staff where ever they live and work.

Did your volunteer experience have an effect on you? (teaching you a new skill, or introducing new friends, etc.)

It taught me that I was not alone with my invisible hearing loss handicap. They taught me skills for use at home, work and at play. More importantly, the skills they teach and their support systems are instrumental to my enjoyment of the challenges and joys of living in America today. I can freely help others, not as fortunate as myself, with life changing skills.

How did this volunteer experience make you feel?

Like a new person with a voice, a part to play in life, and that one person can truly make a significant impact in today's busy and ever-changing world. My sincere thanks to the beautiful people of HLAA.

When was your last experience with this nonprofit?

2011

February 22, 2011

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Review from Guidestar
February 22, 2011

Serving on the Board of HLAA was a rewarding experience that allowed me to meet a wonderful, diverse group of people that had a shared commitment to improving the lives of those with hearing loss.

HLAA has a very active advocacy program that works tirelessly to ensure access to a variety
of programs and benefits for those with hearing loss, such as captions in theaters, hearing aid compatible cell phones and providing caption for online content.

I've expanded my circle of friends through my work on the Board of HLAA, and while I no longer serve on the Board, the friends I've made will be lifelong. Now as a member of HLAA, I garner the benefits of its work, including the most up-to-date information on accessibility and how emerging technology affects the lives of those with hearing loss. HLAA has been a wonderful resource for me and the people that work with it, both its staff and vast volunteer corps, are dedicated, professional and extremely knowledgeable.

It's quite simply, a great group of people doing excellent work.

The Great!

I've personally experienced the results of this organization in...

. . .obtaining my cochlear implant. HLAA provided me with a incredible array of information on how to get an implant, the insurance coverage, what to expect, questions to ask my audiologists, etc. Once I had my surgery, I had a wonderful group of people to cheer me on and provide me with support. It was like having an instant support group.

Ways to make it better...

If I had to make changes to this organization, I would...

. . .expand its advocacy efforts but I realize this is a question of funding. I know HLAA has big goals and works tirelessly to keep moving forward on those goals. It's just a matter of utilizing its resources in the best way and this is something that the organization does very well.

February 22, 2011

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Review from Guidestar
February 22, 2011

Hearing Loss Association of America and its chapters are a vital network for people with hearing loss, their families , friends, and colleagues. Founded on the idea that there is a need for peer based support, HLAA has grown and developed into the foremost consumer organization devoted to the needs of people with hearing loss. HLAA is the "go-to" organization in the country when government and industry sources want to consult with the foremost advocates for people with hearing loss. And the local chapters form a vital base of grass roots activism that is unmatched by any other organization of its kind.

The Great!

I've personally experienced the results of this organization in...

I have seen first hand how HLAA outreach has changed the lives of people with hearing loss. Successful advocacy efforts have gained access of people with hearing loss in so many venues and local chapter activities provide a vital source of support for people with hearing loss who are struggling to find their way in the hearing world.

Ways to make it better...

If I had to make changes to this organization, I would...

HLAA is such a good and strong organization, my wish is that every one of the 36 million people in the USA with a hearing loss could experience the benefits of membership and learn first hand how much HLAA has to offer them, their families, friends, and colleagues.

February 19, 2011

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Review from Guidestar
February 19, 2011

I have worked with elders for over 24 years. Through my husband's hearing loss, I became involved with the Hearing Loss Association of America, our state association and my local chapter. The knowledge I have gained has helped me immeasureably in my professional life. I can not only help my residents to be more actively involved in life, but I use the knowledge to train other caregivers in my state and across the country. I have seen how much the Hearing Loss Association has helped my husband to cope with his hearing loss. Being able to talk with others who share his loss, who understand how it impacts every aspect of his life, and who help each other to function in all situations has made an incredible difference in his life. He now talks with groups about Meniere's Disease and about the Bone Anchored Hearing Aid, and acts as a mentor for others who share is kind of hearing loss.

The Great!

I've personally experienced the results of this organization in...

the life of my spouse. He has found great support in all areas of his life, personal, social & professional, for his hearing loss, which is severe.

Ways to make it better...

If I had to make changes to this organization, I would...

Make it better known; have it reach even more people who need it's help.

February 16, 2011

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Review from Guidestar
February 16, 2011

My HLAA chapter in Michigan has given me and my family encouragement, support, companionship and invaluable information in coping with my quick, unexpected hearing loss eight years ago. Without HLAA I would know nothing about assistive listening devices, CART, and the Americans with Disabilities Act. It is so encouraging to know that I am not alone and that there is help out there for me. The national conventions are packed with information about coping with hearing loss, hearing aids, cochlear implants, emergency warning devices, other support groups, rights guaranteed by the ADA, and whatever else a person with hearing loss needs to live life as fully as possible.

HLAA's advocacy efforts in securing captioned television and movies, hearing-aid compatible phones, captioned airport announcements, hotel accessibility have helped me and millions of other hearing impaired people.

The Great!

I've personally experienced the results of this organization in...

Every time I turn on the television with closed captioning, when I travel alone with my vibrating alarm clock, in being able to tell others what I need from them to facilitate communication.

Ways to make it better...

If I had to make changes to this organization, I would...

Find a way to let more hard of hearing people know about the work of the organization and how they already benefit from its work.

More feedback...

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Quite well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2011

February 15, 2011

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Review from Guidestar
February 15, 2011

The HLAA are so helpful. I experienced left ear deafness suddenly. My group has been so supportive as I adjust to this 'new normal'.

The Great!

I've personally experienced the results of this organization in...

Coping with hearing loss.

Ways to make it better...

If I had to make changes to this organization, I would...

No chages.

February 15, 2011

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Review from Guidestar
February 15, 2011

I have worked with this organization for over 20 years, and know that they are a WONDERFUL organization! They help all folks with any sort of hearing loss by providing key support and information. They are a valuable asset to people who have a hearing loss.

The Great!

I've personally experienced the results of this organization in...

Knowing people who have been helped by their generosity.

Ways to make it better...

If I had to make changes to this organization, I would...

Can't think of any changes.

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